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Information needs of post-menopausal women with hormone receptor positive early-stage breast cancer considering adjuvant endocrine therapy.
Feldman-Stewart, Deb; Madarnas, Yolanda; Mates, Mihaela; Tong, Christine; Grunfeld, Eva; Verma, Shailendra; Carolan, Hannah; Brundage, Michael.
Afiliación
  • Feldman-Stewart D; Division of Cancer Care and Epidemiology, Cancer Research Institute, Queen's University, Kingston, Canada. deb.feldman-stewart@krcc.on.ca
Patient Educ Couns ; 93(1): 114-21, 2013 Oct.
Article en En | MEDLINE | ID: mdl-23747087
OBJECTIVE: To identify questions that post-menopausal women with receptor-positive early-stage breast cancer want answered before their adjuvant-endocrine-therapy decision is made. METHODS: We surveyed patients eligible for adjuvant-endocrine therapy in the previous 3-18 months. Participants rated the importance of getting each of 95 questions answered before the decision is made (options: essential/desired/not important or no opinion/avoid). For each question rated "essential"/"desired", the participant also identified the purpose(s) for the answer: to help her understand, decide, plan, or other reason(s). RESULTS: The response rate was 55% (188/343). Participants rated a mean of 57 (range: 1-95) questions "essential", 80 (range: 1-95) "essential" or "desired", and 2 (range: 0-27) "avoid". Every question was "essential" to ≥31% of participants, and "essential"/"desired" to ≥63%. All but eleven questions were rated as "avoid" by ≥1 participant. The most frequent purposes for "essential" questions were to: understand their situations (mean 45, range: 0-95), decide (mean 18, range: 0-94), and plan (mean 13, range: 0-95). CONCLUSION: Many patients want a lot of information before this decision is made but there is wide variation within the group in both the number and in which questions they want answered. PRACTICE IMPLICATIONS: Patient education in this setting needs to be tailored to the needs of the individual patient.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Participación del Paciente / Neoplasias de la Mama / Educación del Paciente como Asunto / Posmenopausia / Antineoplásicos Hormonales / Evaluación de Necesidades Tipo de estudio: Qualitative_research Aspecto: Patient_preference Límite: Adult / Aged / Aged80 / Female / Humans / Middle aged Idioma: En Revista: Patient Educ Couns Año: 2013 Tipo del documento: Article País de afiliación: Canadá Pais de publicación: Irlanda

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Participación del Paciente / Neoplasias de la Mama / Educación del Paciente como Asunto / Posmenopausia / Antineoplásicos Hormonales / Evaluación de Necesidades Tipo de estudio: Qualitative_research Aspecto: Patient_preference Límite: Adult / Aged / Aged80 / Female / Humans / Middle aged Idioma: En Revista: Patient Educ Couns Año: 2013 Tipo del documento: Article País de afiliación: Canadá Pais de publicación: Irlanda