[What it means for patients to have their illness experiences published in the Internet]. / Wie erleben Patienten die Veröffentlichung ihrer Krankheitserfahrungen im Internet?
Rehabilitation (Stuttg)
; 52(3): 196-201, 2013 06.
Article
en De
| MEDLINE
| ID: mdl-23761208
Aim of the study was to explore meaning and consequences for patients for having their illness experiences published in the internet. Patients who participated in the establishment of a research-based internet website on illness experiences were interviewed about their experiences of taking part in the project. 14 patients with diabetes and 29 patients with chronic pain participated in the follow-up. They were interviewed with an open narrative and semi-structured approach about their motives and experiences of taking part in the project and the impact of the publication on them. Interview transcripts were coded and aggregated in a computer-assisted thematic analysis. Patients unanimously evaluated their participation positively. Many of them reported that it had been an intense and relevant experience, which equalled an intervention. They conveyed that the special effort of the researchers to establish a trustful and caring relationship had proven of value and led to a high identification of the participants with the aims of the website.
Texto completo:
1
Colección:
01-internacional
Base de datos:
MEDLINE
Asunto principal:
Participación del Paciente
/
Entrevistas como Asunto
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Internet
/
Difusión de la Información
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Diabetes Mellitus
/
Dolor Crónico
/
Terapia Narrativa
Tipo de estudio:
Prognostic_studies
/
Qualitative_research
Aspecto:
Patient_preference
Límite:
Adult
/
Aged
/
Female
/
Humans
/
Male
/
Middle aged
Idioma:
De
Revista:
Rehabilitation (Stuttg)
Año:
2013
Tipo del documento:
Article
Pais de publicación:
Alemania