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Este libro intenta compartir los aportes técnicos de los enfoques con las vivencias emocionales recogidas en múltiples relatos. Contiene descripciones rigurosas de las dos disciplinas que confluyen, la medicina narrativa y los cuidados humanizados, así como de las medidas adoptadas en la organización del hospital y la asistencia. Suma a esos contenidos el relato de la experiencia en todo el enfoque humanístico de la crisis, de la reflexión grupal en los talleres, las estrategias adoptadas para la resolución de problemas complejos como las visitas, el aislamiento y los cuidados del final de la vida. En cada tema, aporta textos comprometidos y personales de los actores y diversos profesionales de la salud que comparten sus emociones y conmociones en la circunstancia extrema de la pandemia. (AU)

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Ateneo del Equipo de Psicopedagogía que se desempeña en el Departamento Área Programática del Hospital Dr. Dalmacio Velez Sarsfield, de la Ciudad de Buenos Aires, El Área Programática tiene por función principal aplicar la Estrategia de Atención Primaria de la Salud (APS), siendo ésta, el eje de articulación entre la comunidad y la institución hospitalaria. Gran parte del trabajo del Equipo se encuadra desde el enfoque prevención-promocional, y se ocupa también de la clínica asistencial, dentro del "Programa de Salud Escolar" Durante el mes de marzo del 2020, el trabajo en el Área Programática y en la institución hospitalaria en general, se vio influenciado por la aparición de la Pandemia (COVID-19), que puso al Sistema de Salud en situación de emergencia sanitaria. Se describe la modalidad de atención del Equipo, dentro de este panorama.

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INTRODUCTION: In 2006, abortion was decriminalised in Colombia under certain circumstances. Yet, women avail themselves of ways to terminate pregnancy outside of the formal health system. This study explored how drug sellers engage with women who attempt to purchase misoprostol from them. METHODS: A mapping exercise was undertaken to list small-chain and independent drug stores in two regions in Colombia. A sample (n=558) of drug stores was selected from this list and visited by mystery clients between November and December 2017. Mystery clients sought to obtain a medication to bring back a delayed period, and described the experience, the information obtained and the medications proffered in exit interviews. RESULTS: Misoprostol was offered for purchase in 15% of the visits; in half of visits, only information about misoprostol was shared, while no information about misoprostol was provided on the remaining visits. Over half of sellers who refused to sell any medication provided referrals, most commonly to an abortion provider. Among visits which included discussion of misoprostol, two out of five sellers provided dosage instructions with most recommending the minimum adequate dosage. Mystery clients received little information on the physical effects to expect with the use of misoprostol and possible complications. CONCLUSIONS: As misoprostol is being obtained from some drug sellers without a prescription, capacitating this cadre with at least a minimum of standardised information on dosage, routes of administration and expected effects and outcomes have the potential to improve reproductive health outcomes for women who choose to terminate pregnancies this way in Colombia.

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OBJECTIVES: This work comes from the interest and need to understand the problems arising from the activity of caring for dependent people, in the world and particularly in the European region. Altogether, it seeks to understand the consequences of informal care on the caregiver adding to the debate a gender perspective. Through a multidisciplinary bibliographic review, the current care crisis becomes clear. The demographic and socio-cultural changes in recent years are causing dependency to increase dramatically, while putting at risk the availability of informal caregivers. Several studies have shown that women are the ones on whom the burden of care mainly falls. Therefore, under the gender perspective, it becomes clear that the consequences of caregiver burden increase gender inequalities worldwide. The study analyzes the current situation and underlines the need to promote alternatives and opportunities so that care is shared and does not fall only on the female gender. Solutions need to be included in public and community health interventions and policies, and to this respect, nurses play an important role in changing the care paradigm.

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OBJECTIVE: To identify the main questions of informal caregivers of children with hearing impairments on the postoperative care of cochlear implant. METHOD: Cross-sectional study developed in a public and tertiary hospital of the state of São Paulo, Brazil. The sample consisted of 48 informal caregivers who were monitoring children subjected to cochlear implant. Data collection took place during the preoperative nursing consultation, by structured interview, between September 2016 and July 2017. The questions identified were categorized by similarity. RESULTS: The questions were related to: rest, dressing, feeding, length of stay, system activation time, infection, removal of stitches, bleeding, medicines, immediate sound stimulation, and pain. CONCLUSION: The prevalent questions were about rest, dressing, and feeding, and identifying them made it possible to plan and implement a nursing care aimed at the caregiver needs, as well as prepare them for care maintenance after hospital discharge.

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ABSTRACT Objective: To identify the main questions of informal caregivers of children with hearing impairments on the postoperative care of cochlear implant. Method: Cross-sectional study developed in a public and tertiary hospital of the state of São Paulo, Brazil. The sample consisted of 48 informal caregivers who were monitoring children subjected to cochlear implant. Data collection took place during the preoperative nursing consultation, by structured interview, between September 2016 and July 2017. The questions identified were categorized by similarity. Results: The questions were related to: rest, dressing, feeding, length of stay, system activation time, infection, removal of stitches, bleeding, medicines, immediate sound stimulation, and pain. Conclusion: The prevalent questions were about rest, dressing, and feeding, and identifying them made it possible to plan and implement a nursing care aimed at the caregiver needs, as well as prepare them for care maintenance after hospital discharge.

RESUMEN Objetivo: Identificar las principales dudas de cuidadores informales de niños con discapacidad auditiva en torno a los cuidados posoperatorios de implante coclear. Método: Estudio transversal realizado en un hospital público y terciario del interior de São Paulo, Brasil. La muestra constó de 48 cuidadores informales que acompañaban a niños sometidos a implante coclear. La recolección de datos se hizo durante la consulta de enfermería preoperatoria, por medio de entrevista estructurada realizada entre septiembre de 2016 y julio de 2017. Las dudas identificadas se categorizaron por similitud. Resultados: Las dudas estuvieron relacionadas con: el reposo, el vendaje, la alimentación, el tiempo de internación, el tiempo de activación del sistema, la infección, la retirada de puntos, el sangrado, las medicaciones, el estímulo sonoro inmediato y el dolor. Conclusión: Las dudas más predominantes fueron en torno al reposo, al vendaje y a la alimentación, e identificarlas posibilitó planificar e implementar una asistencia de enfermería orientada a las necesidades de la clientela, además de prepararla para mantener los cuidados tras el alta hospitalaria.

RESUMO Objetivo: Identificar as principais dúvidas de cuidadores informais de crianças com deficiência auditiva sobre os cuidados pós-operatórios de implante coclear. Método: Estudo transversal desenvolvido em um hospital público e terciário do interior de São Paulo, Brasil. A amostra constou de 48 cuidadores informais que se encontravam acompanhando crianças submetidas a implante coclear. A coleta de dados ocorreu durante a consulta de enfermagem pré-operatória, por meio de entrevista estruturada, entre setembro de 2016 e julho de 2017. As dúvidas identificadas foram categorizadas por similaridade. Resultados: As dúvidas relacionaram-se a: repouso, curativo, alimentação, tempo de internação, tempo de ativação do sistema, infecção, retirada de pontos, sangramento, medicações, estímulo sonoro imediato e dor. Conclusão: As dúvidas prevalentes relacionaram-se ao repouso, curativo e alimentação e identificá-las possibilitou planejar e implementar uma assistência de enfermagem voltada às necessidades da clientela, além de prepara-los para manutenção dos cuidados após a alta hospitalar.

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OBJECTIVES: The objectives of this study were (1) to assess pharmacist readiness to provide pharmaceutical care for transgender patients through measuring both pharmacists' knowledge and attitudes towards transgender patients, (2) to assess transgender patients' perception of pharmacist readiness to provide them pharmaceutical care through measuring both pharmacists' knowledge and attitudes toward them, and (3) to compare pharmacist readiness to provide pharmaceutical care for transgender patients and patient perception of this readiness. DESIGN: The study used a descriptive, cross-sectional design. The pharmacist's readiness and the transgender patient's perception of their readiness, defined as a combination of knowledge and attitude, were evaluated. Two separate, validated questionnaires with dichotomous, multiple choice, and open-ended questions were used to measure both constructs among both populations. SETTING: Community-based research. PARTICIPANTS: Pharmacists practicing in Puerto Rico were provided the questionnaire by e-mail or in person. Transgender participants in Puerto Rico were recruited through health clinics and community partners and were surveyed in person. The analysis included responses from 96 pharmacists and 31 transgender participants. RESULTS: The majority of the pharmacists' knowledge scores (90%) were found in the low (0-5) and moderate (6-10) ranges, with a mean score of 7.23 out of a total possible score of 16 (SD ±2.36). For the attitude construct, most of the scores (81%) were found in the high (18-26) range, with a mean score of 19.63 out of a total possible score of 26 (SD ±3.65). For both constructs, transgender patient perceptions echoed the results of the pharmacists, indicating several perceived knowledge deficits in combination with mostly positive attitudes. CONCLUSION: The majority of pharmacists demonstrated positive attitudes toward caring for transgender patients, and transgender patients also perceived these positive attitudes from pharmacists. However, the measured and perceived knowledge deficits observed in this study suggest the need for educational interventions to improve pharmacist readiness to provide care for transgender patients.

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OBJECTIVE: To investigate the forms of coping used to relieve tensions by elderly caregivers of elderly relatives and to know the type of support they receive from the Primary Health Care service at home. METHOD: A qualitative study with a theoretical-methodological contribution of Grounded Theory, carried out with 10 elderly caregivers interviewed between August 2014 and January 2015. RESULTS: Participants use primarily religious coping to deal with adverse situations that arise in their lives; they attribute to the sacred the strength to continue to age and care for another elderly person at home. Religiousness was the main coping strategy used by the participants, but little recognized by the health service. FINAL CONSIDERATIONS: It is recommended that the Primary Health Care service provide greater support to these caregivers and be attentive to the spiritual dimension as an auxiliary element in the process of comprehensive and inclusive health care of these elderly caregivers.

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ABSTRACT Objective: To investigate the forms of coping used to relieve tensions by elderly caregivers of elderly relatives and to know the type of support they receive from the Primary Health Care service at home. Method: A qualitative study with a theoretical-methodological contribution of Grounded Theory, carried out with 10 elderly caregivers interviewed between August 2014 and January 2015. Results: Participants use primarily religious coping to deal with adverse situations that arise in their lives; they attribute to the sacred the strength to continue to age and care for another elderly person at home. Religiousness was the main coping strategy used by the participants, but little recognized by the health service. Final considerations: It is recommended that the Primary Health Care service provide greater support to these caregivers and be attentive to the spiritual dimension as an auxiliary element in the process of comprehensive and inclusive health care of these elderly caregivers.

RESUMEN Objetivo: Investigar las formas de enfrentamiento utilizadas para alivio de tensiones por cuidadores ancianos de familiares ancianos y conocer el tipo de apoyo que reciben del servicio de Atención Primaria a la Salud en el domicilio. Método: Estudio cualitativo, con aporte teórico-metodológico de la Grounded Theory, realizado con 10 cuidadores ancianos entrevistados, entre agosto de 2014 y enero de 2015. Resultados: Los participantes se utilizan prioritariamente del coping religioso para enfrentar situaciones adversas que surgen en sus vidas; atribuyen al sagrado la fuerza para continuar envejeciendo y cuidar de otro anciano en el domicilio. La religiosidad fue la principal estrategia de enfrentamiento utilizada por los participantes, pero poco reconocida por el servicio de salud. Consideraciones finales: Se recomienda que el servicio de Atención Primaria a la Salud proporcione mayor apoyo a esos cuidadores y que esté atento a la dimensión espiritual como elemento auxiliar en el proceso de asistencia integral e inclusiva a la salud de esos cuidadores ancianos.

RESUMO Objetivo: Investigar as formas de enfrentamento utilizadas para alívio de tensões por cuidadores idosos de familiares idosos e conhecer o tipo de apoio que recebem do serviço de Atenção Primária à Saúde no domicílio. Método: Estudo qualitativo, com aporte teórico-metodológico da Grounded Theory, realizado com 10 cuidadores idosos entrevistados, entre agosto de 2014 e janeiro de 2015. Resultados: Os participantes utilizam-se prioritariamente do coping religioso para enfrentar situações adversas que surjam em suas vidas; atribuem ao sagrado a força para continuar a envelhecer e cuidar de outro idoso no domicílio. A religiosidade foi a principal estratégia de enfrentamento utilizada pelos participantes, porém, pouco reconhecida pelo serviço de saúde. Considerações finais: Recomenda-se que o serviço de Atenção Primária à Saúde proporcione maior apoio a esses cuidadores e que esteja atento à dimensão espiritual como elemento auxiliar no processo de assistência integral e inclusiva à saúde desses cuidadores idosos.

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This paper aims to review literature published on the support of cancer caregivers with health technology. Eighteen articles were reviewed to better understand cancer caregiving and categorized into four different themes: (1) design guidelines, (2) information facilitation, (3) social support, and (4) multicomponent interventions. Analysis of the current articles revealed that there are substantial gaps in knowledge regarding a range of health technologies that facilitate family caregiver support and its distribution to health institutions. Further research is needed in this area, as family caregivers are primary providers of essential elements of care to patients. Future studies should unpack existing barriers that interfere with the development of health technology interventions in cancer care.

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Resumo O câncer desencadeia reações orgânicas e emocionais, provocando sentimentos, desequilíbrios e conflitos internos. O estudo procurou identificar as percepções do paciente oncológico sobre o cuidado profissional recebido. Trata-se de estudo qualitativo, constituindo-se como uma possibilidade de reflexão acerca da assistência prestada a estes pacientes, sob a ótica de uma abordagem humanística. Participaram da pesquisa 25 pacientes adultos internados no setor de Oncologia de uma instituição pública, de ensino e de referência na área, localizada na Região Centro-Oeste do Brasil, junto aos quais se realizou entrevista semiestruturada, que teve seu roteiro avaliado por profissionais da área temática. Após a coleta dos dados, estes foram transcritos e sistematizados pelo Discurso do Sujeito Coletivo, sendo posteriormente confrontados com o relatório da Observação Sistemática Participante. Como resultados, o estudo identificou percepção positiva do usuário sobre o cuidado recebido, embora a prática profissional incorpore parcialmente as recomendações preconizadas pela Política Nacional de Humanização. Concluiu-se que é necessário investir esforços no intuito de potencializar a incorporação de condutas profissionais que priorizem o cuidado humanizado, pois sua ausência compromete a adesão terapêutica, fragiliza o paciente, acarretando impactos emocionais no indivíduo.

Abstract Cancer triggers organic and emotional reactions, causing feelings, imbalances and internal conflicts. The study sought to identify the perceptions of the cancer patient about the professional care received. It is a qualitative study, constituting as a possibility of reflection on the care given to these patients, from the perspective of a humanistic approach. Twenty-five adult patients admitted to the Oncology Sector of a public institution, teaching and referral in the area, located in the Brazilian Center-West Region, where a semi-structured interview was carried out, which had its script evaluated by professionals in the thematic area. After the data were collected, they were transcribed and systematized by the Collective Subject Discourse, and later they were confronted with the report of the Participating Systematic Observation. As results, the study identified a positive perception of the user about the care received, although the professional practice partially incorporates the recommendations recommended by the National Humanization Policy. It was concluded that it is necessary to invest efforts to enhance the incorporation of professional behaviors that prioritize humanized care, because their absence compromises therapeutic adherence, weakens the patient, and has an emotional impact on the individual.

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