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1.
Medicina (B Aires) ; 84 Suppl 3: 81-86, 2024 Sep.
Artículo en Español | MEDLINE | ID: mdl-39331781

RESUMEN

Pediatric palliative care focuses on improving the quality-of-life in children with severe illnesses and their families, addressing relief of pain and other physical symptoms, as well as emotional, social and spiritual support. Its approach is comprehensive and multidisciplinary. Severe neurological diseases are life-limiting and threatening, significantly affecting the well-being of the child. The families of these children face significant stress and need support to make complex decisions about them. This includes advance care planning, setting therapeutic goals, and end-of-life decisions. Early intervention can improve quality-of-life, reduce unnecessary hospitalizations, and provide emotional support for the family. Coordination between different health services is essential to ensure patient-centered care. Education and training of health professionals in this field are essential to improve the care of these children.


Los cuidados paliativos pediátricos se centran en mejorar la calidad de vida de niños con enfermedades graves y sus familias, abordando el alivio del dolor y otros síntomas físicos, así como brindar apoyo emocional, social y espiritual. Su enfoque es integral y multidisciplinario. Las enfermedades neurológicas graves pueden limitar y amenazar la vida, y afectan significativamente el bienestar del niño. Las familias de estos niños enfrentan un estrés significativo y necesitan apoyo para tomar decisiones complejas sobre el cuidado de su hijo. Esto incluye planificar anticipadamente la atención, establecer objetivos terapéuticos y, eventualmente, decisiones sobre el final de la vida. La intervención temprana puede mejorar la calidad de vida, reducir hospitalizaciones innecesarias y proporcionar un apoyo emocional crucial para la familia. La coordinación entre los diferentes servicios de salud es esencial para asegurar una atención centrada en el paciente. La formación de los profesionales de la salud en este campo es fundamental para mejorar la calidad de atención de estos niños.


Asunto(s)
Enfermedades del Sistema Nervioso , Cuidados Paliativos , Calidad de Vida , Humanos , Cuidados Paliativos/métodos , Niño , Enfermedades del Sistema Nervioso/terapia , Planificación Anticipada de Atención , Cuidado Terminal/métodos
2.
Palliat Support Care ; 22(2): 387-395, 2024 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-37885316

RESUMEN

OBJECTIVES: To identify the patients who are most likely to participate in discussions about palliative care (PC) and advance care planning (ACP), and to determine their preferred timing and approach of discussion. METHODS: The study included women aged 18-75 years diagnosed with breast cancer. In the quantitative phase, sociodemographic and clinical characteristics, knowledge, decision-making, and stigmas were evaluated. The qualitative phase included questions about patients' understanding, timing, and method of discussing PC and ACP, which were analyzed by Bardin's content analysis. RESULTS: In Phase 1, a total of 115 participants were included, with 53.04% completing both phases and 46.96% declining further participation. Those who completed both phases exhibited higher rates of marriage and educational attainment, while those who declined Phase 2 had a higher prevalence of advanced-stage cancer and palliative treatment. Completion of both phases was associated with a greater knowledge of reality and increased awareness of PC and ACP. Furthermore, the qualitative analysis revealed 5 convergent themes: timing, demystification, patient empowerment, misconception elimination, and open communication. These themes informed the development of a conceptual model that provides a framework for discussing PC and ACP with patients at different stages of cancer diagnosis and treatment, highlighting appropriate and inappropriate approaches and timing. SIGNIFICANCE OF RESULTS: Early discussion is beneficial, but withholding information or infringing on autonomy should be avoided. The study reveals that married and highly educated individuals tend to be more receptive to these discussions. However, patients with late-stage cancer tend to decline participation. Patients value open communication, demystification of PC, and empowering discussions that eliminate misunderstandings. Efforts should be made to reach patients with limited familiarity, particularly those with late-stage cancer, to increase their receptiveness to enable well-informed decision-making.


Asunto(s)
Planificación Anticipada de Atención , Neoplasias de la Mama , Humanos , Femenino , Cuidados Paliativos/métodos , Participación del Paciente , Comunicación
3.
JCO Oncol Pract ; 19(12): 1097-1108, 2023 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-37831973

RESUMEN

PURPOSE: Providers treating adults with advanced cancer increasingly seek to engage patients and surrogates in advance care planning (ACP) and end-of-life (EOL) decision making; however, anxiety and depression may interfere with engagement. The intersection of these two key phenomena is examined among patients with metastatic cancer and their surrogates: the need to prepare for and engage in ACP and EOL decision making and the high prevalence of anxiety and depression. METHODS: Using a critical review framework, we examine the specific ways that anxiety and depression are likely to affect both ACP and EOL decision making. RESULTS: The review indicates that depression is associated with reduced compliance with treatment recommendations, and high anxiety may result in avoidance of difficult discussions involved in ACP and EOL decision making. Depression and anxiety are associated with increased decisional regret in the context of cancer treatment decision making, as well as a preference for passive (not active) decision making in an intensive care unit setting. Anxiety about death in patients with advanced cancer is associated with lower rates of completion of an advance directive or discussion of EOL wishes with the oncologist. Patients with advanced cancer and elevated anxiety report higher discordance between wanted versus received life-sustaining treatments, less trust in their physicians, and less comprehension of the information communicated by their physicians. CONCLUSION: Anxiety and depression are commonly elevated among adults with advanced cancer and health care surrogates, and can result in less engagement and satisfaction with ACP, cancer treatment, and EOL decisions. We offer practical strategies and sample scripts for oncology care providers to use to reduce the effects of anxiety and depression in these contexts.


Asunto(s)
Planificación Anticipada de Atención , Neoplasias , Cuidado Terminal , Adulto , Humanos , Depresión/epidemiología , Depresión/etiología , Depresión/terapia , Neoplasias/complicaciones , Neoplasias/epidemiología , Neoplasias/terapia , Ansiedad/terapia , Toma de Decisiones , Muerte
4.
Z Evid Fortbild Qual Gesundhwes ; 180: 56-58, 2023 Aug.
Artículo en Inglés | MEDLINE | ID: mdl-37422413

RESUMEN

Advance Care Planning is a process by which a patient's health care preferences are established in advance in the event that he or she become temporarily or constantly unable to make decisions for themselves in the future. It is also applied early in emergencies, in intensive care treatment, and after surgery where one's ability to decide is reduced. In Ecuador there is currently no legislation on this subject, however, the National Health Bioethics Commission validated and published the document "Advance Living Will" and as an important advance issued a favorable criterion before the National Assembly for it to be incorporated into the Organic Health Code, the concept, regulations, and the text of Vital Advance Will. Instead of, its use is currently not in force. However, the compliance criteria have been established in the Palliative Care Standard since 2015, but are not yet implemented. There are few studies that demonstrate its application in the country, so it is important to know the cultural and social characteristics of both health professionals and patients, which limit its application.


Asunto(s)
Planificación Anticipada de Atención , Femenino , Humanos , Ecuador , Alemania , Cuidados Paliativos , Personal de Salud
5.
Z Evid Fortbild Qual Gesundhwes ; 180: 43-49, 2023 Aug.
Artículo en Inglés | MEDLINE | ID: mdl-37380546

RESUMEN

Brazil is a country of continental size marked by extreme social inequalities. Its regulation of Advance Directives (AD) was not enacted by law but within the scope of the norms that govern the relationships between patients and physicians, as a resolution of the Federal Medical Council without any specific requirement for notarization. Despite this innovative starting point, most of the debate regarding Advance Care Planning (ACP) in Brazil has been dominated by a legal transactional approach focused on making decisions in advance and the creation of AD. Yet, other novel ACP models have recently emerged in the country with a focus on the creation of a specific quality of relationship between patients, families, and physicians aiming at the facilitating future decision-making. Most of the education on ACP in Brazil happens in the context of palliative care courses. As such, most ACP conversations are performed within palliative care services or by healthcare professionals with training in that area. Hence, the scarce access to palliative care services in the country means that ACP is still rare and that those conversations usually happen late in the course of disease. The authors posit that the existing paternalistic healthcare culture is one of the most important barriers to ACP in Brazil and envision with great concern the risk that its combination with extreme health inequalities and the lack of healthcare professionals' education on shared decision-making could lead to the misuse of ACP as a form of coercive practice to reduce healthcare use by vulnerable populations.


Asunto(s)
Planificación Anticipada de Atención , Humanos , Brasil , Alemania , Directivas Anticipadas , Cuidados Paliativos
6.
Z Evid Fortbild Qual Gesundhwes ; 180: 50-55, 2023 Aug.
Artículo en Inglés | MEDLINE | ID: mdl-37380547

RESUMEN

The WHO Concept Model of Palliative Care emphasises empowering people and communities with Advance Care Planning (ACP). In Latin America, a more relational approach involving family members is suited to ACP. Improvements in doctor-patient-family relationships are needed. Policy efforts have been made to foster ACP in Argentina's healthcare system, but implementation barriers include a need for more communication skills and coordination between healthcare providers. The Shared Care Planning Group Argentina aims to promote ACP through research and training programs. It has sensitised and trained 236 healthcare providers in short courses to introduce basic information and skills. However, there needs to be specific documentation for ACP in Argentina. Research found obstacles to ACP implementation, such as the inability to converse with patients and the lack of coordination between healthcare teams. A new project will assess the self-efficacy of healthcare professionals who assist patients with Sclerosis Lateral Amyotrophic in ACP and evaluate a specific training program. Patient and public involvement in ACP remains limited in Argentina, with paternalistic medical culture and a need for more awareness and training among healthcare professionals as significant barriers. Collaborative research projects with Spain and Ecuador aim to train healthcare professionals and evaluate ACP implementation in other Latin American countries.


Asunto(s)
Planificación Anticipada de Atención , Humanos , Argentina , Alemania , Cuidados Paliativos , Relaciones Médico-Paciente
7.
J Pain Symptom Manage ; 65(5): e425-e437, 2023 05.
Artículo en Inglés | MEDLINE | ID: mdl-36758908

RESUMEN

CONTEXT: Religiosity/spirituality/religious-spiritual coping (RS) are resources used by cancer patients with cancer to help cope with the disease and may influence the preference and receipt of end-of-life (EOL) treatment. OBJECTIVES: To examine the relationship between RS and the EOL care preferred or received by cancer patients. METHODS: This review protocol is registered on (International Prospective Register of Systematic Review, CRD42021251833) and follows the recommendations of the preferred reporting items for systematic reviews and meta-analyses checklist. Embase, Proquest, PubMed, Scopus, and Web of Science databases were consulted. Google Scholar was consulted for additional publications and gray literature. Quantitative studies including adults with any cancer type/stage were eligible. The paper selection was performed by two independent reviewers; the methodological quality was measured using the Newcastle Ottawa scale. RESULTS: Seventeen studies were included in the review. In general, RS is related to the preference or receipt of aggressive EOL care and with less advance care planning. Spiritual care by the medical team is related to higher referral to hospice and less aggressive care; in contrast, high spiritual support from religious communities is associated with less hospice and more aggressive care. Religious denominations influenced health care preferences, as Catholics were less likely to sign a do-not-resuscitate order and Buddhists or Taoists received more aggressive interventions at the EOL. Most studies (70%) were of high quality according to the Newcastle Ottawa scale. CONCLUSION: RS is associated with more aggressive EOL treatments, as well as with lower rates of ACP in cancer patients. On the other hand, spiritual care provided by the medical team seems to be associated with less aggressive EOL care.


Asunto(s)
Planificación Anticipada de Atención , Cuidados Paliativos al Final de la Vida , Neoplasias , Cuidado Terminal , Adulto , Humanos , Espiritualidad , Religión , Muerte , Neoplasias/terapia
8.
Chronic Illn ; 19(1): 146-156, 2023 03.
Artículo en Inglés | MEDLINE | ID: mdl-34812654

RESUMEN

OBJECTIVE: To evaluate the impact of a multifaceted strategy for quality end-of-life care in a tertiary public hospital in Brazil. METHODOLOGY: The study design was quasi-experimental. The multifaceted strategy was applied between January and June 2017, and involved training the healthcare team in end-of-life discussions, the creation and documentation of advance directives, and consultation with the team specialized in palliative care. The periods analyzed were the pre-test period (Time 1, July 2015 to June 2016) and the post-test period (Time 2, July 2017 to June 2018). RESULTS: Time 1 involved 302 deaths, with an average hospital stay of 21 days; Time 2 involved 410 deaths, with an average hospital stay of 16 days. Patients were prescribed morphine (44.04% vs. 36.3% [p = 0.367]), methadone (9.60% vs. 4.39% [p = 0.247]), midazolam (43.05% vs. 47.80% [p = 0.73]), blood transfusions (31.13% vs. 24.63% [p = 0.828]), enteral feeding (56.62% vs. 38.54% [p = 0.59]) and antibiotic therapy (50.73% vs. 50.73% [p = 0.435]). CONCLUSION: This study found no changes in the end-of-life care quality indicators after the strategy was implemented. Multimodal educational strategies that develop communication skills in palliative care may enhance the quality of end-of-life care.


Asunto(s)
Planificación Anticipada de Atención , Cuidado Terminal , Humanos , Centros de Atención Terciaria , Cuidados Paliativos , Encuestas y Cuestionarios
9.
J Palliat Care ; 38(1): 41-51, 2023 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-36168276

RESUMEN

Objective(s): To develop a questionnaire that assesses the level of comprehension and decision-making capacity of patients with breast cancer about palliative care and advance care planning. Methods: Questionnaire items were based on the scientific literature. Delphi Consensus, a three-round survey with experts (n = 14), evaluated the relevance, clarity, and redundancies of the items. A pretest with breast cancer patients (n = 15) evaluated whether they comprehended each item and identified doubts or discomforts. Results: The initial questionnaire was composed of 38 items. After the Delphi, 18 items were restructured, six were added, and 16 were removed. In the pretest phase, all items with the survey header, guidelines, and Likert model were evaluated. All items accomplished ≥80% cut-off score and were kept as in the original version. The final version of the questionnaire have 28 itens and five domains: determination, responsibility, independence, self-knowledge, and knowledge of reality. Conclusions: This study represents the first step in the development of a questionnaire that may be used in oncology clinical practice. The main findings revealed that Delphi and pretesting increased the quality of the questionnaire, making it compelling to assess breast cancer patients' comprehension and decision-making capacity about PC and ACP.


Asunto(s)
Planificación Anticipada de Atención , Neoplasias de la Mama , Humanos , Femenino , Cuidados Paliativos , Técnica Delphi , Comprensión , Encuestas y Cuestionarios , Neoplasias de la Mama/terapia
10.
BMC Palliat Care ; 21(1): 165, 2022 Sep 22.
Artículo en Inglés | MEDLINE | ID: mdl-36138380

RESUMEN

BACKGROUND: Advance care planning (ACP) and goals of care discussions are important instruments that enable respect for patient autonomy, especially in patients with a life-threatening disease, such as cancer. Despite their well-established benefits, ACP and goals of care discussions are still not frequently performed in clinical oncology practice. Understanding the barriers to this topic is the first step toward developing future interventions that are more likely to improve professional practice and patient satisfaction with care. AIM: To explore Brazilian oncologists' barriers to discuss goals of care and advance care planning. METHODS: A cross-sectional study was developed to identify Brazilian oncologists' barriers to discussing goals of care and ACP. The Decide-Oncology questionnaire was used to identify the importance of these barriers according to oncologists' perceptions. Participants were asked to rank the importance of various barriers to discussing goals of care, ranging from 1 (extremely unimportant) to 7 (extremely important). A quantitative analysis using descriptive statistics was used, including median and interquartile intervals and a qualitative analysis based on Bardin content analysis of the two open questions. RESULTS: Sixty-six oncologists participated in this study. Most of them perceived the patient and family's related barriers as the most important, such as patients' difficulty in understanding their diagnosis and accepting their prognosis. Physician and external related factors, such as lack of training and lack of time for this conversation, were also described as important barriers. Participants with formal training regarding goals of care communication and with experience in palliative care perceived the lack of patients' advanced directives as a significant barrier and manifested more willingness to participate in decision-making about goals of care. The lack of access and of support for referral to palliative care was also considered a significant barrier for ACP and goals of care discussion. CONCLUSION: The identification of barriers that limit the discussion of ACP and early palliative care referrals can certainly help to prioritise the next steps for future studies aimed at improving ACP and helping clinicians to better support patients through shared decision-making based on the patient's values and experiences.


Asunto(s)
Planificación Anticipada de Atención , Oncólogos , Brasil , Estudios Transversales , Humanos , Cuidados Paliativos
11.
Rev. bioét. (Impr.) ; 30(3): 525-533, jul.-set. 2022. tab
Artículo en Portugués | LILACS | ID: biblio-1407270

RESUMEN

Resumo O planejamento antecipado de cuidados é um processo de discussões entre profissionais de saúde e pacientes que permite a tomada de decisão compartilhada quanto a objetivos de cuidados de saúde, atuais e/ou futuros, com base nos desejos e valores do paciente e em questões técnicas do cuidado. É considerado fundamental na prestação de cuidados de excelência em fim de vida, permitindo que profissionais de saúde alinhem os cuidados prestados com o que é mais importante para o paciente. Apesar de seus benefícios, ainda é muito pouco realizado na prática clínica, especialmente no Brasil. Considerando a necessidade de guias práticos de planejamento antecipado de cuidados adaptados à realidade brasileira, pautados em estratégias de comunicação empática, este estudo é uma proposta de guia baseada em revisão integrativa da literatura (PubMed e SciELO), com recomendações de evidências atuais, incluindo instrumentos validados para o português (Brasil), para facilitar sua implementação na prática clínica.


Abstract Advance care planning is a process of discussion between healthcare professionals and patients that enables shared decision-making on current and/or future healthcare goals, based on patients' desires and values and technical care issues. Advance care is considered essential in the provision of quality terminal care, allowing healthcare professionals to align the care provided with what is most important to the patient. Despite its benefits, it is still underused in clinical practice, especially in Brazil. Considering the need for practical guides for advance care planning adapted to the Brazilian reality, drawing on empathetic communication strategies, this study is a guide proposal based on an integrative literature review (PubMed and SciELO), with recommendations of current evidence, including instruments validated for Portuguese (Brazil), to facilitate its implementation in clinical practice.


Resumen La planificación anticipada de atención es un proceso de discusión entre los profesionales de la salud y los pacientes que permite la toma de decisiones relacionadas a los objetivos de atención médica actuales y/o futuros, basadas en los deseos y valores del paciente y en cuestiones técnicas de la atención. Resulta ser una apropiada atención terminal, ya que estos profesionales pueden adecuar la atención con los deseos del paciente. Pese a sus beneficios, es poco realizada en la práctica clínica, especialmente en Brasil. Dada la necesidad de guías prácticas para la planificación anticipada de atención, adaptadas a la realidad brasileña y basadas en estrategias comunicativas empáticas, este estudio propone una guía a partir de una revisión integradora de la literatura (PubMed y SciELO), con recomendaciones de evidencia actual, incluidos instrumentos validados para el portugués brasileño para facilitar su aplicación en la práctica clínica.


Asunto(s)
Cuidados Paliativos , Cuidado Terminal , Brasil , Personal de Salud , Comunicación , Atención Médica , Planificación Anticipada de Atención , Toma de Decisiones Conjunta
12.
J Pain Symptom Manage ; 64(5): 438-448, 2022 11.
Artículo en Inglés | MEDLINE | ID: mdl-35932954

RESUMEN

CONTEXT: Personal values are individual conceptions of the desirable appraisals and actions that guide our attitudes and behaviour. Advance care planning (ACP) now emphasises the consideration of personal life goals and values expressed as a Values Directive (VD) to guide discussions concerning medical treatment. OBJECTIVE: To investigate the diversity of values, experiences and adaptations expressed in cancer patients VDs. METHODS: Contents of the VDs of ACPs of cancer patients who participated in a randomised control trial comparing a video intervention showing values communication between cancer patient-caregivers with usual care were analysed. Qualitative phenomenological content analysis was used to understand how participants made meaning of their lived experiences. RESULTS: Forty-two participants completed an ACP (37.2% response rate), with 97.6% of these completing a VD (57.1% female, mean age 72 years, 30.1% gastrointestinal cancer). Participants described diverse adjustments to frailty and adaptive coping with deteriorating functionality. Emotional and financial concerns were eased through experiencing benevolence and trust established through family and friendship bonds and reciprocation of care. Death anxiety and ambivalence were expressed concurrently with the experiential acceptance of dying. Secular and sacred rituals featured as an affirmation of their faith or beliefs. CONCLUSION: Cancer patients seek to make meaning of their experiences, concurrently posturing vulnerability and resilience, despite conflicting emotions and experiences. Given that the choices people make as they approach dying relate to their most deeply held values, ACP conversations should explore how patients draw from their values and life goals to optimise their adaptations to illness.


Asunto(s)
Planificación Anticipada de Atención , Neoplasias Gastrointestinales , Anciano , Cuidadores/psicología , Comunicación , Femenino , Humanos , Masculino , Investigación Cualitativa
13.
Arch. pediatr. Urug ; 93(1): e603, jun. 2022. tab
Artículo en Español | LILACS, UY-BNMED, BNUY | ID: biblio-1383642

RESUMEN

Las mejoras en la calidad de vida de la población y los avances de la medicina han contribuido al aumento de la sobrevida de niños y adolescentes, así como también un aumento progresivo de niños con enfermedades o condiciones de salud crónicas, complejas, dependientes de dispositivos médicos y/o tecnología, que conviven con la posibilidad de complicaciones que amenazan sus vidas. Esta situación implica múltiples desafíos en los procesos de toma de decisiones respecto a la pertinencia y proporcionalidad de medidas diagnósticas, terapéuticas y de monitorización, considerando el beneficio real y/o la carga de sufrimiento, que las mismas pueden determinar en la calidad de vida del niño y su familia. En los últimos años, en el marco de la atención sanitaria, se han incorporado los conceptos y procedimientos de planificación avanzada del cuidado (PAC) y limitación o adecuación del esfuerzo terapéutico (AET) que se presentan. El objetivo de este documento es describir las definiciones básicas de conceptos necesarios para comprender e implementar procesos de PAC y AET, el marco bioético y legal para dichos procesos, el procedimiento para la implementación de la definición de directivas de adecuación del esfuerzo terapéutico (DAET), elaborado por la Unidad de Cuidados Paliativos Pediátricos del Centro Hospitalario Pereira Rossell.


Improvements in the populations's quality of life and medical progress have contributed to the increase of survival rates of children and adolescents, as well as to a progressive rise in children with chronic, complex diseases or health conditions, dependent on medical devices and / or technology, who live with the possibility of life-threatening complications. This situation brings multiple challenges in the decision-making processes regarding the relevance and proportionality of diagnostic, therapeutic and monitoring measures, considering the real benefit and / or the burden that they can cause in the quality of life of the child and his family. In recent years, within the framework of health care, the concepts and procedures of advanced care planning and limitation or adequacy of therapeutic effort (ATE) have been incorporated. The aim of this paper is to describe the basic definitions needed to understand and implement ATE processes, the bioethical and legal framework for such processes, the procedure for the implementation of the definition of Directives for the Adequacy of Therapeutic Effort (DATE), prepared by the Pediatric Palliative Care Unit of the Pereira Rossell Hospital Center.


Melhoras na qualidade de vida da população e avanços na medicina têm contribuído para o aumento da sobrevida de crianças e adolescentes, bem como um aumento progressivo de crianças com doenças crônicas, complexas ou condições de saúde dependentes de dispositivos médicos e/ou tecnologia, que convivem com a possibilidade de complicações que ameaçam suas vidas. Essa situação traz consigo múltiplos desafios nos processos decisórios quanto à relevância e proporcionalidade das medidas diagnósticas, terapêuticas e de monitoramento, considerando o real benefício e/ou a carga de sofrimento, que podem determinar na qualidade de vida da criança e de sua família. Nos últimos anos, no âmbito da atenção à saúde, foram incorporados os conceitos e procedimentos de: planejamento avançado da atenção e limitação o adequação do esforço terapêutico (AET). O objetivo deste documento é descrever: as definições básicas de conceitos necessários para à compreensão e implementação dos processos da PAC e AET, do marco bioético e legal para tais processos, do procedimento para a implementação da definição de diretrizes para a adequação do esforço terapêutico (DAET) elaborado pela Unidade de Cuidados Paliativos Pediátricos do Centro Hospitalar Pereira Rossell.


Asunto(s)
Humanos , Niño , Adolescente , Enfermedad Crónica , Directivas Anticipadas , Planificación Anticipada de Atención , Toma de Decisiones Conjunta , Necesidades y Demandas de Servicios de Salud
14.
Buenos Aires; s.n; mayo 2022. 9 p.
No convencional en Español | InstitutionalDB, BINACIS, UNISALUD | ID: biblio-1399110

RESUMEN

Actualización de los lineamientos para el manejo de casos sospechosos de COVID-19 en el marco del sistema de salud de la Ciudad de Buenos Aires. La definición de caso, contacto y medidas a seguir detalladas en este protocolo están basadas en las Recomendaciones para el equipo de salud del Ministerio de Salud de la Nación a la fecha 1 que se encuentran en revisión permanente, en función de la evolución y nueva información que se disponga de la pandemia en curso. (AU)


Asunto(s)
Guías como Asunto , Manejo de Caso , Monitoreo Epidemiológico , COVID-19/diagnóstico , COVID-19/prevención & control , COVID-19/epidemiología , Planificación Anticipada de Atención
15.
Am J Hosp Palliat Care ; 39(4): 427-432, 2022 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-34164999

RESUMEN

BACKGROUND: The goal of advance care planning (ACP) is to improve end-of-life decision-making for patients and their spokespersons, but multiple studies have failed to show substantial or consistent benefit from ACP. Understanding how and why ACP under-performs in the setting of complex medical decision-making is key to optimizing current, or designing new, ACP interventions. AIM: To explore how ACP did or did not contribute to a spokespersons' understanding of patient wishes after engaging in ACP. DESIGN: Thematic analysis of 200 purposively sampled interviews from a randomized control trial of an ACP decision aid. SETTING/PARTICIPANTS: 200 dyads consisting of patients 18 years or older with advanced serious illness and their spokesperson at 2 tertiary care centers in Hershey, PA and Boston, MA. Participants were interviewed 1 month after completing ACP. RESULTS: ACP helped participants: 1) express clear end-of-life wishes, 2) clarify values, and 3) recognize challenges associated with applying those wishes in complex situations. Shortcomings of ACP included 1) unknown prognostic information or quality-of-life outcomes to inform decision-making, 2) skepticism about patients' wishes, and 3) complicated emotions impacting end-of-life discussions. CONCLUSIONS: Helping patients and their spokespersons better anticipate decision-making in the face of prognostic and informational uncertainty as well as the emotional complexities of making medical decisions may improve the efficacy of ACP interventions.


Asunto(s)
Planificación Anticipada de Atención , Boston , Toma de Decisiones Clínicas , Muerte , Toma de Decisiones , Humanos , Calidad de Vida
16.
Rev Bras Enferm ; 74(suppl 5): e20200910, 2021.
Artículo en Inglés | MEDLINE | ID: mdl-34105697

RESUMEN

OBJECTIVE: Description and discussion dimensions of Integrated Care Model. METHODS: A descriptive study is done that describe a technological innovation, intervention strategies for professional performance. RESULTS: Integrated Care Model (ICM) has two main categories include individual and Group-and disease-specific Model. First, is used for risky patients or with comorbidities. In second category; Chronic Care Model (CCM) is common form of Integrated Care Model to improve resultants in the patients with chronic condition, to move from acute care to integrate, regular, long-lasting, preventative and community-based nursing. FINAL CONSIDERATIONS: It is important to consider patient as an active member of the treatment team. It seems to be essential to monitor performance of care system. On the other hand, offer multidisciplinary care leads to present desirable care, tailored to the specific needs of patients regarding safety, patient-centered care and their culture.


Asunto(s)
Planificación Anticipada de Atención , Prestación Integrada de Atención de Salud/organización & administración , Cuidados a Largo Plazo , Enfermedad Crónica , Comorbilidad , Conducta Cooperativa , Humanos , Cuidados a Largo Plazo/organización & administración , Modelos de Enfermería , Modelos Organizacionales , Evaluación de Resultado en la Atención de Salud , Atención Dirigida al Paciente/organización & administración
17.
Curitiba; s.n; 20210629. 103 p. ilus, graf, tab.
Tesis en Portugués | BDENF - Enfermería | ID: biblio-1366323

RESUMEN

Resumo: Cuidados de transição são definidos como um conjunto de ações destinadas a garantir a coordenação e continuidade do cuidado. Durante as transições, podem ocorrer lacunas que contribuem para o cuidado de baixa qualidade e aumento dos custos de internação, além de representar uma fonte de erros médicos e fragmentação do cuidado e, podem resultar em danos aos pacientes. OBJETIVOS: (i)Verificar a percepção dos profissionais de saúde sobre cuidados de transição; (ii) Elaborar checklist para transição de pacientes entre unidades. MÉTODO: Pesquisa exploratória de abordagem qualitativa, com participação de 20 profissionais de saúde de unidades de internação e terapia intensiva de um Hospital Universitário de Curitiba- PR. A obtenção de dados foi realizada por meio de questionário eletrônico e a análise dos dados a partir da Análise Temática proposta por Braun e Clarke, como ferramenta de apoio foi utilizado o software Iramuteq®. RESULTADOS: a percepção dos participantes é prioritariamente negativa sobre o processo de transição, os participantes desconhecem protocolos estabelecidos para a transferência de pacientes na instituição, consideram a equipe multidisciplinar essencial para a segurança das transições, consideram que um checklist tem potencial para proporcionar transições mais seguras. Foi elaborado uma checklist de transferência interna de pacientes como produto da presente pesquisa com 40 itens. CONCLUSÃO: Os objetivos da pesquisa foram atingidos a partir da verificação da percepção dos profissionais de saúde acerca das transições propondo reflexões e possibilidades de novas pesquisas e, na elaboração de um checklist para transferência interna de pacientes. No campo da enfermagem, pôde ser verificado o protagonismo da enfermagem nos processos de transição. A revisão de literatura abordou ferramentas com potencial de auxiliar em processos mais seguros para pacientes, familiares e profissionais.


Abstract: ransitional care is defined as a set of actions designed to ensure coordination and continuity of care. During transitions, gaps can occur that contribute to low-quality care and increased inpatient costs, and represent a source of medical errors and fragmentation of care, and can result in patient harm. AIMS: (i)To verify the perception of health professionals about transitional care; (ii) To elaborate a checklist for transitioning patients between units. METHOD: Exploratory research with a qualitative approach, with the participation of 20 health professionals from inpatient and intensive care units of a University Hospital in Curitiba-PR. Data collection was performed using an electronic questionnaire and data analysis was based on Thematic Analysis proposed by Braun and Clarke, using the Iramuteq® software as a support tool. RESULTS: the participants' perception is mostly negative about the transition process, participants are unaware of established protocols for patient transference in the institution, consider the multidisciplinary team essential for safe transitions, consider that a checklist has potential to provide safer transitions. An internal patient transfer checklist was developed as a product of this research with 40 itens. CONCLUSION: The research aims were achieved from the verification of the perception of health professionals about the transitions, proposing reflections and possibilities for further research, and in the development of a checklist for internal transference of patients. In the field of nursing, the protagonism of nursing in transition processes could be verified. The literature review addressed tools with the potential to assist in safer processes for patients, families and professionals.


Asunto(s)
Humanos , Masculino , Femenino , Adulto , Persona de Mediana Edad , Planificación de Atención al Paciente , Administración de los Servicios de Salud , Continuidad de la Atención al Paciente , Difusión de la Información , Planificación Anticipada de Atención , Cuidado de Transición
18.
Rev. ADM ; 78(2): 106-114, mar.-abr. 2021. ilus
Artículo en Español | LILACS | ID: biblio-1247959

RESUMEN

Las estrategias para el éxito en la rehabilitación bucal requieren de la interrelación de varias disciplinas que en conjunto logren resultados predecibles y duraderos. La visión individualizada de cada área de especialidad puede conllevar a no ofrecer la mejor alternativa de tratamiento, es por ello que la valoración, el diagnóstico y la planificación del caso clínico debe ser realizada por un equipo interdisciplinario para evitar esta situación y crear una sinergia en donde el «todo sea mayor que la suma de sus partes¼. El objetivo de este trabajo es presentar un caso clínico en el cual intervinieron varias áreas de especialidad: periodoncia, prostodoncia, cirugía oral y patología bucal, logrando devolver la función y la estética a través del manejo interdisciplinario (AU)


The strategies for success in oral rehabilitation require the interrelation of several disciplines, which together, achieve predictable and lasting results. The individualized view of each specialty area may lead to not offering the best treatment alternative, which is why the assessment, diagnosis, and planning of the clinical case must be carried out by an interdisciplinary team to avoid this situation and create a synergy in where the «whole is greater than the sum of its parts¼. The objective of this work is to present a clinical case where several areas of specialty intervened: periodontics, prosthodontics, oral surgery, and oral pathology, thus achieving the return of function and aesthetics through interdisciplinary management (AU)


Asunto(s)
Humanos , Femenino , Persona de Mediana Edad , Grupo de Atención al Paciente , Procedimientos Quirúrgicos Preprotésicos Orales/métodos , Rehabilitación Bucal , Periodontitis/terapia , Facultades de Odontología , Satisfacción del Paciente , Fotografía Dental , Planificación Anticipada de Atención , Dentadura Completa Inmediata , Estética Dental , Aumento de la Cresta Alveolar/métodos , Frenillo Labial/cirugía , México
19.
Nursing (Ed. bras., Impr.) ; 24(272): 5128-5147, jan.2021.
Artículo en Portugués | LILACS, BDENF - Enfermería | ID: biblio-1148453

RESUMEN

OBJETIVO: Conhecer os cuidados de enfermagem dispensadas ao potencial doador de órgãos em morte encefálica. MÉTODO: Revisão integrativa que se dividiu em seis etapas. Os critérios de inclusão foram os artigos disponíveis completos e gratuitos, em qualquer idioma visto a grande escassez de estudos na área, publicados entre os anos de 2010 a 2016. RESULTADOS: Foram encontrados 179 artigos dos quais 17 cumpriram aos critérios estabelecidos e foram incluídos na presente revisão. O conhecimento é essencial para a realização das condutas normalmente realizadas. A abordagem familiar dos potenciais doadores também faz parte das condutas de enfermagem, visto ser uma abordagem multiprofissional. Esse ponto é um dos mais críticos do processo de doação, visto o grande obstáculo interposto pelos familiares. CONCLUSÃO: É de grande importância que o profissional de enfermagem tenha sistematizada as ações que adotará frente a um caso de morte encefálica, principalmente relacionado a conduta com familiares.(AU)


OBJETIVO: Conhecer os cuidados de enfermagem dispensadas ao potencial doador de órgãos em morte encefálica. MÉTODO: Revisão integrativa que se dividiu em seis etapas. Os critérios de inclusão foram os artigos disponíveis completos e gratuitos, em qualquer idioma visto a grande escassez de estudos na área, publicados entre os anos de 2010 a 2016. RESULTADOS: Foram encontrados 179 artigos dos quais 17 cumpriram aos critérios estabelecidos e foram incluídos na presente revisão. O conhecimento é essencial para a realização das condutas normalmente realizadas. A abordagem familiar dos potenciais doadores também faz parte das condutas de enfermagem, visto ser uma abordagem multiprofissional. Esse ponto é um dos mais críticos do processo de doação, visto o grande obstáculo interposto pelos familiares. CONCLUSÃO: É de grande importância que o profissional de enfermagem tenha sistematizada as ações que adotará frente a um caso de morte encefálica, principalmente relacionado a conduta com familiares.(AU)


OBJETIVO: Conocer la atención de enfermería proporcionada al potencial donante de órganos en la muerte cerebral. METODO: Revisión integrativa que se dividió en seis etapas. Los criterios de inclusión fueron los artículos disponibles completos y gratuitos, en cualquier idioma visto por la gran escasez de estudios en la zona, publicados entre los años 2010 y 2016. RESULTADOS: Encontramos 179 artículos, 17 de los cuales cumplieron con los criterios establecidos y fueron incluidos en esta revisión. El conocimiento es esencial para realizar las conductas que normalmente se realizan. El enfoque familiar de los donantes potenciales también forma parte de las conductas de enfermería, ya que es un enfoque multiprofesional. Este punto es uno de los más críticos del proceso de donación, dado el gran obstáculo que traen los miembros de la familia. CONCLUSION: Es de gran importancia que el profesional de enfermería haya sistematizado las acciones que adoptará ante un caso de muerte cerebral, principalmente relacionadas con la conducta con los miembros de la familia.(AU)


Asunto(s)
Humanos , Donantes de Tejidos , Obtención de Tejidos y Órganos , Muerte Encefálica , Atención de Enfermería , Planificación Anticipada de Atención
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