Implications of a paediatrician-psychologist tandem for sickle cell disease care and impact on cognitive functioning.
Eur J Pediatr
; 177(2): 193-203, 2018 Feb.
Article
en En
| MEDLINE
| ID: mdl-29185057
Sickle cell disease (SCD), a life-threatening chronic disease, necessitates a paediatric treatment plan that considers the influence of psychological, family and intercultural factors. At the Louis-Mourier Hospital (APHP) in Colombes, France, we introduced an original paediatric-psychological partnership where a clinical psychologist accompanies the paediatrician at programmed consultations. We evaluated children and their parents treated in Colombes and in two other paediatric units using standardized culture-free tools and clinical interviews to evaluate the psychological repercussions of SCD. We first present a global view of the different ways that SCD affects both children and their families. We then discuss findings from a study evaluating the overall efficacy of an integrated psycho-medical treatment model as compared to the usual medical care model. Children in the integrated care model improved their cognitive functioning assessed using the Rey-Osterrieth complex figure test compared to treatment as usual. CONCLUSION: Findings suggest that the concept of a "partnership practice" can improve children's ability to grapple with SCD and is a promising approach for long-term care of SCD. What is Known: ⢠Painful crises of sickle cell disease are unpredictable and appear in early childhood ⢠Stress as well as the complex psychological and intercultural issues associated with SCD may aggravate the children's symptoms ⢠Standard pediatric care and research deal primarily with medical issues What is New: ⢠Evidence-based research examining the psychological repercussions of SCD in pediatric treatment as well as the parental distress ⢠First study using standardized culture-free tools ⢠Cognitive functioning improves under an innovative "partnership" model.
Palabras clave
Texto completo:
1
Colección:
01-internacional
Base de datos:
MEDLINE
Asunto principal:
Práctica Asociada
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Grupo de Atención al Paciente
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Pediatría
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Psicología Clínica
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Cognición
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Anemia de Células Falciformes
Tipo de estudio:
Observational_studies
/
Prognostic_studies
/
Qualitative_research
/
Risk_factors_studies
Límite:
Adolescent
/
Child
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Child, preschool
/
Female
/
Humans
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Infant
/
Male
País/Región como asunto:
Europa
Idioma:
En
Revista:
Eur J Pediatr
Año:
2018
Tipo del documento:
Article
País de afiliación:
Francia
Pais de publicación:
Alemania