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1.
Am J Med ; 2024 Sep 17.
Artículo en Inglés | MEDLINE | ID: mdl-39299638
2.
J Med Internet Res ; 26: e57823, 2024 Aug 07.
Artículo en Inglés | MEDLINE | ID: mdl-39110972

RESUMEN

BACKGROUND: Psoriasis is a chronic skin disorder with a high burden of disease. People affected with psoriasis increasingly use the internet for health-related reasons, especially those with younger age, higher education, and higher disease severity. Despite advantages such as enhancing the individuals' knowledge with the use of digital media for health-related issues, disadvantages were also present such as quality control, and variability in the individuals' health information literacy. While patients with psoriasis within medical settings generally trust physicians over digital media, they commonly withhold their web-based research findings from health care providers. OBJECTIVE: The study aims to (1) identify further factors associated with regular psoriasis-related internet use, (2) rank specific digital media platforms used, and (3) examine digital media within the physician-patient relationship among individuals with and without dermatological treatment. METHODS: A cross-sectional, questionnaire-based study was conducted among individuals with self-reported psoriasis in Germany between September 2021 and February 2022. Participants were recruited via digital media platforms and in person at a University Hospital Department of Dermatology in southern Germany. The questionnaire asked about demographic and medical information, individual psoriasis-related digital media use, and the impact of digital media on the physician-patient relationship. Data were analyzed descriptively, and logistic regression models were performed to assess the factors associated with regular psoriasis-related internet use. RESULTS: Among 321 individuals with a median age of 53 (IQR 41-61) years (nonnormally distributed; females: 195/321), female sex, shorter disease duration, moderate mental burden of disease, and good self-assessed psoriasis-related knowledge were associated with regular psoriasis-related internet use. Of the 188 participants with a mean age of 51.2 (SD 13.9) years (normally distributed) who used digital media 106 (56.4%) usually searched for information on psoriasis-based websites and 98 (52.1%) on search engines, primarily for obtaining information about the disease and therapy options, while social media were less frequently used (49/188, 26.1%). Nearly two-thirds of internet users (125/188) claimed that their physicians did not recommend digital media platforms. About 44% (82/188) of the individuals reported to seek for additional information due to the insufficient information provided by their physician. CONCLUSIONS: This study revealed the importance of digital media in the context of psoriasis, especially among women, individuals with shorter disease duration, and moderate mental disease severity. The lack of physicians' digital media recommendations despite their patients' desire to receive such and being more involved in health-related decisions seems to be a shortcoming within the physician-patient relationships. Physicians should guide their patients on digital media by recommending platforms with evidence-based information, thereby potentially creating an adequate framework for shared decision-making. Future research should focus on strategies to prevent the spread of false information on digital media and address the needs of patients and physicians to enhance health-related digital media offerings.


Asunto(s)
Relaciones Médico-Paciente , Psoriasis , Humanos , Psoriasis/psicología , Psoriasis/terapia , Estudios Transversales , Alemania , Femenino , Masculino , Persona de Mediana Edad , Adulto , Encuestas y Cuestionarios , Internet , Medios de Comunicación Sociales/estadística & datos numéricos , Anciano
3.
BMC Health Serv Res ; 24(1): 1003, 2024 Aug 29.
Artículo en Inglés | MEDLINE | ID: mdl-39210366

RESUMEN

BACKGROUND: Previous research suggests that medico-legal complaints often arise from various factors influencing patient dissatisfaction, including medical errors, physician-patient relationships, communication, trust, informed consent, perceived quality of care, and continuity of care. However, these findings are not typically derived from actual patients' cases. This study aims to identify factors impacting the interpersonal dynamics between physicians and patients using real patient cases to understand how patients perceive doctor-patient relational problems that can lead to dissatisfaction and subsequent medico-legal complaints. METHODS: We conducted a retrospective study using data from closed medical regulatory authority complaint cases from the Canadian Medical Protective Association (CMPA) between January 1, 2015, and December 31, 2020. The study population included patients who experienced sepsis and survived, with complaints written by the patients themselves. A multi-stage standardized thematic analysis using Braun and Clarke's approach was employed. Two researchers independently coded the files to ensure the reliability of the identified codes and themes. RESULTS: Thematic analysis of 50 patient cases revealed four broad themes: (1) Ethics in physician's work, (2) Quality of care, (3) Communication, and (4) Healthcare system/policy impacting patient satisfaction. Key sub-themes included confidentiality, honesty, patient involvement, perceived negligence, perceived lack of concern, active engagement and empathy, transparency and clarity, informed consent, respect and demeanor, lack of resources, long wait times, and insufficient time with physicians. CONCLUSIONS: This study identifies and categorizes various factors impacting relational issues between physicians and patients, aiming to increase patient satisfaction and reduce medico-legal cases. Improving physicians' skills in areas such as communication, ethical practices, and patient involvement, as well as addressing systemic problems like long wait times, can enhance the quality of care and reduce medico-legal complaints. Additional training in communication and other skills may help promote stronger relationships between physicians and patients.


Asunto(s)
Errores Médicos , Satisfacción del Paciente , Relaciones Médico-Paciente , Calidad de la Atención de Salud , Humanos , Errores Médicos/legislación & jurisprudencia , Errores Médicos/psicología , Estudios Retrospectivos , Satisfacción del Paciente/estadística & datos numéricos , Masculino , Femenino , Comunicación , Mala Praxis/legislación & jurisprudencia , Canadá , Confianza , Persona de Mediana Edad , Adulto
4.
JACC Adv ; 3(7): 100956, 2024 Jul.
Artículo en Inglés | MEDLINE | ID: mdl-39130002
5.
MedEdPORTAL ; 20: 11414, 2024.
Artículo en Inglés | MEDLINE | ID: mdl-39006204

RESUMEN

Introduction: Empathy is critical within medicine and improves patient outcomes and satisfaction. Empathy declines during the clerkship years due to the hidden curriculum, where students observe emotional distancing and desensitization by providers. Studies show arts curricula can preserve empathy but are limited by sample bias and preclerkship occurrence. We implemented and evaluated a brief pediatric clerkship arts curriculum to improve empathic behaviors. Methods: We created two 1-hour required small-group sessions for pediatric clerkship medical students. The first session paired arts observation techniques with various paintings. The students then applied these techniques to video-based simulated patient interactions in the second session. We used the Toronto Empathy Questionnaire (TEQ) and an empathy behavior checklist (EBC) as pre/post assessments to gauge self-reported empathy and empathetic behaviors. We compared responses of learners who attended the sessions (curriculum group) to learners unable to attend (control group). Results: Thirty-four students participated in the curriculum; 19 were in the control group. Neither the control nor the curriculum group had a significant change in pre/post TEQ scores. Students with pre-TEQ scores less than 45 who participated in the curriculum had significant improvement in post-TEQ scores compared to their control group counterparts (p = .02). On the EBC, there was a significant difference between the curriculum and control groups for those who explored more about the child/family's experience (p < .05). Discussion: Our work suggests that a brief clerkship arts curriculum is useful for improving self-reported empathy ratings and empathetic skills, particularly for students identified as having below-average empathy.


Asunto(s)
Prácticas Clínicas , Curriculum , Empatía , Pediatría , Estudiantes de Medicina , Humanos , Prácticas Clínicas/métodos , Pediatría/educación , Estudiantes de Medicina/psicología , Estudiantes de Medicina/estadística & datos numéricos , Encuestas y Cuestionarios , Masculino , Femenino , Educación de Pregrado en Medicina/métodos
6.
J Med Internet Res ; 26: e52992, 2024 Jul 02.
Artículo en Inglés | MEDLINE | ID: mdl-38954461

RESUMEN

BACKGROUND: In the era of the internet, individuals have increasingly accustomed themselves to gathering necessary information and expressing their opinions on public web-based platforms. The health care sector is no exception, as these comments, to a certain extent, influence people's health care decisions. During the onset of the COVID-19 pandemic, how the medical experience of Chinese patients and their evaluations of hospitals have changed remains to be studied. Therefore, we plan to collect patient medical visit data from the internet to reflect the current status of medical relationships under specific circumstances. OBJECTIVE: This study aims to explore the differences in patient comments across various stages (during, before, and after) of the COVID-19 pandemic, as well as among different types of hospitals (children's hospitals, maternity hospitals, and tumor hospitals). Additionally, by leveraging ChatGPT (OpenAI), the study categorizes the elements of negative hospital evaluations. An analysis is conducted on the acquired data, and potential solutions that could improve patient satisfaction are proposed. This study is intended to assist hospital managers in providing a better experience for patients who are seeking care amid an emergent public health crisis. METHODS: Selecting the top 50 comprehensive hospitals nationwide and the top specialized hospitals (children's hospitals, tumor hospitals, and maternity hospitals), we collected patient reviews from these hospitals on the Dianping website. Using ChatGPT, we classified the content of negative reviews. Additionally, we conducted statistical analysis using SPSS (IBM Corp) to examine the scoring and composition of negative evaluations. RESULTS: A total of 30,317 pieces of effective comment information were collected from January 1, 2018, to August 15, 2023, including 7696 pieces of negative comment information. Manual inspection results indicated that ChatGPT had an accuracy rate of 92.05%. The F1-score was 0.914. The analysis of this data revealed a significant correlation between the comments and ratings received by hospitals during the pandemic. Overall, there was a significant increase in average comment scores during the outbreak (P<.001). Furthermore, there were notable differences in the composition of negative comments among different types of hospitals (P<.001). Children's hospitals received sensitive feedback regarding waiting times and treatment effectiveness, while patients at maternity hospitals showed a greater concern for the attitude of health care providers. Patients at tumor hospitals expressed a desire for timely examinations and treatments, especially during the pandemic period. CONCLUSIONS: The COVID-19 pandemic had some association with patient comment scores. There were variations in the scores and content of comments among different types of specialized hospitals. Using ChatGPT to analyze patient comment content represents an innovative approach for statistically assessing factors contributing to patient dissatisfaction. The findings of this study could provide valuable insights for hospital administrators to foster more harmonious physician-patient relationships and enhance hospital performance during public health emergencies.


Asunto(s)
COVID-19 , Hospitales , Internet , Pandemias , COVID-19/epidemiología , Humanos , China/epidemiología , Satisfacción del Paciente/estadística & datos numéricos , SARS-CoV-2 , Investigación Empírica
7.
MedEdPORTAL ; 20: 11411, 2024.
Artículo en Inglés | MEDLINE | ID: mdl-38957534

RESUMEN

Introduction: Physicians can be unaware that many US adults have intermediate or lower health literacy. Avoiding medical jargon in patient communication can improve poor outcomes associated with lower health literacy, but physicians may struggle to do so as health literacy education is neither standardized nor universal at US allopathic medical schools. As with other skills-based proficiencies in medical education, repeat exposure and active learning help build competency. Medical students developed the Patient Communication Challenge (PCC), an adaptation of the Hasbro game Taboo, to facilitate practice of patient-centered communication skills among medical trainees. Methods: Hour-long workshops were held for groups of preclinical medical students. Students watched a communication exemplar video, played the PCC game, and completed a postworkshop survey. To play, two teams competed to earn points by identifying medical concepts as explained by a teammate who described the term without using medical jargon. Results: Evaluations indicated that the game was enjoyable and reinforced didactic concepts through active learning, with self-reported participant satisfaction and competency gain. Overall, 59% of participants (53 of 90) completed postworkshop surveys; 91% (48 of 53) agreed they felt more proficient in avoiding jargon, 94% (50 of 53) would recommend the workshop to a classmate, and 100% (53 of 53) would play again. Discussion: The PCC can help early medical trainees develop health communication skills through gamification with utilization of adult learning principles and adequate frequency for skill retention. Future applications include longitudinal assessment and expanding to later stages of medical training and other health professions.


Asunto(s)
Comunicación , Estudiantes de Medicina , Humanos , Estudiantes de Medicina/psicología , Estudiantes de Medicina/estadística & datos numéricos , Encuestas y Cuestionarios , Juegos de Video , Educación de Pregrado en Medicina/métodos , Relaciones Médico-Paciente , Aprendizaje Basado en Problemas/métodos
8.
Arch Argent Pediatr ; : e202310297, 2024 08 01.
Artículo en Español | MEDLINE | ID: mdl-39058424

RESUMEN

From its origins, the doctor-patient relationship accompanied the social and cultural changes that have been modeling different forms of interhuman relationships. However, paternalism remained almost unchanged. Only in the 1970s, hand in hand with postmodern thought and the centrality of ethical, psychological, social and anthropological disciplines, respect for the autonomy of patients began to develop, which constituted the essence of a radical change. "Four models of doctor-patient relationship" are described depending on the objectives of the interaction between the actors, the doctor's obligations and the patient's values. Some particularities are detailed in the decision-making of children and adolescents, the doctrine of the mature minor, and progressive autonomy where the need for informed consent that reflects the autonomy of this age group is evident. It is worth highlighting the importance of communication in the development of a relationship in which the different models can collaborate with a genuine practice of autonomy for patients and their families.


Desde sus orígenes, la relación médico-paciente acompañó los cambios sociales y culturales que han ido modelando diferentes formas vinculares interhumanas. Sin embargo, el paternalismo se mantuvo casi inalterable. Recién en la década del 70, con el pensamiento posmoderno y las disciplinas éticas, psicológicas, sociales y antropológicas, comenzó a desarrollarse el respeto hacia la autonomía de los pacientes. Se describen "cuatro modelos de relación médico-paciente" en función de los objetivos de la interacción entre los actores, las obligaciones del médico y los valores del paciente. Se detallan algunas particularidades en la toma de decisiones de niñas, niños y adolescentes, la doctrina del menor maduro y la autonomía progresiva, que evidencia la necesidad de un consentimiento informado que refleje el reconocimiento de este grupo etario. Es fundamental la comunicación en el desarrollo de una relación en la que los diferentes modelos puedan colaborar con una genuina práctica de la autonomía de los pacientes y sus familias.

9.
MedEdPORTAL ; 20: 11417, 2024.
Artículo en Inglés | MEDLINE | ID: mdl-39035103

RESUMEN

Introduction: Verbal de-escalation is an essential skill for physicians across specialties and is the first-line intervention for patients who present with agitation. Training in verbal de-escalation for medical students is less robust compared to other health care disciplines. We describe the creation and evaluation of a novel verbal de-escalation curriculum for third- and fourth-year medical students on their psychiatry clerkship rotation. Method: We developed a simulation using standardized patient (SP) methodology and a dedicated reflection session, implementing it in the third-year psychiatry clerkship. Participants in the scenario received targeted feedback from their peers and SPs. The sessions were video recorded, and a random sample was selected and reviewed to identify key observations and themes from student performance. Results: A total of 139 students participated in the encounter. One hundred twenty-two of 125 students (82%) stated the activity met the learning objectives, with 108 (86%) assigning the letter grade A to the activity. Written feedback indicated that the majority of students believed the activity to be realistic, instructive, and helpful but felt the SPs de-escalated too quickly. Video review of the encounters found that while the students effectively used the skills, many jumped to a quick fix, and some offered inappropriate choices to end the encounter. Discussion: This SP activity was effective in allowing students to practice skills in a safe setting and was valued by students. In the future, adding another workshop in the fourth year could facilitate higher retention and practice of skills.


Asunto(s)
Curriculum , Educación de Pregrado en Medicina , Simulación de Paciente , Estudiantes de Medicina , Humanos , Estudiantes de Medicina/estadística & datos numéricos , Educación de Pregrado en Medicina/métodos , Competencia Clínica/normas , Prácticas Clínicas/métodos , Evaluación Educacional/métodos , Psiquiatría/educación , Educación/métodos
10.
Ann Fam Med ; 22(4): 301-308, 2024 Jul 22.
Artículo en Inglés | MEDLINE | ID: mdl-38914438

RESUMEN

PURPOSE: Relationship continuity of care has declined across English primary health care, with cross-sectional and longitudinal variations between general practices predicted by population and service factors. We aimed to describe cross-sectional and longitudinal variations across the COVID-19 pandemic and determine whether practice factors predicted the variations. METHODS: We conducted a longitudinal, ecological study of English general practices during 2018-2022 with continuity data, excluding practices with fewer than 750 patients or National Health Service (NHS) payments exceeding £500 per patient. Variables were derived from published data. The continuity measure was the product of weighted responses to 2 General Practice Patient Survey questions. In a multilevel mixed-effects model, the fixed effects were 11 variables' interactions with time: baseline continuity, NHS region, deprivation, location, percentage White ethnicity, list size, general practitioner and nurse numbers, contract type, NHS payments per patient, and percentage of patients seen on the same day as booking. The random effects were practices. RESULTS: Main analyses were based on 6,010 practices (out of 7,190 active practices). During 2018-2022, mean continuity in these practices declined (from 29.3% to 19.0%) and the coefficient of variation across practices increased (from 48.1% to 63.6%). Both slopes were steepest between 2021 and 2022. Practices having more general practitioners and higher percentages of patients seen the same day had slower declines. Practices having higher baseline continuity, located in certain non-London regions, and having higher percentages of White patients had faster declines. The remaining variables were not predictors. CONCLUSIONS: Variables potentially associated with greater appointment availability predicted slower declines in continuity, with worsening declines and relative variability immediately after the COVID-19 lockdown, possibly reflecting surges in demand. To achieve better levels of continuity for those seeking it, practices can increase appointment availability within appointment systems that prioritize continuity.Annals Early Access article.


Asunto(s)
COVID-19 , Continuidad de la Atención al Paciente , Medicina General , SARS-CoV-2 , Medicina Estatal , Humanos , COVID-19/epidemiología , Continuidad de la Atención al Paciente/estadística & datos numéricos , Estudios Longitudinales , Medicina General/estadística & datos numéricos , Estudios Transversales , Inglaterra/epidemiología , Pandemias , Masculino , Femenino , Médicos Generales/estadística & datos numéricos , Persona de Mediana Edad
11.
Front Digit Health ; 6: 1358305, 2024.
Artículo en Inglés | MEDLINE | ID: mdl-38873358

RESUMEN

Digital pathology (DP) has become a part of the cancer healthcare system, creating additional value for cancer patients. DP implementation in clinical practice provides plenty of benefits but also harbors hidden ethical challenges affecting physician-patient relationships. This paper addresses the ethical obligation to transform the physician-patient relationship for informed and responsible decision-making when using artificial intelligence (AI)-based tools for cancer diagnostics. DP application allows to improve the performance of the Human-AI Team shifting focus from AI challenges towards the Augmented Human Intelligence (AHI) benefits. AHI enhances analytical sensitivity and empowers pathologists to deliver accurate diagnoses and assess predictive biomarkers for further personalized treatment of cancer patients. At the same time, patients' right to know about using AI tools, their accuracy, strengths and limitations, measures for privacy protection, acceptance of privacy concerns and legal protection defines the duty of physicians to provide the relevant information about AHI-based solutions to patients and the community for building transparency, understanding and trust, respecting patients' autonomy and empowering informed decision-making in oncology.

12.
Ann Fam Med ; 22(3): 223-229, 2024.
Artículo en Inglés | MEDLINE | ID: mdl-38806258

RESUMEN

PURPOSE: Continuity of care is broadly associated with better patient health outcomes. The relative contributions of continuity with an individual physician and with a practice, however, have not generally been distinguished. This retrospective observational study examined the impact of continuity of care for patients seen at their main clinic but by different family physicians. METHODS: We analyzed linked health administrative data from 2015-2018 from Alberta, Canada to explore the association of physician and clinic continuity with rates of emergency department (ED) visits and hospitalizations across varying levels of patient complexity. Physician continuity was calculated using the known provider of care index and clinic continuity with an analogous measure. We developed zero-inflated negative binomial models to assess the association of each with all-cause ED visits and hospitalizations. RESULTS: High physician continuity was associated with lower ED use across all levels of patient complexity and with fewer hospitalizations for highly complex patients. Broadly, no (0%) clinic continuity was associated with increased use and complete (100%) clinic continuity with decreased use, with the largest effect seen for the most complex patients. Levels of clinic continuity between 1% and 50% were generally associated with slightly higher use, and levels of 51% to 99% with slightly lower use. CONCLUSIONS: The best health care outcomes (measured by ED visits and hospitalizations) are associated with consistently seeing one's own primary family physician or seeing a clinic partner when that physician is unavailable. The effect of partial clinic continuity appears complex and requires additional research. These results provide some reassurance for part-time and shared practices, and guidance for primary care workforce policy makers.


Asunto(s)
Continuidad de la Atención al Paciente , Servicio de Urgencia en Hospital , Hospitalización , Atención Primaria de Salud , Humanos , Alberta , Estudios Retrospectivos , Continuidad de la Atención al Paciente/estadística & datos numéricos , Femenino , Masculino , Atención Primaria de Salud/estadística & datos numéricos , Persona de Mediana Edad , Servicio de Urgencia en Hospital/estadística & datos numéricos , Adulto , Hospitalización/estadística & datos numéricos , Anciano , Médicos de Familia/estadística & datos numéricos , Adulto Joven , Adolescente , Instituciones de Atención Ambulatoria/estadística & datos numéricos
13.
Hastings Cent Rep ; 54(2): 12-21, 2024 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-38639170

RESUMEN

Although the field of surgical ethics focuses primarily on informed consent, surgical decision-making, and research ethics, some surgeons have started to consider ethical questions regarding justice and solidarity with poor and minoritized populations. To date, those calling for social justice in surgical care have emphasized increased diversity within the ranks of the surgical profession. This article, in contrast, foregrounds the agency of those most affected by injustice by bringing to bear an ethic of accompaniment. The ethic of accompaniment is born from a theological tradition that has motivated work to improve health outcomes in those at the margins through its emphasis on listening, solidarity against systemic drivers of disease, and proximity to individuals and communities. Through a review of surgical ethics and exploration of a central patient case, we argue for applying an ethic of accompaniment to the care of surgical patients and their communities.


Asunto(s)
Consentimiento Informado , Justicia Social , Humanos
14.
Psychother Psychosom ; 93(3): 151-154, 2024.
Artículo en Inglés | MEDLINE | ID: mdl-38663360
15.
Ann Fam Med ; 22(2): 167-169, 2024.
Artículo en Inglés | MEDLINE | ID: mdl-38527830

RESUMEN

For many years I cared for Joe, following him through diagnoses of strokes, end-stage renal disease, and metastatic prostate cancer. Gaining his trust, coordinating his care across specialist visits and hospitalizations, and helping him and his family clarify goals of care took an investment of time and relationship-building. I was able to spend this time with Joe, and all of my medically complex patients, because I had taken a job in a Program of All-Inclusive Care for the Elderly (PACE), a fully capitated model of care. With care organized around the patient instead of the visit, this payment model transformed my work life. As I reflect on the care that I provided for Joe over the years, I consider how health care organization and finance can either help or hinder our ability to provide patient-centered, coordinated, continuous care for our patients. Evolving payment models can help make space for family physicians to provide the robust primary care we are trained to deliver.


Asunto(s)
Hospitalización , Médicos de Familia , Masculino , Humanos , Anciano
16.
Front Med (Lausanne) ; 11: 1279704, 2024.
Artículo en Inglés | MEDLINE | ID: mdl-38323031

RESUMEN

Introduction: Suboptimal doctor-patient communication drives inappropriate prescribing of antibiotics. We evaluated a communication intervention for general practitioners (GPs) in multicultural Dutch cities to improve antibiotic prescribing for respiratory tract infections (RTI). Methods: This was a non-randomized controlled before-after study. The study period was pre-intervention November 2019 ­ April 2020 and post-intervention November 2021 ­ April 2022. The intervention consisted of a live training (organized between September and November 2021), an E-learning, and patient material on antibiotics and antibiotic resistance in multiple languages. The primary outcome was the absolute number of prescribed antibiotic courses indicated for RTIs per GP; the secondary outcome was all prescribed antibiotics per GP. We compared the post-intervention differences in the mean number of prescribed antibiotics between the intervention (N = 25) and the control group (N = 110) by using an analysis of covariance (ANCOVA) test, while adjusting for the pre-intervention number of prescribed antibiotics. Additionally, intervention GPs rated the training and their knowledge and skills before the intervention and 3 months thereafter. Results: There was no statistically significant difference in the mean number of prescribed antibiotics for RTI between the intervention and the control group, nor for mean number of overall prescribed antibiotics. The intervention GPs rated the usefulness of the training for daily practice a 7.3 (on a scale from 1­10) and there was a statistically significant difference between pre- and post-intervention on four out of nine items related to knowledge and skills. Discussion: There was no change in GPs prescription behavior between the intervention and control group. However, GPs found the intervention useful and showed some improvement on self-rated knowledge and communication skills.

17.
BMC Med Ethics ; 25(1): 16, 2024 02 09.
Artículo en Inglés | MEDLINE | ID: mdl-38336668

RESUMEN

BACKGROUND: The COVID-19 pandemic has influenced the approach to the health-disease system, raising the question about the principles of bioethics present in physician-patient relations. The principles while widely accepted may not be sufficient for a comprehensive ethical analysis. Therefore, the aim of this study was to explore the perception of these principles and the physician-patient relationship during a hospital stay through a qualitative approach. METHOD: Sixteen semi-structured interviews took place to know the patients' perception during their 2020 hospitalization for COVID-19. The data was analyzed through the constant comparison method, creating categories and comparing them. In the end, seven categories were established and were grouped in three: bioethical principles (dignity, charity, vulnerability, autonomy), doctor-patient relationship (participant commitment, informed consent, health staff-patient relationship) and the experience of the disease (illness, the role of the family). RESULTS: The research found that most patients described a positive experience, with the feeling of having been well cared for with no sense of discrimination or injustice done. The majority also reported that their autonomy was respected in the treatment decisions. The evaluation of these attitudes is an area of opportunity, especially when the patients' vulnerability is at risk. CONCLUSIONS: The ethics of virtue offers a better reflection of how human beings manifest themselves by emphasizing the development of virtuous character and behaviors that allow them to realize their values in life. Authorized by the Research Ethics Committee with registration: DI/18/105-B/3/308.


Asunto(s)
Bioética , COVID-19 , Médicos , Humanos , Relaciones Médico-Paciente , Pandemias
18.
Patient Educ Couns ; 123: 108185, 2024 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-38340633

RESUMEN

OBJECTIVE: We investigated communication strategies clinicians reported using to navigate differences of opinion with patients regarding medical decisions. METHODS: Twenty physicians of various specialties participated in semi-structured interviews regarding their strategies for maintaining mutual respect when disagreeing with a patient. Reflexive thematic analysis was applied. Enrollment concluded upon theme saturation. RESULTS: In an attempt to limit disagreements, physicians learned to gauge patient values, often deferring to clinicians being the expert on medicine and patients being the expert on themselves. Physicians noticed that disagreements were reinforced by prioritizing educational approaches. Strengthening the relationship by validating patient emotions was seen as a more effective strategy. Clinicians found it difficult to weigh relative potential for benefit to the relationship and feelings of moral distress in capitulating to patient preferences they disagreed with. CONCLUSION: Physicians recognized the value of moving from educational to relationship building strategies to help limit and navigate disagreements. Key strategies include prioritizing gauging the patient's values and validating their emotions. PRACTICE IMPLICATIONS: Anticipating disagreement, training clinicians to limit teaching, and instead prioritize a strong relationship to maintain trust and collaboration has the potential to improve patient health, with more limited resource use, and better experiences of care.


Asunto(s)
Relaciones Médico-Paciente , Médicos , Humanos , Actitud , Médicos/psicología , Emociones , Comunicación
19.
Rev. med. cine ; 20(1): 103-118, Ene. 2024. ilus
Artículo en Español | IBECS | ID: ibc-231189

RESUMEN

Los embarazos en adolescentes se describen como embarazos en mujeres que no han alcanzado la mayoría de edad jurídica y están en situación de dependencia de la familia de origen. El embarazo suele implicar un riesgo en la trayectoria vital de las madres y padres adolescentes y un serio y prevalente problema médico-social. Por todo ello, el embarazo de la adolescente se convierte en una consulta «sagrada». Y el cine se convierte en una oportunidad para hablar con arte, ciencia y conciencia de un tema de trascendental importancia, así como una oportunidad para mejorar la relación profesional-paciente, para mejorar la humanización y para abrir el debate bioético. En este artículo os invitamos a vivir las emociones y reflexiones de la maternidad y el embarazo en alrededor de 40 películas, historias entre la ficción y la realidad. Y donde nos atrevemos a «prescribir» las siguientes: la película británica Un sabor a miel, la belga 9 meses, la estadounidense Nunca, casi nunca, a veces, siempre, la francesa El acontecimiento y la española La maternal; y como guinda, Juno, una película que más en tono de comedia que drama, capaz de incomodar a todas las partes.(AU)


Adolescent pregnancies encompass instances where women have not yet attained the legal age of majority and remain reliant on their family of origin. The phase of pregnancy during adolescence inherently introduces risks into the trajectories of both young mothers and fathers, forming a significant and widespread medical-social challenge. Consequently, an adolescent's pregnancy becomes a pivotal juncture for medical consultation, while cinema emerges as an influential platform to engage with this crucial theme from artistic, scientific, and awareness-driven perspectives. It not only fosters an opportunity to enrich the professional-patient relationship and advance humanization but also initiates profound discussions on bioethics. Within the confines of this article, we cordially invite you to delve into the emotional and contemplative dimensions of motherhood and pregnancy portrayed across nearly 40 films, each straddling the realms of fiction and reality. Moreover, we dare to "prescribe" the subsequent cinematic pieces: the British production A Taste of Honey, the Belgian creation Keeper, the American narrative Never Rarely Sometimes Always, the French cinematic gem L'événement, and the Spanish masterpiece La maternal. Adding to this repertoire is Juno, a film that skews more toward comedy than drama, deliberately invoking discomfort within diverse contexts.(AU)


Asunto(s)
Humanos , Femenino , Embarazo , Adolescente , Relaciones Médico-Paciente , Películas Cinematográficas , Parto , Responsabilidad Parental , Medicina
20.
Am J Hosp Palliat Care ; : 10499091241226629, 2024 Jan 19.
Artículo en Inglés | MEDLINE | ID: mdl-38243633

RESUMEN

Background: Compassion is a relational response to patients' suffering. Palliative care focuses not only on skills but also on compassion. Nevertheless, incorporated patient perspectives are largely missing from existing research. Aim: Our mixed-method exploratory study in a major Swiss cancer center sought to better understand compassionate presence, its benefits and challenges for patients and providers (ie, close relatives, close friends, and professionals-all referred to here as providers). It also investigated providers' motivation. Method: Twelve multidisciplinary, specially trained professionals interviewed 50 patients who had received compassionate presence. All patients had advanced cancer with risk of death. Providers were also interviewed. Data on the positive and burdensome effects of compassionate presence on patients and providers were gathered using a specific protocol. This also served to record patients' characteristics and providers' motivations to give compassion and whether providers felt sustained (eg, by nature). Results: The study suggests a high impact of compassionate presence with benefits on patients (50/50) and on providers (49/50). Enhanced connectedness was evident not only in the patient-provider relationship (38/50) but also, for instance, in an increased ability to love (8/50) or in an intensified solidarity (29/50). A considerable number of patients and providers experienced mental-spiritual change but also burdensome effects (eg, ambivalences). Providers showed a range of motivations. Conclusion: Compassion is not only necessary in existential crises and near death, but also happens and takes considerable effects precisely in such situations.

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