Core information set for informed consent to surgery for oral or oropharyngeal cancer: A mixed-methods study.

Main, B G; McNair, A G K; Haworth, S; Rooshenas, L; Hughes, C W; Tierney, P; Donovan, J L; Thomas, S J; Blazeby, J M

Main, B G; McNair, A G K; Haworth, S; Rooshenas, L; Hughes, C W; Tierney, P; Donovan, J L; Thomas, S J; Blazeby, J M.

Afiliación

Main BG; School of Social and Community Medicine, University of Bristol, Bristol, UK.
McNair AGK; University Hospitals Bristol NHS Foundation Trust, Bristol, UK.
Haworth S; School of Social and Community Medicine, University of Bristol, Bristol, UK.
Rooshenas L; School of Social and Community Medicine, University of Bristol, Bristol, UK.
Hughes CW; School of Oral and Dental Sciences, University of Bristol, Bristol, UK.
Tierney P; School of Social and Community Medicine, University of Bristol, Bristol, UK.
Donovan JL; University Hospitals Bristol NHS Foundation Trust, Bristol, UK.
Thomas SJ; School of Oral and Dental Sciences, University of Bristol, Bristol, UK.
Blazeby JM; University Hospitals Bristol NHS Foundation Trust, Bristol, UK.

Clin Otolaryngol ; 43(2): 624-631, 2018 04.

Article en En | MEDLINE | ID: mdl-29178168

RESUMEN

OBJECTIVES: To develop a core information set for informed consent to surgery for oral/oropharyngeal surgery. A core information set is baseline information rated important by patients and surgeons and is intended to improve patients' understanding of the intended procedure. DESIGN: A mixed-methods study. Systematic reviews of scientific and written healthcare literature, qualitative interviews and observations, Delphi surveys, and group consensus meetings identified information domains of importance for consent. SETTING: A regional head and neck clinic in the United Kingdom. Questionnaire participants were recruited from around the UK. PARTICIPANTS: Patients about to undergo, or who had previously undergone, surgery for oral/oropharyngeal cancer. Healthcare professionals involved in the management of head and neck cancer. MAIN OUTCOME MEASURES: The main outcome was a core information set. RESULTS: Systematic reviews, interviews and consultation observations yielded 887 pieces of information that were categorised into 87 information domains. Survey response rates were 67% (n = 50) and 71% (n = 52) for patient and healthcare professional groups in round one. More than 90% responded in each group in the second round. Healthcare professionals were more likely to rate information about short-term or peri-operative events as important while patients rated longer term issues about survival and quality of life. The consensus-building process resulted in an agreed core information set of 13 domains plus two procedure-specific domains about tracheostomy and free-flap surgery. CONCLUSION: This study produced a core information set for surgeons and patients to discuss before surgery for oral/oropharyngeal cancer. Future work will optimise ways to integrate core information into routine consultations.

Asunto(s)

Revelación; Consentimiento Informado; Neoplasias de la Boca/cirugía; Neoplasias Orofaríngeas/cirugía; Adulto; Anciano; Anciano de 80 o más Años; Técnica Delphi; Femenino; Humanos; Masculino; Persona de Mediana Edad; Investigación Cualitativa; Reino Unido; Adulto Joven

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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Neoplasias de la Boca / Neoplasias Orofaríngeas / Revelación / Consentimiento Informado Tipo de estudio: Qualitative_research Aspecto: Patient_preference Límite: Adult / Aged / Aged80 / Female / Humans / Male / Middle aged País/Región como asunto: Europa Idioma: En Revista: Clin Otolaryngol Asunto de la revista: OTORRINOLARINGOLOGIA Año: 2018 Tipo del documento: Article Pais de publicación: Reino Unido

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