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The Effectiveness of a Hospital-Based School Liaison Program: A Comparative Study of Parental Perception of School Supports for Children With Pediatric Cancer and Neurofibromatosis Type 1.
Northman, Lisa; Morris, Marybeth; Loucas, Caitlyn; Ross, Sarah; Muriel, Anna C; Guo, Dongjing; London, Wendy B; Manley, Peter; Ullrich, Nicole J.
Afiliación
  • Northman L; 1 Dana-Farber Cancer Institute, Boston, MA, USA.
  • Morris M; 1 Dana-Farber Cancer Institute, Boston, MA, USA.
  • Loucas C; 1 Dana-Farber Cancer Institute, Boston, MA, USA.
  • Ross S; 1 Dana-Farber Cancer Institute, Boston, MA, USA.
  • Muriel AC; 1 Dana-Farber Cancer Institute, Boston, MA, USA.
  • Guo D; 1 Dana-Farber Cancer Institute, Boston, MA, USA.
  • London WB; 2 Boston Children's Hospital, Boston, MA, USA.
  • Manley P; 1 Dana-Farber Cancer Institute, Boston, MA, USA.
  • Ullrich NJ; 2 Boston Children's Hospital, Boston, MA, USA.
J Pediatr Oncol Nurs ; 35(4): 276-286, 2018.
Article en En | MEDLINE | ID: mdl-29600747
Childhood survivors of central nervous system (CNS) cancers (defined as cancers whose diagnosis or treatment affect the CNS) are at increased risk for educational related difficulties, as are children affected by neurofibromatosis type 1. This study evaluated the effectiveness of and satisfaction with a model of psychoeducation, consultation, and advocacy provided by a School Liaison Program (SLP) for families and schools of children with CNS-involved cancers compared with a control group of parents of children with a diagnosis of neurofibromatosis type 1 who did not receive school-based services. Results indicated significant between-group differences in parents' belief that their child is meeting academic potential, with parents who received SLP services reporting greater satisfaction with their child's progress, better understanding of their child's learning needs, and an increased ability to access school supports. The strong, positive impact associated with the consultation, psychoeducation, and parental advocacy training provided by the SLP suggests that a similar model of care would potentially benefit other groups of children whose neurocognitive functioning is compromised by chronic medical conditions.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Padres / Derivación y Consulta / Servicios de Salud Escolar / Neurofibromatosis 1 / Niños con Discapacidad / Supervivientes de Cáncer Tipo de estudio: Evaluation_studies Límite: Adolescent / Adult / Child / Female / Humans / Male / Middle aged Idioma: En Revista: J Pediatr Oncol Nurs Asunto de la revista: ENFERMAGEM / NEOPLASIAS / PEDIATRIA Año: 2018 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Estados Unidos
Texto completo
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Padres / Derivación y Consulta / Servicios de Salud Escolar / Neurofibromatosis 1 / Niños con Discapacidad / Supervivientes de Cáncer Tipo de estudio: Evaluation_studies Límite: Adolescent / Adult / Child / Female / Humans / Male / Middle aged Idioma: En Revista: J Pediatr Oncol Nurs Asunto de la revista: ENFERMAGEM / NEOPLASIAS / PEDIATRIA Año: 2018 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Estados Unidos