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Negotiating role management through everyday activities: narratives in action of two stroke survivors and their spouses.
Satink, Ton; Josephsson, Staffan; Zajec, Jana; Cup, Edith H C; de Swart, Bert J M; Nijhuis-van der Sanden, Maria W G.
Afiliación
  • Satink T; a Department of Occupational Therapy and Research Group Neurorehabilitation , HAN University of Applied Sciences , Nijmegen , The Netherlands ;
  • Josephsson S; b Department of Rehabilitation Radboud University Medical Centre , Radboud Institute for Health Sciences, Scientific Institute for Quality of Health Care , Nijmegen , The Netherlands ;
  • Zajec J; c Department of Neurobiology, Division of Occupational Therapy , Caring Science and Society, Karolinska Institute , Stockholm , Sweden ;
  • Cup EH; d Department of Occupational Therapy, Faculty of Health Science , Sør-Trøndelag University College , Trondheim , Norway ;
  • de Swart BJ; b Department of Rehabilitation Radboud University Medical Centre , Radboud Institute for Health Sciences, Scientific Institute for Quality of Health Care , Nijmegen , The Netherlands ;
  • Nijhuis-van der Sanden MW; b Department of Rehabilitation Radboud University Medical Centre , Radboud Institute for Health Sciences, Scientific Institute for Quality of Health Care , Nijmegen , The Netherlands ;
Disabil Rehabil ; 38(24): 2354-64, 2016 12.
Article en En | MEDLINE | ID: mdl-26854923
PURPOSE: To manage social roles is a challenging part of self-management post-stroke. This study explored how stroke survivors act as role managers with their spouses in the context of everyday activities. METHOD: Two stroke survivors with a first time stroke living at home with a spouse were included. Data were generated through participant observations at their own environment at 3, 6, 9, 15 and 21 months post-discharge. The narrative analysis focused on the actions of participants. RESULTS: Daily activities can be understood as an arena where role management and a meaningful live is negotiated and co-constructed with others. Everyday activities gave stroke survivors and their spouses insight into stroke survivors' capacities in daily situations. This was sometimes empowering, and other times conflicting when a spouse had negative perceptions of the abilities of the stroke survivors. CONCLUSION: The findings add to the current understanding of self-management and role management with regard to how these are situated in everyday activities. Daily activities can help both spouses to reflect and understand about self-management, role management and comanagement in daily life. Moreover, observing stroke survivors in everyday situations provides professionals with concrete pictures of stroke survivors' performance and self-management in interaction with their spouses. Implications for Rehabilitation Self-management is a dynamic process in which individuals actively manage a chronic condition and finally live a meaningful life with a long-term chronic condition; self-management can be divided into medical, role, and emotional management; comanagement is when individuals activate resources and use the capacities of other persons to manage a situation together. Self-management is situated in everyday activities. Everyday activities give stroke survivors ánd their partners impressions about stroke survivors' self-management abilities post-stroke in an everyday context. Everyday activities give stroke survivors ánd their partners an arena where role management and a meaningful life are negotiated and coconstructed through doing. Observing stroke survivors in everyday situations provides professionals a concreter picture of stroke survivors' self-management and comanagement with their partners than can be obtained from an informal interview.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Actividades Cotidianas / Negociación / Esposos / Accidente Cerebrovascular / Rehabilitación de Accidente Cerebrovascular Tipo de estudio: Qualitative_research Límite: Aged / Female / Humans / Male Idioma: En Revista: Disabil Rehabil Asunto de la revista: REABILITACAO Año: 2016 Tipo del documento: Article Pais de publicación: Reino Unido

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Actividades Cotidianas / Negociación / Esposos / Accidente Cerebrovascular / Rehabilitación de Accidente Cerebrovascular Tipo de estudio: Qualitative_research Límite: Aged / Female / Humans / Male Idioma: En Revista: Disabil Rehabil Asunto de la revista: REABILITACAO Año: 2016 Tipo del documento: Article Pais de publicación: Reino Unido