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1.
Otolaryngol Pol ; 78(4): 39-48, 2024 Jul 25.
Artículo en Inglés | MEDLINE | ID: mdl-39051645

RESUMEN

<b>Introduction:</b> The Glasgow Benefit Inventory (GBI) is one of questionnaires for the measurement of treatment success, which is widely used in patients after vestibular schwannoma treatment.<b>Aim:</b> This study aimed to adapt the GBI originally written in English to Polish conditions and to evaluate its psychometric properties.<b>Material and methods:</b> The Polish version of the GBI used in this study was prepared by a bilingual translator, and its accuracy was ensured by back-translation. To identify the structure of the Polish version of the GBI, exploratory factor analysis was performed. The reliability was determined using Cronbach's α. To verify the validity, correlation analysis was conducted between the domains of GBI and other questionnaires.<b>Results:</b> The results of confirmatory factor analysis indicated that the original 3-factor model is not a good fit for the data. The exploratory factor analysis was performed and identified 4 factors. The total variance of the 4-factor solution was 66.25%. The Cronbach's α calculated for the total GBI reached 0.91. Our analysis confirmed significant weak or moderate correlations between tools for the measurement of general QoL (AQoL-8D: r = 0.411; p = 0.000) and health-related QoL (PANQOL: r = 0.367; p = 0.000; a tool dedicated for patients with VS), well-being (WHO-5: r = 0.432; p = 0.000), hearing and tinnitus (STS: r = -0.217; p = 0.016).<b>Conclusions:</b> This study reports the first adaptation of the GBI for patients with VS to Polish conditions. The results demonstrated that the Polish version of the GBI is a reliable and valid questionnaire that can be used to measure treatment success.


Asunto(s)
Psicometría , Humanos , Polonia , Masculino , Femenino , Encuestas y Cuestionarios , Reproducibilidad de los Resultados , Adulto , Persona de Mediana Edad , Radiocirugia , Calidad de Vida , Neuroma Acústico/cirugía , Comparación Transcultural , Traducciones
2.
Cureus ; 15(9): e45523, 2023 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-37868415

RESUMEN

BACKGROUND: Septoplasty is considered the definitive treatment for symptomatic patients with deviated nasal septum. Although septoplasty is a commonly successful performed surgery, it has also been found to affect patients' quality of life (QoL). The Glasgow Benefit Inventory (GBI) scale is a validated questionnaire used to assess satisfaction after treatment. OBJECTIVE: The present study was conducted with the aim to assess the outcome of septoplasty using the GBI scale. METHODS: A retrospective study was conducted among patients with chronic nasal obstruction in Dr. Sulaiman Alhabib Hospital, Riyadh, Saudi Arabia, to assess the outcome of septoplasty using the GBI. All patients who met the eligibility criteria were subjected to a detailed otorhinolaryngology, head and neck examination, including nasal endoscopy prior to septoplasty, followed by the distribution of a previously validated questionnaire translated into Arabic. Statistical analysis was performed using R version 3.6.3 software. Counts and percentages were used to summarize the distribution of categorical variables. RESULTS:  A total of 75 patients were enrolled in the study initially, among which 42 patients met the eligibility criteria; 65% were male and 35% were female. Most respondents reported improvement in the total GBI score (92.5%, n = 40). A similar improvement was observed in the general subscale domain (92.5%, n = 40) as compared to the social support domain (66.7%, n = 28) and physical health domain (66.7%, n = 28), which showed less improvement. CONCLUSION: We found a positive change in the QoL among the patients after septoplasty using a validated and reliable instrument.

3.
BMC Geriatr ; 23(1): 376, 2023 06 19.
Artículo en Inglés | MEDLINE | ID: mdl-37337203

RESUMEN

BACKGROUND: Sensorineural hearing loss (SNHL) is the most common auditory deficit in older adults and may lead to quality-of-life deterioration. However, few studies have been performed in low/middle-income countries, particularly in Latin America. This study aimed to assess the audiological benefit, quality of life, and factors associated with functional gain in elderly hearing aid users in the Fundación Santa Fe de Bogotá and UNIMEQ-ORL, two otology referral centers in Colombia. DESIGN: Pre-post study that included hearing aid users at the otology consult of the Fundación Santa Fe de Bogotá and UNIMEQ-ORL between June 2017 and December 2020. Glasgow Benefit Inventory (GBI) and Abbreviated Profile of Hearing Aid Benefit (APHAB) questionnaires were applied. Audiometric (0,5 kHz to 4 kHz) and speech audiometry results were collected. RESULTS: A total of 75 participants (132 ears) were included. The mean age was 70.73 years (SD: 12.66). The median hearing aid use in years was 0.71 (IQR: 0.64-0.90). Mean change in speech audiometry was - 26.53dB (95%CI: -28.09, -24.97; p < 0.001), in functional gain was - 21.75dB (-23.81, -19.68; p < 0.001). The mean changes in the APHAB domains were Ease of Communication: -37.85 (95%CI: -43.01; -32.7), Background Noise: -3.51 (-6.06; -0.95), and Aversiveness of Sounds: -6.9 (-2.04; 11.77). The GBI assessment of quality of life showed improvement in 100% of the population after the use of hearing aids. The number of years of hearing aids use was associated with functional gain. CONCLUSION: The number of years of hearing aids use may impact on the functional gain in these populations. A significant clinical benefit was found in terms of quality of life, communication, and reverberation related to the use of hearing aids. Access to hearing aids should be granted, and public health strategies are needed to grant the access to hearing rehabilitation in these populations. TRIAL REGISTRATION: Fundación Santa Fe de Bogotá (Protocol Number: CCEI-12666-2020).


Asunto(s)
Audífonos , Pérdida Auditiva Sensorineural , Percepción del Habla , Humanos , Anciano , Calidad de Vida , Países en Desarrollo , Resultado del Tratamiento , Encuestas y Cuestionarios
4.
Am J Otolaryngol ; 44(2): 103758, 2023.
Artículo en Inglés | MEDLINE | ID: mdl-36610247

RESUMEN

PURPOSE: To determine whether patients have improved quality of life outcomes with percutaneous bone conduction implant (p-BCI) versus transcutaneous bone conduction implant (t-BCI). MATERIALS & METHODS: Retrospective chart review of patients who have undergone placement of a BCI in the Ascension St John Providence Health System from 2013 to 2018. Patient satisfaction of t-BCI and p-BCI was measured using a questionnaire that incorporated the Glasgow Benefit Inventory (GBI) and BAHA, aesthetic, hygiene & use (BAHU) survey. Key outcome variables were separated into 2 categories: (1) evaluation of wound healing and implant-associated complications, and (2) quality of life improvements. RESULTS: Comparative analysis of the 27 p-BCI patients and 10 t-BCI patients showed overall positive benefit with no statistically significant difference on quality of life improvement between the two groups. Total complication rates for p-BCI (48.1 %) vs t-BCI (10 %) was marginally significant (p = 0.056). Rate of revision for p-BCI versus t-BCI was 14.8 % vs 0 %, respectively. CONCLUSION: This study provides a much-needed comparative insight in patient's experience with these two devices. Understanding which device is preferable in the patient's view will offer helpful information for guiding proper implant selection.


Asunto(s)
Audífonos , Humanos , Estudios Retrospectivos , Calidad de Vida , Conducción Ósea , Anclas para Sutura , Pérdida Auditiva Conductiva , Resultado del Tratamiento
5.
Br J Neurosurg ; 36(6): 720-727, 2022 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-35938178

RESUMEN

PURPOSE: This study assesses postoperative quality-of-life outcomes via the Glasgow Benefit Inventory (GBI) in patients undergoing transnasal endoscopic pituitary surgery for pituitary adenoma. METHODS: This was a retrospective cohort study in a UK tertiary referral centre. 145 patients who had undergone transnasal endoscopic pituitary surgery for pituitary adenoma over a 6-year period at one institution completed the GBI with at least 3 months' follow up. Patients with prior radiotherapy were excluded. The GBI is a patient-reported outcome measure that assesses post-intervention outcomes in three domains: 'general' functioning, 'social support' and 'physical' functioning. Pre- and post-operative visual loss scores were additionally assessed via a 1-5 Likert scale. GBI scores were assessed alongside these visual loss scores, clinical and surgical parameters and demographics. RESULTS: Mean age was 59.5 years (range 20-87 years) and mean follow up was 36 months. A total of 46 of 145 (31.7%) patients had secreting tumours. The most common primary symptom was visual loss. Mean total score for all patients was positive (+8.4); with 'general' domain score the most positive (+10.5). All patient groups had overall positive, 'general' and 'social support' domain scores. Patients with Cushing's disease reported significantly higher mean total scores (+29.6) than all other groups. Acromegaly (+7.9) and non-functioning adenoma (NFA) groups (+5.2) reported lower mean total scores. 'Physical' domain mean scores were negative for acromegaly and NFA groups. There was statistical significance between a pre- to post-operative improvement in visual score and mean total GBI score (p = 0.02) and mean 'general' domain GBI score (p = 0.02). CONCLUSIONS: These findings can aid preoperative counselling of patients undergoing this surgery. Those with NFA and no anticipated improvement to visual loss symptoms may be advised of possible worsened physical outcomes and of the option to delay the surgery until symptoms are present.


Asunto(s)
Acromegalia , Neoplasias Hipofisarias , Humanos , Lactante , Preescolar , Niño , Neoplasias Hipofisarias/cirugía , Calidad de Vida , Estudios Retrospectivos , Endoscopía , Resultado del Tratamiento
6.
Front Psychol ; 13: 859722, 2022.
Artículo en Inglés | MEDLINE | ID: mdl-35572246

RESUMEN

Purpose: Previous studies examining the relationship between health-related quality of life (HRQoL) and speech perception ability in cochlear implant (CI) users have yielded variable results, due to a range of factors, such as a variety of different HRQoL questionnaires and CI speech testing materials in addition to CI configuration. In order to decrease inherent variability and better understand the relationship between these measures in CI users, we administered a commonly used clinical CI speech testing battery as well as two popular HRQoL questionnaires in bimodal and bilateral CI users. Methods: The Glasgow Benefit Inventory (GBI), a modified five-factor version of the GBI (GBI-5F), and the Nijmegen Cochlear Implant Questionnaire (NCIQ) were administered to 25 CI users (17 bimodal and 8 bilateral). Speech perception abilities were measured with the AzBio sentence test in several conditions (e.g., quiet and noise, binaural, and first-ear CI only). Results: Higher performance scores on the GBI general subscore were related to greater binaural speech perception ability in noise. There were no other relationships between the GBI or NCIQ and speech perception ability under any condition. Scores on many of the GBI-5F factors were substantially skewed and asymmetrical; therefore, correlational analyses could not be applied. Across all participants, binaural speech perception scores were greater than first-ear CI only scores. Conclusion: The GBI general subscore was related to binaural speech perception, which is considered the everyday listening condition of bimodal and bilateral CI users, in noise; while the more CI-specific NCIQ did not relate to speech perception ability in any listening condition. Future research exploring the relationships between the GBI, GBI-5F, and NCIQ considering bimodal and bilateral CI configurations separately is warranted.

7.
Br J Oral Maxillofac Surg ; 60(3): 299-307, 2022 04.
Artículo en Inglés | MEDLINE | ID: mdl-34839999

RESUMEN

The authors previously published positive peer-reviewed (21 raters using the Terzis scale) and photogrammetric (Emotrics) outcomes in patients who had undergone two-stage lower lip reanimations up to 2018. Other series have published surgeon and peer-rated results, but we know of only two (n=12) that have assessed patients' views using patient satisfaction surveys. This paper presents patient-rated outcomes (PROMS) in an 11-year series of both single and two-stage anterior belly of digastric muscle (ABDM) lower lip reanimations. Demographics, paralysis characteristics, operative details, and complications were recorded. Patients were telephoned and requested to complete the Glasgow Benefit Inventory (GBI) to assess patient-rated outcomes. Thirty-two patients were eligible (mean age 36.4 years). Twenty-one (63.6%) completed the GBI (mean score +33.3). More patients reported benefit than detriment (95.2% vs 4.8%). Complications were infrequent and included three cases of superficial infections and one of dermatitis. Four patients (12.5%) underwent minor revisions, mostly lipofilling of lip notches. The median (range) duration of follow up was 2.8 (0.3 - 8.5) years. ABDM transfer for lower lip reanimation is a safe, low morbidity procedure that enhances the psychological wellbeing of patients with facial palsy.


Asunto(s)
Parálisis de Bell , Parálisis Facial , Adulto , Parálisis de Bell/complicaciones , Músculos Faciales/cirugía , Parálisis Facial/etiología , Parálisis Facial/cirugía , Humanos , Labio/cirugía , Músculos del Cuello , Fotogrametría
8.
Indian J Ophthalmol ; 69(7): 1882-1886, 2021 07.
Artículo en Inglés | MEDLINE | ID: mdl-34146050

RESUMEN

Purpose: : To assess the patient reported outcome and quality of life in post external dacryocystorhinostomy operated patients. Methods: A prospective questionnaire based study was carried out on 112 patients diagnosed with chronic dacryocystitis who underwent external dacryocystorhinostomy in the department of Orbit and Oculoplasty at a tertiary eye hospital in South India. Results: We included 112 cases in our study. Mean (SD) of the age of patients was 48.03 (12.79) years and ranged from 7 to 72 years of age. 44 (39.3%) patients were males and 68 (60.7%) were females. All cases had subjective symptoms of tearing, pain and swelling at baseline which were relieved by post-operative 3 in all cases. The mean (SD) best corrected visual acuity was 0.28 (0.39) at baseline and 0.25 (0.37) at postoperative 3 (p < 0.001). All four parameters studied in the GBI questionnaire - total mean GBI (32.22 vs 48.86, P < 0.001), general subscale (31.21 vs 44.08, P < 0.001), social health (46.28 vs 61.01, P < 0.001), physical outcome (22.17 vs 55.80, P = 0.0001) scores showed significant improvement from 1 vs 3 months post DCR. Conclusion: : The GBI questionnaire is an effective tool for assessing patients' quality of life following DCR. External DCR can not only produce a successful anatomical outcome but also bring about a measurable improvement in subjective symptoms and quality of life among patients with symptomatic NLDO.


Asunto(s)
Dacriocistorrinostomía , Conducto Nasolagrimal , Adolescente , Adulto , Anciano , Niño , Femenino , Humanos , India/epidemiología , Masculino , Persona de Mediana Edad , Conducto Nasolagrimal/cirugía , Estudios Prospectivos , Calidad de Vida , Resultado del Tratamiento , Adulto Joven
9.
BMC Ophthalmol ; 21(1): 103, 2021 Feb 25.
Artículo en Inglés | MEDLINE | ID: mdl-33632167

RESUMEN

BACKGROUND: The dacryoendoscope is the only instrument that can observe the luminal side of the lacrimal passage with minimal invasiveness. It was developed to treat lacrimal passage obstructions by inserting a bicanalicular nasal stent with sheath-guided bicanalicular intubation (SG-BCI). The purpose of this study was to determine the outcomes of SG-BCI to treat lacrimal passage obstructions. In addition, to determine the effects of SG-BCI treatment on the quality of life. METHODS: This was a retrospective observational study of 128 patients (mean age 70.9 ± 11.0 years, range 28-93 years) diagnosed with a unilateral lacrimal passage obstruction. There were 73 patients with a nasolacrimal duct obstruction, 37 with a lacrimal canaliculus obstruction, 7 with a lacrimal punctum obstruction, and 11 with common lacrimal canaliculus and nasolacrimal duct obstructions. They were all treated with SG-BCI. The postoperative subjective outcomes were assessed by the answers to the Glasgow Benefit Inventory (GBI) questionnaire and to an ocular specific questionnaire on 6 symptoms including tearing, ocular discharges, swelling, pain, irritation, and blurred vision. The objective assessments were the surgical success rates and the patency at 6 months after the bicanalicular nasal stent was removed. The patients were divided into those with a pre-saccal obstruction, Group 1, and with a post-saccal obstruction, Group 2. The subjective and objective outcomes were compared between the two groups. RESULTS: One hundred twenty-four sides (96.9%) had a successful probing and intubation of the lacrimal passage obstruction by SG-BCI. Of the 124 sides, 110 sides (88.7%) retained the patency after the stent was removed for at least 6 months. The GBI total, general subscale, social support, and physical health scores were + 37.1 ± 29.0, + 41.5 ± 30.0, + 28.0 ± 39.4, and + 24.1 ± 37.7, respectively, postoperatively. All of the 6 ocular specific symptom scores improved significantly postoperatively. The postoperative score of tearing improved in Group 1 (P < 0.0001), while the postoperative scores of all symptoms improved significantly in Group 2. CONCLUSIONS: The relatively high surgical success rates and positive GBI scores, and improved ocular symptom scores indicate that SG-BCI is a good minimally invasive method to treat lacrimal passage obstructions.


Asunto(s)
Dacriocistorrinostomía , Aparato Lagrimal , Obstrucción del Conducto Lagrimal , Conducto Nasolagrimal , Adulto , Anciano , Anciano de 80 o más Años , Humanos , Obstrucción del Conducto Lagrimal/terapia , Persona de Mediana Edad , Conducto Nasolagrimal/cirugía , Calidad de Vida , Stents , Resultado del Tratamiento
10.
Ear Nose Throat J ; 100(5_suppl): 842S-847S, 2021 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-32204619

RESUMEN

OBJECTIVES: The average life expectancy in the United Kingdom is currently nearly 80 years for a newborn baby with nearly 15% of the population, by 2040, being >75 years old. Hearing impairment is a common disability in the elderly individual, and there have been significant drives to support this population to lead longer and healthier working lives. We aimed to assess the long-term audiological and health-related quality-of-life benefits of cochlear implants (CI) in elderly individuals. METHODS: A retrospective and cross-sectional study of patients who received a CI at ≥70 years. Data extracted included speech perception scores, adverse events, telephone use, and patient-reported outcome measures using the Glasgow Benefit Inventory questionnaire with a minimum of 12 months follow-up. RESULTS: Sixty-four patients aged ≥70 years received a unilateral CI. A significant improvement in speech perception scores in all conditions was noted with no significant difference between differing age groups. Glasgow Benefit Inventory scores showed a significant positive impact on patients' lives and their health status, with no significant difference between the differing age groups. CONCLUSIONS: Cochlear implantation is a safe and well-tolerated procedure in the elderly patients with significant improvements observed in audiological performance, health status, and social interactions.


Asunto(s)
Implantación Coclear , Pérdida Auditiva/psicología , Pérdida Auditiva/cirugía , Calidad de Vida , Percepción del Habla , Factores de Edad , Anciano , Anciano de 80 o más Años , Implantación Coclear/efectos adversos , Estudios Transversales , Femenino , Pérdida Auditiva/rehabilitación , Humanos , Masculino , Medición de Resultados Informados por el Paciente , Complicaciones Posoperatorias , Estudios Retrospectivos , Reino Unido
11.
Am J Rhinol Allergy ; 35(5): 568-573, 2021 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-33297717

RESUMEN

BACKGROUND: Assessment of nasal obstruction is imprecise due to a low correlation between findings on the physical examination and objective measures with the severity of symptoms reported by the patient even after septoplasty with turbinoplasty is performed. The aim of this study is to evaluate the use of subjective scales, and the correlation between them for the evaluation of nasal obstruction after surgery. OBJECTIVE: To assess the impact of undergoing septoplasty with turbinoplasty to relieve nasal obstructive symptoms and the quality of life in a mid-term period by using the Visual Analogue Scale (VAS), Nasal Obstruction Symptom Evaluation (NOSE), and Glasgow Benefit Inventory (GBI). METHODS: A retrospective study was conducted of patients who underwent a septoplasty with turbinoplasty due to nasal septodeviation and secondary nasal obstructive symptoms at the Hospital Universitario Fundación Santa Fe de Bogotá. Three scales were used to measure the outcomes one year after surgery: VAS (0-10), NOSE (0-100), and GBI (-100 to 100). RESULTS: Data from 56 patients (21 females, mean age 37.5 years of age, SD 12.13) was collected. The results showed that 75% of the patients had a post-surgical NOSE score below 50 and a VAS score below 6. Regarding the GBI scale, 75% of the patients improved in their quality of life. An inverse proportional correlation was found between the NOSE and GBI scales (rho = -0.3682) (95% CI -0.579 to -0.111), and there was a directly proportional correlation between the NOSE and VAS scales (rho = 0.7440) (95% CI 0.595 to 0.844). CONCLUSION: Subjective measures suggest there was an improvement in nasal obstructive symptoms and quality of life after surgery. Non-anatomical causes such as rhinitis can be confounding factors to consider in subsequent studies. VAS stands out as a possible interchangeable scale with NOSE to measure nasal obstruction in these patients.


Asunto(s)
Obstrucción Nasal , Rinoplastia , Adulto , Femenino , Humanos , Obstrucción Nasal/cirugía , Tabique Nasal/cirugía , Calidad de Vida , Estudios Retrospectivos , Resultado del Tratamiento
12.
Appl. cancer res ; 40: 1-7, Oct. 19, 2020. ilus, tab
Artículo en Inglés | LILACS, Inca | ID: biblio-1255030

RESUMEN

Background: Lymphoedema is a common side effect after treatment for head and neck cancer. Our treatment protocol involves staging the degree of lymphoedema and then offering treatment comprising skin care, manual lymphatic drainage, simple lymphatic drainage, compression and elastic therapeutic tape. The Glasgow Benefit Inventory is a validated post-interventional questionnaire applicable to otorhinolaryngology interventions which measures changes in health status. The aim of this study was to quantify the health benefits of lymphoedema treatment using the Glasgow Inventory Benefit questionnaire, in patients with a history of treated head and neck cancer. Methods: Any patient who had undergone treatment with curative intent of a primary head and neck malignancy who had been referred for lymphoedema treatment within a 6 month period was eligible for inclusion. Patients completed a questionnaire after finishing the course of lymphoedema treatment. Results: A total of 15 patients completed the questionnaire. Ten patients (67%) demonstrated some level of improvement in quality of life, while two (13%) reported no benefit and three (20%) reported negative improvements. The average score for the total Glasgow Benefit Inventory scale was + 7.2. The greatest benefit was demonstrated with the physical benefit subscale (+ 13.1). The average general benefit score was + 9.0. Conclusions: Lymphoedema treatment involves techniques which can fairly easily be taught to patients to complete at home. In this study, there were mild improvements in patient reported quality of life using the Glasgow Benefit Inventory in the majority of patients. Clinical interest has increased in lymphoedema recently, but there is still limited information about the effectiveness of treatments and future research should look to address these issues.


Asunto(s)
Calidad de Vida , Neoplasias de Cabeza y Cuello , Linfedema , Encuestas y Cuestionarios
13.
Artículo en Chino | MEDLINE | ID: mdl-32842199

RESUMEN

Objective:To evaluate the validity and reliability of the Chinese version of Glasgow Benefit Inventory. Method:Using the Chinese version of Glasgow benefit inventory(C-GBI) to evaluate how the otorhinolaryngological(ORL) interventions have altered the quality of life of 98 cases of ORL department and analyze the validity and reliability of the test results, which is assessed by content validity, construct validity, internal consistency and split-half reliability. Result:The results show that the C-GBI has 3 dimensions and 18 items. The content validity of C-GBI is acceptable. Three factors were extracted by exploratory factor analysis. Since item No. 10 matched Factor 3 in error, we decided to delete it after discussions. After this adjustment, exploratory factor analysis yielded with an three-factor solution, explaining 70.32% of the total variance and the loading coefficient for each of the 17 C-GBI questions is above 0.4. The results also show good convergent validity and discriminant validity. Reliability using Cronbach α, Spearman-Brown and Guttman Split-Half was higher than 0.6 for total score and its three subscales of the adjusted C-GBI. Conclusion:After deleting one item of the C-GBI which matched factor in error, we found that the adjusted C-GBI shows good reliability and validity. It can help Chinese clinicians evaluate how the ORL interventions have altered the health status of patients.


Asunto(s)
Pueblo Asiatico , Calidad de Vida , Análisis Factorial , Humanos , Reproducibilidad de los Resultados , Encuestas y Cuestionarios
14.
Indian J Otolaryngol Head Neck Surg ; 72(1): 140-144, 2020 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-32158671

RESUMEN

Usher's syndrome is an autosomal recessive disorder characterized by dual sensory impairment involving both the ears and eyes. Cochlear implantation paves a way to restore hearing loss in such individuals but poor vision among these patients poses additional challenges for the habilitationists. This study aimed to compare the habilitation outcomes and hearing-related quality of life scores of cochlear implantees having Usher syndrome with age-matched cochlear implantees with no such syndromic association. 27 patients aged 1-6 years with Usher syndrome underwent cochlear Implantation over a period of 10 years from 2006 to 2016 and were included in this study along with an age-matched cohort of 30 implantees with no additional disabilities. Category of Auditory Performance (CAP) and Speech Intelligibility Rating (SIR) scores were compared at 3, 6, 9 and 12 months respectively. Glasgow Benefit Inventory and Health Utility Index (HUI 3.0) questionnaires were used to assess the hearing-related quality of life in both groups at 1 year post implantation. There was significant difference in CAP and SIR scores between children with Usher's syndrome and the control group (p < 0.05). The overall scores in terms of quality of life as well were statistically different (p < 0.05). Though there was improvement in speech and language acquisition after cochlear Implantation this was found to be of lesser extent than the normative cohort. These children with additional visual disabilities required intensive, individualized therapy catering to their complex needs. Their family's perception of expected benefit from cochlear Implantation was guarded and needed to be appraised in detail prior to surgery. This experience helped prepare an institutional protocol for counseling such implantees in future.

15.
Surgeon ; 18(4): 193-196, 2020 Aug.
Artículo en Inglés | MEDLINE | ID: mdl-31636036

RESUMEN

INTRODUCTION: Total thyroidectomy for Grave's disease has been covered extensively in literature. There are established risks and side effects of the procedure, but in experienced hands, this is minimised. Studies show the physical complication rate of total thyroidectomy, but not a holistic view. The authors pose the question, "what do our patients really think"? Has there been a significant improvement in quality of life by doing this surgery? METHODS: A cohort of patients who underwent total thyroidectomy for Graves' disease between the dates 2015-2018. A total of 95 patients were identified. The Glasgow Benefit Inventory (GBI) was used to ascertain patient's opinions on their surgery. RESULTS: There were 54 responders, 46 female and 8 male. Average age was 41, with a range 20-81. Average GBI scores were 13.35 (SD 30.16). A general subset had an average score of 19.21 (SD = 32.59), a social subset average was 9.57 (SD = 25.61), and a physical subset was average -6.79 (SD = 37.40). Patients' feedback included positive and negative statements on their feelings surrounding pre-operative communication and post-operative side effects. CONCLUSION: Overall, the GBI scores are positive, thereby showing an improvement in quality of life since having total thyroidectomy for Graves. Pre-operative communication was of paramount importance. It should be made clear to patients that they will require medication after surgery. The majority of patients stated they would prefer to know about "minor" post -operative side effects like weight gain or mood change post op. This highlights the importance of the consenting process- Montgomery Ruling-that clinicians explain the risks involved with surgery according to what the patient would deem a risk. In addition, they must be informed of the non-surgical options available, therefore, surgeons should be able to discuss risks and benefits of radio-iodine and anti-thyroid drugs too.


Asunto(s)
Enfermedad de Graves/cirugía , Medición de Resultados Informados por el Paciente , Satisfacción del Paciente/estadística & datos numéricos , Calidad de Vida/psicología , Tiroidectomía/métodos , Adulto , Anciano , Anciano de 80 o más Años , Femenino , Enfermedad de Graves/psicología , Humanos , Consentimiento Informado/psicología , Masculino , Persona de Mediana Edad , Relaciones Médico-Paciente , Complicaciones Posoperatorias/psicología , Cuidados Preoperatorios/psicología , Investigación Cualitativa , Tiroidectomía/psicología
16.
Eur Arch Otorhinolaryngol ; 277(3): 791-800, 2020 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-31845036

RESUMEN

BACKGROUND: Nasal closure, also known as the modified Young's procedure was introduced in Denmark in 2008, as a surgical solution to severe epistaxis in patients with hereditary haemorrhagic telangiectasia (HHT). The objective of this study was to report the overall satisfaction of the procedure from a patient's point of view as well as the occurrence of complications. METHODS: All the HHT patients who underwent nasal closure from 2008 to 2018 were included in the study. The patients were evaluated for postoperative complications and subjective outcome using Glasgow Benefit Inventory (GBI). RESULTS: Ten patients were included in the study and were observed for a mean of 64 months. None of the patients was completely free of complications, and reversal was requested in a single case. Haemoglobin levels rose with an average of 2.8 g/dl. The average GBI score after surgery was 38.05. Nine of ten patients would recommend nasal closure to fellow HHT patients. CONCLUSION: Nasal closure is highly recommended among patients, but due to the rate of postoperative complications, the procedure should be reserved for a carefully selected group of HHT patients.


Asunto(s)
Epistaxis/cirugía , Procedimientos Quírurgicos Nasales/métodos , Nariz/cirugía , Telangiectasia Hemorrágica Hereditaria/cirugía , Adulto , Anciano , Estudios de Cohortes , Dinamarca , Epistaxis/etiología , Femenino , Humanos , Masculino , Persona de Mediana Edad , Mucosa Nasal/cirugía , Procedimientos Quírurgicos Nasales/efectos adversos , Medición de Resultados Informados por el Paciente , Satisfacción del Paciente , Colgajos Quirúrgicos/cirugía , Telangiectasia Hemorrágica Hereditaria/complicaciones , Resultado del Tratamiento
17.
Eur Arch Otorhinolaryngol ; 277(1): 61-68, 2020 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-31586256

RESUMEN

PURPOSE: The aim of the study was to investigate the change in health-related quality of life (HRQoL) after canal wall up cholesteatoma surgery, using the Glasgow Benefit Inventory (GBI). METHODS: Data from a consecutive group of 47 adults scheduled for primary cholesteatoma surgery using canal wall up (CWU) with obliteration, from January 2005 to December 2009, were analysed. Information was extracted from a medical database, and complementary data from patient files and audiograms were collected and recorded retrospectively. The GBI questionnaire was used for the assessment of HRQoL after surgery. RESULTS: There was no finding of residual or recurrent cholesteatomas in the study group. Hearing was improved at 1 and 3 years postoperatively. No patient suffered a total hearing loss. The overall GBI scores showed an improved HRQoL after surgery. Twenty-nine (85%) patients benefitted from surgery, 1 (3%) had no change, and 4 (12%) expressed deterioration. CONCLUSIONS: Cholesteatoma surgery using CWU with obliteration gives an improved HRQoL for the majority of patients. The GBI questionnaire provides complementary information to hearing and healing results after cholesteatoma surgery.


Asunto(s)
Colesteatoma del Oído Medio/cirugía , Calidad de Vida , Encuestas y Cuestionarios , Adolescente , Adulto , Colesteatoma del Oído Medio/diagnóstico , Femenino , Pruebas Auditivas , Humanos , Masculino , Persona de Mediana Edad , Estudios Retrospectivos , Resultado del Tratamiento
18.
Indian J Otolaryngol Head Neck Surg ; 71(Suppl 3): 2065-2071, 2019 Nov.
Artículo en Inglés | MEDLINE | ID: mdl-31763295

RESUMEN

Rhinosinusitis is defined as an inflammatory process involving the mucosa of the nose and one or more of the paranasal sinuses. Rhinosinusitis is not associated with increased mortality, but may have an impact on the quality of life (QOL). Current study is aimed at investigating the role of FESS in the enhancement of QOL of the patients with rhinosinusitis. Several instruments have been designed to assess the QOL, among which Glasgow Benefit Inventory (GBI) questionnaire, has been used in this study. This cross sectional study of duration of 1 year and 6 months was conducted on 30 patients between the age group 18-60 years in the Department of Otorhinolaryngology at Safdarjung Hospital in New Delhi. Our results showed that FESS was associated with improved QOL in patients with Chronic Sinusitis. Observations were made on the basis of the GBI questionnaire which is designed to measure outcomes of the surgical procedures in form of 4 different scores. Mean total score before surgery was (-) 65.28 ± 7.39 and after surgery was 21.22 ± 11.24. Mean general Subscale Score before surgery was (-) 60.56 ± 9.14 and after surgery was 25.28 ± 13.40. Mean Social Support Score before surgery was (-) 79.44 ± 14.31 and after surgery was 17.78 ± 16.34. Mean Physical Health score before surgery was (-) 70.00 ± 10.17 and after surgery 10.00 ± 14.25. A statistically significant improvement was observed in all the four scores before and after surgery. The present study demonstrates that radical surgery has led to improvement in the QOL of chronic rhinosinusitis.

19.
Laryngoscope Investig Otolaryngol ; 4(6): 673-677, 2019 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-31890887

RESUMEN

OBJECTIVE: To evaluate the psychometric properties of the Swedish version of the Glasgow Benefit Inventory (GBI). METHODS: A prospective multicenter cohort study was conducted. A total of 123 otosclerosis subjects were included in the study. The subjects were divided in three groups based on the following interventions: (a) stapedotomy without any prior hearing-aid rehabilitation (n = 60); (b) hearing-aid rehabilitation without any prior stapedotomy (n = 33); and (c) stapedotomy with prior hearing-aid rehabilitation (n = 30). Pre- and post-operative pure tone audiometry were measured. The Swedish version of the GBI was completed by the subjects 6 months after the intervention. Test-retest reliability and internal consistency, factor analysis, construct validity, and criterion validity, was assessed. RESULTS: The Swedish version of the GBI was well accepted by the subjects. It showed good psychometric properties with an overall high reliability. Factor analysis resulted in a 5-factor solution explaining 66.6% of the variance where factors 1 and 2 represented the general health domain. CONCLUSIONS: Overall, the Swedish version of the GBI showed good psychometric properties. Based on the factor analyses, there is the possibility that the general health domain should be divided in two separate domains: general health and psychosocial health. LEVEL OF EVIDENCE: 2c.

20.
Acta Otolaryngol ; 137(4): 389-397, 2017 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-27918233

RESUMEN

CONCLUSIONS: The satisfaction rate of the subjects with an auditory implant appears strictly related to the resulting auditory improvement, and the surgical variables would play a prevailing role in respect to the esthetic factors. OBJECTIVES: To assess the rate of satisfaction in subjects who underwent the surgical application of an auditory device at a single Implanting Center Unit. METHOD: A series of validated questionnaires has been administered to subjects who underwent the surgical application of different auditory devices. The Glasgow Benefit Inventory (GBI), the Visual Analog Scale (VAS), and the Abbreviated Profile of Hearing Aid Benefit (APHAB) have been used to compare the implanted situation with the hearing-aided one; a percutaneous bone conductive implant (pBCI) with an active middle ear implant (AMEI) on the round window in mixed hearing loss; and an invisible, fully-implantable device with a frankly and bulky semi-implantable device. RESULTS: The mean GBI scores were higher in Vibrant Soundbridge (VSB)® and Bonebridge® subjects, without significant differences among the various devices. The mean VAS score increased for all the devices in comparison with the conventional hearing aid. The mean APHAB score was similarly better in the implanted condition as total and partial scores.


Asunto(s)
Prótesis Osicular/estadística & datos numéricos , Satisfacción del Paciente/estadística & datos numéricos , Adulto , Anciano , Anciano de 80 o más Años , Femenino , Estudios de Seguimiento , Pérdida Auditiva/cirugía , Humanos , Masculino , Persona de Mediana Edad , Prótesis Osicular/psicología , Calidad de Vida , Adulto Joven
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