RESUMEN
There are 24 regional pediatric palliative care resource teams (ERSP) in metropolitan and overseas France. An initial review of the ERSPs was carried out in 2015. The ERSP commission of the Société française de soins palliatifs pédiatriques (French Society for Pediatric Palliative Care) wanted to review the situation again, ten years after the creation of these teams. This article presents the main findings.
Asunto(s)
Enfermería de Cuidados Paliativos al Final de la Vida , Cuidados Paliativos , Niño , Humanos , FranciaRESUMEN
End-of-life support and the implementation of a palliative approach require specific skills deployed in multidisciplinary teams. The same is true for professionals in the disability sector who accompany the life projects of people living in specialized facilities. This article proposes, based on a clinical situation at the end of life, a reflection on the acculturation of practices between the health, social and medico-social fields in favor of better end-of-life support for people with disabilities.
Asunto(s)
Personas con Discapacidad , Infecciones por VIH , Humanos , Muerte , Cuidados PaliativosRESUMEN
Accompanying a person at the end of life at home requires skills to alleviate symptoms and the availability to take care of the person and his or her loved ones. Interdisciplinary teamwork helps to give meaning to the care project and to cross the views on complex issues.
Asunto(s)
Muerte , Cuidados Paliativos , HumanosRESUMEN
The palliative care approach concerns all healthcare professionals involved in patient care and support. In the current context of health crisis, collaboration between medical and non-medical teams, particularly nurses, and the use of anticipatory tools must be developed and particular attention paid to care home residents and their families. Global reflection is required, to give back meaning to care and ensure the human and relational aspects are taken into consideration.
Asunto(s)
Enfermería de Cuidados Paliativos al Final de la Vida , Cuidados Paliativos , Personal de Salud , HumanosRESUMEN
The covid-19 epidemic and the resulting lockdown measures have undoubtedly led people who are ill, as well as those at risk of becoming ill, to contemplate the notions of risk, uncertainty and death. What effects has this confrontation with the question of death had and what impact will it continue to have on the palliative care approach and the decisions to withhold and withdraw treatment in certain circumstances?
Asunto(s)
COVID-19 , Control de Enfermedades Transmisibles , Muerte , Toma de Decisiones , Humanos , Cuidados Paliativos , SARS-CoV-2 , Privación de TratamientoRESUMEN
In the palliative care day hospital of Marie-Galène health centre in Bordeaux, care is provided in two different ways: through the interdisciplinary individual day hospital and the collective day hospital in the form of group days. In both cases, the palliative approach guides the team's reflection regarding the anticipation of complex situations and quality of life. The health crisis has had a significant impact on the activity of this service.
Asunto(s)
Enfermería de Cuidados Paliativos al Final de la Vida , Calidad de Vida , Centros de Día , Hospitales , Humanos , Cuidados PaliativosRESUMEN
Patients with cancer are more at risk of quickly developing lethal forms of covid-19. Hospitals have therefore had to organise themselves to continue to receive patients while respecting the health measures. It was necessary to think about the best way of maintaining visits, as well as a means of adapting a specific space for palliative care and team thinking for patients cared for in identified palliative care beds.
Asunto(s)
COVID-19 , Enfermería de Cuidados Paliativos al Final de la Vida , Humanos , Cuidados Paliativos , SARS-CoV-2RESUMEN
Nurses play a strategic role alongside patients and their families in the process leading to the decision to limit cancer treatments in the advanced phase of the disease. This stage of the patient's care requires support and guidance as part of the palliative approach, which, in addition to the patient and the family, also concerns the oncologist.
Asunto(s)
Toma de Decisiones , Inutilidad Médica/ética , Neoplasias/terapia , Rol de la Enfermera , HumanosRESUMEN
Often ethically complex, end-of-life situations can mean nursing teams are confronted with a refusal of care. Through a representative clinical situation, a nurse describes the support provided by a multidisciplinary team, in the home, to comply with the wishes of a person at the end of life, support the family, anticipate possible difficulties and organise adapted care which respects all those concerned.
Asunto(s)
Enfermería de Cuidados Paliativos al Final de la Vida , Cuidados Paliativos/organización & administración , Negativa del Paciente al Tratamiento , Humanos , Autonomía PersonalRESUMEN
The care provision for people at the end of life requires a palliative care approach to be extended across the whole healthcare system. Access to palliative care for everyone requires training for professionals, support for specialised structures and teams as well as clear political will.