Your browser doesn't support javascript.
loading
Caregiver education in Parkinson's disease: formative evaluation of a standardized program in seven European countries.
A'Campo, L E I; Spliethoff-Kamminga, N G A; Macht, M; Roos, R A C.
Afiliación
  • A'Campo LE; Department of Neurology, Leiden University Medical Center (LUMC), Leiden, The Netherlands. l.e.i.a_campo@lumc.nl
Qual Life Res ; 19(1): 55-64, 2010 Feb.
Article en En | MEDLINE | ID: mdl-19946755
PURPOSE: The formative evaluation of a standardized psychosocial education program for patients with Parkinson's disease (PD) and their caregivers. The results of the participation of the caregivers are presented next to the data of the patients. METHODS: Caregivers (n = 137) and patients with PD (n = 151) participated in the 8-week program in separate groups. Measurements were performed on psychosocial problems (BELA-P/A-k), health state (EQ-5D VAS), quality of life (PDQ-39) and depression (SDS) 1 week before and 1 week after the program. Participants rated their mood on a visual analogue scale before and after each session, and they filled in an evaluation questionnaire after the last session. RESULTS: Scores on the BELA-P/A-k improved significantly on the 'bothered by scale' as well as the 'need for help scale'. No improvements were found on EQ-5D VAS, PDQ-39 and SDS. Mood ratings improved significantly after each session. Most participants evaluated the program as positive. Feedback led to improvements in the program, which are incorporated in a final manual. CONCLUSIONS: The program was feasible to run in the different countries. This exploratory study led to improvements in the program and recommendations for further research. A study on the effectiveness of the program is the next step.
Asunto(s)
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Enfermedad de Parkinson / Calidad de Vida / Conocimientos, Actitudes y Práctica en Salud / Cuidadores / Costo de Enfermedad Tipo de estudio: Evaluation_studies / Prognostic_studies / Qualitative_research Aspecto: Implementation_research / Patient_preference Límite: Aged / Aged80 / Female / Humans / Male / Middle aged País/Región como asunto: Europa Idioma: En Revista: Qual Life Res Asunto de la revista: REABILITACAO / TERAPEUTICA Año: 2010 Tipo del documento: Article País de afiliación: Países Bajos Pais de publicación: Países Bajos
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Enfermedad de Parkinson / Calidad de Vida / Conocimientos, Actitudes y Práctica en Salud / Cuidadores / Costo de Enfermedad Tipo de estudio: Evaluation_studies / Prognostic_studies / Qualitative_research Aspecto: Implementation_research / Patient_preference Límite: Aged / Aged80 / Female / Humans / Male / Middle aged País/Región como asunto: Europa Idioma: En Revista: Qual Life Res Asunto de la revista: REABILITACAO / TERAPEUTICA Año: 2010 Tipo del documento: Article País de afiliación: Países Bajos Pais de publicación: Países Bajos