RESUMO

INTRODUCTION: Prematurity is a public health problem that calls to focus on its causes and consequences through a trans disciplinary approach. There are no studies analyzing premature birth from the perspective of individuals born preterm. OBJECTIVE: To identify social representations associated with premature birth of individuals born preterm in the 1990s in Argentina. POPULATION AND METHODS: Twelve focus groups were conducted with individuals born preterm with a birth weight<1500 g assisted at tertiary care facilities between 1990 and 1995. Focus group contents were analyzed based on the social representation theory. RESULTS: Fifty-nine adolescents and youth participated; their median age was 18.5±2.3 years old. Based on the analysis of focus groups, six core themes were developed: life experience, parents' memories and experiences, overprotection body, education, relationship with the medical practice and knowledge. CONCLUSIONS: The methodology used allowed to create a space for mutual recognition and reflection for participants. Prematurity is a significant element, especially in those who suffered major sequelae. Adolescents and youth give a warning on the negative effects caused by overprotective parents and reveal the possibility of redefining the challenges associated with their history of premature birth.

Assuntos

RESUMO

Introducción. La prematurez es un problema de salud pública que desafía a enfocar sus causas y consecuencias con un abordaje multidisciplinario. No hay estudios que analicen la prematurez desde la perspectiva de personas que nacieron de parto prematuro. Objetivo. Identificar las representaciones sociales asociadas a la prematurez de personas nacidas de parto prematuro en Argentina en la década de los noventa. Población y métodos. Se realizaron 12 grupos focales, con personas que nacieron prematuramente y con peso < 1500 g, atendidas en centros de tercer nivel entre 1990 y 1995. Los contenidos de los grupos focales se analizaron sobre la base de la teoría de las representaciones sociales. Resultados. Participaron 59 jóvenes y adolescentes, con una mediana de edad de 18,5 ± 2,3 años. A partir del análisis de los grupos focales, se elaboraron 6 núcleos temáticos: trayectoria de vida, recuerdos y vivencias de los padres, sobreprotección, cuerpo, escolaridad, relación con las prácticas y saberes médicos. Conclusiones. La metodología utilizada generó un espacio de mutuo reconocimiento y reflexión para los participantes. La prematurez constituye un elemento significativo, principalmente en aquellos que tuvieron mayores secuelas. Los jóvenes y adolescentes alertan sobre los efectos negativos de la sobreprotección de los padres, así como dan cuenta de la posibilidad de resignificar las dificultades de su historia de prematurez.(AU)

Introduction.Prematurity is a public health problem that calls to focus on its causes and consequences through a trans disciplinary approach. There are no studies analyzing premature birth from the perspective of individuals born preterm. Objective.To identify social representations associated with premature birth of individuals born preterm in the 1990s in Argentina. Population and Methods.Twelve focus groups were conducted with individuals born preterm with a birth weight <1500 g assisted at tertiary care facilities between 1990 and 1995. Focus group contents were analyzed based on the social representation theory. Results.Fifty-nine adolescents and youth participated; their median age was 18.5 ± 2.3 years old. Based on the analysis of focus groups, six core themes were developed: life experience, parents memories and experiences, overprotection body, education, relationship with the medical practice and knowledge. Conclusions.The methodology used allowed to create a space for mutual recognition and reflection for participants. Prematurity is a significant element, especially in those who suffered major sequelae. Adolescents and youth give a warning on the negative effects caused by overprotective parents and reveal the possibility of redefining the challenges associated with their history of premature birth.(AU)

RESUMO

Introducción. La prematurez es un problema de salud pública que desafía a enfocar sus causas y consecuencias con un abordaje multidisciplinario. No hay estudios que analicen la prematurez desde la perspectiva de personas que nacieron de parto prematuro. Objetivo. Identificar las representaciones sociales asociadas a la prematurez de personas nacidas de parto prematuro en Argentina en la década de los noventa. Población y métodos. Se realizaron 12 grupos focales, con personas que nacieron prematuramente y con peso < 1500 g, atendidas en centros de tercer nivel entre 1990 y 1995. Los contenidos de los grupos focales se analizaron sobre la base de la teoría de las representaciones sociales. Resultados. Participaron 59 jóvenes y adolescentes, con una mediana de edad de 18,5 ± 2,3 años. A partir del análisis de los grupos focales, se elaboraron 6 núcleos temáticos: trayectoria de vida, recuerdos y vivencias de los padres, sobreprotección, cuerpo, escolaridad, relación con las prácticas y saberes médicos. Conclusiones. La metodología utilizada generó un espacio de mutuo reconocimiento y reflexión para los participantes. La prematurez constituye un elemento significativo, principalmente en aquellos que tuvieron mayores secuelas. Los jóvenes y adolescentes alertan sobre los efectos negativos de la sobreprotección de los padres, así como dan cuenta de la posibilidad de resignificar las dificultades de su historia de prematurez.(AU)

Introduction.Prematurity is a public health problem that calls to focus on its causes and consequences through a trans disciplinary approach. There are no studies analyzing premature birth from the perspective of individuals born preterm. Objective.To identify social representations associated with premature birth of individuals born preterm in the 1990s in Argentina. Population and Methods.Twelve focus groups were conducted with individuals born preterm with a birth weight <1500 g assisted at tertiary care facilities between 1990 and 1995. Focus group contents were analyzed based on the social representation theory. Results.Fifty-nine adolescents and youth participated; their median age was 18.5 ± 2.3 years old. Based on the analysis of focus groups, six core themes were developed: life experience, parents memories and experiences, overprotection body, education, relationship with the medical practice and knowledge. Conclusions.The methodology used allowed to create a space for mutual recognition and reflection for participants. Prematurity is a significant element, especially in those who suffered major sequelae. Adolescents and youth give a warning on the negative effects caused by overprotective parents and reveal the possibility of redefining the challenges associated with their history of premature birth.(AU)

RESUMO

Introducción. La prematurez es un problema de salud pública que desafía a enfocar sus causas y consecuencias con un abordaje multidisciplinario. No hay estudios que analicen la prematurez desde la perspectiva de personas que nacieron de parto prematuro. Objetivo. Identificar las representaciones sociales asociadas a la prematurez de personas nacidas de parto prematuro en Argentina en la década de los noventa. Población y métodos. Se realizaron 12 grupos focales, con personas que nacieron prematuramente y con peso < 1500 g, atendidas en centros de tercer nivel entre 1990 y 1995. Los contenidos de los grupos focales se analizaron sobre la base de la teoría de las representaciones sociales. Resultados. Participaron 59 jóvenes y adolescentes, con una mediana de edad de 18,5 ± 2,3 años. A partir del análisis de los grupos focales, se elaboraron 6 núcleos temáticos: trayectoria de vida, recuerdos y vivencias de los padres, sobreprotección, cuerpo, escolaridad, relación con las prácticas y saberes médicos. Conclusiones. La metodología utilizada generó un espacio de mutuo reconocimiento y reflexión para los participantes. La prematurez constituye un elemento significativo, principalmente en aquellos que tuvieron mayores secuelas. Los jóvenes y adolescentes alertan sobre los efectos negativos de la sobreprotección de los padres, así como dan cuenta de la posibilidad de resignificar las dificultades de su historia de prematurez.

Introduction.Prematurity is a public health problem that calls to focus on its causes and consequences through a trans disciplinary approach. There are no studies analyzing premature birth from the perspective of individuals born preterm. Objective.To identify social representations associated with premature birth of individuals born preterm in the 1990s in Argentina. Population and Methods.Twelve focus groups were conducted with individuals born preterm with a birth weight <1500 g assisted at tertiary care facilities between 1990 and 1995. Focus group contents were analyzed based on the social representation theory. Results.Fifty-nine adolescents and youth participated; their median age was 18.5 ± 2.3 years old. Based on the analysis of focus groups, six core themes were developed: life experience, parents' memories and experiences, overprotection body, education, relationship with the medical practice and knowledge. Conclusions.The methodology used allowed to create a space for mutual recognition and reflection for participants. Prematurity is a significant element, especially in those who suffered major sequelae. Adolescents and youth give a warning on the negative effects caused by overprotective parents and reveal the possibility of redefining the challenges associated with their history of premature birth.

Assuntos

RESUMO

INTRODUCTION: Prematurity is a public health problem that calls to focus on its causes and consequences through a trans disciplinary approach. There are no studies analyzing premature birth from the perspective of individuals born preterm. OBJECTIVE: To identify social representations associated with premature birth of individuals born preterm in the 1990s in Argentina. POPULATION AND METHODS: Twelve focus groups were conducted with individuals born preterm with a birth weight<1500 g assisted at tertiary care facilities between 1990 and 1995. Focus group contents were analyzed based on the social representation theory. RESULTS: Fifty-nine adolescents and youth participated; their median age was 18.5±2.3 years old. Based on the analysis of focus groups, six core themes were developed: life experience, parents memories and experiences, overprotection body, education, relationship with the medical practice and knowledge. CONCLUSIONS: The methodology used allowed to create a space for mutual recognition and reflection for participants. Prematurity is a significant element, especially in those who suffered major sequelae. Adolescents and youth give a warning on the negative effects caused by overprotective parents and reveal the possibility of redefining the challenges associated with their history of premature birth.