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1.
Front Psychiatry ; 15: 1385947, 2024.
Artículo en Inglés | MEDLINE | ID: mdl-38919639

RESUMEN

Augmentative alternative communication (AAC) devices or systems are often prescribed to minimally verbal or nonspeaking autistic individuals and other individuals with complex communication needs to facilitate communication or as an alternative to spoken language. AAC use can result in communication gains and improved quality of life for minimally verbal or nonspeaking individuals. Despite this, AAC abandonment is high, limiting societal participation of the individual on the autism spectrum with complex communication needs. Our study is a novel exploration of the barriers of AAC use from a multi-stakeholder perspective, and a qualitative analysis of similarities and differences between stakeholders. We conducted semi-structured interviews and focus groups with 30 parent-carers, educators and clinicians currently supporting AAC users in Western Australia and analysed the data using reflexive thematic analysis. Barriers from each stakeholder group were coded, resulting in 17 subthemes forming five main themes common to all stakeholders: Stakeholder Knowledge, Stakeholder Attitudes and Stigma, Resources, AAC User Engagement, and Device Fit. Contrasting perspectives included actual and perceived stigma associated with AAC use (parent-carers vs clinicians); different struggles with resources and knowledge (parent-carers vs clinicians and educators); and a lack of clinician communication in the processes that determined AAC-fit for school environments (educators only). Findings are discussed in the context of improving inter-stakeholder collaboration and capacity building in Australian health service and practice to better support minimally verbal or nonspeaking autistic individuals and individuals with complex communication needs. Suggestions are also offered for communication partner training.

2.
Dev Neurorehabil ; 26(8): 436-449, 2023 Nov.
Artículo en Inglés | MEDLINE | ID: mdl-38183414

RESUMEN

Limited published literature exists demonstrating functional relations between idiosyncratic responses or augmentative alternative communication (AAC) and social reinforcement for individuals with Rett syndrome. In this study, six females with Rett syndrome ages 2-25 demonstrated requesting for preferred items using both idiosyncratic responses (e.g, looking, reaching) and AAC (e.g. single response microswitches). Researchers connected remotely via telehealth to coach caregivers to implement all sessions in home environments. Researchers individualized response prompt delays during AAC sessions (request/mand training) based on each participants' latency to respond during baseline. Implications for practice and directions for future research are discussed.


Asunto(s)
Equipos de Comunicación para Personas con Discapacidad , Trastornos de la Comunicación , Tutoría , Síndrome de Rett , Telemedicina , Femenino , Humanos , Cuidadores , Comunicación , Preescolar , Niño , Adolescente , Adulto Joven , Adulto
3.
Behav Sci (Basel) ; 12(10)2022 Sep 26.
Artículo en Inglés | MEDLINE | ID: mdl-36285928

RESUMEN

Autism Spectrum Disorders (ASD) represent a heterogeneous group of disorders, with onset in developmental age, which present a clinical expressiveness that varies from subject to subject and in the same subject over time. The DSM 5 defines Autism Spectrum Disorders according to two main criteria: persistent deficits in social communication and social interaction in multiple contexts and limited and repetitive patterns of behavior, interests or activities. This disorder can manifest itself across a broad spectrum of severity levels. Indeed, ASD includes clinical conditions from low functioning (LF-Low Functioning) to high functioning (HF-High Functioning), taking cognitive and adaptive functioning as a reference. One of the main characteristics of individuals with ASD is a delay in receptive and expressive communication. These deficits have led to the identification of evidence-based practices, particularly for those with severe communication difficulties. Augmentative Alternative Communication (AAC) has been implemented to compensate for deficits in functional communication and language skills in individuals with complex communication deficits. The AAC comprises communication systems including the Manual Signs, speech and image output devices (Communicators), and Image Exchange Systems (PECS); these systems have been shown to actually improve various abilities in autism such as social skills, modify and improve dysfunctional behaviors and, above all, improve learning. Recent meta-analyses have shown how PECS and Manual Sign can have great effects on the communication skills of young people with autism. The aim of this study is to compare these two types of intervention to improve communication in terms of vocalization in subjects with ASD and try to understand which of the two lead to more significant and rapid improvements.

4.
Disabil Rehabil Assist Technol ; 16(6): 567-579, 2021 08.
Artículo en Inglés | MEDLINE | ID: mdl-31691622

RESUMEN

PURPOSE: The current mixed methods research study was designed to describe the experience and opinions of paediatric acute care nurses at a single paediatric medical centre regarding augmentative and alternative communication (AAC). This research serves as the beginning of a line of research to determine needs that can be met through later education and training on AAC with paediatric acute care nurses. METHODS: Mixed methods were used to gather survey and interview data from nurses at a single paediatric hospital to investigate their knowledge of AAC, perceived relevance of AAC for their patient populations, and preferences for training programmes. RESULTS: Quantitative survey and qualitative interview data indicated a need for AAC education for these paediatric nurses. Nurses demonstrated limited knowledge and experience with AAC but communicated both a desire and perceived need to know more to effectively care for their patients. CONCLUSION: Nurses reported limited AAC knowledge but expressed a desire for support to use AAC with their patients. AAC education and cross-sector collaboration with healthcare workers such as speech-language pathologists (SLPs) and acute care paediatric nurses are indicated to support effective communication when interacting with patients with complex communication needs (CCN).Implications for rehabilitationImproved background knowledge to develop and implement future nurse education on AAC.Foundation for cross-sector collaboration (e.g., nurses and SLPs) on AAC implementation in paediatric acute care settings.


Asunto(s)
Equipos de Comunicación para Personas con Discapacidad , Trastornos de la Comunicación , Enfermeras Pediátricas , Patología del Habla y Lenguaje , Niño , Comunicación , Humanos , Proyectos Piloto
5.
CoDAS ; 33(5): e20200244, 2021. tab, graf
Artículo en Inglés | LILACS | ID: biblio-1286126

RESUMEN

ABSTRACT Purpose Assess the effectiveness of augmentative and alternative communication (AAC) interventions in patients with CP and to reveal determinant variables of main intervention outcomes: receptive and expressive language. Research strategies The search was performed in following databases: MEDLINE (Ovid); PubMed (NLM); Embase (Ovid); Cochrane Database of Systematic Reviews; Cumulative Index to Nursing and Allied Health Literature; Database of Abstracts of Reviews of Effects; Cochrane Central Register of Controlled Trials; Health Technology Assessment database and PEDro. Selection criteria Full-text and peer-reviewed studies in English studying the effectiveness of AAC in patients with cerebral palsy were included. Studies with patients (<18 years) diagnosed with CP were included. Data analysis A narrative analysis was conducted to evaluate the efficacy of AAC methods. A random-effects model meta-analysis was used to assess determinants of AAC intervention outcomes. Results The online database and manual reference search revealed 445 records. Nine studies investigating a total of 294 subjects with CP met predefined eligibility criteria: 4 studies with single subject, multiple baseline research designs, 3 longitudinal cohort studies, 1 case control study and 1 case series. Results revealed moderate-quality evidence that AAC interventions improve the receptive and expressive communication skills in patients with CP. The random-effects model meta-analysis revealed the power of identified determinant variables affecting the AAC intervention outcomes. Conclusion Diversity of CP patients requires proper analysis of determinant variables to ensure the efficacy of AAC assessment and intervention. More studies of high methodological and practical quality assessing the efficacy of AAC interventions are needed to clarify the evidence.


Asunto(s)
Humanos , Parálisis Cerebral/complicaciones , Estudios de Casos y Controles , Estudios Longitudinales , Comunicación , Revisiones Sistemáticas como Asunto
6.
Augment Altern Commun ; 36(4): 226-237, 2020 12.
Artículo en Inglés | MEDLINE | ID: mdl-33238754

RESUMEN

Six children with autism spectrum disorder (ASD) participated in dynamic assessment to determine whether the complexity of grid-based augmentative and alternative communication (AAC) application displays impacted the level of instructional supports needed for responding across different communicative functions/parts of speech. Dynamic assessment was integrated into a single-case multi-element design. The researchers examined the effects of three different display formats that varied in (a) array size, and (b) the number of steps needed to make a response, on the average levels of support needed to make item requests and action/social word responses. Three participants demonstrated high levels of independence when requesting items with displays that utilized small arrays and did not require navigation. These participants also showed rapid increases in their ability to make item requests with displays that required two-step navigation, and began to use action and social words across displays with decreasing levels of support. In comparison, the three remaining participants did not demonstrate consistent independence with any display or communicative function, but did show differences in levels of supports (e.g., overall less support needed for less complex displays and for item requests in comparison to action and social words). Implications for individualized AAC assessment and display selection for children with ASD are discussed.


Asunto(s)
Trastorno del Espectro Autista , Equipos de Comunicación para Personas con Discapacidad , Niño , Comunicación , Humanos , Habla
7.
J Commun Disord ; 87: 106025, 2020.
Artículo en Inglés | MEDLINE | ID: mdl-32673863

RESUMEN

PURPOSE: The purpose of this study was to report on modifications we made to a standardized input-based word learning treatment for two late-talking toddlers. The modifications were the addition of an augmentative alternative communication (AAC) device and the requirement that the children use this device, or speech, to communicate. METHOD: We used a single-subject design to track late-talking toddlers' progress through an input-based word learning treatment, which was part of a larger study. Because the input-based treatment protocol was not effective for each toddler based on absent or clinically insignificant treatment effect sizes, we modified the protocol. The modifications were meant to address each child's potential over-reliance on nonverbal communication and the potential impact of speech sound delay. We then measured their linguistic output. RESULTS: Both toddlers showed no evidence of learning during the input-based treatment. Each child's linguistic output increased by over 600 % once we made the protocol modification and introduced the AAC device. They used both AAC and vocal speech to communicate. Both toddlers produced novel words, and one began to produce multiple word combinations. DISCUSSION: While input-based therapy has an evidence base and has been successful for some toddlers, it may require modifications for children who have not learned the pragmatic convention of using spoken language, and for children with difficulty with speech sound production.


Asunto(s)
Equipos de Comunicación para Personas con Discapacidad , Trastornos del Desarrollo del Lenguaje , Vocabulario , Preescolar , Humanos , Trastornos del Desarrollo del Lenguaje/terapia , Aprendizaje , Fonética
8.
Disabil Rehabil Assist Technol ; 15(4): 480-483, 2020 05.
Artículo en Inglés | MEDLINE | ID: mdl-31226910

RESUMEN

Children with complex communication needs (CCN) develop severe limitation in communication functioning due to restricted access to environment, limited interactions with their communication partners, and few opportunities for communication (Light, 1997). In order to overcome these challenges and to enhance communication abilities, Augmentative Alternative Communication (AAC) can be introduced in intervention. This single case study reports the improvements in communication skills when the child made a transition from a communication book to an iPad speech generating app. Participant was a 7 year old child with multiple disability and CCN who was undergoing intervention using communication book and transited to an AAC app namely AVAZ. A comparison of pre and post-therapy communicative function was carried out using tool Communication Matrix to understand the improvement. When the child made transition from a communication book to a iPad speech generating AAC app, significant improvement was observed in all communicative functions namely refusal, obtaining, social purpose and for gathering information. After a total of 10 training sessions, the child advanced from level of using concrete symbols to a level of "Language" i.e. using a combination of abstract symbols for communication. This case report indicated that transition to an iPad AAC app had significant benefits on improving communication skills which in turn had positive impact on linguistic and literacy skills. Consequently, an improvement in levels of motivation and confidence was noted. Hence, providing access to the appropriate AAC device/technology in ongoing intervention is the foundation to building effective communication skills. Implications for rehabilitationImportance of ongoing assessments to understand the varying communication demands of AAC user.The timely decision of selecting appropriate AAC devices.Transition to appropriate AAC device to address higher communicative functions.Documenting evidence-based practices using AAC in a developing country like India.


Asunto(s)
Equipos de Comunicación para Personas con Discapacidad , Computadoras de Mano , Niños con Discapacidad/rehabilitación , Aplicaciones Móviles , Niño , Femenino , Humanos
9.
J Neuroeng Rehabil ; 16(1): 152, 2019 11 29.
Artículo en Inglés | MEDLINE | ID: mdl-31783763

RESUMEN

BACKGROUND: People with Amyotrophic Lateral Sclerosis (PwALS) in the advanced phase are critically affected by an almost total loss of mobility and severe communication problems. Scanning access based on the patient's interaction with a sensor (or switch) that intercepts even a weak body movement is a valid communication aid. However, its use becomes limited with the progressive decline of residual movements. To overcome this problem, we designed a new sensor, the Lever Magnetic-spring Mechanical Switch (LeMMS), allowing repeated activation/release cycles requiring a very small activation force. METHODS: The LeMMS was applied and validated in a group of 20 PwALS in an advanced stage of disease. All subjects were regular users of communication aids employing other sensors, but which they could no longer operate their sensors (different from LeMMS). Patients were assessed at baseline (t0) and after one (t1), 6 (t2) and 12 (t3) months. Assessment at t0 included administration of standardized clinical scales, the Click-Test-30 counting the maximum number of LeMMS activations in 30 s, and thumb/fingers strength assessment with the Kendall scale. The QUEST 2.0-Dev questionnaire was administered at t1. Some use-related information and the Click-Test-30 were collected at t1, t2 and t3. RESULTS: After one training session, all patients could operate the LeMMS with minimal residual movement of one finger. At t1, they used it on average 5.45 h/day. The mean score of the QUEST 2.0-Dev was 4.63, suggesting strong satisfaction with the LeMMS. Regarding Click-Test-30 scores, no significant difference was found between t0 and t1, but performance at t2 and t3 declined significantly (p < 0.005 vs. t0). At t3, 9/20 patients were still able to use their communication aid. CONCLUSIONS: This new switch sensor can enable PwALS to use their communication aids for a prolonged time even in the advanced phase of disease. It is easy to use, reliable and cheap, thus representing an intermediate alternative to more sophisticated and costly devices.


Asunto(s)
Esclerosis Amiotrófica Lateral , Equipos de Comunicación para Personas con Discapacidad , Femenino , Humanos , Masculino , Persona de Mediana Edad
10.
Dev Neurorehabil ; 22(6): 415-429, 2019 Aug.
Artículo en Inglés | MEDLINE | ID: mdl-31030583

RESUMEN

Objective: Tablets have successfully been used with individuals with autism spectrum disorder (ASD) and other developmental disabilities to request preferred items, label objects, share information, and engage in social interactions. However, there are limited data on the efficacy of utilizing such devices to teach multistep social-communication skills. Method: We used nonconcurrent multiple baseline design across behaviors to examine the effectiveness of systematic instruction on teaching multistep social-communication skills using an iPad® loaded with Proloquo2Go™. Three children between the ages of 7 and 10 years diagnosed with ASD and other developmental disabilities participated in the study. Results: To varying degrees, the participants were successful in using the iPad® to perform a multistep sequence in requesting, saying "thank you," and answering personal questions. Procedural modifications were made during the intervention phase for two participants so that they were able to acquire social-communication skills using AAC. Conclusions: The findings indicate that systematic instruction is effective in developing advanced social-communication skills.


Asunto(s)
Trastorno del Espectro Autista/terapia , Terapia Conductista/métodos , Comunicación , Computadoras de Mano , Habilidades Sociales , Trastorno del Espectro Autista/rehabilitación , Terapia Conductista/instrumentación , Niño , Equipos de Comunicación para Personas con Discapacidad , Femenino , Humanos , Masculino
11.
Res Dev Disabil ; 55: 77-87, 2016 Aug.
Artículo en Inglés | MEDLINE | ID: mdl-27054765

RESUMEN

BACKGROUND: Support staff may diverge in their use of augmentative and alternative communication (AAC) and key word signing (KWS). AAC use is determined by multiple personal and environmental factors. In this study, the relation between KWS attitudes and usage was examined in support staff. METHOD: Twelve adults with an intellectual disability who use KWS were each filmed during a dyadic interaction with two professionals from their service: one had received first-hand (1HT) and the other second-hand KWS training (2HT). Each communication partner participated with only one client. The professionals' sign usage was coded, and their attitude towards KWS was measured using a survey and single-category Implicit Association Test (IAT). RESULTS: 1HT produced more signed utterances and distinct signs than 2HT, and this increase had a positive, linear relation to IAT scores. Explicit attitude did not correlate with KWS usage, but did significantly correlate with the discrepancy between intention and KWS usage. CONCLUSION: The train-the-trainer system may not reach its full potential as 2HT knew fewer distinct signs and consequently produced fewer signed utterances than 1HT. In contrast to implicit attitude, no relation was found between explicit attitude and KWS usage. Though the survey may provide valuable information, it may not fully capture the complex influences that shape AAC usage.


Asunto(s)
Actitud del Personal de Salud , Equipos de Comunicación para Personas con Discapacidad , Personal de Salud/educación , Discapacidad Intelectual/rehabilitación , Lengua de Signos , Formación del Profesorado , Adulto , Femenino , Humanos , Persona de Mediana Edad , Embarazo , Adulto Joven
12.
Int J Psychiatry Med ; 48(3): 229-33, 2014.
Artículo en Inglés | MEDLINE | ID: mdl-25492716

RESUMEN

This case describes a psychotherapy intervention in a patient in advanced stages of ALS. The inability for verbal communication at these stages necessitated the inclusion of a computational system to favor augmentative and alternative communication (AAC) to provide psychological care. The association of this device and software with ongoing psychotherapy acted in a synergistic manner. AAC devices made it possible to maintain patient-therapist communication and provided material support for psychotherapy despite severe speech limitations. This bimodal protocol of intervention resulted in better symptom control, improved communication with the team and family, reduction of psychological distress, promotion of autonomy, dignity, and self-esteem. The novelty of this communication is to report how the regular psychological care could be adapted to the patient circumstances using a computer device. Clinical trials will be required to evaluate the effectiveness of this mode of psychotherapy for the general population of ALS patients.


Asunto(s)
Esclerosis Amiotrófica Lateral/psicología , Terapia Cognitivo-Conductual/métodos , Equipos de Comunicación para Personas con Discapacidad , Terapia Asistida por Computador/métodos , Anciano , Trastornos de Ansiedad/psicología , Trastornos de Ansiedad/terapia , Cuidadores/psicología , Comunicación , Conducta Cooperativa , Trastorno Depresivo/psicología , Trastorno Depresivo/terapia , Emociones , Femenino , Visita Domiciliaria , Humanos , Comunicación Interdisciplinaria , Cuidados Paliativos , Autonomía Personal , Relaciones Profesional-Paciente , Autoimagen , Rol del Enfermo , Apoyo Social , Resultado del Tratamiento
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