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Changing the research landscape: the New York City Clinical Data Research Network.
Kaushal, Rainu; Hripcsak, George; Ascheim, Deborah D; Bloom, Toby; Campion, Thomas R; Caplan, Arthur L; Currie, Brian P; Check, Thomas; Deland, Emme Levin; Gourevitch, Marc N; Hart, Raffaella; Horowitz, Carol R; Kastenbaum, Isaac; Levin, Arthur Aaron; Low, Alexander F H; Meissner, Paul; Mirhaji, Parsa; Pincus, Harold A; Scaglione, Charles; Shelley, Donna; Tobin, Jonathan N.
Afiliación
  • Kaushal R; Weill Cornell Medical College, New York, New York, USA NewYork-Presbyterian, New York, New York, USA.
  • Hripcsak G; Columbia University, New York, New York, USA.
  • Ascheim DD; Icahn School of Medicine at Mount Sinai, New York, New York, USA.
  • Bloom T; New York Genome Center, New York, New York, USA.
  • Campion TR; Weill Cornell Medical College, New York, New York, USA.
  • Caplan AL; New York University Langone Medical Center, New York, New York, USA.
  • Currie BP; Montefiore Medical Center/Albert Einstein College of Medicine, Bronx, New York, USA.
  • Check T; Healthix, New York, New York, USA.
  • Deland EL; NewYork-Presbyterian, New York, New York, USA.
  • Gourevitch MN; New York University Langone Medical Center, New York, New York, USA.
  • Hart R; Biomedical Research Alliance of New York Institutional Review Board, Lake Success, New York, USA.
  • Horowitz CR; Icahn School of Medicine at Mount Sinai, New York, New York, USA.
  • Kastenbaum I; NewYork-Presbyterian, New York, New York, USA.
  • Levin AA; Center for Medical Consumers, New York, New York, USA.
  • Low AF; Weill Cornell Medical College, New York, New York, USA.
  • Meissner P; Montefiore Medical Center/Albert Einstein College of Medicine, Bronx, New York, USA.
  • Mirhaji P; Montefiore Medical Center/Albert Einstein College of Medicine, Bronx, New York, USA.
  • Pincus HA; NewYork-Presbyterian, New York, New York, USA Columbia University, New York, New York, USA.
  • Scaglione C; Bronx RHIO (Bronx Regional Informatics Center), Bronx, New York, USA.
  • Shelley D; New York University Langone Medical Center, New York, New York, USA.
  • Tobin JN; Clinical Directors Network, New York, New York, USA The Rockefeller University, New York, New York, USA.
J Am Med Inform Assoc ; 21(4): 587-90, 2014.
Article en En | MEDLINE | ID: mdl-24821739
The New York City Clinical Data Research Network (NYC-CDRN), funded by the Patient-Centered Outcomes Research Institute (PCORI), brings together 22 organizations including seven independent health systems to enable patient-centered clinical research, support a national network, and facilitate learning healthcare systems. The NYC-CDRN includes a robust, collaborative governance and organizational infrastructure, which takes advantage of its participants' experience, expertise, and history of collaboration. The technical design will employ an information model to document and manage the collection and transformation of clinical data, local institutional staging areas to transform and validate data, a centralized data processing facility to aggregate and share data, and use of common standards and tools. We strive to ensure that our project is patient-centered; nurtures collaboration among all stakeholders; develops scalable solutions facilitating growth and connections; chooses simple, elegant solutions wherever possible; and explores ways to streamline the administrative and regulatory approval process across sites.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Redes de Comunicación de Computadores / Evaluación de Resultado en la Atención de Salud / Atención Dirigida al Paciente / Registros Electrónicos de Salud Tipo de estudio: Guideline / Prognostic_studies Límite: Humans País/Región como asunto: America do norte Idioma: En Revista: J Am Med Inform Assoc Asunto de la revista: INFORMATICA MEDICA Año: 2014 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Reino Unido
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Redes de Comunicación de Computadores / Evaluación de Resultado en la Atención de Salud / Atención Dirigida al Paciente / Registros Electrónicos de Salud Tipo de estudio: Guideline / Prognostic_studies Límite: Humans País/Región como asunto: America do norte Idioma: En Revista: J Am Med Inform Assoc Asunto de la revista: INFORMATICA MEDICA Año: 2014 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Reino Unido