RESUMEN

When it comes to health-related information-seeking behavior, online communities play a key role for some groups, such as parents. With a case study of online communities in a loosely organized vaccination system, that of Austria, we study how parents make use of a prominent online forum (parents.at) in their vaccination trajectories and situate this analysis in its socio-political context. Based on inductive qualitative analysis of relevant threads (n = 27), we find that parents use forums in three ways: First, the forum serves as a platform through which parents seek orientation in a loosely organized and fragmented vaccination system. Second, the forum offers space for sharing, collecting, and evaluating different forms of expertise. In doing so, parents carve out a space in which they can comfortably put lay expertise and credentialed expertise on a par, particularly in their advice to peers. Third, and on that basis, parents use the forum for deliberating on future or past vaccination-related decisions. In doing so, they frequently draw on idiosyncratic notions of individual risks and benefits. These three practices enable parents to accumulate and share what we label navigational capital. We conclude that parents resort to online spaces both out of a subjective need and, for some, as a result of a dysfunction of the national childhood vaccination program which offers little orientation for parents.

Asunto(s)

RESUMEN

BACKGROUND: In the United States, transgender women are disproportionately impacted by HIV and prioritized in the national strategy to end the epidemic. Individual, interpersonal, and structural vulnerabilities underlie HIV acquisition among transgender women and fuel syndemic conditions, yet no nationwide cohort monitors their HIV and other health outcomes. OBJECTIVE: Our objective is to develop a nationwide cohort to estimate HIV incidence, identify risk factors, and investigate syndemic conditions co-occurring with HIV vulnerability or acquisition among US transgender women. The study is informed by the Syndemics Framework and the Social Ecological Model, positing that stigma-related conditions are synergistically driven by shared multilevel vulnerabilities. METHODS: To address logistical and cost challenges while minimizing technology barriers and research distrust, we aim to establish a novel, hybrid community hub-supported digital cohort (N=3000). The digital cohort is the backbone of the study and is enhanced by hubs strategically located across the United States for increased engagement and in-person support. Study participants are English or Spanish speakers, are aged ≥18 years, identify as transgender women or along the transfeminine spectrum, reside in 1 of the 50 states or Puerto Rico, and do not have HIV (laboratory confirmed). Participants are followed for 24 months, with semiannual assessments. These include a questionnaire and laboratory-based HIV testing using self-collected specimens. Using residential zip codes, person-level data will be merged with contextual geolocated data, including population health measures and economic, housing, and other social and structural factors. Analyses will (1) evaluate the contribution of hub support to the digital cohort using descriptive statistics; (2) estimate and characterize syndemic patterns among transgender women using latent class analysis; (3) examine the role of contextual factors in driving syndemics and HIV prevention over time using multilevel regression models; (4) estimate HIV incidence in transgender women and examine the effect of syndemics and contextual factors on HIV incidence using Poisson regression models; and (5) develop dynamic, compartmental models of multilevel combination HIV prevention interventions among transgender women to simulate their impact on HIV incidence through 2030. RESULTS: Enrollment launched on March 15, 2023, with data collection phases occurring in spring and fall. As of February 24, 2024, a total of 3084 individuals were screened, and 996 (32.3%) met the inclusion criteria and enrolled into the cohort: 2.3% (23/996) enrolled at a hub, and 53.6% (534/996) enrolled through a community hub-supported strategy. Recruitment through purely digital methods contributed 61.5% (1895/3084) of those screened and 42.7% (425/996) of those enrolled in the cohort. CONCLUSIONS: Study findings will inform the development of evidence-based interventions to reduce HIV acquisition and syndemic conditions among US transgender women and advance efforts to end the US HIV epidemic. Methodological findings will also have critical implications for the design of future innovative approaches to HIV research. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/59846.

Asunto(s)

RESUMEN

Introduction: This article aims to investigate the potential impact of restricted social data access on digital research practices. The 2018 Cambridge Analytica scandal exposed the exploitation of Facebook user data for speculative purposes and led to the end of the so-called "Data Golden Age," characterized by free access to social media user data. As a result, many social platforms have limited or entirely banned data access. This policy shift, referred to as the "APIcalypse," has revolutionized digital research methods. Methods: To address the impact of this policy shift on digital research, a non-probabilistic sample of Italian researchers was surveyed and the responses were analyzed. The survey was designed to explore how constraints on digital data access have altered research practices, whether we are truly in a post-API era with a radical change in data scraping strategies, and what shared and sustainable solutions can be identified for the post-API scenario. Results: The findings highlight how limits on social data access have not yet created a "post-Api" scenario as expected, but it is turning research practices upside down, positively and negatively. On the positive side, because researchers are experimenting with innovative forms of scraping. Negatively, because there could be a "mass migration" to the few platforms that freely grant their APIs, with critical consequences for the quality of research. Discussion: The closure of many social media APIs has not opened up a post-API world, but has worsened the conditions of making research, which is increasingly oriented to "easy-data" environments such as Twitter. This should prompt digital researchers to make a self-reflexive effort to diversify research platforms and especially to act ethically with user data. It would also be important for the scientific world and large platforms to enter into understandings for open and conscious sharing of data in the name of scientific progress.

RESUMEN

The widespread use of digital communication technologies has created new opportunities for social research. In this paper, we explore the limits and potentials of using messaging and social media apps as tools for qualitative research. Building upon our research on Italian migration to Shanghai, we discuss in detail the methodological choice of using WeChat for teamwork, remote sampling strategies, and conducting interviews. The paper highlights the benefits that researchers may have from employing the same technology that the studied community uses in their daily life as a research tool, and advocates for a flexible approach to research that adapts its tools and methods to the specific requirements and characteristics of the fieldwork. In our case, this strategy allowed us to emphasize that WeChat represents a digital migratory space which played a crucial role in understanding and making of the Italian digital diaspora in China.

RESUMEN

This research investigates the use of search engine optimization (SEO) by political and non-political actors to amplify the visibility of search engine results. While there has been much theoretical speculation around the role of SEO techniques in boosting the ranking appearance of a website, few empirical studies have been undertaken to understand the extent to which SEO techniques are used to promote visibility online. This study takes Italy as a case study to map the information landscape around nine highly controversial issues during the Italian electoral campaign of 2022. Using a combination of digital methods and a tool detecting optimization in websites, our article aims at examining which actors employ SEO techniques to foster the circulation of their ideas and agendas around hot topics. Our analysis reveals that information channels, institutions, and companies are predominant, while political actors remain in the background. Contextually, data indicate that SEO techniques are employed by several recurrent editorial groups, company owners, and institutions. Ultimately, we discuss the impact of SEO techniques on the circulation and visibility of information around relevant policy issues, contributing to shaping and influencing public debate and opinion.

RESUMEN

The COVID-19 pandemic altered the way many people worked. Remote and creative ways were favoured and utilised for consultation activities. In this paper, we draw attention to how we have used creative methods over the teleconferencing platform 'ZOOM' to consult with children and their parents when we were unable to consult with them face-to-face. We document a clear timeline of how we have worked together to co-create an animation and information sheet about receiving outpatient parenteral antimicrobial therapy (OPAT). We identify the opportunities and challenges we faced.

RESUMEN

This paper describes the process, advantages and limitations of a qualitative methodology for defining and analyzing vulnerabilities during the COVID-19 pandemic. Implemented in Italy in two sites (Rome and outside Rome, in some small-medium sized municipalities in Latium) in 2021, this investigation employed a mixed digital research tool that was also used simultaneously in four other European countries. Its digital nature encompasses both processes of data collection. Among the most salient is that the pandemic catalyzed new vulnerabilities in addition to exacerbating old ones, particularly economic. Many of the vulnerabilities detected, in fact, are linked to previous situations, such as the uncertainties of labor markets, having in COVID-19 to the greatest negative effects on the most precarious workers (non-regular, part-time, and seasonal). The consequences of the pandemic are also reflected in other forms of vulnerability that appear less obvious, having exacerbated social isolation, not only out of fear of contagion, but because of the psychological challenges posed by containment measures themselves. These measures created not mere discomfort, but behavioral changes characterized by anxiety, fearfulness, and disorientation. More generally, this investigation reveals the strong influence of social determinants throughout the COVID-19 pandemic, creating new forms of vulnerability, as the effects of social, economic, and biological risk factors were compounded, in particular, among already marginalized populations.

RESUMEN

Migration is a disruptive experience that undermines immigrants' well-being. This systematic review explores the diversity of digital methods available to promote their well-being. The review includes 13 studies (6 were RCTs), comprising 8181 participants, collected through EBSCOhost web, b-ON, Scopus, SciELO and ProQuest, with no time restriction (to access all available literature). Primary outcomes were well-being (mental health; quality of life), and the secondary were stigma, integration and connection. Study quality was assessed by the QuADS tool. Digital methods are a valuable tool for improving immigrants' well-being. M-integration methods tend to focus on promoting mental health in immigrants, developing individual resilience while participatory methods address the quality of life in refugees, contributing to social resilience. Digital methods must not only be part of the guidelines of interventions for immigrants and refugees but also be a foundation upon which those guidelines are outlined.

Asunto(s)

RESUMEN

Academics are increasingly turning to crowdsourcing platforms to recruit research participants. Their endeavors have benefited from a proliferation of studies attesting to the quality of crowdsourced data or offering guidance on managing specific challenges associated with doing crowdsourced research. Thus far, however, relatively little is known about what it is like to be a participant in crowdsourced research. Our analysis of almost 1400 free-text responses provides insight into the frustrations encountered by workers on one widely used crowdsourcing site: Amazon's MTurk. Some of these frustrations stem from inherent limitations of the MTurk platform and cannot easily be addressed by researchers. Many others, however, concern factors that are directly controllable by researchers and that may also be relevant for researchers using other crowdsourcing platforms such as Prolific or CrowdFlower. Based on participants' accounts of their experiences as crowdsource workers, we offer recommendations researchers might consider as they seek to design online studies that demonstrate consideration for respondents and respect for their time, effort, and dignity.

Asunto(s)

RESUMEN

The article considers the potential applicability of C12880MA and C11708MA Hamamatsu microspectrometers, which are characterized by an extremely compact design, occupying a small volume of several cubic centimeters, in portable spectrometric equipment with spatial resolution for monitoring the optical properties of condensed scattering media. The development of methods for determining the reduced scattering and absorption spectral coefficients of radiation from various scattering materials and products allows us to speak about the possibility of real-time control of the volume concentration of optically active components included in them, for example, fat and water in dairy products. For this, it is necessary to provide sufficiently accurate spectra of diffusely reflected broadband light radiation at different distances between the points of radiation entrance and registration. The aim of the manuscript is to assess the possibility of using the considered microspectrometers in compact devices for optical diagnostics and control of the optical properties of condensed scattering media. The features of the connection diagram of these microspectrometers and the necessary methods for correcting the initially obtained spectral dependencies of diffusive reflection, which will be of interest to developers of spectral diagnostic equipment, are considered in detail. The need to eliminate the influence of the inhomogeneity of dark counts of a CMOS photodiode array is shown. The hardware functions of the C12880MA and C11708MA Hamammatsu microspectrometers, as well as the AvaSpec 2048L fiber-optic spectrometer, were experimentally measured and compared. Methods for correcting the nonlinearity of their reading scales and light characteristics, as well as improving their equivalent spectral resolution using digital Wiener filtering, are described. It is shown that the equivalent spectral resolution of C12880MA and C11708MA microspectrometers can be improved by about 40% when recording smooth spectra, subject to the condition that the resulting side oscillations are small. It is pointed out that in order to reduce the level of side oscillations in the corrected spectra with improved resolution, it is necessary to ensure the smoothness of the original spectra and a good signal-to-noise ratio. A conclusion is made about the possibility of using the considered microspectrometers in portable spectrometric equipment with careful consideration of their characteristics, the features of their switching circuit, and the necessary software.

Asunto(s)

RESUMEN

The COVID-19 pandemic led to an increased need to conduct research and community engagement using digital methods. Unfortunately, the shift away from in-person research activities can make it difficult to engage and recruit participants from under-resourced communities that lack adequate digital infrastructure. At the beginning of the pandemic, our team recognized that imminent lockdowns would significantly disrupt ongoing engagement with low-income housing resident community partners and that we would ultimately bear responsibility if that occurred. This manuscript outlines the development of methods designed to create capacity for virtual engagement with a community advisory board that were subsequently applied to a longitudinal mixed-methods study. We describe how our experience engaging low-income housing residents during the height of the pandemic influenced the approach and offer guidelines useful for engaging under-resourced communities regardless of setting. Of these, a strong commitment to providing technology, unlimited data connectivity, and basic digital literacy training/technical support is most important. While each of these is essential and failure in any one area will reduce overall effectiveness of the effort, providing adequate technical support while maintaining ongoing relationships with community members is the most important and resource-intensive.

RESUMEN

BACKGROUND: The rise of digital methods and computational tools has opened up the possibility of collecting and analyzing data from novel sources, such as discussions on social media. At the same time, these methods and tools introduce a dependence on technology, often resulting in a need for technical skills and expertise. Researchers from various disciplines engage in empirical bioethics research, and software development and similar skills are not usually part of their background. Therefore, researchers often depend on technical experts to develop and apply digital methods, which can create a bottleneck and hinder the broad use of digital methods in empirical bioethics research. OBJECTIVE: This study aimed to develop a research platform that would offer researchers the means to better leverage implemented digital methods, and that would simplify the process of developing new methods. METHODS: This study used a mixed methods approach to design and develop a research platform prototype. I combined established methods from user-centered design, rapid prototyping, and agile software development to iteratively develop the platform prototype. In collaboration with two other researchers, I tested and extended the platform prototype in situ by carrying out a study using the prototype. RESULTS: The resulting research platform prototype provides three digital methods, which are composed of functional components. This modular concept allows researchers to use existing methods for their own experiments and combine implemented components into new methods. CONCLUSIONS: The platform prototype illustrates the potential of the modular concept and empowers researchers without advanced technical skills to carry out experiments using digital methods and develop new methods. However, more work is needed to bring the prototype to a production-ready state.

RESUMEN

PURPOSE: Sexual and gender minority youth (SGMY) experience unique challenges related to identity and disclosure, and cope in vibrant ways. Qualitative research has not yet fulsomely explored the risk, resilience, and identity intersections that impact vulnerable SGMY wellbeing. Methods: This digital photo-elicitation study (QueerView) recruited thirty SGMY (aged 14-29) from priority populations that had one or more of the following experiences:  trans and gender diverse, homelessness, child welfare, and immigration. From submission of fifteen photos representing resilience and a semi-structured interview via web conferencing, constructivist grounded theory was utilized for multimodal analysis of photos, interview video, and interview transcript. Triangulation, an audit trail, and member checking were employed to support trustworthiness. Results: A visual model emerged showing how participants work towards an integrative self, with themes of reflecting and knowing, discrimination and intersectional challenges, connecting, performing, curating, coping, (re)defining and (re)creating, growing and being. Sub-themes of the impact of family dynamic and values, mental health and trauma, and the cathartic benefit from advocacy and leadership offered insight. Participant images were captured in a digital gallery. Conclusions: QueerView animates the complex lives of multiply marginalized SGMY and their intersectional strengths and challenges while demonstrating the utility of a digital multimodal approach.

Asunto(s)

RESUMEN

Mental health disorders among primary school children remain a crucial issue. Early health promotion interventions can positively affect and prevent the onset of mental disorders. Promising digital mental health methods have been implemented for adolescents and youths with scarce evidence among younger ages. Therefore, the aim of the current systematic review was to identify health promotion interventions on mental health and wellbeing, with the use of digital methods, delivered in primary school settings. Six digital interventions have been identified, three of which were targeting teachers and the others students. Regardless of the limited number of studies, the effectiveness of the web-based interventions upon teachers' knowledge and attitudes and the positive impact on children's behavioral improvements has been documented. The lack of adequate evidence highlights the need for further research in the field. The current review provides information for professionals working in primary schools useful for the design and implementation of effective mental health and wellbeing interventions.

RESUMEN

Ongoing loss of biological diversity is primarily the result of unsustainable human behavior. Thus, the long-term success of biodiversity conservation depends on a thorough understanding of human-nature interactions. Such interactions are ubiquitous but vary greatly in time and space and are difficult to monitor efficiently at large spatial scales. However, the Information Age also provides new opportunities to better understand human-nature interactions because many aspects of daily life are recorded in a variety of digital formats. The emerging field of conservation culturomics aims to take advantage of digital data sources and methods to study human-nature interactions and thus to provide new tools for studying conservation at relevant temporal and spatial scales. Nevertheless, technical challenges associated with the identification, access, and analysis of relevant data hamper the wider adoption of culturomics methods. To help overcome these barriers, we propose a conservation culturomics research framework that addresses data acquisition, analysis, and inherent biases. The main sources of culturomic data include web pages, social media, and other digital platforms from which metrics of content and engagement can be obtained. Obtaining raw data from these platforms is usually desirable but requires careful consideration of how to access, store, and prepare the data for analysis. Methods for data analysis include network approaches to explore connections between topics, time-series analysis for temporal data, and spatial modeling to highlight spatial patterns. Outstanding challenges associated with culturomics research include issues of interdisciplinarity, ethics, data biases, and validation. The practical guidance we offer will help conservation researchers and practitioners identify and obtain the necessary data and carry out appropriate analyses for their specific questions, thus facilitating the wider adoption of culturomics approaches for conservation applications.

Fuentes de Información Digital y Métodos para la Culturomia de la Conservación Resumen La continua pérdida de biodiversidad es el resultado principal del comportamiento humano insostenible. Por esto, el éxito a largo plazo de la conservación de la biodiversidad depende de una comprensión exhaustiva de las interacciones humano-naturaleza. Dichas interacciones son ubicuas pero varían enormemente en el tiempo y el espacio, lo que dificulta su monitoreo eficiente a escalas espaciales amplias. Sin embargo, la Era de la Información también nos proporciona nuevas oportunidades para comprender de mejor manera las interacciones humano-naturaleza pues muchos aspectos de la vida diaria quedan registrados en una variedad de formatos digitales. El campo emergente de la culturomia de la conservación busca aprovechar los recursos y los métodos digitales para estudiar las interacciones humano-naturaleza y así proporcionar nuevas herramientas para el estudio de la conservación a escalas temporales y espaciales relevantes. No obstante, las dificultades técnicas asociadas con la identificación, acceso y análisis de la información relevante obstaculizan la adopción más amplia de los métodos de la culturomia. Para ayudar a superar estas barreras proponemos un marco de trabajo de investigación de culturomia de la conservación que aborde la obtención de datos, el análisis y los sesgos inherentes. Entre las principales fuentes de datos sobre culturomia se incluyen las páginas web, las redes sociales y otras plataformas digitales a partir de las cuales se pueden obtener medidas del contenido y la participación. Normalmente se busca obtener datos crudos a partir de este tipo de plataformas, pero esto requiere que se tengan en consideración las vías de acceso, el almacenaje y la preparación de la información para su posterior análisis. Los métodos para el análisis de datos incluyen analísis de redes para explorar las conexiones entre los temas, el análisis de series de tiempo para los datos temporales y el modelado espacial para resaltar los patrones espaciales. Los desafíos sobresalientes asociados a la investigación en culturomia incluyen temas de interdisciplinariedad, ética, sesgos de datos y validación. La orientación práctica que ofrecemos ayudará a los investigadores y practicantes de la conservación a identificar y obtener los datos necesarios. También les ayudará a realizar análisis apropiados para responder a sus preguntas específicas, facilitando así la adopción más amplia de las estrategias de culturomia para su aplicación en la conservación.

Asunto(s)

RESUMEN

This article presents the results of a public engagement experiment on a project trialling 'vertical farming', an emerging technology addressing urban food issues. The experiment developed within an issue mapping project, analysing debates about vertical farming on the digital platforms, Twitter and Instagram. The article presents a software tool designed to engage 'offline' publics in the issue mapping process, using images collected from Instagram. We describe testing this software tool with visitors to exhibitions of vertical farming in two science and technology museums. Our findings highlight the predominance of commercial publicity about vertical farming on Twitter and Instagram and the organisation of public attention around technological novelty. The article discusses the challenges such publicity dynamics pose to mapping issues on platforms. We suggest some ways digital methods might contribute to public engagement with technologies, like vertical farming, that are a focus of organised commercialised innovation.

Asunto(s)

RESUMEN

2020 saw a perfect storm of events. It began with the COVID-19 pandemic that swept across the globe, followed by waves of racial unrest, economic distress, and political turbulence even as wildfires, hurricanes and tropical storms tore across our region. It was clear to all of us that we were living through sweeping historical change compressed into a short space of time. This article describes the creation of Beyond 2020: Living History, a public history project at the University of Texas at Austin that aimed to respond to the events of the year. It charts the development of the project and how it came to diverge from its original design in productive ways underpinned not by an attempt to impose order or build hierarchy, the traditional tools of historical analysis, but rather by a willingness to relinquish control to create a shared space for our university community.

RESUMEN

BACKGROUND: The discovery of the CRISPR-Cas9-based gene editing method has opened unprecedented new potential for biological and medical engineering, sparking a growing public debate on both the potential and dangers of CRISPR applications. Given the speed of technology development and the almost instantaneous global spread of news, it is important to follow evolving debates without much delay and in sufficient detail, as certain events may have a major long-term impact on public opinion and later influence policy decisions. OBJECTIVE: Social media networks such as Twitter have shown to be major drivers of news dissemination and public discourse. They provide a vast amount of semistructured data in almost real-time and give direct access to the content of the conversations. We can now mine and analyze such data quickly because of recent developments in machine learning and natural language processing. METHODS: Here, we used Bidirectional Encoder Representations from Transformers (BERT), an attention-based transformer model, in combination with statistical methods to analyze the entirety of all tweets ever published on CRISPR since the publication of the first gene editing application in 2013. RESULTS: We show that the mean sentiment of tweets was initially very positive, but began to decrease over time, and that this decline was driven by rare peaks of strong negative sentiments. Due to the high temporal resolution of the data, we were able to associate these peaks with specific events and to observe how trending topics changed over time. CONCLUSIONS: Overall, this type of analysis can provide valuable and complementary insights into ongoing public debates, extending the traditional empirical bioethics toolset.

Asunto(s)

RESUMEN

BACKGROUND: Patient feedback in the English NHS is now widespread and digital methods are increasingly used. Adoption of digital methods depends on socio-technical and contextual factors, alongside human agency and lived experience. Moreover, the introduction of these methods may be perceived as disruptive of organisational and clinical routines. The focus of this paper is on the implementation of a particular digital feedback intervention that was co-designed with health professionals and patients (the DEPEND study). METHODS: The digital feedback intervention was conceptualised as a complex intervention and thus the study focused on the contexts within which it operated, and how the different participants made sense of the intervention and engaged with it (or not). Four health care sites were studied: an acute setting, a mental health setting, and two general practices. Qualitative data was collected through interviews and focus groups with professionals, patients and carers. In total 51 staff, 24 patients and 8 carers were included. Forty-two observations of the use of the digital feedback system were carried out in the four settings. Data analysis was based on modified grounded theory and Normalisation Process Theory (NPT) formed the conceptual framework. RESULTS: Digital feedback made sense to health care staff as it was seen as attractive, fast to complete and easier to analyse. Patients had a range of views depending on their familiarity with the digital world. Patients mentioned barriers such as kiosk not being visible, privacy, lack of digital know-how, technical hitches with the touchscreen. Collective action in maintaining participation again differed between sites because of workload pressure, perceptions of roles and responsibilities; and in the mental health site major organisational change was taking place. For mental health service users, their relationship with staff and their own health status determined their digital use. CONCLUSION: The potential of digital feedback was recognised but implementation should take local contexts, different patient groups and organisational leadership into account. Patient involvement in change and adaptation of the intervention was important in enhancing the embedding of digital methods in routine feedback. NPT allowed for a in-depth understanding of actions and interactions of both staff and patients.

Asunto(s)