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The Scleroderma Patient-Centered Intervention Network Cohort: baseline clinical features and comparison with other large scleroderma cohorts.
Dougherty, Dane H; Kwakkenbos, Linda; Carrier, Marie-Eve; Salazar, Gloria; Assassi, Shervin; Baron, Murray; Bartlett, Susan J; Furst, Daniel E; Gottesman, Karen; van den Hoogen, Frank; Malcarne, Vanessa L; Mouthon, Luc; Nielson, Warren R; Poiraudeau, Serge; Sauvé, Maureen; Boire, Gilles; Bruns, Alessandra; Chung, Lorinda; Denton, Christopher; Dunne, James V; Fortin, Paul; Frech, Tracy; Gill, Anna; Gordon, Jessica; Herrick, Ariane L; Hinchcliff, Monique; Hudson, Marie; Johnson, Sindhu R; Jones, Niall; Kafaja, Suzanne; Larché, Maggie; Manning, Joanne; Pope, Janet; Spiera, Robert; Steen, Virginia; Sutton, Evelyn; Thorne, Carter; Wilcox, Pearce; Thombs, Brett D; Mayes, Maureen D.
Afiliación
  • Dougherty DH; Department of Internal Medicine, Division of Rheumatology, University of Texas McGovern Medical School, Houston, TX, USA.
  • Kwakkenbos L; Department of Psychiatry, McGill University, Montreal, QC, Canada.
  • Carrier ME; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.
  • Salazar G; Behavioural Science Institute, Clinical Psychology, Radboud University, Nijmegen, the Netherlands.
  • Assassi S; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.
  • Baron M; Department of Internal Medicine, Division of Rheumatology, University of Texas McGovern Medical School, Houston, TX, USA.
  • Bartlett SJ; Department of Internal Medicine, Division of Rheumatology, University of Texas McGovern Medical School, Houston, TX, USA.
  • Furst DE; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.
  • Gottesman K; Department of Medicine, McGill University, Montreal, QC, Canada.
  • van den Hoogen F; Department of Medicine, McGill University, Montreal, QC, Canada.
  • Malcarne VL; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, MD, USA.
  • Mouthon L; McGill University Health Center, Montréal, QC, Canada.
  • Nielson WR; Division of Rheumatology, Geffen School of Medicine, University of California, Los Angeles, Los Angeles, CA, USA.
  • Poiraudeau S; Medicine, University of Washington, Seattle, WA, USA.
  • Sauvé M; Medicine, University of Florence, Florence, Italy.
  • Boire G; Scleroderma Foundation, Danvers, MA, USA.
  • Bruns A; Department of Rheumatology, Radboud University Medical Center, Nijmegen, The Netherlands.
  • Chung L; Department of Rheumatology, Sint Maartenskliniek, Nijmegen, The Netherlands.
  • Denton C; Department of Psychology, San Diego State University, San Diego, CA, USA.
  • Dunne JV; San Diego Joint Doctoral Program in Clinical Psychology, San Diego State University/University of California, San Diego, CA, USA.
  • Fortin P; Médecine interne, Université Paris Descartes, Assistance Publique-Hôpitaux de Paris, France.
  • Frech T; Service de Médecine Interne, Centre de Référence Maladies Systémiques Autoimmunes Rares, vascularites nécrosantes et sclérodermie systémique, Hôpital Cochin, Paris, France.
  • Gill A; Beryl & Richard Ivey Rheumatology Day Programs, St Joseph's Health Care, London, ON, Canada.
  • Gordon J; Lawson Health Research Institute, London, ON, Canada.
  • Herrick AL; Médecine interne, Université Paris Descartes, Assistance Publique-Hôpitaux de Paris, France.
  • Hinchcliff M; Service de Médecine Physique et Réadaptation, Hôpital Cochin, France.
  • Hudson M; IFR Handicap INSERM, Paris, France.
  • Johnson SR; Scleroderma Society of Ontario, Hamilton.
  • Jones N; Scleroderma Society of Canada, Ottawa, ON, Canada.
  • Kafaja S; Département de médecine, Sherbrooke University, Sherbrooke, QC, Canada.
  • Larché M; Département de médecine, Sherbrooke University, Sherbrooke, QC, Canada.
  • Manning J; Medicine - Med/Immunology & Rheumatology, Stanford University, Stanford, CA, USA.
  • Pope J; Department of Rheumatology, Royal Free London Hospital, London, UK.
  • Spiera R; Rheumatology, St Paul's Hospital, University of British Columbia, Vancouver, BC, Canada.
  • Steen V; Department of Medicine, University of British Columbia, Vancouver, BC, Canada.
  • Sutton E; Département de médecine, Université Laval, Québec, QC, Canada.
  • Thorne C; Internal Medicine, University of Utah, Salt Lake City, UT, USA.
  • Wilcox P; Rheumatology, St Paul's Hospital, University of British Columbia, Vancouver, BC, Canada.
  • Thombs BD; Department of Rheumatology, Hospital for Special Surgery, New York City, NY, USA.
  • Mayes MD; Division of Musculoskeletal & Dermatological Sciences, University of Manchester, Salford Royal NHS Foundation Trust, Manchester, UK.
Rheumatology (Oxford) ; 57(9): 1623-1631, 2018 09 01.
Article en En | MEDLINE | ID: mdl-29868924
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Esclerodermia Sistémica / Satisfacción del Paciente / Atención Dirigida al Paciente / Medición de Resultados Informados por el Paciente Tipo de estudio: Diagnostic_studies / Observational_studies / Prevalence_studies / Prognostic_studies / Risk_factors_studies Aspecto: Patient_preference Límite: Female / Humans / Male / Middle aged País/Región como asunto: America do norte / Europa Idioma: En Revista: Rheumatology (Oxford) Asunto de la revista: REUMATOLOGIA Año: 2018 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Reino Unido
Texto completo
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Esclerodermia Sistémica / Satisfacción del Paciente / Atención Dirigida al Paciente / Medición de Resultados Informados por el Paciente Tipo de estudio: Diagnostic_studies / Observational_studies / Prevalence_studies / Prognostic_studies / Risk_factors_studies Aspecto: Patient_preference Límite: Female / Humans / Male / Middle aged País/Región como asunto: America do norte / Europa Idioma: En Revista: Rheumatology (Oxford) Asunto de la revista: REUMATOLOGIA Año: 2018 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Reino Unido