RESUMEN
PURPOSE: This study describes the development and validation of an age-appropriate website for preschool children who require clean intermittent catheterization (CIC). METHODS: An age-appropriate website was developed at an academic medical center in Brazil and included child-friendly characters, details of the urinary system anatomy and physiology, hand-washing, and the CIC procedure. Content was validated by physicians, nurses, and health informatics professionals. Face validity was assessed by parents. FINDINGS: Content and face validity indices were 0.94 and 0.92, respectively. CONCLUSIONS: The free website (www.doutorbexiga.com.br) was successfully validated and considered suitable and user-friendly for the health education of children requiring CIC. CLINICAL RELEVANCE: Physicians and nurses can use the website as a model for developing similar materials. The website can be a resource for health professionals and parents of children with spinal cord injury or other neurological disorders to encourage children to learn about CIC through animated educational materials.
Asunto(s)
Cateterismo Uretral Intermitente/métodos , Educación del Paciente como Asunto/normas , Brasil , Humanos , Internet , Educación del Paciente como Asunto/métodos , Evaluación de Programas y Proyectos de Salud/métodos , Encuestas y Cuestionarios , Estudios de Validación como AsuntoRESUMEN
ABSTRACT Purpose The vesicostomy button has been shown to be a safe and effective bladder management strategy for short- or medium-term use when CIC cannot be instituted. This study reports our use with the vesicostomy button, highlighting the pros and cons of its use and complications. We then compared the quality or life in patients with vesicostomy button to those performing clean intermittent catheterization. Materials and Methods Retrospective chart review was conducted on children who had a vesicostomy button placed between 2011 and 2015. Placement was through existing vesicostomy, open or endoscopically. We then evaluated placement procedure and complications. A validated quality of life questionnaire was given to patients with vesicostomy button and to a matched cohort of patients performing clean intermittent catheterization. Results Thirteen children have had a vesicostomy button placed at our institution in the 4 year period, ages 7 months to 18 years. Indications for placement included neurogenic bladder (5), non-neurogenic neurogenic bladder (3), and valve bladders (5). Five out of 7 placed via existing vesicostomy had leakage around button. None of the endoscopically placed buttons had leakage. Complications were minor including UTI (3), wound infection (1), and button malfunction/leakage (3). QOL was equal and preserved in patients living with vesicostomy buttons when compared to CIC. Conclusion The vesicostomy button is an acceptable alternative to traditional vesicostomy and CIC. The morbidity of the button is quite low. Endoscopic insertion is the optimal technique. QOL is equivalent in patients with vesicostomy button and those who perform CIC.
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Humanos , Masculino , Femenino , Lactante , Preescolar , Niño , Adolescente , Calidad de Vida , Cistostomía/métodos , Factores de Tiempo , Vejiga Urinaria Neurogénica/cirugía , Cistostomía/instrumentación , Encuestas y Cuestionarios , Reproducibilidad de los Resultados , Estudios Retrospectivos , Estudios de Seguimiento , Resultado del Tratamiento , Cateterismo Uretral Intermitente/métodosRESUMEN
PURPOSE: The purpose of this study was to evaluate bladder self-management in transition to adult care for patients with spina bifida (SB) in 3 countries with similar clinical practice and different social, cultural, and economic milieu. STUDY DESIGN: Cross-sectional study. SUBJECTS AND SETTING: The sample comprised 90 participants: 27 reside in Brazil, 36 reside in Germany, and 27 reside in the United States. Demographic characteristics of the sample are based on country. The distribution of sex in the Brazilian sample was 18 males and 9 females, the German group had 11 males and 25 females, and the United States group had 8 males and 19 females. The age range of the cumulative sample was 13 to 29 years. The age of the German sample (mean 23.56, standard deviation [SD] 4.60 years) was significantly higher (analysis of variance, F(2, 87) = 13.62, P < .001) than the other 2 groups (Brazil mean 20.56 years, SD 5.24; US mean 19.44 years, SD 4.70). METHODS: Demographic, clinical, and social variable data were collected via an online questionnaire distributed to multiple regions of Germany and a multidisciplinary myelomeningocele clinic at the University of Michigan in the Midwestern United States. In Brazil, participants completed a printed version of the survey. In Germany and the United States, an electronic version of the survey was made available online. German and English versions of the survey, originally developed in Portuguese for persons residing in Brazil, were translated and validated. RESULTS: The majority of participants (94.4%) performed intermittent catheterization (IC), 76.5% performed IC independently, whereas 23.5% required assistance with IC or catheterized with aids (handles, leg spreaders, and penis or labia holder). There were no statistically significant group differences in independent self-catheterization by gender. There were significant national group differences in level of lesion (P = .016), use of shunt (P = .012), and medication for bladder management (P < .001). Among participants 18 years and older, there were significantly higher levels of education in the German and the US samples than in the Brazilian sample (P < .001). CONCLUSIONS: Although there were national group differences in medical characteristics and management of SB, differences in independent self-catheterization were not significant. Findings suggest that support from family/caregivers and health care providers appears to facilitate transition to independent self-care, regardless of national context.
Asunto(s)
Transferencia de Pacientes/métodos , Automanejo/métodos , Disrafia Espinal/complicaciones , Vejiga Urinaria/fisiopatología , Adolescente , Adulto , Análisis de Varianza , Brasil , Estudios Transversales , Femenino , Alemania , Humanos , Cateterismo Uretral Intermitente/métodos , Cateterismo Uretral Intermitente/tendencias , Masculino , Michigan , Transferencia de Pacientes/tendencias , Automanejo/tendencias , Disrafia Espinal/psicología , Estadísticas no Paramétricas , Encuestas y CuestionariosRESUMEN
PURPOSE: The vesicostomy button has been shown to be a safe and effective bladder management strategy for short- or medium-term use when CIC cannot be instituted. This study reports our use with the vesicostomy button, highlighting the pros and cons of its use and complications. We then compared the quality or life in patients with vesicostomy button to those performing clean intermittent catheterization. MATERIALS AND METHODS: Retrospective chart review was conducted on children who had a vesicostomy button placed between 2011 and 2015. Placement was through existing vesicostomy, open or endoscopically. We then evaluated placement procedure and complications. A validated quality of life questionnaire was given to patients with vesicostomy button and to a matched cohort of patients performing clean intermittent catheterization. RESULTS: Thirteen children have had a vesicostomy button placed at our institution in the 4 year period, ages 7 months to 18 years. Indications for placement included neurogenic bladder (5), non-neurogenic neurogenic bladder (3), and valve bladders (5). Five out of 7 placed via existing vesicostomy had leakage around button. None of the endoscopically placed buttons had leakage. Complications were minor including UTI (3), wound infection (1), and button malfunction/leakage (3). QOL was equal and preserved in patients living with vesicostomy buttons when compared to CIC. CONCLUSION: The vesicostomy button is an acceptable alternative to traditional vesicostomy and CIC. The morbidity of the button is quite low. Endoscopic insertion is the optimal technique. QOL is equivalent in patients with vesicostomy button and those who perform CIC.
Asunto(s)
Cistostomía/métodos , Calidad de Vida , Adolescente , Niño , Preescolar , Cistostomía/instrumentación , Femenino , Estudios de Seguimiento , Humanos , Lactante , Cateterismo Uretral Intermitente/métodos , Masculino , Reproducibilidad de los Resultados , Estudios Retrospectivos , Encuestas y Cuestionarios , Factores de Tiempo , Resultado del Tratamiento , Vejiga Urinaria Neurogénica/cirugíaRESUMEN
PURPOSE: Urinary tract infections are common and severe complications in patients with spina bifida. Management includes intermittent bladder catheterization with single use or reused sterile catheters. There is insufficient evidence to set a standard among the different techniques. We determined whether single use polyvinylchloride catheters would reduce urinary tract infections compared to reused polyvinylchloride catheters in patients with neurogenic bladder due to spina bifida. MATERIALS AND METHODS: We performed a 2-arm randomized parallel clinical trial from 2015 to 2016 with an 8-week followup at our center in patients with neurogenic bladder caused by spina bifida. Patients were divided into single use and reused polyvinylchloride catheter groups. Evaluations were done on days 0, 7, 14, 28, 42 and 56. Participants reported symptoms and urine cultures were obtained. The primary outcome was urinary tract infection frequency, defined as positive urine culture plus fever, flank pain, malaise, or cloudy or odorous urine. Study eligibility criteria were age 2 years or greater, spina bifida diagnosis with regular clean intermittent bladder catheterization and no urinary tract infection at initial evaluation. RESULTS: The calculated sample size was 75. Of the patients 135 were screened, 83 were randomized and 75 completed followup. Mean age was 12.7 years (range 2-56) and there were 29 males and 46 females. No statistical difference was found between the single use vs reused catheter groups in the frequency of asymptomatic bacteriuria (32.4% vs 23.7%, p = 0.398) or urinary tract infections (35.2% vs 36.8%, p = 0.877). CONCLUSIONS: Single use polyvinylchloride catheters for intermittent bladder catheterization did not decrease the incidence of urinary tract infections in our patients with neurogenic bladder compared to reused polyvinylchloride catheters. These results are consistent with the 2014 Cochrane Review.
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Cateterismo Uretral Intermitente/instrumentación , Cateterismo Uretral Intermitente/métodos , Disrafia Espinal/complicaciones , Vejiga Urinaria Neurogénica/terapia , Infecciones Urinarias/prevención & control , Adolescente , Adulto , Materiales Biocompatibles , Niño , Preescolar , Equipos Desechables , Equipo Reutilizado , Femenino , Estudios de Seguimiento , Humanos , Masculino , Persona de Mediana Edad , Cloruro de Polivinilo , Vejiga Urinaria Neurogénica/etiología , Catéteres Urinarios , Infecciones Urinarias/etiología , Adulto JovenRESUMEN
OBJECTIVE: To identify the factors associated with the knowledge of patients and caregivers about Clean Intermittent Urethral Catheterization in the literature which hinder or facilitate the procedure. METHOD: An integrative review of the literature conducted in the MEDLINE/PubMed, CINAHL, Cochrane, Web of Science, SCOPUS and LILACS databases. RESULTS: 13 primary studies were included in the sample after the peer review. A synthesis of knowledge was performed in two categories: Factors associated with the knowledge of patients and caregivers which hinder the procedure and Factors associated with the knowledge of patients and caregivers which facilitate the procedure. Factors that hinder and facilitate the procedure respectively related to the need of information and negative feelings, use of easy-to-understand language, and application of information leaflets, among others. CONCLUSION: There is a shortage of published articles on the subject, and those which were identified had a low level of evidence, therefore requiring greater commitment and effort on the part of health professionals and researchers to use more robust designs.
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Conocimientos, Actitudes y Práctica en Salud , Cateterismo Uretral Intermitente/métodos , Educación del Paciente como Asunto/métodos , Cuidadores/psicología , Cuidadores/normas , Humanos , AutocuidadoRESUMEN
PURPOSE: The purpose of this study was to describe and compare factors that affect urinary tract infection (UTI) rates in people with spina bifida (SB) and neurogenic bladder dysfunction before and following initiation of intermittent catheterization (IC). DESIGN: A quantitative, descriptive, correlational study. SUBJECTS AND SETTING: The study included people who were from Germany, a high-income nation, and Brazil, a middle-income nation. Brazilian participants were recruited from a public rehabilitation hospital in the state of Minas Gerais. German participants were drawn from different regions of the country. The study sample included 200 participants; participants were either individuals diagnosed with SB and neurogenic bladder dysfunction and using IC, or caregivers of persons using IC for bladder management. METHODS: Data were collected through a survey questionnaire developed for urological follow-up of SB patients. A translated and validated version of the form was used to collect data in Germany. To evaluate annual episodes of UTI, we considered the number of symptomatic UTI before and after IC. RESULTS: Participants from Brazil were significantly younger than German patients (median age 9 vs 20 years, P < .001). Brazilians predominately used assisted catheterization (63.0%), whereas most Germans performed self-catheterization (61.0%). Use of IC greatly reduced the incidence of UTI in both groups (mean 2.8 episodes per year before IC vs mean 1.1 episodes after starting IC, P < .001). Women had a higher number of UTI, both before and after IC, but enjoyed greater reduction in UTI after initiating IC than men. Self-catheterization also promoted a greater reduction of UTI than assisted IC (P = .022). CONCLUSIONS: Intermittent catheterization reduced annual episodes of UTI in both samples despite differences in catheterization technique. Patients practicing and performing self-catheterization achieved a greater reduction than those who relied on assisted IC. Comparative studies among additional countries with varying median income levels are needed to better understand the needs of individuals with SB and their families, and to plan and implement safe nursing interventions.
Asunto(s)
Infecciones Relacionadas con Catéteres/complicaciones , Cateterismo Uretral Intermitente/efectos adversos , Infecciones Urinarias/etiología , Adolescente , Adulto , Análisis de Varianza , Brasil/epidemiología , Infecciones Relacionadas con Catéteres/epidemiología , Niño , Preescolar , Femenino , Alemania/epidemiología , Humanos , Lactante , Cateterismo Uretral Intermitente/métodos , Masculino , Meningomielocele/complicaciones , Meningomielocele/terapia , Persona de Mediana Edad , Disrafia Espinal/complicaciones , Disrafia Espinal/terapia , Estadísticas no Paramétricas , Encuestas y Cuestionarios , Vejiga Urinaria Neurogénica/complicaciones , Vejiga Urinaria Neurogénica/terapia , Infecciones Urinarias/epidemiologíaRESUMEN
AIMS: To compare the impact of the different routes for clean intermittent catheterization on the quality of life of children with lower urinary tract dysfunction. METHODS: In this cross-sectional study, all children and adolescents under treatment in our clinic from August 2011 to May 2012 who were on CIC for bladder dysfunction were included. To evaluate the technical difficulty and the discomfort associated with the procedure we used a standard visual analog scale. Quality of life was measured using the Pediatric Quality of Life Inventory Version 4.0. RESULTS: A total of 70 children including 38 (54.3%) boys and 32 (45.7%) girls with a mean age of 11.8 ± 3.6 years (range 5 to 18 years) were evaluated. The mean daily number of catheterizations was 4.2 ± 1.1. CIC was performed through the urethra in 51 (72.9%) subjects and a stoma in 19 (27.1%). A 45 (64.3%) were assisted by a caregiver to perform a catheterization. No differences in both difficulty and discomfort for performing CIC were observed between groups. Children who performed CIC through a stoma had a better quality of life scores for the physical (P = 0.015) and social functioning domains (P = 0.011). CONCLUSION: The quality of life of children and adolescents performing CIC appears to be affected by the route of catheterization, with a worse performance for those using urethral catheterization.
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Cateterismo Uretral Intermitente/métodos , Síntomas del Sistema Urinario Inferior/terapia , Calidad de Vida , Adolescente , Niño , Preescolar , Estudios Transversales , Femenino , Humanos , Cateterismo Uretral Intermitente/psicología , Síntomas del Sistema Urinario Inferior/psicología , Masculino , Escala Visual AnalógicaRESUMEN
OBJECTIVE: To identify the influence of social determinants of health on the life conditions of patients who use intermittent urinary catheters. METHOD: This was a descriptive study conducted in a rehabilitation center with 243 neurogenic bladder patients who used clear intermittent urinary catheters. The study was carried out between March 2012 and October 2015, using interviews based on semi-structured instruments, and data analysis using descriptive statistics. RESULTS: Most of the patients were men, between 16 and 64 years old, single, with an elementary education level, and a monthly household income of 2 to 3 minimum wages. The results show that the social determinants of health were related to socioeconomic, demographic, and health factors. CONCLUSION: The findings indicate a complex relationship between social determinants of health and the life conditions of patients who use clean intermittent urinary catheters, presenting greater vulnerability related to some aspects of health conditions.
Asunto(s)
Cateterismo Uretral Intermitente/psicología , Pacientes/psicología , Calidad de Vida/psicología , Determinantes Sociales de la Salud , Catéteres Urinarios/normas , Adolescente , Adulto , Brasil , Femenino , Humanos , Cateterismo Uretral Intermitente/efectos adversos , Cateterismo Uretral Intermitente/métodos , Entrevistas como Asunto/métodos , Masculino , Persona de Mediana Edad , Autocuidado/métodosRESUMEN
ABSTRACT Objective: To identify the influence of social determinants of health on the life conditions of patients who use intermittent urinary catheters. Method: This was a descriptive study conducted in a rehabilitation center with 243 neurogenic bladder patients who used clear intermittent urinary catheters. The study was carried out between March 2012 and October 2015, using interviews based on semi-structured instruments, and data analysis using descriptive statistics. Results: Most of the patients were men, between 16 and 64 years old, single, with an elementary education level, and a monthly household income of 2 to 3 minimum wages. The results show that the social determinants of health were related to socioeconomic, demographic, and health factors. Conclusion: The findings indicate a complex relationship between social determinants of health and the life conditions of patients who use clean intermittent urinary catheters, presenting greater vulnerability related to some aspects of health conditions.
RESUMEN Objetivo: Identificar la influencia de factores de los determinantes sociales de salud en las condiciones de vida de pacientes usuarios de cateterismo urinario intermitente. Método: Investigación descriptiva realizada en centro de Rehabilitación. Participaron 243 pacientes con vejiga neurogénica, usuarios de cateterismo urinario intermitente limpio. Estudio realizado entre marzo de 2012 y octubre de 2015, aplicando entrevista apoyada por instrumento semiestructurado, y análisis por estadística descriptiva. Resultados: La mayoría de los pacientes era de sexo masculino, edad entre 16 y 64 años, solteros, con enseñanza primaria e ingresos familiares entre 2 y 3 salarios mínimos. Los determinantes sociales de salud encontrados estuvieron relacionados a aspectos socioeconómicos, demográficos y condiciones de salud. Conclusión: Los hallazgos señalan una compleja relación entre los determinantes sociales de salud y las condiciones de vida de estos pacientes usuarios de cateterismo urinario intermitente limpio, presentando vulnerabilidad en relación a algunos aspectos de las condiciones de salud.
RESUMO Objetivo: Identificar a influência de fatores dos determinantes sociais de saúde nas condições de vida de pacientes usuários de cateterismo urinário intermitente. Método: Pesquisa descritiva realizada em um Centro de Reabilitação com 243 pacientes com bexiga neurogênica, usuários de cateterismo urinário intermitente limpo. O período do estudo foi de março/2012 a outubro/2015, utilizando-se entrevista com apoio de um instrumento semiestruturado e análise por estatística descritiva. Resultados: A maioria dos pacientes era do gênero masculino, idade entre 16 e 64 anos, solteiros, com ensino fundamental e renda familiar mensal de 2 a 3 salários mínimos. Os determinantes sociais de saúde encontrados foram relacionados aos aspectos socioeconômicos, demográficos e condições de saúde. Conclusão: Os achados assinalam para uma complexa relação entre os determinantes sociais de saúde e as condições de vida desses pacientes usuários de cateterismo urinário intermitente limpo, apresentando uma vulnerabilidade com relação a alguns aspectos das condições de saúde.
Asunto(s)
Humanos , Masculino , Femenino , Adolescente , Adulto , Pacientes/psicología , Calidad de Vida/psicología , Cateterismo Uretral Intermitente/psicología , Catéteres Urinarios/normas , Determinantes Sociales de la Salud , Autocuidado/métodos , Brasil , Entrevistas como Asunto/métodos , Cateterismo Uretral Intermitente/efectos adversos , Cateterismo Uretral Intermitente/métodos , Persona de Mediana EdadRESUMEN
Telenursing is a promising strategy to make nursing care feasible in different health situations, mainly to help patients with chronic illnesses. The aim in this study was to test the feasibility (acceptability and usability) of a telenursing intervention in care delivery to patients using clean intermittent urinary catheterization. This descriptive study focused on an intervention involving urology outpatients. The telenursing intervention was implemented synchronously by audio calls and chat and asynchronously by e-mail as part of a pilot study. The contact between nurse and patient was undertaken through an active search or on spontaneous demand, in which the patient contacted the nurse when necessary. During the 5 weeks of study, 21 telenursing care sessions took place, including 13 (61.9%) on spontaneous demand and eight (38.1%) on active demand. With regard to the technological resource used, 13 telenursing sessions (61.9%) took place by telephone call and eight (30.1%) by e-mail. The pilot study demonstrated the potential of the telenursing intervention to achieve important results, and as a complement to the patients' traditional health treatment. In addition, it revealed various barriers that need to be overcome for this type of care to take place effectively.
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Cateterismo Uretral Intermitente/estadística & datos numéricos , Teleenfermería/métodos , Adulto , Anciano , Correo Electrónico/estadística & datos numéricos , Femenino , Humanos , Cateterismo Uretral Intermitente/métodos , Masculino , Persona de Mediana Edad , Proyectos Piloto , Teléfono/estadística & datos numéricosRESUMEN
ABSTRACT Objective To validate a measurement instrument for clean intermittent self-catheterization for patients and health-caregivers. Material and Methods Methodological study of instrument validation performed at a Rehabilitation Center in a University hospital for patients submitted to clean intermittent self-catheterization and their health-caregivers. Following ethical criteria, data were collected during interview with nurse staff using a Likert question form containing 16 items with 5 points each: “no confidence”=1, “little confidence”=2, “confident”=3, “very confident”=4 and “completely confident”=5. Questionnaire called “Self-Confident Scale for Clean Intermittent Self-catheterization” (SCSCISC) was constructed based on literature and previously validated (appearance and content). Results The instrument was validated by 122 patients and 119 health-caregivers, in a proportion of 15:1. It was observed a good linear association and sample adequacy KMO 0.931 and X2=2881.63, p<0.001. Anti-image matrix showed high values at diagonal suggesting inclusion of all factors. Screen plot analysis showed a suggestion of items maintenance in a single set. It was observed high correlation of all items with the total, alpha-Cronbach 0.944. The same results were obtained in subsamples of patients and health-caregivers. Conclusion The instrument showed good psychometric adequacy corroborating its use for evaluation of self-confidence during clean intermittent self-catheterization.
Asunto(s)
Humanos , Masculino , Femenino , Niño , Adolescente , Adulto , Adulto Joven , Autocuidado/instrumentación , Encuestas y Cuestionarios , Cuidadores , Cateterismo Uretral Intermitente/métodos , Psicometría , Sistema Urinario/fisiopatología , Cateterismo Urinario/métodosRESUMEN
OBJECTIVE: To validate a measurement instrument for clean intermittent self-catheterization for patients and health-caregivers. MATERIAL AND METHODS: Methodological study of instrument validation performed at a Rehabilitation Center in a University hospital for patients submitted to clean intermittent self-catheterization and their health-caregivers. Following ethical criteria, data were collected during interview with nurse staff using a Likert question form containing 16 items with 5 points each: "no confidence"=1, "little confidence"=2, "confident"=3, "very confident"=4 and "completely confident"=5. Questionnaire called "Self- Confident Scale for Clean Intermittent Self-catheterization" (SCSCISC) was constructed based on literature and previously validated (appearance and content). RESULTS: The instrument was validated by 122 patients and 119 health-caregivers, in a proportion of 15:1. It was observed a good linear association and sample adequacy KMO 0.931 and X2=2881.63, p<0.001. Anti-image matrix showed high values at diagonal suggesting inclusion of all factors. Screen plot analysis showed a suggestion of items maintenance in a single set. It was observed high correlation of all items with the total, alpha-Cronbach 0.944. The same results were obtained in subsamples of patients and health-caregivers. CONCLUSION: The instrument showed good psychometric adequacy corroborating its use for evaluation of self-confidence during clean intermittent self-catheterization.
Asunto(s)
Cuidadores , Cateterismo Uretral Intermitente , Autocuidado/instrumentación , Encuestas y Cuestionarios , Adolescente , Adulto , Niño , Femenino , Humanos , Cateterismo Uretral Intermitente/métodos , Masculino , Psicometría , Cateterismo Urinario/métodos , Sistema Urinario/fisiopatología , Adulto JovenRESUMEN
Ochoa syndrome is rare and its major clinical problems frequently unrecognized. We describe facial characteristics of six patients to help health professional recognize the inverted smile that these patients present and refer them to proper treatment. Patients’ medical records were reviewed and patients’ urological status clinically reassessed. At last evaluation patients’ mean age was 15.5 years, and age ranged from 12 to 32 years. Mean follow-up was 35 months (12 to 60). Initial symptoms were urinary tract infections in four patients (67%) associated with enuresis and incontinence in three of them (50%). One patient had only urinary tract infection and two lower urinary tract symptoms without infections. Initial treatment consisted of clean intermittent catheterization with anticholinergics for all patients. Four patients (67%) were submitted to bladder augmentation. Two patients had end-stage renal disease during follow-up, one received kidney transplantation and one patient remained on the waiting list for a renal transplantation. Familial consanguinity was present in only one case. This significant condition is rare, but it must be recognized by pediatricians, nephrologists and urologists in order to institute early aggressive urological treatment.
A síndrome de Ochoa é rara, e seus principais problemas clínicos são frequentemente não reconhecidos. Descrevem-se aqui características faciais de seis pacientes para auxiliar profissionais de saúde a reconhecer o sorriso invertido que eles apresentam e encaminhá-los para o tratamento adequado. Os prontuários médicos foram revisados e a condição urológica dos pacientes foi reavaliada clinicamente. A média de idade na última avaliação foi de 15,5 anos, variando de 12 a 32 anos. O seguimento médio foi de 35 meses (12 a 60). Os sintomas iniciais foram infecções do trato urinário em quatro pacientes (67%) associadas com enurese e incontinência urinária em três deles (50%). Um paciente apresentou infecções do trato urinário isoladamente e dois apresentaram sintomas do trato urinário inferior, porém sem infecções. O tratamento inicial consistiu em cateterismo intermitente limpo, com anticolinérgicos em todos os pacientes. Reconstrução urinária foi realizada em quatro pacientes (67%) por meio de ampliação vesical. Dois pacientes apresentaram doença renal em estágio terminal no seguimento, um recebeu transplante renal e outro manteve-se em lista de espera para transplante renal. Consanguinidade familiar esteve presente em apenas um caso. Essa condição significativa é rara, porém deve ser reconhecida por pediatras, nefrologistas e urologistas, a fim de instituir tratamento urológico agressivo precoce.
Asunto(s)
Adolescente , Adulto , Niño , Femenino , Humanos , Masculino , Cateterismo Uretral Intermitente/métodos , Infecciones Urinarias/complicaciones , Enfermedades Urológicas/diagnóstico , Antagonistas Colinérgicos/uso terapéutico , Facies , Estudios de Seguimiento , Trasplante de Riñón , Fotograbar , Estudios Retrospectivos , Sonrisa , Vejiga Urinaria Neurogénica/complicaciones , Vejiga Urinaria Neurogénica/diagnóstico , Vejiga Urinaria Neurogénica/terapia , Incontinencia Urinaria/complicaciones , Incontinencia Urinaria/terapia , Infecciones Urinarias/terapia , Enfermedades Urológicas/complicaciones , Enfermedades Urológicas/terapiaRESUMEN
Ochoa syndrome is rare and its major clinical problems frequently unrecognized. We describe facial characteristics of six patients to help health professional recognize the inverted smile that these patients present and refer them to proper treatment. Patients' medical records were reviewed and patients' urological status clinically reassessed. At last evaluation patients' mean age was 15.5 years, and age ranged from 12 to 32 years. Mean follow-up was 35 months (12 to 60). Initial symptoms were urinary tract infections in four patients (67%) associated with enuresis and incontinence in three of them (50%). One patient had only urinary tract infection and two lower urinary tract symptoms without infections. Initial treatment consisted of clean intermittent catheterization with anticholinergics for all patients. Four patients (67%) were submitted to bladder augmentation. Two patients had end-stage renal disease during follow-up, one received kidney transplantation and one patient remained on the waiting list for a renal transplantation. Familial consanguinity was present in only one case. This significant condition is rare, but it must be recognized by pediatricians, nephrologists and urologists in order to institute early aggressive urological treatment.
Asunto(s)
Cateterismo Uretral Intermitente/métodos , Infecciones Urinarias/complicaciones , Enfermedades Urológicas/diagnóstico , Adolescente , Adulto , Niño , Antagonistas Colinérgicos/uso terapéutico , Facies , Femenino , Estudios de Seguimiento , Humanos , Trasplante de Riñón , Masculino , Fotograbar , Estudios Retrospectivos , Sonrisa , Vejiga Urinaria Neurogénica/complicaciones , Vejiga Urinaria Neurogénica/diagnóstico , Vejiga Urinaria Neurogénica/terapia , Incontinencia Urinaria/complicaciones , Incontinencia Urinaria/terapia , Infecciones Urinarias/terapia , Enfermedades Urológicas/complicaciones , Enfermedades Urológicas/terapiaRESUMEN
BACKGROUND: Appendicovesicostomy is commonly employed to facilitate drainage of urine through the catheter. Due to the tendency to less invasive procedures for the treatment of patients with neurogenic bladder, laparoscopy has been used as an alternative to open surgery, with the immediate advantages of postoperative recovery, shorter postoperative ileus, better cosmetic results, lower postoperative pain and early reintegration into everyday life. PURPOSE: Compare the results of laparoscopic procedure with open appendicovesicostomy. METHODS: We conducted an observational, analytical, longitudinal, ambispective cohort study, which included patients from 6-16 years of age diagnosed with neurogenic bladder, operated through laparoscopic and open appendicovesicostomy from January 2009 to June 2013. Information was obtained from clinical records. Six patients were operated laparoscopically and 14 by open approach. RESULTS: Surgical time was longer and statistically significant in the laparoscopic group with a median of 330 min (300-360 min) compared to open procedure of 255 min (180-360 min). Seven patients had complications in the open group and only one in the laparoscopic group. The difference in the dose of analgesics and time of use was statistically significant in favor of the laparoscopic group. The degree of urinary continence through the stoma was higher for laparoscopic (100%) compared to the open procedure (64%). CONCLUSIONS: In neurogenic bladder with urodynamic bladder capacity and leak point pressure bladder within acceptable values, laparoscopic appendicovesicostomy was a better alternative.
Antecedentes: la apendicovesicostomía suele practicarse para facilitar el drenaje de orina por medio del cateterismo. La tendencia a ofrecer procedimientos menos invasivos a pacientes con vejiga neurogénica ha hecho de la laparoscopia una alternativa a la cirugía abierta, por sus ventajas de recuperación, menor tiempo de íleo postoperatorio, mejor cosmética, menor dolor postquirúrgico y reintegración temprana a la vida cotidiana. Objetivo: comparar los resultados de la apendicovesicostomía laparoscópica con la abierta. Material y métodos: estudio de cohorte, observacional, analítico, longitudinal, ambispectivo, que incluyó pacientes de 6 a 16 años, con diagnóstico de vejiga neurogénica, intervenidos mediante laparoscopia y cirugía abierta entre enero de 2009 y junio 2013, recuperándose la información de los expedientes clínicos. Resultados: seis pacientes se operaron mediante laparoscopia y 14 con cirugía abierta. El tiempo quirúrgico fue mayor en el grupo intervenido mediante laparoscopia, con una mediana de 330 minutos (300-360), en comparación con el abierto de 255 minutos (180-360), diferencia estadísticamente significativa. Siete pacientes del grupo abierto tuvieron complicaciones y solo 1 del grupo laparoscópico. La diferencia en la dosis de analgésicos y en el tiempo de su consumo fue estadísticamente significativa a favor del grupo intervenido mediante laparoscopia. El grado de continencia urinaria por la derivación fue mayor para el procedimiento laparoscópico (100%) que para el abierto (64%). Conclusiones: la apendicovesicostomía laparoscópica resultó una mejor alternativa para pacientes con vejiga neurogénica con parámetros urodinámicos de capacidad vesical y presión de punto de fuga dentro de valores aceptables.