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Factors related to home health-care transition in trisomy 13.
Kitase, Yuma; Hayakawa, Masahiro; Kondo, Taiki; Saito, Akiko; Tachibana, Takashi; Oshiro, Makoto; Ieda, Kuniko; Kato, Eiko; Kato, Yuichi; Hattori, Tetsuo; Hayashi, Seiji; Ito, Masatoki; Hyodo, Reina; Muramatsu, Yukako; Sato, Yoshiaki.
Afiliación
  • Kitase Y; Division of Neonatology, Center for Maternal-Neonatal Care Nagoya University Hospital, Nagoya, Japan.
  • Hayakawa M; Division of Neonatology, Center for Maternal-Neonatal Care Nagoya University Hospital, Nagoya, Japan.
  • Kondo T; Division of Neonatology, Center for Maternal-Neonatal Care Nagoya University Hospital, Nagoya, Japan.
  • Saito A; Division of Neonatology, Center for Maternal-Neonatal Care Nagoya University Hospital, Nagoya, Japan.
  • Tachibana T; Department of Neonatology, Japanese Red Cross Nagoya Daiichi Hospital, Nagoya, Japan.
  • Oshiro M; Department of Neonatology, Japanese Red Cross Nagoya Daiichi Hospital, Nagoya, Japan.
  • Ieda K; Department of Pediatrics, Tosei General Hospital, Alchi, Japan.
  • Kato E; Department of Pediatrics, Tosei General Hospital, Alchi, Japan.
  • Kato Y; Department of Pediatrics, Anjo Kosei Hospital, Alchi, Japan.
  • Hattori T; Department of Pediatrics, Anjo Kosei Hospital, Alchi, Japan.
  • Hayashi S; Department of Pediatrics, Okazaki City Hospital, Alchi, Japan.
  • Ito M; Department of Pediatrics (2), Ogaki Municipal Hospital, Ogaki, Japan.
  • Hyodo R; Department of Pediatrics (2), Ogaki Municipal Hospital, Ogaki, Japan.
  • Muramatsu Y; Department of Pediatrics, Central Hospital, Aichi Human Service Center, Alchi, Japan.
  • Sato Y; Division of Neonatology, Center for Maternal-Neonatal Care Nagoya University Hospital, Nagoya, Japan.
Am J Med Genet A ; 173(10): 2635-2640, 2017 Oct.
Article en En | MEDLINE | ID: mdl-28856870
Trisomy 13 (T13) is accompanied by severe complications, and it can be challenging to achieve long-term survival without aggressive treatment. However, recently, some patients with T13 have been receiving home care. We conducted this study to investigate factors related to home health-care transition for patients with T13.We studied 28 patients with T13 born between January 2000 and December 2014. We retrospectively compared nine home care transition patients (the home care group) and 19 patients that died during hospitalization (the discharge at death group). The median gestational age of the patients was 36.6 weeks, with a median birth weight of 2,047 g. Currently, three patients (11%) have survived, and 25 (89%) have died. The home care group exhibited a significantly longer gestational age (38.9 vs. 36.3 weeks, p = 0.039) and significantly larger occipitofrontal circumference Z score (-0.04 vs. -0.09, p = 0.019). Congenital heart defects (CHD) was more frequent in the discharge at death group, with six patients in the home care group and 18 patients in the discharge at death group (67% vs. 95%, p = 0.047), respectively. Survival time was significantly longer in the home care group than in the discharge at death group (171 vs. 19 days, p = 0.012). This study has shown that gestational age, occipitofrontal circumference Z score at birth, and the presence of CHD are helpful prognostic factors for determining treatment strategy in patients with T13.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Cromosomas Humanos Par 13 / Síndrome de la Trisomía 13 / Servicios de Atención de Salud a Domicilio / Hospitalización Tipo de estudio: Observational_studies / Prognostic_studies Límite: Adult / Female / Humans / Male / Newborn Idioma: En Revista: Am J Med Genet A Asunto de la revista: GENETICA MEDICA Año: 2017 Tipo del documento: Article País de afiliación: Japón Pais de publicación: Estados Unidos
Texto completo
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Cromosomas Humanos Par 13 / Síndrome de la Trisomía 13 / Servicios de Atención de Salud a Domicilio / Hospitalización Tipo de estudio: Observational_studies / Prognostic_studies Límite: Adult / Female / Humans / Male / Newborn Idioma: En Revista: Am J Med Genet A Asunto de la revista: GENETICA MEDICA Año: 2017 Tipo del documento: Article País de afiliación: Japón Pais de publicación: Estados Unidos