Your browser doesn't support javascript.
loading
Mostrar: 20 | 50 | 100
Resultados 1 - 20 de 251
Filtrar
2.
J Pediatr ; 274: 114193, 2024 Jul 14.
Artigo em Inglês | MEDLINE | ID: mdl-39004172

RESUMO

OBJECTIVE: To explore racially minoritized families' perceptions on how, and if, physicians should address children's racial identity and concepts of racism within clinical settings. STUDY DESIGN: Parents of racially minoritized children, ages 5 through 18, were interviewed to explore experiences with racial identity formation, discrimination, and the extent to which they wanted pediatricians to address these topics. Children were included at the discretion of their parents. Interviews were transcribed, coded, and analyzed through a critical race theory lens based in constructivist grounded theory. RESULTS: Parents encouraged their children to embrace their racial identities but also wanted to shield them from negative experiences of racism to preserve identity safety. Parents felt pediatricians should address racial issues in a manner specific to their child's situation. Thoughtful inclusion of race-related questions, whether in discussion or on questionnaires, is essential to prevent tension in a therapeutic relationship. There was no consensus on the use of preclinical screening. Instead, families highlighted the importance of embracing humility, trust, and respect. CONCLUSIONS: Participant families have preferences for approaches to address the effects of racism on their children's health. Pediatricians should understand the importance of identity safety and approach their discussions with cultural humility, which includes self-reflection, empathy, active listening, and flexible negotiation. Above all, pediatricians need to create a safe environment for appropriate discussion of these issues.

3.
Artigo em Inglês | MEDLINE | ID: mdl-39063492

RESUMO

BACKGROUND: The aim of this study was to document how Mexico adopted a WHO Framework Convention on Tobacco Control (FCTC)-based national tobacco control law. METHODS: We analyzed publicly available documents and interviewed 14 key stakeholders. We applied the Multiple Streams Framework (MSF) to analyze these findings. RESULTS: Previous attempts to approve comprehensive FCTC-based initiatives failed due to a lack of political will, the tobacco industry's close connections to policymakers, and a lack of health advocacy coordination. Applying the MSF reveals increased attention towards collecting and sharing data to frame the severity of the problem (problem stream). The expansion of a coordinated health advocacy coalition and activities led to increased support for desired FCTC policy solutions (policy stream). The election of President López Obrador and legislative changes led to a deep renewed focus on tobacco control (politics stream). These three streams converged to create a policy window to secure a strong FCTC-based initiative on the political agenda that was ultimately passed. CONCLUSIONS: The Mexican experience illustrates the importance of continued health advocacy and political will in adopting FCTC-based policies. Other countries should follow Mexico's lead by collecting and sharing data through coordinating efforts in order to be prepared to seize political opportunity windows when strong political will is present.


Assuntos
Política de Saúde , Organização Mundial da Saúde , México , Humanos , Política de Saúde/legislação & jurisprudência , Política , Indústria do Tabaco/legislação & jurisprudência , Prevenção do Hábito de Fumar/legislação & jurisprudência , Controle do Tabagismo
4.
Artigo em Inglês | MEDLINE | ID: mdl-38889960

RESUMO

BACKGROUND: Until the legalisation of abortion in Argentina in 2021, the Socorristas en Red, a network of feminist collectives, provided support and information ('accompaniment') to people self-managing their abortion with medications. Following legalisation, the Socorristas continued accompanying people self-managing or accessing abortion through the healthcare system. We conducted a cross-sectional study to understand preferences, experiences and choices about abortion when contacting a Socorristas hotline after legalisation of abortion in Argentina. METHODS: We surveyed callers to the Socorristas' hotline in Neuquén, Argentina about their demographics, pregnancy history, reasons for calling, and experiences seeking abortion through the hotline and the healthcare system. We assessed overall prevalence of these experiences, and analysed differences between people who contacted the health system before calling the hotline and those who first called the hotline for services. RESULTS: Of the 755 callers in the study, the majority (63.3%) contacted the Socorristas because they trusted them, and 21.7% called because they both trusted the Socorristas and did not want to go to the healthcare system. At the end of the call, most people (95.4%) chose to self-manage their abortion with accompaniment outside the healthcare system. People who called the healthcare system prior to contacting the hotline frequently reported being referred to the Socorristas, as well as challenges scheduling appointments. CONCLUSIONS: After legalisation of abortion in Argentina there is continued demand for accompaniment. Globally, ensuring that accompaniment and self-management of abortion is legal and protected will provide individuals with the support and facilitated access to the abortion care they desire.

5.
Contraception ; 136: 110473, 2024 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-38670303

RESUMO

OBJECTIVES: There is little evidence about how physicians become abortion clinicians or advocates. We describe the ideological trajectories of pro-choice female Mexican doctors and the factors that made them pro-choice. STUDY DESIGN: In this qualitative study, we conducted semistructured interviews with members of the Mexican Network of Female Pro-choice Physicians. Participants came from eight diverse states. We used a feminist epistemology approach and analyzed data using inductive coding as well as a priori categories (becoming pro-choice, trajectories, and training). RESULTS: We included 24 female pro-choice physicians. We identified five intersecting factors that influenced becoming pro-choice: feminism, personal experiences, confrontation with the inequalities and violence that women experience, role models, and routine exposure to abortion care. Participants described three ideological trajectories: being pro-choice before studying medicine, not having a specific opinion, and changing from "pro-life" to "pro-choice." Participants described the absence of abortion training in medical schools, stigmatizing training, and the use of alternative training sources. CONCLUSIONS: In the absence of training on abortion during medical education, a combination of intersecting personal as well as work-related experience may turn doctors into pro-choice abortion clinicians and/or advocates. The findings of this study may be used to develop comprehensive medical curricula as well as strategies directed at doctors who have never received training on abortion care, such as promoting interactions with nonmedical abortion providers, education on inequalities and violence against women, moving beyond public health to a human rights and gender perspective, and exposure to routine safe abortion care. IMPLICATIONS: Mexican female doctors become pro-choice clinicians who provide abortion care and/or advocates in spite of their medical education.


Assuntos
Aborto Induzido , Médicas , Pesquisa Qualitativa , Humanos , Feminino , México , Aborto Induzido/psicologia , Médicas/psicologia , Adulto , Pessoa de Meia-Idade , Atitude do Pessoal de Saúde , Feminismo , Gravidez , Comportamento de Escolha
6.
Autism ; : 13623613241238254, 2024 Mar 18.
Artigo em Inglês | MEDLINE | ID: mdl-38500316

RESUMO

LAY ABSTRACT: Caregivers of children with developmental disabilities, including autism, often struggle to access services, information and resources in Argentina. Little is known about how caregivers can be empowered to support their children as they wish to in the Argentinian setting. We spoke with 32 people online to understand existing and potential practices of supporting caregivers. The people we spoke with included caregivers, health service providers, non-governmental organisations' representatives providing services or technical support, special education teachers and policy representatives. Participants said that poverty, and inequalities in accessing support, impact how caregivers can support their children. They mentioned examples that help caregivers feel empowered, such as peer support groups and caregiver training. Many caregivers spoke about how they became advocates for their children and how they developed initiatives such as advocacy campaigns and well-being support groups. Caregivers in Argentina may be empowered in various ways, and the following strategies can improve empowerment: strengthening collaboration between professionals and caregivers; focusing on caregiver mental health; and addressing the profound impact of poverty on the quality of life of families.

7.
Int J Gynaecol Obstet ; 164 Suppl 1: 21-30, 2024 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-38360031

RESUMO

Abortion laws are key in creating an enabling environment that facilitates the advancement of people's sexual and reproductive health and rights. Around 50 countries have liberalized their abortion laws in the last decades by adding new grounds allowing abortion. The road toward the expansion of legal abortion is a long, highly sensitive, and difficult process. The specific role of healthcare providers in influencing abortion law reforms has been scarcely studied. With the objective to better understand their (potential) roles, a qualitative study was conducted in 2021 focusing on three countries that had recently liberalized their abortion regulations: Argentina, South Korea, and Ireland. For each country, key informant interviews were conducted with actors in advocacy for legal change, the majority with healthcare providers. The study results indicate that healthcare providers can contribute to the expansion of legal abortion through their influence on public and legal debates. Healthcare providers were found to be scientifically credible and trustworthy. Their voice and argumentation counteracted anti-rights arguments and addressed information gaps, by providing specific clinical experiences and medical information. Healthcare providers amplified women's experiences through their testimonies and had entry points within governmental bodies, which facilitated their advocacy. These healthcare providers often functioned as individual operating obstetrician/gynecologists or general practitioners who were engaged in networks of health professionals or had previous advocacy experience. In a global context of social and political contention around abortion, extending the engagement of healthcare providers in law and policy deliberation on abortion appears to be useful. This requires recognizing the diversity of roles that healthcare providers can take up, creating a safe environment in which they can operate, equipping them with skills that go beyond the medical expert role and facilitating strategic partnerships that seek complementarity between multiple stakeholders, building on the uniqueness of each stakeholder's expertise.


Assuntos
Aborto Induzido , Aborto Legal , Gravidez , Feminino , Humanos , Argentina , Irlanda , Pessoal de Saúde , República da Coreia
8.
World Neurosurg ; 185: 3-25, 2024 05.
Artigo em Inglês | MEDLINE | ID: mdl-38286319

RESUMO

Exploring the landscape of intracranial aneurysms in South America unravels a complex interplay of epidemiological factors, clinical manifestations, and therapeutic challenges. The study methodically conducts a comprehensive literature review spanning the years 2003 to 2023, focusing on English-language articles obtained from diverse databases to elucidate the multifaceted nature of intracranial aneurysms in the region. Results and discussions categorize outcomes into positive domains, emphasizing successful treatments, favorable recoveries, and high survival rates, while also shedding light on negative aspects such as residual aneurysms and complications. The research illuminates significant gaps in pathological typing of intracranial aneurysms and exposes challenges in healthcare accessibility, notably the disparities in neurosurgical resources. Management challenges, including constrained infrastructure access, a neurosurgeon shortage, and gender disparities, are underscored. Transitioning to future prospects, the study advocates for strategic interventions, proposing expanded neurosurgical training, multidisciplinary approaches, improved funding, enhanced access to care, and fostering international collaborations. The study concludes by emphasizing the pivotal role of collaborative efforts, intensified training programs, and global partnerships in propelling intracranial aneurysm management forward in South America, ultimately contributing to enhanced patient outcomes across the region.


Assuntos
Aneurisma Intracraniano , Humanos , Aneurisma Intracraniano/epidemiologia , Aneurisma Intracraniano/terapia , Aneurisma Intracraniano/cirurgia , América do Sul/epidemiologia , Procedimentos Neurocirúrgicos , Neurocirurgiões , Acessibilidade aos Serviços de Saúde
9.
Physis (Rio J.) ; 34: e34SP107, 2024.
Artigo em Português | LILACS-Express | LILACS | ID: biblio-1558688

RESUMO

Resumo Revisitaremos uma constelação de respostas para garantir justiça reprodutiva para mulheres e meninas durante a crise do Zika no Brasil. As ações relatadas foram conduzidas pela Anis - Instituto de Bioética, uma ONG feminista. Argumentamos que, durante as emergências sanitárias, é necessário o uso de lentes feministas interseccionais para construir respostas efetivas e sensíveis às questões de gênero, em favor de mulheres e meninas. Apresentamos três táticas de incidência utilizadas na luta por justiça reprodutiva durante a crise do Zika: 1) construir narrativas baseadas em histórias de vida que retratem os efeitos desproporcionais da crise em mulheres e meninas; 2) produzir dados baseados em evidências para catalisar estratégias de incidência para revisão legal e de políticas públicas; 3) promover oportunidades para o fortalecimento de alianças e movimentos, bem como o compartilhamento de poder por meio de atividades de mobilização comunitária. Reconhecemos a importância de responder às necessidades das populações em tempo real, e para isso torna-se fundamental que as evidências sobre os impactos das emergências em saúde pública sejam produzidas e compartilhadas de maneira ágil. Os esforços em incidência não são estratégias fragmentadas, pois garantir a justiça reprodutiva exige uma estrutura abrangente e transformadora, incluindo soluções que envolvam o cotidiano das pessoas comuns e suas experiências de vida.


Abstract This article aims to revisit a constellation of responses to guarantee reproductive justice for women and girls during the Zika crisis in Brazil, that were conducted by Anis - Institute of Bioethics, a Brazilian feminist NGO. We argue that intersectional feminist lenses and gender-sensitive responses are necessary to build effective efforts for women and girls during a public health emergency. As such, we present three concomitant and intersectional learned tactics we used to fight for reproductive justice during the Zika crises, but also in its aftermath: 1. To build storytelling narratives that portray the disproportional effects of the crisis on women and girls; 2. To produce evidence-based data to catalyze advocacy strategies for legal and policy review; 3. To promote movement building opportunities and sharing power through community mobilization activities. We assume the importance of providing immediate evidence and gender sensitive framings to inform real-time public health responses. Advocacy efforts should not be seen as fragmented strategies, since ensuring reproductive justice demands a comprehensive and transformative framework that include solutions for multiple aspects of real-life experiences.

10.
Texto & contexto enferm ; 33: e20230148, 2024. tab, graf
Artigo em Inglês | LILACS-Express | LILACS, BDENF - Enfermagem | ID: biblio-1560587

RESUMO

ABSTRACT Objective: To describe the process of implementing a cancer surveillance technical group based on the health advocacy framework. Method: Convergent Care Research addressing 11 representatives of the support and governance system of the healthcare network in a town in Santa Catarina, Brazil. Data were collected from June 2020 to July 2021 in online meetings called convergence groups. The analysis followed the apprehension, synthesis, theorization, and transference steps. Results: The motivations for creating the group included the town's cancer epidemiological context, the need to meet the annual health program, and the professionals' duties in this context. Based on the advocacy framework, the group associated the implementation process with concepts such as integrality, humanization, and professional practice in health. Along this path, strategies were acknowledged and supported the group, such as the establishment and appropriation of philosophical and theoretical bases, in addition to actions such as creating a statute, planning activities, developing instruments, and identifying priorities to implement tasks effectively. Conclusion: Knowledge was exchanged, and a process for providing integral and equitable healthcare in cancer surveillance was developed collectively. Hence, advocacy proved to be a theoretical pillar for the political action of the technical group's members, translating practice into patient rights advocacy.


RESUMEN Objetivo: describir el proceso de implementación de un grupo técnico de vigilancia del cáncer, fundamentado en el referencial de advocacy en salud. Métodos: Investigación Convergente Asistencial realizada con 11 profesionales, representantes de puntos de atención y del sistema de apoyo y gobernanza de la red de atención a la salud de un municipio de Santa Catarina, en Brasil. La recolección fue desarrollada de junio/2020 a julio/2021 en reuniones online denominadas grupos de convergencia. El análisis siguió las etapas de comprensión, síntesis, teorización y transferencia. Resultados: el grupo evidenció como motivaciones para su creación el escenario epidemiológico del cáncer en el municipio, la necesidad de atender la programación anual de salud, y los compromisos profesionales en este contexto. En su proceso de implementación, y a partir del referencial de advocacy en salud, el grupo lo asoció a otros conceptos como la integralidad, la humanización, y el ejercicio profesional en el área de la salud. En este recorrido, fueron reconocidas estrategias iniciales, como la definición y la apropiación de bases filosóficas y teóricas para anclar el grupo, así como estrategias de acciones desde la elaboración de un regimiento, planificación de actividades del grupo, construcción de instrumentos, e identificación de prioridades para implementación efectiva de los trabajos. Conclusión: hubo promoción e intercambio de conocimientos y, colectivamente, se estructuró un proceso para atención integral y ecuánime en la vigilancia del cáncer. Se confirmó el advocacy como pilar teórico para acción política de los profesionales en el grupo técnico, y sus prácticas se traducen en acciones de defesa de los derechos de los usuarios.


RESUMO Objetivo: descrever o processo de implementação de um grupo técnico de vigilância do câncer fundamentado no referencial de advocacy em saúde. Métodos: Pesquisa Convergente Assistencial realizada com 11 profissionais representantes de pontos de atenção e do sistema de apoio e governança da rede de atenção à saúde de um município de Santa Catarina, Brasil. A coleta foi desenvolvida de junho/2020 a julho/2021 em reuniões online denominadas grupos de convergência. A análise seguiu as etapas de apreensão, síntese, teorização e transferência. Resultados: o grupo evidenciou como motivações para sua criação o cenário epidemiológico do câncer no município, a necessidade de atender a programação anual de saúde, e os compromissos profissionais neste contexto. Em seu processo de implementação, e a partir do referencial do advocacy em saúde, o grupo o associou a outros conceitos como a integralidade, a humanização, e o exercício profissional na área da saúde. Neste percurso, foram reconhecidas estratégias iniciais como a definição e a apropriação de bases filosóficas e teóricas para ancorar o grupo, bem como estratégias de ações desde a elaboração de um regimento, planejamento de atividade do grupo, construção de instrumentos, e identificação de prioridades para implementação efetiva dos trabalhos. Conclusão: houve promoção e compartilhamentos de conhecimentos e, coletivamente, estruturou-se um processo para atenção integral e equânime na vigilância do câncer. Confirmou-se o advocacy como pilar teórico para ação política dos profissionais no grupo técnico, e suas práticas traduzem-se em ações de defesa dos direitos dos usuários.

11.
Am J Obstet Gynecol ; 2023 Nov 04.
Artigo em Inglês | MEDLINE | ID: mdl-37926134

RESUMO

The combination of deserts in maternal-fetal medicine coverage across the United States and the COVID-19 pandemic accelerated the implementation of telemedicine programs for maternal-fetal medicine care delivery. Although telemedicine-based care has the potential to facilitate timely access to maternal-fetal medicine services, which can improve maternal and neonatal outcomes, telemedicine is a relatively novel healthcare modality that needs to be implemented strategically. As with any medical service, telemedicine care requires rigorous evaluation to assess outcomes and ensure quality. Important health policy considerations, including access to services and insurance coverage, have substantial implications for equity in the implementation of telemedicine, particularly for reproductive healthcare following the 2022 United States Supreme Court decision in Dobbs v Jackson Women's Health Organization that overturned the constitutional right to an abortion. Investing resources and advocating for a rigorous, widely accessible telemedicine infrastructure at this crucial moment will establish an important foundation for more equitable pregnancy care. Key advocacy priorities for maternal-fetal medicine telemedicine include (1) expanding insurance coverage of telemedicine across payers, regardless of geographic location; (2) advocating for interstate licensure parity; (3) increasing access to affordable Internet and digital literacy training; and (4) ensuring access to reproductive healthcare, including abortion care, delivered via telemedicine.

12.
J Nurs Meas ; 31(4): 534-545, 2023 11 29.
Artigo em Inglês | MEDLINE | ID: mdl-37848231

RESUMO

Background and Purpose: To describe the process of developing and validating the content of the Patient Advocacy Scale for Nurses in Intensive Care (EAPEnf-UTI). Methods: Methodological research. To achieve the elaboration objective, five stages were developed: (a) definition of the theme, (b) generation of the number of items, (c) determination of the measurement format, (d) validation of face and content, and (e) content adjustment. Results: The instrument elaborated from a survey and integrative literature review, and the measurement format chosen was the 5-point Likert scale. The validation of face and content was performed by expert judges and by pretest. The final instrument had 57 items. Conclusion: EAPEnf-UTI is a pioneering instrument built in the Brazilian context, whose future validation will allow the capturing of situations specific to intensive care units and the professional practice of intensive care nurses.


Assuntos
Unidades de Terapia Intensiva , Defesa do Paciente , Humanos , Cuidados Críticos , Reprodutibilidade dos Testes , Inquéritos e Questionários
13.
Rev Panam Salud Publica ; 47: e130, 2023.
Artigo em Inglês | MEDLINE | ID: mdl-37750055

RESUMO

To improve pediatric hematology and oncology outcomes, there is a recognized potential for partnerships between low- and high-resource institutions within health care systems. The SickKids Caribbean Initiative is a partnership between health care professionals at the Hospital for Sick Children in Toronto, Canada, and seven Caribbean institutions across six countries (Bahamas, Barbados, Jamaica, Saint Lucia, Saint Vincent and the Grenadines, and Trinidad and Tobago). The primary aim of the SickKids Caribbean Initiative has been to improve the outcomes and the quality of life of children in the Caribbean aged <18 years who have cancer and blood disorders. This article describes five key activities undertaken within the SickKids Caribbean Initiative, including providing education and training, assisting with case consultations and diagnostic services, developing local oncology databases, engaging in advocacy and ensuring stakeholder engagement, and coordinating administration and project management.


Las colaboraciones de instituciones de recursos bajos y altos dentro de los sistemas de atención de salud tienen un potencial reconocido para mejorar las respuestas a los tratamientos hematológicos y oncológicos pediátricos. La iniciativa SickKids para el Caribe es una asociación entre profesionales de la salud del Hospital for Sick Children de Toronto (Canadá) y siete instituciones de seis países del Caribe (Bahamas, Barbados, Jamaica, Santa Lucía, San Vicente y las Granadinas y Trinidad y Tabago). El objetivo principal de la iniciativa SickKids para el Caribe ha sido mejorar la respuesta a los tratamientos y la calidad de vida de los menores de 18 años del Caribe con cáncer o trastornos hematológicos. En este artículo se describen cinco actividades clave emprendidas en el marco de la iniciativa SickKids para el Caribe, consistentes en impartir formación y capacitación, prestar asistencia en materia de consultas de pacientes y servicios de diagnóstico, crear bases de datos locales en el área de la oncología, participar en actividades de promoción y garantizar la participación de las partes interesadas, y coordinar la administración y gestión de proyectos.


Há um potencial reconhecido para parcerias entre instituições com poucos e muitos recursos dentro dos sistemas de saúde para melhorar os resultados de hematologia e oncologia pediátricas. A iniciativa SickKids no Caribe é uma parceria entre profissionais de saúde do Hospital for Sick Children em Toronto, Canadá, e sete instituições em seis países do Caribe (Bahamas, Barbados, Jamaica, Santa Lúcia, São Vicente e Granadinas e Trinidad e Tobago). O objetivo principal da iniciativa SickKids no Caribe tem sido melhorar os desfechos e a qualidade de vida das crianças caribenhas com menos de 18 anos que têm câncer e doenças hematológicas. Este artigo descreve cinco atividades principais realizadas no âmbito da iniciativa SickKids no Caribe: oferecimento de educação e capacitação; assistência em consultas de casos e serviços diagnósticos; desenvolvimento de bancos de dados locais em oncologia; promoção da causa, assegurando o envolvimento das partes interessadas; e coordenação da administração e da gestão de projetos.

14.
Lancet Reg Health Am ; 26: 100592, 2023 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-37727865

RESUMO

In 2013, the SickKids-Caribbean Initiative (SCI) was formalised among The Hospital for Sick Children in Toronto, Canada, the University of the West Indies, and Ministries of Health in six Caribbean countries (Barbados, The Bahamas, Jamaica, St. Lucia, St. Vincent and the Grenadines, and Trinidad and Tobago). The aim was to improve the outcomes and quality of life of children (<18 years) with cancer and blood disorders in the partner countries. Core activities included filling a human resource gap by training paediatric haematologists/oncologists and specialised registered nurses; improving capacity to diagnose and treat diverse haematology/oncology cases; developing and maintaining paediatric oncology databases; creating ongoing advocacy activities with international agencies, decision makers, and civil society; and establishing an integrated administration, management, and funding structure. We describe core program components, successes, and challenges to inform others seeking to improve health service delivery in a multidisciplinary and complex partnership.

15.
Distúrb. comun ; 35(2): 56880, 02/08/2023.
Artigo em Inglês, Português | LILACS | ID: biblio-1510271

RESUMO

Introdução: o empoderamento está atrelado à autoadvocacia e a aprendizagem de ambos por pessoas com deficiência é fundamental para que essas conquistem o poder pessoal de gerir seus destinos. Objetivo: elencar as estratégias de intervenção utilizadas para o empoderamento do indivíduo com deficiência auditiva. Metodologia: realizou-se busca nas bases de dados Literatura Latino-americana e do Caribe em Ciências da Saúde (LILACS), Public Medicine Library (PubMed) e na ferramenta de buscas Google Acadêmico, por meio do cruzamento de descritores previamente selecionados. Foram incluídos estudos que avaliassem, propusessem estratégias ou discutissem sobre o empoderamento do indivíduo com deficiência auditiva. Resultados: Foram encontrados 186 estudos. Destes, 18 foram lidos na íntegra e 11 foram incluídos nesta revisão. O ano de publicação dos estudos variou de 2011 a 2021. Os estudos incluídos discutem, em algum momento, sobre o empoderamento de indivíduos com deficiência auditiva, porém a minoria propõe e relata resultados de estratégias de intervenção para trabalhar esse aspecto. Os estudos propõem que o empoderamento inicie por meio dos pais, nos centros de intervenção precoce. O empoderamento dos adolescentes com deficiência auditiva faz-se extremamente necessário e estratégias de intervenção em grupo podem ser benéficas para este fim. Somente um estudo brasileiro propôs uma estratégia de intervenção para essa população. Conclusão: O empoderamento deve começar por meio dos pais, logo após o diagnóstico da deficiência auditiva. Adolescentes podem tornar-se modelos para seus pares quanto a esse aspecto e adultos devem ser empoderados antes da adaptação do dispositivo de escuta. (AU)


Introduction: empowerment is linked to self-advocacy and the learning of both by people with disabilities is essential for them to conquer the personal power to manage their destinies. Purpose: to list the intervention strategies used for the empowerment of individuals with hearing impairment. Methodology: a search was carried out in the Latin American and Caribbean Literature in Health Sciences (LILACS), Public Medicine Library (PubMed) databases and in the Google Scholar search engine, by crossing previously selected descriptors. Studies that evaluated, proposed strategies or discussed the empowerment of individuals with hearing impairment were included. Results: 186 studies were found. Of these, 18 were read in full and 11 were included in this review. The year of publication of the studies ranged from 2011 to 2021. The included studies discuss, at some point, the empowerment of individuals with hearing impairment, but the minority proposes and reports results of intervention strategies to work on this aspect. The studies propose that empowerment start through parents, in early intervention centers. The empowerment of adolescents with hearing impairment is extremely necessary and group intervention strategies can be beneficial for this purpose. Only one Brazilian study proposed an intervention strategy for this population. Conclusion: Empowerment must start through the parents, right after the diagnosis of hearing loss. Adolescents can become role models for their peers in this regard and adults must be empowered before adapting the listening device. (AU)


Introducción: el empoderamiento está vinculado a la autogestión y el aprendizaje de ambos por parte de las personas con discapacidad es fundamental para que adquieran el poder personal para gestionar sus destinos. Objetivo: enumerar las estrategias de intervención utilizadas para el empoderamiento de las personas con discapacidad auditiva. Metodología: se realizó una búsqueda en las bases de datos de Literatura Latinoamericana y del Caribe en Ciencias de la Salud (LILACS), Public Medicine Library(PubMed) y en el buscador Google Scholar, cruzando descriptores previamente seleccionados. Se incluyeron estudios que evaluaron, propusieron estrategias o discutieron el empoderamiento de las personas con discapacidad auditiva. Resultados: Se encontraron 186 estudios. De estos, 18 se leyeron en su totalidad y 11 se incluyeron en esta revisión. El año de publicación de los estudios osciló entre 2011 y 2021. Los estudios incluidos discuten, en algún momento, el empoderamiento de las personas con discapacidad auditiva, pero la minoría propone e informa resultados de estrategias de intervención para trabajar en este aspecto. Los estudios proponen que el empoderamiento comience a través de los padres, en los centros de intervención temprana. El empoderamiento de los adolescentes con discapacidad auditiva es extremadamente necesario y las estrategias de intervención grupal pueden ser beneficiosas para este propósito. Solo un estudio brasileño propuso una estrategia de intervención para esta población. Conclusión: El empoderamiento debe comenzar con los padres, inmediatamente después del diagnóstico de pérdida auditiva. Los adolescentes pueden convertirse en modelos a seguir para sus compañeros en este sentido y los adultos deben empoderarse antes de adaptar el dispositivo de escucha. (AU)


Assuntos
Humanos , Fonoaudiologia , Empoderamento , Perda Auditiva , Advocacia em Saúde , Promoção da Saúde
17.
Agora USB ; 23(1)jun. 2023.
Artigo em Espanhol | LILACS-Express | LILACS | ID: biblio-1533572

RESUMO

Los liderazgos comunitarios son expresiones de incidencia política en sí misma. Este artículo propone reconocer los liderazgos comunitarios de mujeres de la Red Juntas Somos Más, sus logros y expresiones de incidencia política en la subregión de Urabá. Adoptamos un enfoque cualitativo y paradigma socio-crítico, que permite develar las estructuras del orden social sobre las que se ponen en riesgo las garantías de los derechos. Se realizaron entrevistas, grupos focales y talleres. En los principales hallazgos tenemos la caracterización de las mujeres lideresas de la Red, las expresiones sobre incidencia política, la relación contradictoria con el Estado, la reivindicación por lo cotidiano y la búsqueda por lo común.


Community leadership is an expression of advocacy in itself. This article proposes to recognize women's community leadership of the Juntas Somos Más Network, their achievements, and expressions of advocacy in the Urabá subregion. A qualitative approach and socio-critical paradigm was adopted, which allows us to unveil the structures of the social order on which the guarantees of rights are put at risk. Interviews, focus groups and workshops were conducted. The main findings include the characterization of the women leaders of the Network, the expressions on advocacy, the contradictory relationship with the State, the vindication for the daily life, and the search for the common.

18.
Childs Nerv Syst ; 39(7): 1805-1812, 2023 07.
Artigo em Inglês | MEDLINE | ID: mdl-37209199

RESUMO

BACKGROUND: Neural tube defects continue to be one of the main congenital malformations affecting the development of the nervous system and a significant cause of disability and disease burden to individuals living with these conditions. Mandatory food fortification with folic acid is, by far, one of the most efficacious, safe, and cost-effective interventions to prevent neural tube defects. However, most countries fail to effectively fortify staple foods with folic acid, impacting public health and healthcare systems and generating dismal disparities. AIM: This article discusses the main barriers and facilitators for implementing mandatory food fortification as an evidence-based policy to prevent neural tube defects worldwide. METHODS: A comprehensive review of the scientific literature allowed the identification of the determinant factors acting as barriers or facilitators for the reach, adoption, implementation, and scaling up of mandatory food fortification with folic acid as an evidence-based policy. RESULTS: We identified eight barriers and seven facilitators as determinant factors for food fortification policies. The identified factors were classified as individual, contextual, and external, inspired by the Consolidated Framework for Implementation of Research (CFIR). We discuss mechanisms to overcome obstacles and seize the opportunities to approach this public health intervention safely and effectively. CONCLUSIONS: Several determinant factors acting as barriers or facilitators influence the implementation of mandatory food fortification as an evidence-based policy worldwide. Notoriously, policymakers in many countries may lack knowledge of the benefits of scaling up their policies to prevent folic acid-sensitive neural tube defects, improve the health status of their communities, and promote the protection of many children from these disabling but preventable conditions. Not addressing this problem negatively affects four levels: public health, society, family, and individuals. Science-driven advocacy and partnerships with essential stakeholders can help overcome the barriers and leverage the facilitators for safe and effective food fortification.


Assuntos
Ácido Fólico , Defeitos do Tubo Neural , Criança , Humanos , Ácido Fólico/uso terapêutico , Alimentos Fortificados , Defeitos do Tubo Neural/prevenção & controle , Saúde Pública , Políticas
19.
Cad. Ibero-Am. Direito Sanit. (Online) ; 12(1): 24-36, jan.-mar.2023.
Artigo em Português | LILACS-Express | LILACS | ID: biblio-1417165

RESUMO

Objetivo: analisar o direito à interrupção legal da gravidez sob o marco teórico do princípio do melhor interesse da criança. Dentre os objetivos específicos, busca-se analisar a postura do Judiciário e do Ministério Público nos casos apresentados, os fundamentos jurídicos para o exercício do direito ao aborto em casos de estupro de vulnerável, os contornos teóricos do princípio do melhor interesse da criança, além de aspectos médicos, tais como a (in)existência de marco temporal para a interrupção da gravidez nos casos permitidos pela legislação, bem como a (im)possibilidade do exercício da objeção de consciência por médicos nesse contexto. Metodologia: adota-se a vertente jurídico-sociológica e a investigação jurídico-propositiva, por meio de raciocínio indutivo. Utiliza-se análise documental e bibliográfica, por meio de revisão bibliográfica qualitativa. Parte-se do marco teórico do princípio do melhor interesse da criança e do adolescente, previsto na Lei nº 8.069/1990, para testar a hipótese de que a interrupção legal da gravidez deve ser compreendida prima facie como o curso de ação que melhor se adequa ao princípio do melhor interesse da criança. Resultados: a gravidez em criança, por si só, já configura a violação de um direito fundamental. A interrupção da gestação nos casos de estupro de vulnerável é direito fundamental, garantido expressamente por lei, sem qualquer condicionante temporal ou qualitativa. Conclusão: confirmou-se a hipótese de que a interrupção legal da gravidez deve ser compreendida prima facie como o curso de ação que melhor se enquadra ao princípio do melhor interesse da criança.


Objective: to analyze the right to legal abortion within the theoretical framework of the principle of the best interests of the child. The specific objectives are to analyze the position of the Judiciary and the Prosecution in two cases, the legal basis of the right to abortion in cases of statutory rape, the theoretical framework of the principle of the best interests of the child, and medical aspects such as the (non-)existence of a time frame for abortion in legally admissible cases and the (im)possibility of the exercise of conscientious objection by physicians in this context. Methods: this paper makes use of the sociological of law and the legal-propositional research directions and follows an inductive thinking approach. Documentary and bibliographic analysis is conducted through a qualitative bibliographical review. This paper starts from the theoretical framework of the principle of the best interests of the child provided by Law No. 8.069/1990 to test the hypothesis that legal abortion is prima facie the procedure that best complies with the principle of the best interests of the child. Results: the pregnancy of a child is in itself a violation of a fundamental right. Abortion in the case of rape of a vulnerable person is a fundamental right explicitly guaranteed by law, without temporal or qualitative constraint.Conclusion: the hypothesis was confirmed, so that legal abortion should be understoodprima facieas the course of action that best corresponds to the principle of the best interests of the child.


Objetivo: analizar el derecho a la interrupción legal del embarazo bajo el marco teórico del principio del interés superior del niño. Entre los objetivos específicos buscamos analizar la posición del Poder |Judicial y del Ministerio Público en los casos presentados, los fundamentos jurídicos para el ejercicio del derecho al aborto en casos de violación de persona vulnerable, los contornos teóricos del principio del interés superior del niño, además de aspectos médicos, como la (in)existencia de un plazo para la interrupción del embarazo en los casos permitidos por la ley, así como la (im)posibilidad de objeción de conciencia por parte de los médicos en este contexto. Metodología: se adopta el aspecto jurídico-sociológico y la investigación jurídico-proposicional, a través del razonamiento inductivo. Se utiliza el análisis documental y bibliográfico, a través de una revisión bibliográfica cualitativa. Parte del marco teórico del principio del interés superior del niño y del adolescente, previsto en la Ley n. 8.069/1990, para contrastar la hipótesis de que la interrupción legal del embarazo debe entenderse prima facie como el curso de acción que mejor se adapta al principio del interés superior del niño. Resultados: el embarazo infantil, por sí solo, ya es una vulneraciónde un derecho fundamental. La interrupción del embarazo en casos de violación de una persona vulnerable es un derecho fundamental, expresamente garantizado por la ley, sin ninguna condición temporal o cualitativa. Conclusión: a partir de los casos presentados, siguiendo la metodología señalada anteriormente, se confirmó la hipótesis de que la interrupción legal del embarazo debe entenderse prima facie como el curso de acción que mejor se ajusta al principio del interés superior del niño.

20.
Psychooncology ; 32(1): 6-9, 2023 01.
Artigo em Inglês | MEDLINE | ID: mdl-36468340

RESUMO

BACKGROUND: Psycho-oncology is a clinical specialty in which the humanistic aspects of cancer diagnoses and treatment are addressed to reduce the psychological burden for patients and their caregivers to optimize patient participation, cancer outcomes and quality-of-life, which is especially critical in cultures where cancer is perceived as invariably fatal. Psycho-oncology programs face multiple barriers in low- and middle-income countries, including limited resource allocation and lack of training, both of which have been impediments to psycho-oncology programs becoming recognized as core competencies in cancer management and part of a standard medical curriculum. PURPOSE: This paper discusses the role of the Global Breast Cancer Initiative (GBCI) in helping to overcome inequities in breast cancer care and improve clinical outcomes from a psycho-oncology perspective as a model for improved cancer care in limited resource settings. FINDINGS: GBCI applies a comprehensive framework encompassing all phases of cancer care (defined through three pillars spanning the continuum of cancer management) and includes addressing the physical, psychological, and social needs of women throughout the life-course. Efforts to promote policies that increase access to early detection and treatment programs and improve health literacy among the public are important strategies to mitigate the most common emotional and physical challenges reported by people with cancer accessing care. CONCLUSIONS: Future efforts will focus on the integration of culturally appropriate guidance to promote early cancer detection and treatment completion through training programs for clinicians to establish core competencies in psycho-oncology. Emerging advocacy efforts in the oncology arena may help guide the integration of psycho-oncology services into routine care in countries where these services are not already integrated into the standard curriculum.


Assuntos
Neoplasias da Mama , Humanos , Feminino , Neoplasias da Mama/terapia , Psico-Oncologia , Países em Desenvolvimento , Oncologia , Qualidade de Vida
SELEÇÃO DE REFERÊNCIAS
DETALHE DA PESQUISA