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Validation of the Portuguese Simple Measure of Impact of Lupus Erythematosus in Youngsters (SMILEY) in Brazil.
Moorthy, L N; Saad-Magalhães, C; Sato, J Oliveira; Len, C A; Vasco, M Brandão; Appenzeller, S; Marini, R; Oliveira, S K Feitosa de; Rodrigues, M; Sztajnbok, F; Almeida, R Gasparello de; Jesus, A Almeida de; Campos, L M; Silva, C A; Peterson, M G E; Hassett, A L; Weiss, E; Verma, S; Dahodwala, M Q; Lehman, T J A.
Afiliación
  • Moorthy LN; Pediatric Rheumatology, University of Medicine and Dentistry of New Jersey/Robert Wood Johnson Medical School, New Brunswick, NJ 08901, USA. lnmoorthy@mac.com
Lupus ; 22(2): 190-7, 2013 Feb.
Article en En | MEDLINE | ID: mdl-23257403
BACKGROUND AND OBJECTIVE: Simple Measure of the Impact of Lupus Erythematosus in Youngsters (SMILEY) is a health-related quality of life (HRQOL) assessment tool for pediatric systemic lupus erythematosus (SLE), which has been translated into Portuguese for Brazil. We are reporting preliminary data on cross-cultural validation and reliability of SMILEY in Portuguese (Brazil). METHODS: In this multi-center cross-sectional study, Brazilian children and adolescents 5-18 years of age with SLE and parents participated. Children and parents completed child and parent reports of Portuguese SMILEY and Portuguese Pediatric Quality of Life Inventory (PedsQL™) Generic and Rheumatology modules. Parents also completed the Childhood Health Assessment Questionnaire (CHAQ). Physicians completed the SLE disease activity index (SLEDAI), Physician's Global Assessment of disease activity (PGA) and Systemic Lupus Erythematosus International Collaborating Clinics ACR Damage Index (SDI). RESULTS: 99 subjects (84 girls) were enrolled; 93 children and 97 parents filled out the SMILEY scale. Subjects found SMILEY relevant and easy to understand and completed SMILEY in 5-15 minutes. Brazilian SMILEY was found to have good psychometric properties (validity and reliability), and the child-parent agreement was moderate. CONCLUSION: SMILEY may eventually be used routinely as a research/clinical tool in Brazil. It may be also adapted for other Portuguese-speaking nations offering critical information regarding the effect of SLE on HRQOL for children with SLE.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Calidad de Vida / Lupus Eritematoso Sistémico Tipo de estudio: Clinical_trials / Etiology_studies / Observational_studies / Prevalence_studies / Risk_factors_studies Aspecto: Patient_preference Límite: Adolescent / Child / Child, preschool / Female / Humans / Male País/Región como asunto: America do sul / Brasil Idioma: En Revista: Lupus Asunto de la revista: REUMATOLOGIA Año: 2013 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Reino Unido
Texto completo
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XML
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Calidad de Vida / Lupus Eritematoso Sistémico Tipo de estudio: Clinical_trials / Etiology_studies / Observational_studies / Prevalence_studies / Risk_factors_studies Aspecto: Patient_preference Límite: Adolescent / Child / Child, preschool / Female / Humans / Male País/Región como asunto: America do sul / Brasil Idioma: En Revista: Lupus Asunto de la revista: REUMATOLOGIA Año: 2013 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Reino Unido