RESUMEN
The visual is an underutilized modality through which to investigate experiences of memory loss in older people. We describe a visual ethnography with older adults experiencing subjective or objective memory loss, receiving a cognitive well-being group intervention designed to prevent cognitive decline and dementia (APPLE-Tree program). We aimed to explore lived experiences of people with memory concerns, how participants engaged with this photography and codesign project, and how collaboration with an artist/photographer enhanced this process. Nineteen participants shared photographs reflecting what they valued in their daily lives, their experiences of memory concerns, and the intervention. Fourteen participated in qualitative photo-elicitation interviews, and 13 collaborated with a professional artist/photographer to cocreate an exhibition, in individual meetings and workshops, during which a researcher took ethnographic field notes. Eight participants were reinterviewed after the exhibition launch.We contextualize images produced by participants in relation to discourses around the visual and aging and highlight their relationship with themes developed through thematic analysis that interconnects photographic, observational, and interview data. We present themes around the use of photographs to: (1) celebrate connections to nature as a lifeline; (2) anchor lives within the context of relationships with family; and (3) reflect on self and identity, enduring through aging, memory concerns, pandemic, and aging stereotypes. We explore visual research as a powerful tool for eliciting meaningful accounts from older adults experiencing cognitive change and to connect the arts and social sciences within aging studies.
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Envejecimiento , Disfunción Cognitiva , Humanos , Anciano , Envejecimiento/psicología , Trastornos de la Memoria , FotograbarRESUMEN
This article presents a photovoice decision tree that serves as a guide for making lawful and ethical decisions during the portions of the photovoice process that involve photograph selection, caption development, and public display of photographs and captions. Lawful and ethical considerations encompass privacy of person, privacy of place, illegal acts and obscenity, defamation, representation of truth versus actual malice, and opinion versus assertion of fact, but do not address pursuing and obtaining institutional review board approval for photovoice projects and/or other important steps of photovoice projects that are beyond the scope of this article. The decision tree presumes that a comprehensive photo release process was completed with all photovoice participants and collected from any individual captured within a photograph. The decision tree has important implications for research and practice, including movement of photovoice practitioners beyond the required institutional review board approval for research projects to consider lawful and ethical issues associated with photograph selection, caption development, and public display of photographs and captions. This decision tree can serve as a meaningful tool for all photovoice practitioners and participants to guide their lawful and ethical decisions.
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Investigación Participativa Basada en la Comunidad , Fotograbar , Árboles de Decisión , HumanosRESUMEN
This article uses participatory photography to explore the relationships animating efforts towards recovery from opioid use disorder (OUD) in the Dayton, Ohio area, an epicenter of illicit opioid use and overdose death. A photo-elicitation project was conducted with thirteen people who met the DSM-5 criteria for OUD. Photographs were used as prompts during qualitative interviews, which were thematically analyzed. Analysis of both visual and textual data demonstrated the ways in which recovery became an unfolding process of calculation as participants made strategic choices to navigate relations and encounters with things, people, and places. Relationships across each of these domains could, under some circumstances, serve as supports or motivators in the recovery process, but, in alternate settings, be experienced as "triggers" prompting a resumption of problematic drug use or, at the very least, a reckoning with the feelings and emotions associated with painful or problematic aspects of personal histories and drug use experiences. Findings highlight the importance of understanding recovery as a calibration of the ambiguous relations animating experiences of everyday life. We argue for continued emphasis on recovery as an active performance and ongoing practice of calculation-of risks and benefits, of supports and triggers, of gratification and heartbreak-rather than a goal or static state.
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Cálculos , Sobredosis de Droga , Trastornos Relacionados con Opioides , Humanos , Analgésicos Opioides/uso terapéutico , Sobredosis de Droga/tratamiento farmacológico , Cálculos/tratamiento farmacológicoRESUMEN
WHAT IS KNOWN ON THE SUBJECT?: Participatory photography has been reported to have therapeutic benefits for participants, such as a sense of empowerment and increased self-knowledge. No known review has examined the potential of participatory photography as a therapeutic intervention in people with mental health problems. WHAT THE PAPER ADDS TO EXISTING KNOWLEDGE?: Participatory photography can have many therapeutic benefits for people with mental health problems. It can be used to work through problematic issues, can promote a sense of empowerment and strengthen therapeutic relationships. The most significant potential drawback of the process is the ethical issues that may arise with taking photographs of identifiable people. WHAT ARE THE IMPLICATIONS FOR PRACTICE?: Participatory photography can be a helpful therapeutic intervention for some adults with mental health problems, though not all. Further research is required for the effectiveness of this intervention before it can be considered as evidence-based. ABSTRACT: Introduction Participatory photography (PP) has been reported to have therapeutic benefits for its participants, such as empowerment and critical reflection. No known review has examined this potential exclusively in people with mental health problems. Aim To identify what therapeutic benefits and limitation adults with mental health problems have experienced through PP. Method Six academic databases were systematically searched. Eleven articles met inclusion/exclusion criteria and were of medium to high quality. Themes were extracted using thematic analysis. Results Seven themes were identified: empowerment, mental processing, enhanced therapeutic relationships, peer support, creative expression, sense of achievement and enjoyment, and limitations. Discussion The limited evidence base prevents firm conclusions. PP projects higher in personal relevance and intensity were linked with the greater therapeutic benefits. Most identified themes are supported by the wider literature on PP. The limitations indicate that PP is not suitable for all and requires adaptation for individuals and the potential seriousness of ethical issues. Implications for practice Participatory photography can be a helpful therapeutic intervention for some adults with mental health problems, though not all. Further research is required to develop the limited evidence base, particularly quantitative research that would enable comparisons to be made with other interventions.
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Trastornos Mentales/rehabilitación , Enfermos Mentales , Fotograbar , Rehabilitación Psiquiátrica , HumanosRESUMEN
OBJECTIVES: This paper visually explores older aged care resident's day-to-day lived experience, as well as providing a brief introduction to the participatory documentary photography method of photovoice. METHODS: Ten residents from one Australian residential aged care facility collaborated with researchers and care staff to photograph, reflect on and share their lives. Photographs were shortlisted in individual and group discussions. RESULTS: Residents' photographs and narratives provide a visual understanding of what they value. Photographs captured three core themes: the restorative joy of nature (frangipanis); active engagement through leisure activities (football); and the value of social interactions and connections, especially with fellow residents and staff (friendship). CONCLUSIONS: As old age and aged care remain virtually invisible within popular visual culture, this research highlights the communicative value of participatory photography for challenging stereotypes, as well as the opportunities, challenges and value of visual methods with this cohort.
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Actividades Cotidianas , Envejecimiento , Hogares para Ancianos , Narración , Fotograbar , Calidad de Vida , Factores de Edad , Anciano , Ejercicio Físico , Femenino , Amigos , Felicidad , Humanos , Masculino , Fútbol , Conducta SocialRESUMEN
Purpose: This review summarized studies that used participatory photography with children with disabilities, including those with communication impairments, and described modifications made to the methodology to facilitate their participation in qualitative research. Methods: In the fall of 2016, we searched Psycinfo (OVID), ERIC, CINAHL and Web of Science to identify studies that used participatory photography with children with disabilities. The search was repeated in January 2018 to retrieve any new publications. The first author extracted data that described the characteristics of each study and the modifications used. Results: Of the 258 articles identified, 19 met inclusion criteria. Participants ranged from 4-21 years old and had a variety of disabilities. Study topics included education, leisure activities and adulthood. Researchers modified participatory photography to enhance accessibility by: modifying cameras; providing individual training; teaching consent through role play; allowing children to direct adults to take photographs; including additional forms of media; using diaries and questionnaires; providing individual interviews with simplified questions; using multiple forms of communication; and modifying how photographs are shared. Conclusions: Participatory photography can be an effective method for studying the lived experiences of children with disabilities, particularly those with communication impairments. Methodological modifications can enhance the accessibility of this approach for this population. Implications for Rehabilitation Participatory photography may be an effective qualitative research method for learning about the perspectives and experiences of children with disabilities on a wide array of topics. There are many specific modifications that researchers can use to support the inclusion of children with disabilities in participatory photography research. The findings of studies that use participatory photography methodology may provide rehabilitation professionals with important insights into the lives of children with disabilities.
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Trastornos de la Comunicación/rehabilitación , Niños con Discapacidad , Fotograbar , Terapia Recreativa , Niño , Conducta Infantil , Niños con Discapacidad/psicología , Niños con Discapacidad/rehabilitación , Humanos , Terapia Recreativa/métodos , Terapia Recreativa/psicologíaRESUMEN
Community-based participatory researchers increasingly incorporate photography and social media into their work. Despite its relative infancy, social media has created a powerful network that allows individuals to convey messages quickly to a widespread audience. In addition to its potential benefits, the use of social media in research also carries risk, given the fast pace of exchanges, sharing of personal images and ideas in high accessibility, low privacy contexts and continually shifting options and upgrades. This article contributes to the literature examining ethical considerations for photography and social media use in community-based participatory research. We describe three key ethical dilemmas that we encountered during our participatory photography project with Latina/o youth: (a) use and content of images and risk; (b) incentives and coercion; and (c) social media activity and confidentiality. We provide our responses to these challenges, contextualized in theory and practice, and share lessons learned. We raise the question of how to contend with cultural shifts in boundaries and privacy. We propose that evaluating participant vulnerability versus potential empowerment may be more fitting than the standard approach of assessing risks and benefits. Finally, we recommend upholding the principles of participatory research by co-producing ethical practices with one's participants.