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1.
J Res Nurs ; 28(3): 176-180, 2023 May.
Artículo en Inglés | MEDLINE | ID: mdl-37332318

RESUMEN

Background: Inaccessible services and poor communication are barriers to successful transitions between adolescent and adult mental health services, for which digital communications (DC) offer a possible solution. Aims: To investigate the role of DC, including smartphone apps, email and text, given the known barriers and facilitators of mental health service transitions reported in the literature. Methods: Use of Neale's (2016) iterative categorisation technique to undertake a secondary analysis of qualitative data collected for the Long-term conditions Young people Networked Communication (LYNC) study. Results: DC were used successfully by young people and staff in ways that ameliorated known barriers to service transitions. They engendered responsibility in young people, promoted service access and contributed to client safety, particularly in times of crisis. DC risks included over-familiarity between young people and staff, and the possibility that messages could go unread. Conclusions: DC have the potential to facilitate trust and familiarity during and after transition to adult mental health services. They can strengthen young people's perceptions of adult services as supportive, empowering and available. DC can be used for frequent 'check-ins' and remote digital support for social and personal problems. They provide an additional safety net for at-risk individuals, but require careful boundary setting.

2.
J Pediatr Health Care ; 37(5): e1-e10, 2023.
Artículo en Inglés | MEDLINE | ID: mdl-37245130

RESUMEN

The nurse practitioner role is strongly suited to meet the needs of children with complex developmental conditions in pediatric rehabilitation settings as they have a unique combination of clinical expertise. To meet the increasing demands in a large Canadian pediatric rehabilitation hospital, the NP role was implemented in several clinical program settings to improve access to care. This paper describes the contributions of NPs to nine specialized inpatient and outpatient programs in NP-led, collaborative NP and physician or interagency care team models of practice. The initial challenges of role implementation and implications for NP practice, research and leadership are discussed.


Asunto(s)
Enfermeras Practicantes , Alcance de la Práctica , Humanos , Niño , Canadá , Rol de la Enfermera , Hospitales
3.
World J Pediatr Congenit Heart Surg ; 14(3): 357-363, 2023 05.
Artículo en Inglés | MEDLINE | ID: mdl-36823988

RESUMEN

Almost 90% of infants with congenital heart disease (CHD) now reach adulthood but require long-term surveillance to recognize and manage residual and/or evolving lesions. Yet many are lost to follow-up. A scoping review identified four specific domains that pose barriers to consistent follow-up. There are multiple issues associated with transition from pediatric to adult care which included-the lack of a seamless transfer, the establishment of a new trusting relationship, promoting the right balance of patient autonomy and addressing knowledge gaps. Additional issues related to logistic problems of time, distance, cost, and the availability of specialized care, are further compounded by the psychosocial factors and the heterogeneity of the cardiac abnormality affecting our patients. Further study of all these issues is warranted to improve ongoing engagement.


Asunto(s)
Cardiopatías Congénitas , Transición a la Atención de Adultos , Adulto , Humanos , Niño , Adolescente , Perdida de Seguimiento , Cardiopatías Congénitas/cirugía , Cardiopatías Congénitas/psicología
4.
Artículo en Inglés | MEDLINE | ID: mdl-35109881

RESUMEN

Transition age youth (TAY), a demographic spanning ages 15-26, navigate a myriad of developmental transitions, ranging from identity formation and intimate relationships to substance use. Unfortunately, many young adults continue to have a dearth of mental health services and programing tailored to their unique developmental needs. Moreover, the systems of care in place are generally designed for treating traditional pediatric and adult patients but not ideally suited to meet the needs of TAY. Given the additional stressors from the COVID-19 pandemic, TAY are now, more than ever, in need of routine mental health care. We posit that the rapid expansion of telemedicine programming developed in response to the pandemic could be beneficial in mitigating this historic gap in care. In this commentary, we call on mental health providers and researchers to expand and invest in the growing number of telemedicine interventions and programming for this population so that TAY can begin to receive the care they so desperately need.

5.
Rev Endocr Metab Disord ; 21(4): 577-597, 2020 12.
Artículo en Inglés | MEDLINE | ID: mdl-32185602

RESUMEN

Hyperinsulinemic hypoglycemia (HH) is characterized by unregulated insulin release, leading to persistently low blood glucose concentrations with lack of alternative fuels, which increases the risk of neurological damage in these patients. It is the most common cause of persistent and recurrent hypoglycemia in the neonatal period. HH may be primary, Congenital HH (CHH), when it is associated with variants in a number of genes implicated in pancreatic development and function. Alterations in fifteen genes have been recognized to date, being some of the most recently identified mutations in genes HK1, PGM1, PMM2, CACNA1D, FOXA2 and EIF2S3. Alternatively, HH can be secondary when associated with syndromes, intra-uterine growth restriction, maternal diabetes, birth asphyxia, following gastrointestinal surgery, amongst other causes. CHH can be histologically characterized into three groups: diffuse, focal or atypical. Diffuse and focal forms can be determined by scanning using fluorine-18 dihydroxyphenylalanine-positron emission tomography. Newer and improved isotopes are currently in development to provide increased diagnostic accuracy in identifying lesions and performing successful surgical resection with the ultimate aim of curing the condition. Rapid diagnostics and innovative methods of management, including a wider range of treatment options, have resulted in a reduction in co-morbidities associated with HH with improved quality of life and long-term outcomes. Potential future developments in the management of this condition as well as pathways to transition of the care of these highly vulnerable children into adulthood will also be discussed.


Asunto(s)
Hiperinsulinismo Congénito/diagnóstico , Hiperinsulinismo Congénito/terapia , Adolescente , Niño , Preescolar , Hiperinsulinismo Congénito/genética , Hiperinsulinismo Congénito/metabolismo , Humanos , Lactante
7.
Ir J Med Sci ; 189(1): 33-42, 2020 Feb.
Artículo en Inglés | MEDLINE | ID: mdl-31273561

RESUMEN

BACKGROUND: Increasing numbers of young adults with life-limiting conditions are living into adulthood and consequently making the transition from children's to adult services. A poorly planned transition is associated with adverse outcomes such as non-adherence to treatment and loss to follow-up, together with negative social and emotional outcomes. However, there is little descriptive data on how organisations are currently managing transition. AIM: To obtain an overview of organisational approaches to transition on the island of Ireland, and to explore important organisational factors that may influence the effectiveness of the process. METHODS: A cross-sectional questionnaire survey. One of the four Health Services Executive areas in the Republic of Ireland and the whole of Northern Ireland. Participants were service providers in statutory and non-statutory organisations providing transition services to young adults with life-limiting conditions. RESULTS: The survey was distributed to 55 organisations. The overall response rate was 29/55 (53%). The approach to transition most commonly used focused on interagency communication and collaboration. Key factors in an effective transition were reported as: early commencement; effective communication between the young adult, their family, and services; the availability of appropriate adult services; and effective preparation through collaboration with the young adult and their family. However, implementation of these processes was inconsistent. CONCLUSIONS: The findings demonstrate that caring for young adults with life-limiting conditions presents a considerable challenge to organisations and that transition from children's to adult services is an important part of this challenge.


Asunto(s)
Transición a la Atención de Adultos , Adolescente , Adulto , Niño , Estudios Transversales , Femenino , Humanos , Irlanda , Masculino , Encuestas y Cuestionarios , Adulto Joven
8.
J Res Nurs ; 25(3): 277-288, 2020 May.
Artículo en Inglés | MEDLINE | ID: mdl-34394636

RESUMEN

BACKGROUND: Inaccessible services and poor communication are barriers to successful transitions between adolescent and adult mental health services, for which digital communications (DC) offer a possible solution. AIMS: To investigate the role of DC, including smartphone apps, email and text, given the known barriers and facilitators of mental health service transitions reported in the literature. METHODS: Use of Neale's (2016) iterative categorisation technique to undertake a secondary analysis of qualitative data collected for the Long-term conditions Young people Networked Communication (LYNC) study. RESULTS: DC were used successfully by young people and staff in ways that ameliorated known barriers to service transitions. They engendered responsibility in young people, promoted service access and contributed to client safety, particularly in times of crisis. DC risks included over-familiarity between young people and staff, and the possibility that messages could go unread. CONCLUSIONS: DC have the potential to facilitate trust and familiarity during and after transition to adult mental health services. They can strengthen young people's perceptions of adult services as supportive, empowering and available. DC can be used for frequent 'check-ins' and remote digital support for social and personal problems. They provide an additional safety net for at-risk individuals, but require careful boundary setting.

9.
Australas Psychiatry ; 25(2): 126-129, 2017 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-27694644

RESUMEN

OBJECTIVES: This paper reviews the importance of transition to adult services for young people with ADHD. METHOD: Different models are described and evidence sought for their effectiveness in clinical practice. RESULTS: Models of care for children with ADHD include specialised mental health services, individual paediatricians and child and adolescent psychiatrists. Although it might be expected that transition would be to equivalent adult teams or specialists, studies have shown that transition may not run smoothly, and the adult services are frequently inadequate. This may result in attrition from treatment or discharge to the general practitioner. CONCLUSIONS: Adult mental health services for transitioning young people with ADHD are under-resourced. The way forward may be a generic ADHD specialist or service, treating ADHD across the lifespan and avoiding the need for transition.


Asunto(s)
Trastorno por Déficit de Atención con Hiperactividad/terapia , Servicios de Salud Mental/organización & administración , Transición a la Atención de Adultos , Necesidades y Demandas de Servicios de Salud , Humanos , Longevidad , Adulto Joven
10.
Palliat Med ; 28(4): 342-52, 2014 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-24142761

RESUMEN

BACKGROUND: Transition to adult services and adulthood is now a prospect for young people with life-limiting conditions requiring palliative care. Little is known about their transition experiences or how children's hospices can support a young adult population during/following transition. AIMS: (1) To examine how young people with life-limiting conditions and their parents experience transition. (2) To identify families' and hospice staff's perceptions of family support needs during transition. (3) To identify the implications for children's hospices. DESIGN: Qualitative study using in-depth, semi-structured interviews. Analysis used a grounded theory approach. SETTING/PARTICIPANTS: A total of 39 participants recruited from one children's hospice in the United Kingdom. RESULTS: Transition planning was absent or poorly coordinated; for most families, there were no equivalent adult health/social services. Consequently, it was a time of uncertainty and anxiety for families. Moving to a young adult unit was a positive experience for young people as the building/support model recognised their adult status. However, they had unmet needs for emotional support and accessing information/services to realise their aspirations. Parents had unmet emotional needs and were unclear of support available once their children reached adulthood. Staff identified training needs in relation to working with adults, providing emotional support and acting as an advocate/key worker. CONCLUSIONS: Providing an appropriate building is only one aspect of developing support for young adults. A different model of support is needed, one which promotes young people's independence and provides emotional support while continuing to support parents and siblings. Hospices could play a role in transition support and coordination.


Asunto(s)
Servicios de Salud del Adolescente/organización & administración , Cuidados Paliativos al Final de la Vida/organización & administración , Cuidados Paliativos/organización & administración , Transición a la Atención de Adultos/organización & administración , Adolescente , Adulto , Actitud del Personal de Salud , Familia/psicología , Femenino , Necesidades y Demandas de Servicios de Salud , Humanos , Masculino , Satisfacción del Paciente , Relaciones Profesional-Paciente , Investigación Cualitativa , Encuestas y Cuestionarios , Reino Unido , Adulto Joven
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