RESUMEN
A few decades ago, women diagnosed with multiple sclerosis were discouraged from becoming pregnant. However, with new knowledge about the disease and treatments, this recommendation has changed, and it is pregnancy after the diagnosis of the disease is no longer contraindicated, with family planning being essential in this process. This review aims to provide a comprehensive overview of the family planning process for people with multiple sclerosis.
Até recentemente, a gravidez nas pacientes com o diagnóstico de esclerose múltipla era contraindicada. O avanço no conhecimento sobre a doença e os tratamentos alterou essa recomendação, e agora a gravidez após o diagnóstico da doença não é mais contraindicada; contudo, o planeamento familiar é essencial nesse processo. Esta revisão tem como objetivo fornecer uma visão abrangente do processo de planejamento familiar para pacientes com esclerose múltipla.
Asunto(s)
Servicios de Planificación Familiar , Esclerosis Múltiple , Complicaciones del Embarazo , Humanos , Femenino , Embarazo , Esclerosis Múltiple/diagnóstico por imagen , Complicaciones del Embarazo/terapia , Atención Dirigida al PacienteRESUMEN
Objective: The current study aimed to develop and validate of human dignity questionnaire in nursing care. Methods: The present research is a sequential exploratory mixed method study. The questionnaire was developed and validated in three phases: (1) the concept of human dignity was defined through conventional content analysis qualitative approach, (2) early items of questionnaire was generated according to findings of the first phase, (3) validation of the questionnaire was evaluated using face, content and construct validity as well as reliability. The study was conducted with the participation of 13 nurses in the qualitative section and 203 nurses in the quantitative section in teaching hospitals affiliated to Jahrom University of Medical Sciences (Iran). Results: In the qualitative section, the definition and dimensions of the concept of human dignity in nursing care were discovered. In the quantitative section, the initial pool of items for the questionnaire of human dignity in nursing care was formed using the results of the qualitative section of the study and review of texts and related questionnaires. In factor analysis, four subscales including: respectful communication, equality of patient human value, preservation of privacy and patient-centered care were extracted by Eigen value above one. Internal consistency and stability of the questionnaire were calculated as 0.85 and 0.80, respectively, indicating an excellent reliability. Conclusion: The 20-item developed questionnaire is valid and reliable for measurement of human dignity questionnaire in nursing cares.
Asunto(s)
Personeidad , Humanos , Encuestas y Cuestionarios , Reproducibilidad de los Resultados , Femenino , Adulto , Masculino , Irán , Atención de Enfermería , Atención Dirigida al Paciente , Persona de Mediana Edad , Respeto , Análisis Factorial , Personal de Enfermería en Hospital/psicología , Hospitales de Enseñanza , Adulto JovenRESUMEN
Resumen Introdução: A criação de guias que unificam as demandas clínicas prevalentes em consultas de enfermagem gerontológica e, das suas respectivas intervenções, se faz presente, devido a heterogeneidade das patologias emergentes no processo de envelhecimento, que irão precisar de cuidados. Objetivo: Identificar as demandas clínicas em consultas de enfermagem gerontológica e, as intervenções implementadas pelos(as) enfermeiros(as). Método: Revisão integrativa de pesquisas originais, publicadas entre 2018 e 2022, em inglês, espanhol e português, disponíveis nas bases de dados Scopus, MEDLINE/PubMed, BIREME/LILACS/BDENF/IBECS/BVS, SciELO e Google Scholar, pelos descritores DeCS/MESH: "Idoso"; "Enfermagem no Consultório"; "Enfermagem Geriátrica" e "Geriatria". O Rating System for the Hierarchy of Evidence for Intervention foi usado para determinar o nível de evidência da amostra final. Foram excluídos editoriais, estudos de revisão e artigos duplicados. A análise dos dados se deu pela leitura analítica e interpretativa, guiadas por um checklist. Resultados: Oito artigos foram selecionados e trouxeram demandas clínica tais como: o déficit no autocuidado para banho; autonegligência; fadiga; risco de integridade da pele prejudicada; desesperança; tristeza e depressão. As intervenções se relacionaram ao incentivo ao autocuidado; otimização dos medicamentos; estímulo a atividade física; cuidados com a pele; aconselhamento; musicoterapia e reabilitação psicossocial. Conclusão: Demandas clínicas atendidas nas consultas de enfermagem gerontológica possuem grande variação, com prevalência no domínio atividade/repouso, tais como intervenções voltadas para o tratamento e prevenção de doenças e ações visando a promoção da saúde, tendo o domínio comportamental mais expressivo.
Resumen Introducción: La creación de guías que unifiquen las demandas clínicas prevalentes en las consultas de enfermería gerontológica y sus respectivas intervenciones es necesaria, debido a la heterogeneidad de patologías emergentes en el proceso de envejecimiento que requerirán cuidados. Objetivo: Identificar las demandas clínicas en las consultas de enfermería gerontológica y las intervenciones implementadas por el personal de enfermería. Método: Revisión integrativa de investigaciones originales, publicadas entre 2018 y 2022, en inglés, español y portugués, en las bases de datos Scopus, MEDLINE/PubMed, BIREME/LILACS/BDENF/IBECS/BVS, SciELO y Google Scholar. Se utilizaron los descriptores DeCS/MESH: "Idoso"; "Enfermagem no Consultório"; "Enfermagem Geriátrica" e "Geriatria". Para determinar el nivel de evidencia de la muestra final, se usó el Rating System for the Hierarchy of Evidence for Intervention. Además, se excluyeron los editoriales, los estudios de revisión y los artículos duplicados. Los datos se analizaron mediante lectura analítica e interpretativa, guiada por una lista de verificación. Resultados: Se seleccionaron ocho artículos que aportaron demandas clínicas como déficit en el autocuidado para el baño, autodescuido, fatiga, riesgo integridad de la piel perjudicada; desesperanza, tristeza y depresión. Las intervenciones estaban orientadas al fomento del autocuidado, la optimización de la medicación, el fomento de la actividad física, el cuidado de la piel, el asesoramiento, la musicoterapia y la rehabilitación psicosocial. Conclusión: Las demandas clínicas atendidas en las consultas de enfermería gerontológica son muy variadas, con predominio en el dominio actividad/reposo, como intervenciones dirigidas al tratamiento y prevención de enfermedades y acciones dirigidas a la promoción de la salud, siendo más expresivo el dominio conductual.
Abstract Introduction: The creation of guidelines that unify the prevalent clinical demands from gerontological nursing consultations and their corresponding interventions are necessary due to the heterogeneity of emerging pathologies in the aging process that will require nursing care. Objective: To identify clinical demands in gerontological nursing consultations and the interventions implemented by nurses. Method: An integrative review of original research published from 2018 and 2022, in English, Spanish, and Portuguese, in Scopus, MEDLINE/PubMed, BIREME/lilacs/BDENF/IBECS/VHL, SciELO, and Google Scholar databases, using the DeCS/MESH descriptors: "Elderly", "Nursing in the Office", "Geriatric Nursing", and "Geriatrics". The Rating System for the Hierarchy of Evidence for Intervention was used to determine the level of evidence of the final sample. Editorials, review studies, and duplicate articles were excluded. The data were analyzed by analytical and interpretative reading, guided by a checklist. Results: Eight articles were selected that showed clinical demands such as deficits in self-care for bathing, self-negligence, fatigue, risk of damaged skin integrity, hopelessness, sadness, and depression. Interventions were related to encouraging self-care, medication optimization, encouragement of exercise, skin care, counseling, music therapy, and psychosocial rehabilitation. Conclusion: There are many different clinical demands in gerontological nursing consultations, especially associated with the domain of activity/rest. These include interventions to treat and prevent diseases, and actions aimed at health promotion, in most cases associated with the behavioral domain.
Asunto(s)
Envejecimiento , Atención Dirigida al Paciente/métodos , Enfermería Geriátrica/métodos , GuíaRESUMEN
Objetivo: O estudo visa analisar como a espiritualidade/religiosidade são importantes recursos de enfrentamento no processo de adoecimento e reabilitação em pessoas que recebem cuidados oncológicos. Visa-se descrever a percepção do papel desses recursos para as pessoas que recebem esses cuidados e investigar como ocorre a integração da fé na abordagem recebida por parte dos profissionais de saúde. Métodos: Trata-se de uma pesquisa de campo, descritiva e de cunho qualitativo, por meio de entrevistas com pessoas com doença oncológica assistidas pelo Instituto de prevenção do câncer Joel Magalhães-IJOMA nos meses de agosto/ setembro de 2021 e foram utilizados como instrumentos para a coleta de dados os questionários de caracterização e o questionário FICA. Resultados: Percebeu-se a importância de agregar a temática da espiritualidade/religiosidade no cuidado da pessoa com doença oncológica. Através das falas, identificou-se como a rede de apoio, os instrumentos para enfrentamento e a abordagem adequada do profissional são importantes recursos no decorrer do cuidado. Conclusão: É necessário ampliar a percepção dos profissionais de saúde acerca do cuidado holístico que abrange também a dimensão espiritual. Bem como propor uma intervenção consciente nos cuidados, ampliando os aspectos sociais e espirituais da pessoa, sem desprezar as práticas de Enfermagem e Ciência atuais. (AU)
Objective: The study aims to analyze how spirituality/religiosity are important coping resources in the process of illness and rehabilitation in people receiving cancer care. The aim is to describe the perception of the role of these resources for people who receive this care and investigate how the integration of faith in the approach received by health professionals occurs. Methods: This is a field research, descriptive and qualitative, through interviews with people with oncological disease assisted by the Joel Magalhães-IJOMA Cancer Prevention Institute in August/September 2021 and were used as instruments for data collection, the characterization questionnaires and the FICA questionnaire. Results: It was noticed the importance of adding the theme of religiosity/spirituality in the care of people with cancer. Through the speeches, it was identified as the support network, the coping instruments and the appropriate approach of the professional are important resources in the course of care. Conclusion: It is necessary to expand the perception of health professionals about holistic care that also encompasses the spiritual dimension. As well as proposing a conscious intervention in care, expanding the person's social and spiritual aspects, without neglecting current Nursing and Science practices. (AU)
Objetivo: El estudio tiene como objetivo analizar cómo la espiritualidad/religiosidad son importantes recursos de afrontamiento en el proceso de enfermedad y rehabilitación en personas que reciben atención oncológica. El objetivo es describir la percepción del papel de estos recursos para las personas que reciben este cuidado e investigar cómo se da la integración de la fe en el enfoque recibido por los profesionales de la salud. Métodos: Se trata de una investigación de campo, descriptiva y cualitativa, a través de entrevistas a personas con enfermedad oncológica asistidas por el Instituto de Prevención del Cáncer Joel Magalhães-IJOMA en agosto / septiembre de 2021 y se utilizaron como instrumentos para la recolección de datos, los cuestionarios de caracterización y el cuestionario FICA. Resultados: Se notó la importancia de incorporar el tema de la espiritualidad/religiosidad en la atención de las personas con cáncer. A través de los discursos, se identificó como la red de apoyo, los instrumentos de afrontamiento y el adecuado abordaje del profesional son recursos importantes en el curso de la atención. Conclusion: Es necesario ampliar la percepción de los profesionales de la salud sobre el cuidado holístico que englobe también la dimensión espiritual. Además de proponer una intervención consciente en el cuidado, ampliando los aspectos sociales y espirituales de la persona, sin descuidar las prácticas actuales de Enfermería y Ciencia. (AU)
Asunto(s)
Espiritualidad , Atención Dirigida al Paciente , Integralidad en SaludRESUMEN
Health research is the foundation of medical knowledge and healthcare system recommendations. Therefore, choosing appropriate outcomes in studies of therapeutic interventions is a fundamental step in producing evidence and, subsequently, for decision-making. In this article, we propose three key factors for the choice of outcomes: the inclusion of patient-reported outcomes, since they focus on the patient's perception of their health status and quality of life; the consideration of clinically relevant outcomes, which are direct measurements of the patient's health status and, therefore, will be decisive in decision-making; and the use of core outcome sets, a tool that standardizes the measurement and interpretation of outcomes, facilitating the production and synthesis of appropriate evidence for the evidence ecosystem. The correct choice of outcomes will help health decision-makers and clinicians deliver appropriate patient-centered care and optimize the use of resources in healthcare and clinical research.
La investigación en salud es la base del conocimiento médico y de las recomendaciones en los sistemas de salud. Por ello, la elección de desenlaces apropiados en estudios de intervenciones terapéuticas es un paso fundamental en la producción de evidencia y, posteriormente, para la toma de decisiones. En este artículo proponemos tres factores clave para la elección de desenlaces: la inclusión de desenlaces reportados por pacientes, ya que ponen el foco del efecto de la intervención en la percepción que tienen los propios pacientes de su estado de salud y calidad de vida; la consideración de desenlaces clínicamente relevantes, los cuales son mediciones directas del estado de salud del paciente y, por ende serán determinantes en la toma de decisiones; y la utilización de herramienta que estandariza y permite la homogeneización en la medición e interpretación de desenlaces, facilitando la producción y posterior síntesis de evidencia apropiada para el ecosistema de evidencia. La correcta elección de los desenlaces permitirá que la evidencia generada de estos estudios ayude a los tomadores de decisiones en salud y los profesionales clínicos a entregar cuidados apropiados centrados en el paciente y a optimizar el uso de recursos en salud e investigación clínica.
Asunto(s)
Ensayos Clínicos como Asunto , Toma de Decisiones , Estado de Salud , Medición de Resultados Informados por el Paciente , Atención Dirigida al Paciente , Calidad de Vida , Humanos , Evaluación de Resultado en la Atención de Salud , Conducta de Elección , Investigación BiomédicaRESUMEN
OBJECTIVE: The aim of this study is to identify the main processes and outcomes related to family-centred care (FCC) in neuromotor and functional rehabilitation of preschool children with cerebral palsy (CP). BACKGROUND: FCC is considered a reference for best practices in child rehabilitation. CP is the most common cause of physical disability in childhood with repercussions on functionality. There is a gap in knowledge of the practical principles of FCC, and it is necessary to develop a reference model for the practice of child rehabilitation professionals. METHODS: In this scoping review, the main databases selected were as follows: LILACS; Pubmed; Embase; The Cochrane Library; CINAHL (EBSCO); Scopus; Web of Science; PEDro (Physiotherapy Evidence Database); Open Gray and other banks of thesis. The terms combined in the search strategy were as follows: 'Family-centered', 'Family-centred' and 'CP'. Inclusion criteria are as follows: studies on preschool-aged children with CP, undergoing family-centred functional therapeutic interventions (FCFTI) with outcomes on bodily structures and functions and/or activities and/or participation. RESULTS: The main participatory care methods identified were home intervention, environmental enrichment, collaborative realistic goal setting, planning of home-based activities and routine, child assessment feedback, family education/training, family coaching, encouraging discussion, observation of therapist and supervised practice. The main relational care qualities identified were as follows: respect, active listening, treat parents as equals, clear language, respect parents' ability to collaborate, demonstrate genuine care for the family, appreciate parents' knowledge and skills, demonstrate competence, experience and commitment. The main outcomes identified in children were improvement in motor and cognitive function and the child's functional ability. The main parentaloutcomes identified were empowerment, feeling of competence, self-confidence, motivation and engagement. CONCLUSION: The main differences in FCFTI programs refer to the parental education/guidance component and the amount of intervention carried out by parents. It is possible that the elements chosen by the therapist in a FCFTI depend on characteristics of the child and caregivers.
Asunto(s)
Parálisis Cerebral , Humanos , Parálisis Cerebral/rehabilitación , Preescolar , Niño , Atención Dirigida al Paciente , Terapia Familiar/métodos , Relaciones Profesional-FamiliaRESUMEN
La presente publicación describe los criterios técnicos de referencia y contrarreferencia para la atención integral oportuna y de calidad de las personas con discapacidad., así como las actividades y procedimientos del personal que brinda atención estomatológica para disminuir el riesgo de complicaciones y aparición de nuevos casos por enfermedades estomatológicas
Asunto(s)
Atención Primaria de Salud , Rehabilitación , Enfermedades Dentales , Salud Bucal , Agentes Comunitarios de Salud , Atención Dirigida al Paciente , Dispositivos para el Autocuidado Bucal , Poblaciones Vulnerables , Práctica Odontológica de GrupoRESUMEN
Introducción: el estudio aporta evidencias científicas sin precedentes para la expansión de la alfabetización en salud como herramienta capaz de aumentar la seguridad del paciente a través de una comunicación eficaz entre los profesionales de la salud y sus pacientes, especialmente en atención primaria. Objetivo: mapear la evidencia sobre el impacto de la alfabetización en salud en la seguridad de la atención a pacientes adultos en atención primaria. Material y método: revisión exploratoria según el método del Instituto Joanna Briggs, en la que se contemplaron cuidados, técnicas, protocolos o métodos de alfabetización en salud utilizados para mejorar la atención primaria de salud. Se utilizaron las bases de datos Medline (PubMed), Web of Science, Scientific Electronic Library Online (SciELO), Virtual Health Library, Scopus, Cinahl y Google Scholar para la literatura gris. Se incluyeron los estudios originales disponibles en su totalidad, publicados hasta enero de 2023, en todos los idiomas que cubrían el tema. Dos pares seleccionaron por título y resumen, y tres pares leyeron los textos completos y extrajeron los datos de los artículos seleccionados, que se presentaron en flujogramas, tablas y narrativas descriptivas. Resultados: se encontraron 3749 estudios, de los que se seleccionaron 23. De ellos surgieron las siguientes categorías: "impacto de la alfabetización en salud sobre el compromiso y los resultados en salud de los usuarios de atención primaria"; "intervenciones que contribuyen a la alfabetización en salud en atención primaria" y "evaluación de las perspectivas de los usuarios y los profesionales sobre la alfabetización en salud". Conclusiones: las intervenciones de alfabetización en salud centradas en la atención primaria deben fomentarse en los servicios de salud para promover la atención, prevenir enfermedades e inspirar el proceso de transformación de la población, lo que repercute directamente en la seguridad de los pacientes.
Introdução: este estudo traz evidências científicas inéditas para a ampliação do letramento em saúde, como uma ferramenta capaz de aumentar a segurança do paciente através da comunicação eficaz entre os profissionais de saúde e seus pacientes, em especial nos cuidados primários em saúde. Objetivo: mapear evidências sobre o impacto do letramento em saúde na segurança do cuidado de pacientes adultos da atenção primária à saúde. Materiais e método: revisão de escopo de acordo com o método do Instituto Joanna Briggs, em que foram contemplados cuidados, técnicas, protocolos ou métodos de letramento em saúde utilizados para melhorar a assistência primária à saúde. Utilizaram-se as bases Medline (PubMed), Web of Science, Scientific Electronic Library Online (SciELO), Biblioteca Virtual em Saúde, Scopus, Cinahl e Google Acadêmico na literatura cinzenta. Foram incluídos estudos originais disponíveis na íntegra, publicados até janeiro de 2023, em todos os idiomas que englobassem a temática. Dois revisores realizaram a triagem por título e resumo, e três revisores leram os textos completos e extraíram dados dos artigos selecionados, sendo apresentados através de fluxo, tabela e narrativa descritiva. Resultados: foram encontrados 3749 estudos, dos quais 23 foram selecionados. Destes, surgiram as seguintes categorias: "impacto do letramento em saúde no engajamento e desfechos de saúde de usuários da atenção primária à saúde"; "intervenções que contribuem para o letramento em saúde na atenção primária à saúde" e "avaliação das perspectivas de usuários e profissionais quanto ao letramento em saúde". Conclusões: intervenções para o letramento em saúde com foco nos cuidados primários devem ser estimuladas dentro dos serviços de saúde a fim de promover o cuidado, prevenir agravos e inspirar o processo de transformação da população, impactando diretamente na segurança do paciente.
Introduction: This study provides unprecedented scientific evidence for the expansion of health literacy as a tool capable of increasing patient safety through effective communication between health care professionals and their patients, especially in primary health care. Objective: To map the evidence available regarding the impact of health literacy on care safety for adult patients in primary health care. Materials and methods: This is a scoping review in line with the Joanna Briggs Institute method, which covers care, techniques, protocols, or health literacy methods used to improve primary health care. The Medline (PubMed), Web of Science, Scientific Electronic Library Online (SciELO), Virtual Health Library, Scopus, Cinahl, and Google Scholar databases were used for the gray literature search. Original studies available in full and published until January 2023, in all languages covering the topic, were included. Two reviewers screened them by title and abstract, and three reviewers read the full texts and extracted data from the selected articles presented in flowcharts, tables, and descriptive narratives. Results: A total of 3749 studies were found, of which 23 were selected. From these, the following categories emerged: 'The impact of health literacy on the engagement and health outcomes of primary health care users;' 'Interventions that contribute to health literacy in primary health care;' and 'Evaluation of users' and professionals' perspectives on health literacy.' Conclusions: Health literacy interventions focused on primary care should be encouraged within health care services to promote care, prevent illnesses, and inspire the population's transformation process, with a direct impact on patient safety.
Asunto(s)
Atención Primaria de Salud , Enfermería , Atención Dirigida al Paciente , Alfabetización en Salud , Seguridad del PacienteRESUMEN
RESUMO Objetivo: conhecer as práticas do cuidado às pessoas com doença de Huntington. Método: estudo qualitativo, que utilizou o referencial do Cuidado Centrado no Paciente e na Família, realizado com 20 familiares cuidadores de pessoas com Huntington. A coleta de dados ocorreu mediante entrevista semiestruturada, nos meses de fevereiro e março de 2022, via Google Meet, e após transcritas na íntegra foram submetidas à Análise de Conteúdo. Resultados: a prática de cuidado às pessoas com Huntington necessita de adaptações no ambiente, de reajuste na rotina e improvisação de instrumentos de auxílio. A dificuldade para obtenção do diagnóstico gera a proatividade do familiar em busca de conhecimento para melhorar as condições de cuidado. Conclusão: embora trate-se de uma doença rara, as ações de cuidado referidas são semelhantes àquelas realizadas para pessoas com outras doenças crônicas. Contudo, o reconhecimento das práticas de cuidado realizadas pelos familiares pode oferecer subsídios para o planejamento da assistência pelos enfermeiros.
ABSTRACT Objective: to learn about care practices for people with Huntington's disease. Method: a qualitative study using the Patient- and Family-Centered Care framework, carried out with 20 family caregivers of people with Huntington's disease. Data was collected through semi-structured interviews, in February and March 2022, via Google Meet, and after being transcribed in full, it was submitted to Content Analysis. Results: The practice of caring for people with Huntington's requires adapting to the environment, readjusting the routine, and improvising aids. The difficulty in obtaining a diagnosis makes family members proactive in their search for knowledge to improve care conditions. Conclusion: although this is a rare disease, the care actions mentioned are like those carried out for people with other chronic diseases. However, recognizing the care practices carried out by family members can help nurses plan their care.
RESUMEN Objetivo: conocer las prácticas de atención a las personas con enfermedad de Huntington. Método: estudio cualitativo utilizando el marco de Atención Centrada en el Paciente y la Familia, realizado con 20 cuidadores familiares de personas con enfermedad de Huntington. Los datos se recogieron mediante entrevistas semiestructuradas, en febrero y marzo de 2022, a través de Google Meet, y tras ser transcritos en su totalidad, se sometieron a Análisis de Contenido. Resultados: la práctica de la atención a las personas con Huntington requiere adaptar el ambiente, reajustar la rutina e improvisar ayudas. La dificultad en obtener un diagnóstico genera proactividad por parte de los familiares en la búsqueda de conocimientos para mejorar las condiciones de atención. Conclusión: aunque se trate de una enfermedad rara, las acciones de cuidado mencionadas son similares a las que se llevan a cabo para personas con otras enfermedades crónicas. No obstante, reconocer las prácticas de atención que llevan a cabo los familiares puede ayudar a las enfermeras a planificar su asistencia.
Asunto(s)
Enfermedad de Huntington , Atención Dirigida al Paciente , Enfermedades Raras , Familia , Atención a la SaludRESUMEN
Este artigo tem como objeto o papel da narração das histórias de vida dos pacientes durante a consulta homeopática na promoção da saúde e produção de autonomia dos sujeitos. Objetivos e Metodologia: A partir da abordagem sócio-histórica, foi realizada revisão de literatura narrativa, a fim de identificar os limites e as possibilidades do ato de narrar na racionalidade médica homeopática para a produção de subjetividades e autonomia na trajetória singular de cada indivíduo levar sua vida. Considerações Finais: Há atualidade e consonância de conceitos da racionalidade médica homeopática com o paradigma contemporâneo da promoção da saúde; as narrativas produzidas no ato da anamnese homeopática têm a potencialidade de ampliar a compreensão médica e do indivíduo para além da doença, analisando o fenômeno existencial do adoecimento. A anamnese homeopática, ao valorizar as experiências existenciais relatadas no âmbito de uma consulta, concorre para uma valorização dos sujeitos, o que contribuiria para a construção de sua subjetividade, autonomia e emponderamento.
This article focuses on the role of narrating patients' life stories during homeopathic consultations in promoting health and producing autonomy for subjects. Objectives and Methodology: Using a socio-historical approach, a narrative literature review was carried out in order to identify the limits and possibilities of the act of narrating in homeopathic medical rationality for the production of subjectivities and autonomy in the unique trajectory of each individual. your life. Final Considerations: The concepts of homeopathic medical rationality are current and consistent with the contemporary paradigm of health promotion; The narratives produced in the act of homeopathic anamnesis have the potential to expand medical and individual understanding beyond the disease, analyzing the existential phenomenon of illness. Homeopathic anamnesis, by valuing the existential experiences reported in the context of a consultation, contributes to an appreciation of the subjects, which would contribute to the construction of their subjectivity, autonomy and empowerment.
Asunto(s)
Racionalización , Autonomía Profesional , Atención Dirigida al Paciente , Promoción de la SaludRESUMEN
Resumo Objetivo analisar as percepções de pessoas idosas internadas acerca da transição do cuidado do hospital para casa. Método pesquisa com abordagem qualitativa, descritivo-exploratória, realizada em unidade de internação clínica de hospital público, médio porte, no interior do estado de São Paulo, Brasil. Participaram 22 pessoas idosas, por meio de entrevistas semiestruturadas, conduzidas por questões fundamentadas nos pilares do Care Transition Intervention. Posteriormente, foi realizada observação participante no local do estudo, com registro em diário de campo e transcrição das falas. Seguiram-se análise temática e sistematização dos dados por meio de software específico para análise de dados qualitativos. Resultados a média de idade dos participantes foi de 68 anos (DP±5,4); 16 (77%) possuíam uma ou mais doenças crônicas; 14 (64%) faziam uso de um ou mais medicamentos de uso contínuo. O Código Internacional de Doenças principal de internação foi covid-19. A média de permanência de internação foi de 9 dias (DP±5,7), com máximo de 31 dias e mínimo de dois dias, sendo que quatro (18%) tiveram a forma grave da doença. A partir da percepção das pessoas idosas, emergiram quatro temas de análise: problemas relacionados a medicamentos; preparo para alta hospitalar; continuidade do cuidado; e rede familiar. Conclusão na perspectiva das pessoas idosas, faz-se necessário a organização do plano de cuidados durante a internação por meio de reconciliação medicamentosa, preparo para os cuidados domiciliares, presença da família durante a internação e reconhecimento da Atenção Primária à Saúde na continuidade do cuidado durante a transição do cuidado do hospital para casa.
Abstract Objective To analyze the perceptions of older adults hospitalized regarding the transition of care from hospital to home. Method A qualitative, descriptive-exploratory research was conducted in a clinical inpatient unit of a medium-sized public hospital in the interior of São Paulo state, Brazil. Twenty-two older adults participated in the study through semistructured interviews, guided by questions based on the pillars of the Care Transitions Intervention (CTI). Subsequently, participant observation was conducted at the study site, with recording in a field diary and transcription of speeches. Thematic analysis and data systematization followed through specific software for qualitative data analysis Results The mean age of the participants was 68 years (SD±5.4); 16 (77%) had one or more chronic diseases; 14 (64%) were using one or more continuous medications. The primary International Classification of Diseases code for hospitalization was Covid-19. The average length of hospital stay was 9 days (SD±5.7), with a maximum of 31 days and a minimum of two days, with four (18%) experiencing severe disease. From the perception of older adults, four themes of analysis emerged: medication-related problems; preparation for hospital discharge; continuity of care; and family network. Conclusion From the perspective of older adults, it is necessary to organize the care plan during hospitalization through medication reconciliation, preparation for home care, family presence during hospitalization, and recognition of Primary Health Care in continuity of care during the transition from hospital to home care.
Asunto(s)
Apoyo Familiar , Atención Dirigida al PacienteRESUMEN
Resumo Objetivo O presente estudo objetivou conhecer os desejos e vontades de pessoas idosas residentes em Instituições de Longa Permanência para Idosos (ILPI) sobre a terminalidade de vida. Método Tratou-se de pesquisa qualitativa descritiva e exploratória, em que participaram 18 pessoas idosas de duas ILPI Resultados Emergiram cinco categorias: acolhimento e aceite da família: a morte na ILPI ou no domicílio e o medo de morrer só; final de um ciclo de vida: momento de resgate pessoal, despedida, afeto e fé; preservação da dignidade humana da pessoa idosa que se encontra institucionalizada na terminalidade da vida; não ser pressionado e não ser um peso para a família: desejos relacionados ao agir dos profissionais e familiares com a pessoa idosa; e a manutenção dos sentidos e consciência da morte: desejo de uma experiência benéfica, sem dor, de purificação e de entrega por meio da fé. Conclusão Os desejos e vontades expressados relacionaram-se a aspectos amplos de vida. A compreensão destes configurou-se como possibilidade de os profissionais de saúde introduzirem assuntos relacionados à finitude e que essas pessoas idosas possam ter suas vozes ouvidas, sentidas e respeitadas.
Abstract Objective The present study aimed to explore the desires and wishes of older adults residing in Long-Term Care Facilities (LTCFs) regarding end-of-life terminality. Method This was a descriptive and exploratory qualitative research, involving 18 older adults from two LTCFs in a city in the central region of the state of Rio Grande do Sul (RS), Brazil. Data collection took place from March to May 2022 through semi-structured interviews and using the "cards on the table" technique. The data were subjected to discursive textual analysis. Results Five categories emerged: Family welcoming and acceptance: death in LTCFs or at home and the fear of dying alone; End-of-a-life cycle: a moment of personal reflection, farewell, affection, and faith; Preservation of the human dignity of older adults who are institutionalized in the terminal phase of life; Not being pressured and not being a burden to the family: desires related to the actions of professionals and family members toward the older adult; and Maintenance of senses and awareness of death: desire for a beneficial experience with pain control, purification, and surrendering of life through faith. Conclusion The desires and wishes expressed were related to broad aspects of life. Understanding these desires has emerged as an opportunity for healthcare professionals to introduce topics related to finitude, allowing these older adults to have their voices heard, felt, and respected.
Asunto(s)
Humanos , Anciano , Anciano de 80 o más Años , Anciano , Cuidadores , Atención Dirigida al Paciente , Actitud Frente a la MuerteRESUMEN
Objetivo: identificar a percepção dos profissionais de saúde que atuam na atenção primária sobre a promoção da saúde às pessoas com Diabetes. Método: estudo qualitativo, do tipo pesquisa ação, por meio do Itinerário de Pesquisa de Paulo Freire, que compreende três etapas: investigação temática, codificação e descodificação e desvelamento crítico. Realizou-se um círculo de cultura em setembro de 2021 com seis profissionais de saúde de uma Unidade Básica de uma cidade do sul do Brasil. Resultados: os profissionais identificaram que a saúde não é somente ausência da doença, mas envolve os determinantes sociais na vida da pessoa. Relacionam a promoção da saúde com as condições socioeconômicas, estilo de vida e equilíbrio entre ambos. Considerações finais: os profissionais ao identificarem o cuidado com base nos determinantes sociais e a promoção da saúde vislumbraram a construção de um protocolo individual de atendimento com melhoria da qualidade de vida das pessoas com diabetes(AU)
Objective: to identify the perception of health professionals working in primary care about health promotion for people with diabetes. Method: qualitative study, of the action research type, through Paulo Freire's Research Itinerary, which comprises three stages: thematic investigation, codification and decoding and critical unveiling. A culture circle was held in September 2021 with six health professionals from a Basic Unit in a city in southern Brazil. Results: professionals identified that health is not just the absence of disease, but involves social determinants in a person's life. They relate health promotion with socioeconomic conditions, lifestyle and balance between both. Final considerations: when professionals identified care based on social determinants and health promotion, they envisioned building an individual care protocol with improved quality of life for people with diabetes(AU)
Objetivo: identificar la percepción de los profesionales de la salud que trabajan en la atención primaria sobre la promoción de la salud de los pacientes con diabetes. Método: estudio cualitativo, del tipo investigación acción, a través del Itinerario de Investigación de Paulo Freire, que comprende tres etapas: investigación temática, codificación y decodificación y develamiento crítico. En septiembre de 2021, se realizó un círculo de cultura con seis profesionales de la salud de una Unidad Básica de una ciudad del sur de Brasil. Resultados: los profesionales han identificado que la salud no es sólo la ausencia de enfermedad, sino que involucra determinantes sociales en la vida de una persona. Relacionan la promoción de la salud con las condiciones socioeconómicas, el estilo de vida y el equilibrio entre ambos. Consideraciones finales: cuando los profesionales identificaron la atención basada en los determinantes sociales y la promoción de la salud, vislumbraron la construcción de un protocolo de atención individual con mejora de la calidad de vida de las personas con diabetes(AU)
Asunto(s)
Humanos , Masculino , Femenino , Adulto , Persona de Mediana Edad , Adulto Joven , Percepción , Centros de Salud , Personal de Salud , Atención Dirigida al Paciente , Diabetes Mellitus/terapia , Promoción de la Salud , Investigación CualitativaRESUMEN
BACKGROUND: The progressive multimorbidity explosion has challenged Chile's health systems and worldwide. The Centro de Innovación en Salud ANCORA UC implemented a new Multimorbidity Patient-Centered Care Model in Chile. OBJECTIVE: Evaluate the perspective of high-risk patients about the core elements of the model. METHODOLOGY: We conducted a cross sectional telephone-based survey that considered the application of a 13 items questionnaire. Of them, nine were Likert scale questions with scores from 1 to 7, one dichotomic question, and three open-ended questions. 231 high-risk patients who received care through the model at primary care centers participated in the study. Quantitative data were encoded, consolidated, and analyzed with the SPSS software. We performed descriptive and analytic statistics techniques to assess different variables and their potential associations. Thematic analysis was conducted for qualitative data. RESULTS: The overall score was 5.84 (range: 1 to 7), with a standard deviation of 1.25. Questions with the best scores were those related with personalized care and the primary care teams. The lowest scored was for the item regarding the continuity of care between primary nurses and inpatient care at the hospital. There was a difference in patient outcomes depending on their health center. Regarding sociodemographic characteristics, age did not significantly affect the results. CONCLUSIONS: The study reveals the perceptions about a complex multimorbidity intervention from the patient's perspective. It complements the impact on health services utilization evaluation that supports decision-makers currently scaling up a similar strategy in our country and could be considered in other countries dealing with non-communicable diseases.
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Multimorbilidad , Salud Pública , Humanos , Chile , Estudios Transversales , Atención Dirigida al PacienteRESUMEN
OBJECTIVES: to analyze patient-centered attitudes in care and sharing practices of nursing, speech therapy, dentistry and medicine professionals. METHODS: cross-sectional research was used with 411 professionals, and the Patient-Practitioner Orientation Scale instrument was applied as a measure of outcome. RESULTS: physicians presented higher mean scores, reflecting a patient-centered orientation, shared control, and focus on the person, with statistical difference for all domains (p<0.02). Dentists were the professionals who presented lower scores, especially in the sharing domain, with statistical difference in relation to nurses, speech therapists, and physicians (p<0.05). CONCLUSIONS: finally, the attitudes of professionals in the health areas studied indicated self-reported preference for centrality in patients. In this context, patient-centered care can be an important resource in health care when committed to overcoming the object man.
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Atención Dirigida al Paciente , Médicos , Masculino , Humanos , Estudios Transversales , Atención a la Salud , Técnicos Medios en Salud , Actitud del Personal de Salud , Encuestas y CuestionariosRESUMEN
BACKGROUND: The aim of this study was to measure the patient's perception of patient centeredness in their consultations for non-communicable diseases (NCDs). We also measured consultation length and patient enablement. METHOD: A cross-sectional study was conducted over 2 months at four primary care clinics at the St. Joseph cluster of the North Central Regional Health Authority (NCRHA) in Trinidad and Tobago. Interviewers timed the consultation and completed post-consultation questionnaires using the Patient Perception of Patient-Centeredness (PPPC) questionnaire and the Patient Enablement Index (PEI). The PPPC is a 14-item (each scored 1-4) Likert-scaled instrument. The total score is averaged and a PPPC score of 4 is the maximum. The PEI measures the ability of the patient to cope with life and their disease. The PEI consists of 6 questions scored 0-2, with a maximum score of 12. RESULTS: There were 180 respondents (response rate = 82.5%). Participants were female (75.6%), aged over 65 years (50.6%), married (51.1%), Indo-Trinidadian (52.2%), and Christian (60.6%). Half achieved a primary school education, and 37.2% secondary. The consultation length ranged between 1.32 and 31.22 min. The average, median and mode of the consultation length were 8.5, 7.74 and 10 min, respectively. The average, median and mode of the measures of patient-centeredness were PPPC (3.67, 3.86 and 4) and PEI score (5.93, 6 and 6). The PPPC average was lower in patients with a stroke (p = 0.022), and higher among those with more than 2 consultation interruptions (p = 0.015) and those who knew the doctor very well (p = 0.015). The PEI score was lower in patients with heart disease (p = 0.022). The consultation length was longer in those with tertiary education (p = 0.044) and those with two consultation interruptions (p = 0.032). PPPC Average and PEI Score correlated well (ρ = 0.408, p < 0.001). The consultation length correlated with the PPPC Average (ρ = 0.168,p = 0.025). CONCLUSION: Primary Care consultations in this cluster of health centres in NCRHA in Trinidad were often patient centered. The consultation length, patient-centeredness, measured with the PPPC instrument, and patient enablement scores, measured with the PEI instrument, in consultations for NCDs in Trinidad compare favourably with international reports.
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Enfermedades no Transmisibles , Humanos , Femenino , Anciano , Masculino , Estudios Transversales , Trinidad y Tobago/epidemiología , Enfermedades no Transmisibles/epidemiología , Enfermedades no Transmisibles/terapia , Satisfacción del Paciente , Derivación y Consulta , Atención Primaria de Salud , Atención Dirigida al PacienteRESUMEN
Esta investigación aborda los problemas referidos a la Salud Bucodental de la población de Bahía Blanca en cuanto a la percepción de los pacientes sobre el Primer Nivel de Atención de la Salud y la Accesibilidad al Hospital Penna. Se encuestaron 129 pacientes, y se abordaron los siguientes aspectos: conocimiento de los Centros de Atención Primaria de la Salud (CAPS), distancia, medios de traslado, porcentaje de usuarios que concurren al Hospital en lugar del CAPS, barreras de Accesibilidad al CAPS, demora en los turnos en el Hospital. Buscamos caracterizar a los pacientes que cambian la Atención Primaria en el CAPS por el Servicio de Odontología del Hospital Penna.
Asunto(s)
Accesibilidad a los Servicios de Salud , Atención Primaria de Salud , Salud Bucal , Salud Pública , Atención Dirigida al Paciente , OdontologíaRESUMEN
Multimorbidity and patient-centered care approaches are growing challenges for health systems and patients. The cost of multimorbidity patients and the transition to a new care strategy is still sightly explored. In Chile, more than 70% of the adult population suffer from multimorbidity, opening an opportunity to implement a Multimorbidity patient-centered care model. The objective of this study was to perform an economic evaluation of the model from the public health system perspective.The methodology used a cost-consequence evaluation comparing seven exposed with seven unexposed primary care centers, and their reference hospitals. It followed three steps. First, we performed a Time-Driven Activity-Based Costing with routinely collected data routinely collected. Second, we run a comparative analysis through a propensity score matching and an estimation of the attributable costs to health services utilization at primary, secondary and tertiary care and health outcomes. Third, we estimated implementation and transaction costs.Results showed savings in aggregate costs of the total population (-0.12 (0.03) p < 0.01) during the period under evaluation. Costs in primary care showed a significant increase, whereas tertiary care showed significant savings. Health outcomes were associated with higher survival in patients under the new care model (HR 0.70 (0.05) p < 0.01). Implementation and transaction costs increased as the number of pilot intervention centers increased, and they represented 0,07% of the total annual budget of the Servicio de Salud Metropolitano Sur Oriente. After three years of piloting, the implementation and transaction cost for the total period was USD 1,838,767 and 393,775, respectively.The study's findings confirm the purpose of the new model to place primary health care at the center of care for people with non-communicable chronic diseases. Thus, it is necessary to consider implementation and transaction costs to introduce a broad health system multimorbidity approach. The health system should assume some of them permanently to guarantee sustainability and facilitate scale-up.
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Multimorbilidad , Salud Pública , Adulto , Humanos , Chile/epidemiología , Análisis Costo-Beneficio , Atención Dirigida al PacienteRESUMEN
Introducción: el presente trabajo es una revisión de las prácticas que abordan la salud mental perinatal de las familias que atraviesan una internación en Unidades de Cuidados Intensivos Neonatales (UCIN). Los logros en la mayor sobrevida de recién nacidos de alto riesgo implican internaciones prolongadas y el cuidado emocional de sus familias. Estado del arte: el marco conceptual se refiere al cuidado centrado en las personas y su expresión perinatal en el modelo de Maternidades Seguras y Centradas en la Familia (MSCF). Se incluyen experiencias de referentes locales e internacionales que orientan las intervenciones en el campo. Conclusiones: se destaca la importancia del cuidado emocional en escenarios altamente estresantes, dado su impacto en el cuidado y la construcción de los vínculos tempranos entre los recién nacidos (RN) internados y sus referentes primarios. Se mencionan factores psicológicos de riesgo y posibles modos de abordaje. Se plantean acciones de promoción, prevención y asistencia en este contexto. (AU)
Introduction: This paper reviews practices addressing the perinatal mental health of families hospitalized in Neonatal Intensive Care Units (NICU). Achievements in increased survival of high-risk newborns involve prolonged hospitalization and emotional care of their families. State of the art:the conceptual framework refers to person-centered care and its perinatal expression in the Safe and Family-Centered Maternity Model (SFCMM). It includes experiences of local and international referents that guide interventions in the field. Conclusions:the importance of emotional care in highly stressful scenarios is highlighted, given its impact on the care and construction of early bonds between hospitalized newborns (NB) and their primary referents. It mentions psychological risk factors and possible approaches. We propose actions for promotion, prevention, and assistance in this context. (AU)