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1.
Disabil Rehabil Assist Technol ; : 1-13, 2024 Sep 12.
Artículo en Inglés | MEDLINE | ID: mdl-39263980

RESUMEN

BACKGROUND: Wheelchair racing is a traditional modality of Paralympic athletics. In general, racing wheelchairs are customized according to the athletes' anthropometric conditions, based on pre-established dimensions according to the manufacturer's manual. Usually, athletes choose the dimensions for their new sports wheelchairs, and when they are delivered for use, they often have problems due to incorrect body adjustments. PURPOSE: To develop a new customization methodology that is made possible through a new multi-adjustable racing wheelchair prescription equipment (RWPE) for athletics. This equipment performs several measurements and adjustments according to the athlete's anthropometric characteristics, evaluating the best-fit athlete to obtain better performance in the personalized wheelchair. MATERIALS AND METHODS: Customizing racing wheelchairs is based on anthropometric measurements of the individual and specific ergonomic adjustments for better performance and safety. The RWPE is a multi-adjustment device composed of modules that use measuring instruments to guarantee maximum precision and accuracy of the assessments. This project's innovation is associated with the multi-regulation equipment itself and a conventional process of manufacturing a racing wheelchair through an online form. The RWPE has a robust and rigid structure for conducting race-track experimental tests. RESULTS AND CONCLUSIONS: The experimental tests allowed the equipment to be validated regarding safety, comfort, and prescription methodology. A high-performance athlete validated the equipment and prescription methodology, and as a result, a new version of a parameterized wheelchair was also developed using the prescription methodology. A comparison between prescription tests showed better athlete performance regarding estimated average power, considering dimensions optimized through RWPE.


Sport provides many benefits to people with disabilities, including physical and emotional benefits during rehabilitation. Therefore, this work provides a better adaptation of the athletes to their racing wheelchair, benefiting these athletes with better conditions to practice the sport and a smoother rehabilitation with less stress.When a racing wheelchair is prescribed for an athlete it needs to be suited to the individual's posture. Incorrectly prescribed racing wheelchairs can cause serious damage to the athlete's health. In this way, this work encourages better collaboration with practitioners of the sport during prescription of their racing wheelchair.In addition to being used for prescription racing wheelchairs, the presented equipment can also be used for training, physical conditioning and rehabilitation of people with disabilities.

2.
Probl Sotsialnoi Gig Zdravookhranenniiai Istor Med ; 32(Special Issue 1): 652-658, 2024 Jun.
Artículo en Ruso | MEDLINE | ID: mdl-39003716

RESUMEN

Recent demographic trends, particularly the aging of the population, make the issue of ensuring a dignified old age urgent. Russia, as a developed country in the socio-economic sense, at the state level strives to increase the life expectancy of the population; at the same time, it is necessary to set and ensure the achievement of targets for improving the quality of life of the older generation. An important element here is the provision of palliative medical care to people of retirement age and people with disabilities. Until recently, there was virtually no long-term care system in Russia, and the burden was distributed between the healthcare system and the relatives of citizens in need of care. The launch of a pilot project to develop a long-term care system within the framework of the national project "Demography" showed the widespread demand for palliative care services. The article analyzes all aspects of the development of the long-term care system in Russia, identifying both positive results of the pilot project and points of growth. The main obstacle to implementing a long-term care system at the federal level is agreeing on a funding model. Here it makes sense to rely on successful international experience and consider the practical implementation of long-term care programs in various countries. However, the development of a long-term care system and ensuring the processes of its sustainable functioning is an important element of the state's social policy, which must be included in the standard list of social services and developed everywhere.


Asunto(s)
Cuidados a Largo Plazo , Humanos , Federación de Rusia , Cuidados a Largo Plazo/organización & administración , Cuidados a Largo Plazo/métodos , Cuidados a Largo Plazo/normas , Cuidados Paliativos/organización & administración , Cuidados Paliativos/métodos , Calidad de Vida , Anciano , Proyectos Piloto , Atención a la Salud/organización & administración
3.
Med Pr ; 75(3): 189-197, 2024 Jul 25.
Artículo en Inglés | MEDLINE | ID: mdl-38873967

RESUMEN

BACKGROUND: Building law regulations determine designing the built environment recognising the needs of users of different ages and psychophysical abilities. Seniors and their spatial needs are covered there to a limited extent. The benchmark for design are wheelchair users. Their spatial requirements are greater in relation to independent walkers, including most older people. This makes it difficult to adapt the whole built environment to the needs of people with less mobility dysfunction. This can be considered in terms of spatial design and investment costs. MATERIAL AND METHODS: The paper analyses the building regulations of 3 countries in terms of legal conditions to shape the architectural movement space of older people and disabled people. Analytical and comparative methods are used. Such research is becoming relevant and necessary. The analyses are conducted in the context of ageing populations. They are justified by statistical data on the age groups of Polish society. This is followed by design analyses of the legal requirements in the wheelchair movement space and proposals for alternatives, e.g., people walking with canes (case study). Their aim is to indicate methods to limit excessive communication spaces in buildings while maintaining functional values for all users. RESULTS: Research may show the possibility of greater diversification of regulations and alternatives to current laws. They are dedicated to participants in investment processes to shape accessible buildings. They can also be used in legislative work on amendments to the construction law. CONCLUSIONS: Changes in building regulations and a detailed approach to the mobility needs of older and disabled people (walking independently) are proposed. These decisions can provide benefits (spatial and economic savings). They fall into the "design for all" trend and sustainability of the built environment. These demands are based on no longer valid normative regulations. Med Pr Work Health Saf. 2024;75(3):189-197.


Asunto(s)
Personas con Discapacidad , Humanos , Personas con Discapacidad/legislación & jurisprudencia , Anciano , Polonia , Silla de Ruedas , Accesibilidad Arquitectónica/legislación & jurisprudencia , Femenino , Masculino , Entorno Construido , Anciano de 80 o más Años , Persona de Mediana Edad , Adulto
4.
BMC Public Health ; 24(1): 954, 2024 Apr 04.
Artículo en Inglés | MEDLINE | ID: mdl-38575900

RESUMEN

BACKGROUND: Policy effect might be multidimensional and spill over to non-recipients. It is unclear how the implementation of Long-Term Care Insurance (LTCI) policy affects depression in non-disabled people and how this effect differs in different non-disabled groups. METHODS: Using time-varying differences-in-differences method and nationally representative health survey data in wave 2011, wave 2013, wave 2015 and wave 2018 from the China Health and Retirement Longitudinal Study, we assessed the effect of LTCI policy on depression in non-disabled people aged 45 years and older, and discussed the heterogeneity of effect across different population characteristics: retirement, financial support and social participation status. RESULTS: We found LTCI policy statistically significant reduced depression by 0.76 units in non-disabled people compared to non-pilot cities. Depression in non-disabled people who unretired, with financial support and without social participation was reduced by 0.8267, 0.7079 and 1.2161 units, respectively. CONCLUSIONS: Depression in non-disabled people was statistically significant reduced because of LTCI policy in China, and non-disabled people who unretired, with financial support and without social participation benefited more from LTCI policy. Our findings highlight the depression-reducing effect of LTCI policy in non-recipients and suggest that non-disabled people who unretired, with financial support and without social participation should be concerned during LTCI policy progress.


Asunto(s)
Depresión , Seguro de Cuidados a Largo Plazo , Humanos , Estudios Longitudinales , Depresión/epidemiología , Participación Social , Políticas , China/epidemiología , Cuidados a Largo Plazo
5.
Trials ; 25(1): 281, 2024 Apr 26.
Artículo en Inglés | MEDLINE | ID: mdl-38671497

RESUMEN

BACKGROUND: It is crucial to include a wide range of the population in clinical trials for the outcome to be applicable in real-world settings. Existing literature indicates that under-served groups, including disabled people, have been excluded from participating in clinical trials without justification. Exclusion from clinical trials exacerbates disparities in healthcare and diminishes the benefits for excluded populations. Therefore, this study was conducted to investigate potential obstacles that prevent disabled people from participating in clinical trials in the United Kingdom (UK). METHODS: The study was carried out through an explanatory sequential mixed methods design. The Imperial Clinical Trials Unit devised and implemented an online questionnaire-based survey (with open/closed-ended questions) and an online focus group discussion. The target population were disabled people, family members/carers of disabled people and staff involved in clinical trials, whereupon the sample was recruited by convenience sampling methods via posters and emails through various networks. The Qualtrics XM survey system was used as the host platform for the online survey, and Microsoft Teams was used for an online focus group discussion. The focus group discussion was conducted to gain a deeper understanding of the themes identified from the survey responses. We analysed responses to the survey via descriptive analysis and used thematic analysis to synthesise the free-text answers from the survey and focus group discussion. RESULTS: We received 45 responses to the survey questionnaire and 5 disabled people took part in a focus group discussion. Our findings highlighted the differences between the perspectives of researchers and those "being researched" and different types of barriers experienced by disabled people: opportunity barriers (inadequate recruitment strategy and ambiguous eligibility criteria), awareness barriers (perception of disability) and acceptance/refusal barriers (available support and adjustment, and sharing of trial results). CONCLUSION: Our findings support perspectives drawn from the Ford Framework regarding the need to consider all barriers, not just up to the point of enrolment into trials but also beyond the point of inclusion in clinical trials. We support calls for the introduction of legislation on including disabled people in clinical trials, implementation of industry/community-wide participatory approaches and the development of guidelines, a combined public-private approach.


Asunto(s)
Ensayos Clínicos como Asunto , Personas con Discapacidad , Grupos Focales , Selección de Paciente , Humanos , Masculino , Femenino , Persona de Mediana Edad , Adulto , Encuestas y Cuestionarios , Reino Unido , Sujetos de Investigación/psicología , Conocimientos, Actitudes y Práctica en Salud , Actitud del Personal de Salud , Investigadores/psicología , Anciano , Proyectos de Investigación
6.
Percept Mot Skills ; 131(4): 1291-1307, 2024 Aug.
Artículo en Inglés | MEDLINE | ID: mdl-38669451

RESUMEN

Improvements in race times for male and female Para canoe athletes across different sports classes have led to a reduction in relative differences between classes over time. However, there is a lack of research examining the comparative developmental trajectories between high-performance Paralympic (PCS) and Olympic (OCS) canoe sprint. In this study, we compared the developmental trajectories of 200-meter kayak performances among PCS and OCS athletes. In total, we analyzed 628 race results obtained from public online databases, for nine competitions between 2015 and 2023. Race times were reduced over the years except in specific sports classes (KL3-M, K1-M, and K1-F; KL: Kayak Level, M: male, F: female), with a poor positive correlation (r = 0.17 to 0.33) between time and the years. For the remaining sports classes, these correlations ranged from poor to fair (r = -0.58 to -0.13). OCS K1 athletes outperformed their Paralympic counterparts. Among Paralympic classes, KL1 had slower times than KL2 and KL3 (p ≤ .05), with KL2 times significantly lower than KL3 in the female category. OCS athletes exhibited less variability in race times compared to PCS athletes. In the male category, there were no significant differences in the coefficients of variation (CV) and amplitude of race times between sport classes, except for KL1-M, which had a larger CV than K1 (p ≤ .05). In the female category, the CV and amplitude of race times were significantly higher in KL1-F compared to KL3-F and K1-F. OCS times remained stable from 2015, with KL3-M following a similar trend. PCS displayed greater race time variability, particularly in higher impairment classes, notably KL1. This underscores the existence of distinct developmental stages within the canoe sprint modality, particularly emphasizing the early developmental phase of KL1. It also provides valuable insights for coaches and sports selection, especially concerning athletes with more severe impairments, including those in Rehabilitation Centers and during athlete recruitment.


Asunto(s)
Rendimiento Atlético , Humanos , Femenino , Masculino , Rendimiento Atlético/fisiología , Rendimiento Atlético/estadística & datos numéricos , Deportes Acuáticos/fisiología , Paratletas/clasificación , Adulto , Conducta Competitiva/fisiología , Deportes para Personas con Discapacidad/fisiología
7.
BMC Public Health ; 24(1): 636, 2024 Feb 28.
Artículo en Inglés | MEDLINE | ID: mdl-38418996

RESUMEN

BACKGROUND: Physical inactivity is a global public health priority. There are known health and well-being consequences of being inactive, and the benefits of being physically active are well established. However, there are persistent inequalities when it comes to how physically active people are, with disabled people, people living with long-term health conditions, and people residing in areas of socio-economic deprivation being particularly affected. Methods such as whole system approaches (WSAs), which are dynamic, multifaceted, and engage all relevant stakeholders, have gained momentum as an approach to address such complex public health problems. However, evidence relating to the implementation of WSAs to address physical inactivity is lacking. The aim of the Prevention and Enablement Model (PEM) was to take a whole system approach in Essex to encourage and support disabled people and/or individuals living with long-term health conditions to be more active, happier, and to live more independently. METHODS: The aim of this study was to explore the enablers, challenges, and reflections associated with the process of designing and implementing the PEM. Semi-structured interviews (n = 12) were used to collect data from people involved in the PEM's design, implementation and/or delivery. Data was analysed using Braun and Clarke's reflexive thematic analysis. RESULTS: Four themes were identified: (1) Working collaboratively: Specific enablers of time and space were identified as important in the planning and implementation of a WSA (2) Leadership and planning: Distributed and flexible leadership was identified as central to successful implementation (3) Re-orientating practice: Highlighted the transformative potential of a whole system approach and how it contrasts with conventional work practices, and (4) Reflection and learning: Informing ongoing refinements and further implementation of successful system change. CONCLUSIONS: These findings highlight the challenge and complexity of implementing a WSA that involves diverse stakeholders from across adult social care, the NHS, and the third sector. Several important enablers are identified, such as leadership and planning, and the challenges and discomfort that can arise whilst changing systems. Ongoing efforts are required to ensure that different elements of the system collaborate effectively to address inequalities in physical activity participation, through the implementation of a WSA.


Asunto(s)
Personas con Discapacidad , Conducta Sedentaria , Adulto , Humanos , Salud Pública , Análisis de Sistemas
8.
Healthcare (Basel) ; 12(3)2024 Feb 02.
Artículo en Inglés | MEDLINE | ID: mdl-38338272

RESUMEN

The COVID-19 pandemic disrupted healthcare and support services, creating challenges for disabled people. New Zealand implemented a range of policies to prevent and limit viral transmission of COVID-19. This study investigates disabled people's experiences accessing healthcare and disability support services during the COVID-19 pandemic, and based on this analysis, the implications of public health policy decisions on disabled people's experiences during the pandemic in New Zealand are explicated. A qualitative design underpinned by interpretive description methodology guided this study. A total of 64 disabled people or parents of disabled children participated in semi-structured interviews. The team of health services and disability researchers then engaged in an iterative thematic approach to analysis, which led to three key themes: (1) protective personal factors, which assisted disabled people to access healthcare and support services, (2) immediate pandemic policy impacts, including policy and legislative changes, which created additional access barriers for disabled people, and (3) exacerbating factors, including compounding vulnerabilities, overstretched systems, and the impact of the vaccine mandate, which worsened the already limited access to healthcare and disability services for disabled people. The pandemic overwhelmed an already stretched healthcare and disability support system, resulting in service disruptions with negative consequences for disabled people's health and wellbeing. Future policy development needs to be disability-centred in its inclusion of people with lived experience and consideration of the support needs of disabled populations. A first step in this process could include pandemic planning and policy co-design to ensure a continuum of healthcare services and support availability for individuals when services are disrupted. In addition, access to formal and informal support for disabled people should be recognised as a fundamental human right when accessing healthcare and disability support services.

9.
Disabil Health J ; 17(2): 101579, 2024 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-38242753

RESUMEN

BACKGROUND: Economically developed economies continue to display large and long-standing disability employment gaps. Train-then-place activation models have traditionally dominated efforts to support non-working disabled people to gain employment but recently there has been increasing interest in place-then-train Supported Employment (SE) activation models. OBJECTIVE: Evidence regarding the effectiveness of SE approaches is growing. However, authors have called for greater understanding of the mechanisms underpinning these interventions. We therefore carried out a systematic review of qualitative research to understand the processes operating. METHODS: We carried out a systematic review of qualitative research around SE interventions carried out in developed countries since 2000 in any population excepting those with severe mental illness. We used thematic synthesis and logic modelling methods and assessed the quality of the body of literature. RESULTS: We identified and included 13 relevant source studies containing qualitative data. Key aspects of the programmes reported were the nature of the support, the employment advisor, and the type of employment. Influencing factors were client-related, employer and employment-related, programme-related, and system-related. Effects beyond the gaining of employment included a changed attitude to work, different outlook, increased skills and/or confidence. Suggested longer-term impacts were on health and wellbeing, financial security, independence, contribution to society and sense of belonging. CONCLUSIONS: This review adds to the growing evidence regarding the value of SE interventions for disabled people. It adds insights regarding the key elements of the programmes, and suggests outcomes beyond the measures typically considered within quantitative studies.


Asunto(s)
Personas con Discapacidad , Empleos Subvencionados , Investigación Cualitativa , Humanos , Empleos Subvencionados/métodos , Personas con Discapacidad/psicología , Empleo , Rehabilitación Vocacional/métodos
10.
BMC Public Health ; 24(1): 41, 2024 01 02.
Artículo en Inglés | MEDLINE | ID: mdl-38166865

RESUMEN

BACKGROUND: Persons with disabilities experience higher risks of mortality as well as poorer health as compared to the general population. The aim of this study is to estimate the correlations between functional difficulties across several domains in six countries. METHODS: National census data with questions on disability from six countries (Mauritius, Morocco, Senegal, Myanmar, Vietnam, and Uruguay) was used in this study. We performed logistic regressions to assess the extent to which having a functional difficulty in one domain is correlated with having a functional difficulty in each of the other domains and report weighted odds ratios (ORs) overall and within age-groups ('18-44' years and '45+' years). Models adjust for age, sex, and location (rural or urban). Sensitivity analyses around different choices of predictors and response variables were conducted. FINDINGS: For all countries, reporting a functional difficulty in one domain was consistently and significantly positively correlated with reporting a functional difficulty in other domains (overall) and for each of the two age-groups considered - '18-44' years and '45+' years. All ORs were greater than one. Cognition, mobility, and hearing were the domains that were the most correlated ones with other domains. The highest pairwise correlations were for i/ hearing and cognition; ii/ mobility and cognition. Results were robust to changing the severity thresholds for functional difficulties. Across countries, Uruguay, the only high-income country among the six countries under study, had the lowest correlations between functional domains. CONCLUSIONS: There are consistent positive associations in the experience of functional difficulties in various domains in the six countries under study. Such correlations may reflect barriers to social services including healthcare services and resources (e.g. assistive devices) that may lead to an avoidable deterioration of functioning across domains. Further research is needed on the trajectories of functional difficulties and on structural barriers that people with functional difficulties may experience in their communities and in healthcare settings in particular. This is important as some functional difficulties may be preventable.


Asunto(s)
Personas con Discapacidad , Dispositivos de Autoayuda , Humanos , Adolescente , Adulto Joven , Adulto , Cognición , Audición , Mauricio
11.
Fisioter. Mov. (Online) ; 37: e37202, 2024. tab, graf
Artículo en Inglés | LILACS-Express | LILACS | ID: biblio-1557760

RESUMEN

Abstract Introduction Traffic accidents are a problem for the health system and society, evidenced by the high rates of deaths, hospitalizations and care in health services due to serious injuries and disabilities, affecting the functioning and quality of life of individuals. Objective To identify outcome measures in studies on victims of non-fatal traffic accidents, to fulfill the first step in the development of a Core Set of the International Classification of Functioning, Disability and Health (ICF) for victims of non-fatal traffic accidents. Methods A systematic review of published articles was carried out in the electronic databases PubMed/MEDLINE and SciELO, between 2011 and 2022, using terms in English. The search strategy combined terms about the consequences of traffic accidents in adults. The selection of articles was carried out by two independent reviewers, applying the eligibility criteria. Results A total of 626 studies were located in the databases, and 91 articles were included in the review. The consequences observed in the studies were injuries, fractures and trauma. When extracting outcome measures, 780 concepts were identified, linked to a total of 124 ICF categories, in the components: body function (30 categories); body structure (72 categories); activity and participation (20 categories); and environmental factors (two categories). Conclusion This systematic review revealed that the main consequences of non-fatal traffic accidents for victims are in the body structures related to the movement, mobility and stability of joints.


Resumo Introdução Os acidentes de trânsito são um problema para o sistema de saúde e para a sociedade, evidenciado pelas altas taxas de óbito, internações e atendimento nos serviços de saúde em função das lesões graves e incapacidades, repercutindo na funcionalidade e qualidade de vida dos indivíduos. Objetivo Identificar medidas de desfecho nos estudos sobre vítimas não fatais de acidentes de trânsito, para cumprir a primeira das etapas no desenvolvimento de um core set da Classificação Internacional de Funcionalidade, Incapacidade e Saúde (CIF) para vítimas não fatais de acidentes de trânsito. Métodos Trata-se de uma revisão sistemática cuja busca foi feita nas bases de dados PubMed/MEDLINE e SciELO, entre 2011 e 2022, utilizando termos em inglês. A estratégia de busca combinou termos sobre as consequências dos acidentes de trânsito em adultos. A seleção dos artigos deu-se por dois revisores independentes, aplicando os critérios de elegibilidade. Resultados Foram localizados 626 estudos nas bases de dados e incluídos, na revisão, 91 artigos. As consequências observadas nos estudos foram lesões, fraturas e traumas. Na extração das medidas de desfecho, 780 conceitos foram identificados, vinculados a um total de 124 categorias da CIF nos componentes: função do corpo (30 categorias); estrutura do corpo (72 categorias); atividade e participação (20 categorias); e fatores ambientais (duas categorias). Conclusão Esta revisão sistemática revelou que as principais consequências dos acidentes de trânsito para as vítimas não fatais estão nas estruturas do corpo relacionadas ao movimento e à mobilidade e estabilidade das articulações.

12.
Psicol. Estud. (Online) ; 29: e56174, 2024.
Artículo en Portugués | LILACS-Express | LILACS, Index Psicología - Revistas | ID: biblio-1558718

RESUMEN

RESUMO. O avanço de legislações nacionais e internacionais contribuiu para a reafirmação da dignidade e dos direitos fundamentais das pessoas com deficiência. Ainda assim, a efetiva participação sociocultural dessa população é prejudicada pelas barreiras discriminatórias impostas nos mais diversos âmbitos da sociedade. Faz-se necessário, portanto, promover reflexões sobre a 'cultura da normalidade', e sua consequente influência em situações de exclusão, opressão e discriminação dos sujeitos com deficiência. A presente pesquisa teve como objetivo analisar o conceito de deficiência na contemporaneidade sob a ótica da filosofia de Emmanuel Levinas, autor responsável por tecer críticas ao pensamento filosófico ocidental, principalmente às ações de exclusão e discriminação da alteridade dele decorrentes. Para tanto, utilizou-se o método do Estado da Arte, coletando-se 12 artigos, 11 dissertações e quatro teses. Os trabalhos foram categorizados de maneira quantitativo-descritiva e, posteriormente, analisados a partir da obra Totalidade e infinito e dos estudos contemporâneos sobre deficiência, ética e responsabilidade. Observou-se uma análise crítica dos trabalhos em relação às atuais ações e intervenções voltadas ao público com deficiência, denunciando sua insuficiência na garantia de direitos fundamentais. Constatou-se também a necessidade de substituição de concepções totalizantes e universalizantes das diferenças por perspectivas de reconhecimento do Outro e consideração da singularidade humana. Conclui-se que a Ética da Alteridade, proposta por Levinas, convida ao compromisso infinito do Mesmo para com o Outro, à ajuda sem espera de reciprocidade, fazendo-se, portanto, relevante nos campos político e acadêmico como princípio ético, teórico-prático e analítico para a interpretação de questões relativas à deficiência.


RESUMEN. El avance de la legislación nacional e internacional ha contribuido a reafirmar la dignidad y los derechos fundamentales de las personas con discapacidad. Todavia, la participación sociocultural efectiva de esta población se ve obstaculizada por las barreras discriminatorias impuestas en los más diversos ámbitos de la sociedad. Por tanto, es necesario promover reflexiones sobre la 'cultura de la normalidad' dominante, y su consecuente influencia en situaciones de exclusión, opresión y discriminación de sujetos con discapacidad. Esta investigación tuvo como objetivo analizar el concepto de discapacidad en la época contemporánea desde la perspectiva filosófica de Emmanuel Levinas, autor responsable de criticar el pensamiento filosófico occidental, especialmente las acciones de exclusión y discriminación de la alteridad que de él resultan. Para ello se utilizó el método del estado del arte, recogiendo 12 artículos, 11 disertaciones y 4 tesis. Las obras fueron categorizadas de manera cuantitativo-descriptiva y posteriormente analizadas a partir de la obra Totalidade e infinito y estudios contemporáneos sobre discapacidad, ética y responsabilidad. Se observó un análisis crítico de las obras en relación a las acciones e intervenciones actuales dirigidas al público con discapacidad, denunciando su insuficiencia en la garantía de los derechos fundamentales. También se señaló la necesidad de reemplazar las concepciones totalizadoras y universalizadoras de las diferencias por perspectivas de reconocimiento del Otro y consideración de la singularidad humana. Se concluye que la Ética de la Alteridad, propuesta por Levinas, invita a la implicación del Mismo hacia el Otro, para ayudar sin esperar a la reciprocidad, volviéndose, por tanto, relevante en los campos político y académico como un enfoque ético, teórico-práctico y marco analítico para la interpretación de las cuestiones relacionadas con la discapacidad.


ABSTRACT. The advancement of national and international laws has contributed to reassuring the dignity and fundamental rights of people with disabilities. Even so, the effective sociocultural participation of these people is jeopardized by discriminatory barriers imposed across multiple spheres of society. Therefore, it is necessary to promote reflections about 'normality culture' and its consequences in situations of exclusion, oppression, and discrimination of people with disabilities. This study aimed to analyze the contemporary concept of disability in the light of Emmanuel Levinas's philosophy, author responsible for criticizing Western philosophy affirming that the exclusion of alterity stems from it. To this end, a State of the Art analysis was done, and 12 papers, 11 master's theses, and 4 doctoral dissertations were found. The works were classified by quantitative characteristics and were later analyzed in the light of Levinas's major work, Totalidade e infinito, and the contemporary studies on disability, ethics, and responsibility. It was observed that the works had done critical analyses about governmental actions and interventions destined to people with disabilities, showing the insufficiency in ensuring fundamental rights of these people. We also identified the need to substitute conceptions that totalize and universalize the differences with perspectives that recognise the Other in its singularity. This article concludes that the Ethics of Alterity proposed by Levinas invites one to infinite commitment of the Self to the Other, who does not expect anything in return to the aid provided. Therefore, it is relevant to politics and the academic field as an ethical, theoretical, practical, and analytical principle to interpret questions relating to the field of disability studies.

13.
Hist. ciênc. saúde-Manguinhos ; 31: e2024028, 2024.
Artículo en Portugués | LILACS | ID: biblio-1564576

RESUMEN

Resumo O texto aponta resultados parciais de uma pesquisa em andamento sobre a surdez no ensino de história e na produção historiográfica entre 2015 e 2022. O trabalho problematiza o lugar da pessoa com deficiência nos periódicos A1 e A2 e nos projetos pedagógicos de cursos de graduação em história (formação de professores e pesquisadores) da Universidade de São Paulo e da Universidade Estadual de Campinas, por conta de serem indicadas como as mais bem posicionadas no ranking de uma pesquisa realizada pela Folha de S.Paulo, levando-se em conta os critérios de articulação entre a Lei Brasileira de Inclusão, lei 13.146, de 6 de julho de 2015, e a formação inicial desses profissionais.


Abstract This text presents the partial results of ongoing research into deafness in history teaching and historiography between 2015 and 2022. The study problematizes the place of disabled people in top-ranking periodicals (the top two categories in Brazil) and in pedagogical projects on degree courses in history (with and without teacher-training certification) at the University of São Paulo and the State University of Campinas. These universities were chosen because they topped the ranking in a survey conducted by Folha de S.Paulo newspaper. The study observes how the Brazilian Inclusion Law (law 13.146, of July 6, 2015) is incorporated into the initial training of these professionals.


Asunto(s)
Publicaciones Periódicas como Asunto , Accesibilidad Arquitectónica , Enseñanza , Universidades , Sordera , Diversidad, Equidad e Inclusión , Brasil
14.
Artículo en Ruso | MEDLINE | ID: mdl-38142334

RESUMEN

In connection with the growing number of people with disabilities in the Russian Federation, there is a need to improve rehabilitation care and bring it into line with international models. The article discusses possibilities of ergo-therapy in improving quality of life of people with disabilities living in nursing homes. The results of qualitative study of medical and social work in nursing homes of elderly and disabled people are presented. The purpose of the study was to identify needs in professional ergo-therapy work in stationary type institutions. The article presents the results of original study carried out in 2023 using method of interviewing medical and social workers (n = 13) in two regions (Saratov, Penza). The study permitted to identify the most acute problem areas requiring ergo-therapy to improve the quality of life of patients in nursing homes for disabled and elderly persons. The study resulted in conclusions that to improve the quality of life both of patients in residential institutions and the level of satisfaction of citizens with social policy it is necessary to organize and implement ergo-therapy service in stationary institutions. The current situation requires presence of ergo-therapists in social institutions and health care, as their role and importance in supporting patients are increasing.


Asunto(s)
Casas de Salud , Calidad de Vida , Humanos , Anciano , Atención a la Salud , Servicio Social , Federación de Rusia
15.
Saude e pesqui. (Impr.) ; 16(4): 11414, out./dez. 2023.
Artículo en Inglés, Portugués | LILACS-Express | LILACS | ID: biblio-1518412

RESUMEN

O objetivo deste trabalho foi avaliar o nível de conhecimento de fisioterapeutas que atuam nos serviços públicos e privados de reabilitação pediátrica sobre o conhecimento das F-Words, assim como identificar as principais barreiras de aplicação destas ferramentas na assistência. Trata-se de um estudo transversal, conduzido de acordo com as recomendações do STROBE. A amostra apresentou uma média etária de 28,1 ± 5,8 anos, constituída por 54 fisioterapeutas que atuam nos serviços públicos e privados de reabilitação pediátrica. Foi observado que 55,6% da amostra já ouviram falar nas F-Words; 44,4% não sabiam sobre a importância; 94,4% estabelecem metas terapêuticas em parceria com a família; 57,4% nunca ouviram falar nas F-Words Tools; 77,8% nunca aplicaram essas ferramentas na assistência. Conclui-se que, as F-Words são importantes, mas são pouco utilizadas na assistência em decorrência da falta de conhecimento dos fisioterapeutas em relação à ferramenta e aos instrumentos.


The aim of this study was to assess the level of knowledge of physiotherapists who work in public and private pediatric rehabilitation services about knowledge of F-Words, as well as to identify the main barriers to applying these tools in care. This is a cross-sectional study, conducted in accordance with the STROBE recommendations. The sample had a mean age of 28.1 ± 5.8 years, consisting of 54 physiotherapists who work in public and private pediatric rehabilitation services. It was observed that 55.6% of the sample had already heard about F-Words; 44.4% did not know about the importance; 94.4% establish therapeutic goals in partnership with the family; 57.4% had never heard of F-Words Tools; 77.8% never applied these tools in care. It is concluded that the F-Words are important, but are little used in assistance due to the lack of knowledge of physiotherapists in relation to the tool and instruments.

16.
Artículo en Inglés | MEDLINE | ID: mdl-37835075

RESUMEN

Multi-sensory environments (MSEs) are specialised spaces purposely designed to stimulate the senses, whilst providing a calming and relaxing environment for leisure and enjoyment, predominantly intended for disabled people. Most MSEs are in institutions, hospitals, or educational settings, with a few in community-based settings. We explored disabled users' experiences of a community based MSE in a large metropolitan area in New Zealand, with a view to expanding access to MSE-type environments within the area. We used a convergent mixed method design with a web-based electronic survey (e-survey; n = 105), as well as semi-structured interviews (n = 14) with disabled MSE users (adults and children), who were supported, where necessary, by their support person/s. We collected the MSE users' demographics, frequency of use with respect to age, disability, and ethnicity, and experiences of the room, equipment, and accessibility. The participants and their support persons' perspectives about their experiences of using the MSE were represented by four themes: (i) Self-determination; (ii) Enhancing wellbeing opportunities; (iii) the MSE itself; (iv) Accessibility. While the MSE was considered positively, the MSE experience could be enhanced by addressing access challenges and broadening the scope of equipment to improve the usability and make it a more inclusive environment for all.


Asunto(s)
Personas con Discapacidad , Adulto , Niño , Humanos , Medio Social , Ambiente , Actividades Recreativas , Encuestas y Cuestionarios
17.
BrJP ; 6(2): 113-120, Apr.-June 2023. tab, graf
Artículo en Inglés | LILACS-Express | LILACS | ID: biblio-1513774

RESUMEN

ABSTRACT BACKGROUND AND OBJECTIVES: Amputation is an event that has consequences that can affect daily life, including pain, enhancing changes, whether in sleep or in quality of life. The objective of this study was to evaluate the pressure pain threshold (PPT) in people with amputations submitted to the use of different postural elevation equipment. METHODS: Experimental crossover study, carried out from September to October 2022, with people with lower limb amputation (n=15) and people without amputation (n=15). PPT in four regions (T12-L1, L5-S1, anterior tuberosity of the tibia and calcaneus) were evaluated before and after the use of different versions (A and B) of an equipment for postural elevation, gravity and pain interference. Presence of signs and symptoms of central sensitization (CS) and sleep quality. RESULTS: The groups did not present PPT alterations when compared between the different versions of the equipment (p<0.05) in the four locations analyzed. Furthermore, the groups did not show differences in relation to the evaluation days or among themselves regarding the severity and interference of pain and the presence of signs and symptoms of CS. The control group indicated poor sleep quality (p=0.0173) and remained worse than people with amputation. CONCLUSION: The versions of the equipment did not change PPT in the analyzed areas. The groups did not differ between themselves, suggesting that the equipment promoted similar responses, that is, no change in sensitivity was evidenced in the analyzed regions which have greater contact with stabilization elements and weight discharge of the equipment.


RESUMO JUSTIFICATIVA E OBJETIVOS: A amputação é um evento que acarreta consequências que podem afetar o cotidiano, entre elas a dor, potencializando alterações, seja no sono ou na qualidade de vida. O objetivo deste estudo foi avaliar o limiar de dor por pressão (LDP) em pessoas com amputação submetidas ao uso de diferentes equipamentos de elevação postural. MÉTODOS: Estudo experimental cruzado, realizado de setembro a outubro de 2022, com pessoas com amputação no membro inferior (n=15) e pessoas sem amputação (n=15). Foram avaliados o LDP em quatro regiões (T12-L1, L5-S1, tuberosidade anterior da tíbia e calcâneo) pré e pós uso de distintas versões (A e B) de um equipamento de elevação postural, gravidade e interferência da dor. Presença de sinais e sintomas de sensibilização central (SC) e qualidade do sono. RESULTADOS: Os grupos não apresentaram alterações no LDP quando comparados em relação às diferentes versões do equipamento (p<0,05) nos quatro locais analisados. Além disso, os grupos não mostraram diferenças em relação aos dias de avaliação ou entre si quanto a severidade e interferência de dor e presença de sinais e sintomas de SC. O grupo controle indicou uma qualidade de sono ruim (p=0,0173) e manteve-se pior que as pessoas com amputação. CONCLUSÃO: As versões do equipamento não alteraram o LDP nas áreas analisadas. Os grupos não apresentaram diferença entre si, sugerindo que o equipamento promoveu respostas semelhantes, ou seja, não foi evidenciada uma alteração de sensibilidade nas regiões que possuem maior contato com elementos de estabilização e descarga de peso dos equipamentos.

18.
Rev. enferm. Cent.-Oeste Min ; 13: 4672, jun. 2023.
Artículo en Portugués | LILACS, BDENF - Enfermería | ID: biblio-1436487

RESUMEN

Objetivo: Avaliar a qualidade de vida e grau de deficiência da pessoa idosa com estomia. Método: Trata-se de um estudo transversal, realizado com pessoas idosas com estomias de um serviço público de saúde brasileiro que foram avaliadas pelos instrumentos City of Hope ­ Quality of Life ­ Ostomy Questionary e pelo WHO Disability Assessment Schedule. Resultados: A qualidade de vida média foi de 8,0 e o grau de deficiência 3,8. Houve associação entre aptidão para o autocuidado e a melhor qualidade de vida (p<0,005). A associação é maior entre os domínios bem-estar psicológico e espiritual entre idosos, aptos para o autocuidado ou não. O bem-estar espiritual se mostrou maior entre aqueles com mais de cinco anos de cirurgia. Também houve associação entre maior grau de deficiência e quando a causa da estomia era câncer (p<0,003). Conclusão: Idosos com estomia apresentaram boa qualidade de vida e baixo grau de deficiência.


Objetivo: Evaluar la calidad de vida y el grado de discapacidad de ancianos ostomizados. Método: Se trata de un estudio transversal realizado con ancianos ostomizados de un servicio público de salud brasileño que fueron evaluados mediante el City of Hope ­ Quality of Life ­ Ostomy Questionary y el WHO Disability Assessment Schedule. Resultados: La calidad de vida media fue de 8,0 y el grado de discapacidad de 3,8. Hubo asociación entre la aptitud para el autocuidado y una mejor calidad de vida (p<0,005). La asociación es mayor entre los dominios de bienestar psicológico y espiritual entre los ancianos, ancianos capaces de autocuidado. El bienestar espiritual también fue mayor entre aquellos con más de cinco años de cirugía. También hubo asociación entre mayor grado de discapacidad y cuando la causa de la ostomía fue cáncer (p<0,003). Conclusión: Los ancianos ostomizados tenían una buena calidad de vida y un bajo grado de discapacidad.


Objective: To assess the quality of life and degree of disability of elderly people with ostomies. Method: This is a cross-sectional study, carried out with elderly people with ostomies from a Brazilian public health service. They were evaluated using the City of Hope ­ Quality of Life ­ Ostomy Questionnaire and the WHO Disability Assessment Schedule. Results: The mean quality of life was 8.0 and the degree of disability was 3.8. There was an association between aptitude for self-care andbetter quality of life (p<0.005). The association is greater between the psychological and spiritual well-being domains among the elderly, elderly able to self-care. Spiritual well-being was also higher among those with more than five years of surgery. There was also an association between a higher degree of disability and when the cause of the ostomy was cancer (p<0.003). Conclusion: Elderly people with an ostomy had a good quality of life and a low degree of disability.


Asunto(s)
Humanos , Masculino , Femenino , Anciano , Anciano de 80 o más Años , Calidad de Vida , Anciano , Estomía , Personas con Discapacidad , Estomaterapia
19.
Sensors (Basel) ; 23(7)2023 Mar 28.
Artículo en Inglés | MEDLINE | ID: mdl-37050605

RESUMEN

Research in the field of gathering and analyzing biological signals is growing. The sensors are becoming more available and more non-invasive for examining such signals, which in the past required the inconvenient acquisition of data. This was achieved mainly by the fact that biological sensors were able to be built into wearable and portable devices. The representation and analysis of EEGs (electroencephalograms) is nowadays commonly used in various application areas. The application of the use of the EEG signals to the field of automation is still an unexplored area and therefore provides opportunities for interesting research. In our research, we focused on the area of processing automation; especially the use of the EEG signals to bridge the communication between control of individual processes and a human. In this study, the real-time communication between a PLC (programmable logic controller) and BCI (brain computer interface) was investigated and described. In the future, this approach can help people with physical disabilities to control certain machines or devices and therefore it could find applicability in overcoming physical disabilities. The main contribution of the article is, that we have demonstrated the possibility of interaction between a person and a manipulator controlled by a PLC with the help of a BCI. Potentially, with the expansion of functionality, such solutions will allow a person with physical disabilities to participate in the production process.


Asunto(s)
Interfaces Cerebro-Computador , Personas con Discapacidad , Humanos , Electroencefalografía , Automatización , Lógica
20.
Sociol Health Illn ; 45(6): 1300-1316, 2023 07.
Artículo en Inglés | MEDLINE | ID: mdl-36917517

RESUMEN

This paper draws attention to the health-related work that disabled people do when engaging with rehabilitation services. Medical sociology has a rich history of looking at the 'illness work' that patients do, while disability studies scholars have explored the cultural value placed upon paid work and the effects on social status of being unable to work. Yet, a longstanding froideur between these two disciplines, which have fundamentally opposed ontologies of illness and disability, means that neither discipline has attended closely to the rehabilitation-related work that disabled people do. The concept of 'adjusting' to illness highlights seemingly irreconcilable disciplinary differences. Yet this article argues that the notion of 'adjustment work' can elucidate the socio-political character of the work disabled people do in their rehabilitation, which could create a more substantial and sustainable dialogue on this subject between disability studies and medical sociology. To make this case, we discuss interview data from the Rights-based Rehabilitation project, which sought to explore disabled people's lived experiences of rehabilitation.


Asunto(s)
Personas con Discapacidad , Medicina , Humanos , Sociología Médica , Estudios de la Discapacidad , Personas con Discapacidad/rehabilitación
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