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Development and validation of a patient-reported outcome measure in vitiligo: The Self Assessment Vitiligo Extent Score (SA-VES).
van Geel, Nanja; Lommerts, Janny E; Bekkenk, Marcel W; Prinsen, Cecilia A C; Eleftheriadou, Viktoria; Taieb, Alain; Picardo, Mauro; Ezzedine, Khaled; Wolkerstorfer, Albert; Speeckaert, Reinhart.
Afiliación
  • van Geel N; Department of Dermatology, Ghent University Hospital, Ghent, France. Electronic address: Nanja.vangeel@UGent.be.
  • Lommerts JE; Department of Dermatology, University of Amsterdam and Netherlands Institute for Pigment Disorders, Amsterdam, The Netherlands.
  • Bekkenk MW; Department of Dermatology, University of Amsterdam and Netherlands Institute for Pigment Disorders, Amsterdam, The Netherlands.
  • Prinsen CA; VU University Medical Center, Department of Epidemiology and Biostatistics, EMGO Institute for Health and Care Research, Amsterdam, The Netherlands.
  • Eleftheriadou V; Centre of Evidence Based Dermatology, University of Nottingham, Nottingham, United Kingdom.
  • Taieb A; National Reference Center for Rare Skin Diseases, Hôpital St-André, University Hospital Center of Bordeaux, Bordeaux, France.
  • Picardo M; San Gallicano Dermatology Institute, Via Elio Chianesi, Roma, Italy.
  • Ezzedine K; EA EpiDermE (Epidémiologie en Dermatologie et Evaluation des Thérapeutiques), UPE-Université Paris-Est, Service de Dermatologie, Hôpital Henri Mondor, Paris, France.
  • Wolkerstorfer A; Department of Dermatology, University of Amsterdam and Netherlands Institute for Pigment Disorders, Amsterdam, The Netherlands.
  • Speeckaert R; Department of Dermatology, Ghent University Hospital, Ghent, France.
J Am Acad Dermatol ; 76(3): 464-471, 2017 Mar.
Article en En | MEDLINE | ID: mdl-27887798
BACKGROUND: The Vitiligo Extent Score (VES) has recently been introduced as a physicians' score for the clinical assessment of the extent of vitiligo, but a good patient self-assessment score is lacking. OBJECTIVE: The objective is to develop and validate a simplified version of the VES as a patient-reported outcome measure (PROM). METHODS: After extensive pilot testing, patients were asked to score their vitiligo extent twice with an interval of 2 weeks using the Self Assessment Vitiligo Extent Score (SA-VES). The scores were compared with the physicians' evaluation (VES). RESULTS: The SA-VES demonstrated very good test-retest reliability (intraclass correlation = 0.948, 95% confidence interval [CI]: 0.911-0.970) that was not affected by age, skin type, or vitiligo distribution pattern. According to patients, this evaluation method was easy to use (22% very easy; 49% easy; 29% normal) and required <5 minutes in the majority of patients (73%, <5 minutes; 24%, 5-10 minutes; 2%, 10-15 minutes). Comparison of the SA-VES and the VES demonstrated excellent correlation (r = 0.986, P <.001). LIMITATIONS: Few patients had a dark skin type. CONCLUSION: The results demonstrate excellent reliability of the SA-VES and excellent correlation with its investigator-reported counterpart (VES). This patient-oriented evaluation method provides a useful tool for the assessment of vitiligo extent.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Vitíligo / Índice de Severidad de la Enfermedad / Medición de Resultados Informados por el Paciente Tipo de estudio: Diagnostic_studies Aspecto: Patient_preference Límite: Adolescent / Adult / Child / Female / Humans / Male / Middle aged Idioma: En Revista: J Am Acad Dermatol Año: 2017 Tipo del documento: Article Pais de publicación: Estados Unidos
Texto completo
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Vitíligo / Índice de Severidad de la Enfermedad / Medición de Resultados Informados por el Paciente Tipo de estudio: Diagnostic_studies Aspecto: Patient_preference Límite: Adolescent / Adult / Child / Female / Humans / Male / Middle aged Idioma: En Revista: J Am Acad Dermatol Año: 2017 Tipo del documento: Article Pais de publicación: Estados Unidos