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Patient-reported outcome measures suitable to assessment of patient navigation.
Fiscella, Kevin; Ransom, Sean; Jean-Pierre, Pascal; Cella, David; Stein, Kevin; Bauer, Joseph E; Crane-Okada, Rebecca; Gentry, Sharon; Canosa, Rosalie; Smith, Tenbroeck; Sellers, Jean; Jankowski, Emilia; Walsh, Karyn.
Afiliación
  • Fiscella K; Departments of Family Medicine and Community and Preventive Medicine, University of Rochester School of Medicine and Dentistry, Rochester, NY, USA. Kevin_Fiscella@urmc.rochester.edu
Cancer ; 117(15 Suppl): 3603-17, 2011 Aug.
Article en En | MEDLINE | ID: mdl-21780095
BACKGROUND: Patient-reported outcomes (PROs) are measures completed by patients to capture outcomes that are meaningful and valued by patients. To help standardize PRO measures in patient navigation research and program evaluation, the Patient-Reported Outcomes Working Group (PROWG) was convened as part of the American Cancer Society's National Patient Navigator Leadership Summit. METHODS: The PROWG consisted of clinicians, researchers, and program managers from a variety of perspectives who developed a set of recommended PRO measures across the cancer continuum (ie, screening, diagnostic follow-up, treatment, survivorship, end of life) as well as those useful for assessing family caregivers. Measures were recommended based on face validity, responsiveness to navigation, reliability, and construct validity in relevant populations. Other considerations included readability, existence of multiple language versions, the existence of norm groups, and respondent burden. RESULTS: The PROWG reached consensus on measures for use in the domains of treatment adherence; perceived barriers to care; satisfaction with cancer care; satisfaction with patient navigation services; working alliance with patient navigator; perceived knowledge/competence/self-efficacy; functional assessment/symptom burden; global quality of life; specific quality-of-life symptoms (eg, depression, anxiety); and perceived cultural competency of the navigator. In domains where validated measures were found lacking, recommendations were made for areas of needed scale development. CONCLUSIONS: These measures should guide research and programmatic evaluation of patient navigation.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Satisfacción del Paciente / Evaluación de Resultado en la Atención de Salud / Manejo de Caso / Accesibilidad a los Servicios de Salud / Neoplasias Tipo de estudio: Guideline Aspecto: Determinantes_sociais_saude / Patient_preference Límite: Female / Humans / Male País/Región como asunto: America do norte Idioma: En Revista: Cancer Año: 2011 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Estados Unidos
Texto completo
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XML
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Satisfacción del Paciente / Evaluación de Resultado en la Atención de Salud / Manejo de Caso / Accesibilidad a los Servicios de Salud / Neoplasias Tipo de estudio: Guideline Aspecto: Determinantes_sociais_saude / Patient_preference Límite: Female / Humans / Male País/Región como asunto: America do norte Idioma: En Revista: Cancer Año: 2011 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Estados Unidos