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1.
Rev. clín. esp. (Ed. impr.) ; 223(10): 596-603, dic. 2023. tab
Artículo en Español | IBECS | ID: ibc-228437

RESUMEN

Antecedentes y objetivo En junio de 2021 se produjo la entrada en vigor de la ley orgánica reguladora de la eutanasia (LORE). Este estudio tiene como objetivo analizar el conocimiento, implicación y repercusión de la LORE por parte de los médicos colegiados en España. Métodos Estudio descriptivo y con un diseño transversal mediante encuesta. La información se recogió mediante un cuestionario autoadministrado. ResultadosLa encuesta fue respondida por 1.446 médicos colegiados en España. Características demográficas de la muestra: 54,7% eran mujeres, la edad media de los facultativos fue de 52±14, 66% trabajaba en un hospital y la comunidad autónoma con mayor número de participantes fue Cataluña con 44,6%. Por especialidades, anestesiología y reanimación, con 21,9%, fue la especialidad con mayor número de participantes, seguida por medicina familiar y comunitaria (18,5%). De los médicos, 24,3% afirmó conocer la LORE en detalle, 58% tenían una opinión favorable, y 31,1% habían tenido alguna experiencia cercana con el procedimiento eutanásico. Los facultativos que trabajaban dentro del ámbito hospitalario percibieron la ley de forma más favorable en comparación con los de medicina primaria (62,3 vs. 47,3%, p<0,01). Conclusione La gran mayoría de médicos no conocían la LORE, aunque estaban a favor de su existencia, sobre todo los de medicina hospitalaria. Aquellos con mayor percepción negativa de la LORE eran varones, de edad más avanzada y trabajadores de atención primaria. Una minoría se planteaba ser objetor de conciencia (A)


Background and aims The Organic Law Regulating Euthanasia (LORE, for its initials in Spanish) came into force in June 2021. This study aims to examine knowledge of the LORE among physicians licensed in Spain as well as their involvement with and the impact of the law. Methods This work is a descriptive, cross-sectional study conducted by means of a survey. Information was gathered through a self-administered questionnaire. Results The survey was answered by 1446 physicians licensed in Spain. The sample's demographic characteristics were as follows: 54.7% were women, the mean age was 52±14 years, and 66.0% worked in a hospital. Catalonia was the autonomous community with the most participants (44.6%). Regarding specialties, anesthesiology and resuscitation had the highest number of participants (21.9%), followed by family and community medicine (18.5%). The LORE was known in detail by 24.3% of physicians, 58.0% had a positive opinion of it, and 31.1% had direct experience with the euthanasia procedure. Practitioners working in the hospital setting perceived the law more favorably compared to those in the primary care setting (62.3% vs. 47.3%, p<0.01). Conclusions Most doctors did not have in-depth knowledge of the LORE, although a majority supported its existence, particularly those in hospital medicine. Most physicians who viewed the LORE negatively were male, older, and worked in primary care. A minority of physicians considered registering as conscientious objectors (AU)


Asunto(s)
Humanos , Masculino , Femenino , Adulto , Persona de Mediana Edad , Anciano , Conocimientos, Actitudes y Práctica en Salud , Legislación como Asunto , Eutanasia/legislación & jurisprudencia , Encuestas y Cuestionarios , Estudios Transversales , España
2.
Rev Clin Esp (Barc) ; 223(10): 596-603, 2023 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-37898356

RESUMEN

BACKGROUND AND AIMS: The Organic Law Regulating Euthanasia (LORE, for its initials in Spanish) came into force in June 2021. This study aims to examine knowledge of the LORE among physicians licensed in Spain as well as their involvement with and the impact of the law. METHODS: This work is a descriptive, cross-sectional study conducted by means of a survey. Information was gathered through a self-administered questionnaire. RESULTS: The survey was answered by 1446 physicians licensed in Spain. The samples' demographic characteristics were as follows: 54.7% were women, the mean age was 52 ±â€¯14 years, and 66.0% worked in a hospital. Catalonia was the autonomous community with the most participants (44.6%). Regarding specialties, anesthesiology and resuscitation had the highest number of participants (21.9%), followed by family and community medicine (18.5%). The LORE was known in detail by 24.3% of physicians, 58.0% had a positive opinion of it, and 31.1% had direct experience with the euthanasia procedure. Practitioners working in the hospital setting perceived the law more favorably compared to those in the primary care setting (62.3% vs. 47.3%, p < 0.01). CONCLUSIONS: Most doctors did not have in-depth knowledge of the LORE, although a majority supported its existence, particularly those in hospital medicine. Most physicians who viewed the LORE negatively were male, older, and worked in primary care. A minority of physicians considered registering as conscientious objectors.


Asunto(s)
Anestesiología , Eutanasia , Médicos , Humanos , Masculino , Femenino , Adulto , Persona de Mediana Edad , Anciano , España , Estudios Transversales , Encuestas y Cuestionarios , Actitud del Personal de Salud
3.
Rev. cienc. salud (Bogotá) ; 21(3): [1-24], 20230901.
Artículo en Español | LILACS | ID: biblio-1512801

RESUMEN

Introducción: las enfermedades crónicas van en aumento e implican múltiples consecuencias que, en un determinado momento, con el paso de los años, pueden llegar a un estado terminal de la enfermedad. El objetivo de este estudio fue analizar el discurso de enfermos crónicos sobre la muerte digna, la eutanasia y el suicidio médicamente asistido para visibilizar la necesidad de la regulación de la muerte digna. Materiales y métodos: se llevó a cabo una investigación cualitativa que se inserta dentro del paradigma del construccionismo social, mediante entrevistas a enfermos crónicos de la Ciudad de México, utilizando una guía semiestructurada. Se empleó el análisis del discurso para encontrar convergencias y diferencias en los discursos. Resultados: se entrevistaron siete personas vía telefónica de enero a marzo del 2022. Las principales enfermedades fueron: lupus, cáncer, artritis, diabetes y ovarios poliquísticos. Los discursos convergen hacia una muerte digna sin dolor, sufrimiento, tranquila y en casa. Coinciden sus discursos en legalizar la eutanasia y el suicidio médicamente asistido; sin embargo, hay divergencias en cuanto a solicitarlas. Conclusiones: la experiencia de la enfermedad crónica es un factor importante para aceptar en un futuro la muerte médicamente asistida, sin ser una carga para otros y evitar el dolor y sufrimiento al final de la vida. La religión influye en las decisiones, pero se puede observar una mayor apertura para aceptar la legalización de la muerte médicamente asistida.


Introduction: Chronic diseases are increasing in frequency and entail multiple consequences that can eventually lead to death. The study aim was to analyze the discourse of chronically-ill patients on death with dignity, euthanasia, and medically-assisted suicide to highlight the need for regulation of death with dignity. Materials and Methods: A qualitative study was conducted within the paradigm of social constructionism. A semi-structured guide was used to conduct interviews with chronically-ill patients in Mexico City. Discourse analysis was performed to identify convergences and differences in the discourses. Results: Seven interviews were conducted by telephone from January to March 2022. The main diseases of the interviewees were lupus, cancer, arthritis, diabetes, and polycystic ovaries. The discourses converged toward a preference for dignified death without pain or suffering that was calm, and occurred at home. The discourses included the topics of legalizing euthanasia and medically-assisted suicide, but the patients differed on whether or not these should be requested. Conclusions: The experience of chronic illness was an important factor in accepting medically-assisted death for the patients, who did not wish to be a burden on others and wanted to avoid pain and suffering at the end of their lives. Religion influenced the patients' decisions, but there was openness to accepting legalization of medically-assisted death.


Introdução: a incidência das doenças crônicas vem aumentando, e têm múltiplas consequências que num determinado momento, ao longo dos anos, podem chegar a um estado terminal da doença. O objetivo deste estudo foi analisar o discurso de pessoas com doenças crônicas sobre morte digna, eutanásia e suicídio medicamente assistido para tornar visível a necessidade de regulamentar a morte digna. Materiais e métodos: foi realizada uma pesquisa qualitativa que se insere no paradigma do construcionismo social. Entrevistas com pacientes crônicos na Cidade do México foram realizadas usando um guia semiestruturado. A análise do discurso foi utilizada para encontrar convergências e divergências nos discursos. Resultados: foram realizadas sete entrevistas por telefone no período de janeiro a março de 2022. As principais doenças foram lúpus, câncer, artrite, diabetes e ovários policísticos. Os discursos convergem para uma morte digna sem dor, sofrimento, tranquila e em casa. Seus discursos coincidem na legalização da eutanásia e do suicídio medicamente assistido; entretanto, há divergências quanto à sua solicitação. Conclusões: a experiência da doença crônica é um fator importante para aceitar a morte medicamente assistida no futuro, sem ser um fardo para os outros e evitando a dor e o sofrimento no final da vida. A religião influencia nas decisões, mas observase uma maior abertura para aceitar a legalização da morte medicamente assistida.


Asunto(s)
Humanos
4.
Artículo en Español | LILACS-Express | LILACS | ID: biblio-1535972

RESUMEN

Contexto: en el marco de la salud pública en Colombia, se ha presentado un aumento significativo de personas que son diagnosticadas con enfermedad renal crónica y que requieren de comenzar algún tipo de terapia de reemplazo renal y sostenimiento. También se presentan otras patologías que disminuyen el nivel de calidad de vida de los pacientes como cáncer, insuficiencias cardiacas y diferentes tipos de demencias. Objetivo: los modelos tradicionales de atención de la enfermedad renal deben actualizarse y considerar, dentro de sus protocolos, el reconocimiento de la vida y la muerte digna como elementos que emergen dentro de la condición de salud-enfermedad de los pacientes; si esto se aborda de manera temprana, es posible prevenir hospitalizaciones con estancias prolongadas, así como alteraciones del estado del ánimo y otras complicaciones que pueden aumentar y acelerar la morbimortalidad de los pacientes. Metodología: este artículo nace a partir de la experiencia en la atención directa de pacientes con enfermedad renal crónica avanzada en un centro de cuidado renal de la ciudad de Medellín (Colombia) durante 7 años y de la revisión teórica de diferentes textos y artículos que se encuentran las bases de datos como Pubmed, Scopus, EBSCO, Dialnet, SciELO, entre otras. Resultados: se ofrece una propuesta de elementos para evaluar la condición de salud enfermedad del paciente por parte de un equipo interdisciplinario, liderado por el nefrólogo, para el diseño de la ruta de atención más adecuada en términos de costo-beneficio para el paciente y su familia y que estos tomen decisiones basadas en la información. Conclusiones: invertir en un programa de atención primaria en cuidados paliativos y al final de la vida de forma temprana resulta beneficioso para el paciente. El inicio de un programa de cuidados al final de la vida no significa renunciar o suspender el tratamiento dialítico; en su lugar, busca que la atención brindada se centre en las necesidades del paciente y en el adecuado control de los síntomas que se pueden presentar cuando se inicia la etapa de final de la vida.


Background: In the context of public health in Colombia, there has been a significant increase in the number of people diagnosed with chronic kidney disease and who require starting some type of renal replacement therapy and support. There are also other pathologies that reduce the quality of life of patients, such as cancer, heart failure and different types of dementia. Purpose: Traditional models of renal disease care should be updated and consider, within their protocols, the recognition of life and dignified death as elements that emerge within the health-disease condition of patients; if this is addressed early, it is possible to prevent hospitalizations with prolonged stays, as well as mood alterations and other complications that can increase and accelerate the morbimortality of patients. Methodology: This article is based on experience in the direct care of patients with advanced chronic kidney disease in a renal care center in the city of Medellin (Colombia) for 7 years and on the theoretical review of different texts and articles found in databases such as Pubmed, Scopus, EBSCO, Dialnet, SciELO, among others. Results: We offer a proposal of elements to evaluate the patient's health-disease condition by an interdisciplinary team, led by the nephrologist, for the design of the most adequate route of care in terms of cost-benefit for the patient and his family and for them to make decisions based on the information. Conclusions: Investing in a primary care program in palliative and end-of-life care early is beneficial for the patient. Initiating an end-of-life care program does not mean giving up or suspending dialysis treatment; instead, it seeks to focus the care provided on the patient's needs and on the adequate control of the symptoms that may occur when the end-of-life stage begins.

5.
Omega (Westport) ; 88(2): 550-569, 2023 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-34590885

RESUMEN

During the direst months of the COVID-19 pandemic, thousands of people died alone. This study analyzes these deaths, which occurred without the presence of loved ones, and seeks to a) examine the significance for relatives, as well as professionals, of dying alone, b) determine if these solitary deaths can be considered dignified, or good deaths, and c) evaluate if the treatment of the cadavers and the funeral rites transpired with the desired dignity and sensitivity. The study was carried out in the autonomous community of Madrid using a qualitative, phenomenological, and interpretative approach through in-depth interviews of 49 informants, professionals and relatives. Interviews were conducted between July and November of 2020, followed by an interpretive, categorical, qualitative analysis. Among the key findings are that during the most critical months, deaths lacked the desired dignity, even though the involved professionals did their best to accompany and dignify the deaths.


Asunto(s)
COVID-19 , Humanos , Soledad , Pandemias
6.
Omega (Westport) ; 86(4): 1388-1401, 2023 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-33858235

RESUMEN

This study aims to determine the meaning of death for nursing students and their attitudes toward dignified death principles. The descriptive study was conducted with nursing students studying at a state university in Turkey. The data were collected using the Personal Information Form, the Personal Meanings of Death Scale (PMDS), and the Assessment Scale of Attitudes toward the Principles of Dying with Dignity (ASAPDD). A positive and low-level significant relationship was determined between the students' age and the scores for the PMDS subdimensions and the ASAPDD. It was found that the students had positive perceptions of death and adopted the principles of a dignified death. It was determined that an increase in the students' perceptions of death positively affected their adoption of the principles of a dignified death.


Asunto(s)
Actitud del Personal de Salud , Estudiantes de Enfermería , Humanos , Encuestas y Cuestionarios , Turquía , Universidades
7.
Int J Palliat Nurs ; 28(8): 357-364, 2022 Aug 02.
Artículo en Inglés | MEDLINE | ID: mdl-36006787

RESUMEN

BACKGROUND: Death in the intensive care unit (ICU) is an unavoidable aspect of nursing practice. Nurses are the primary front-line healthcare professionals (HCPs) which care for dying patients in this setting. Facilitating 'good deaths' in the ICU has become increasingly debated due to the challenges involved, especially during the COVID-19 pandemic. Aim: To explore how nurses perceive a 'good death' for patients in the ICU. METHOD: Literature published in English between 2005 and 2020 was rigorously searched and recorded using the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. Data sources were: CINAHL Complete, MEDLINE complete, APA PsycInfo, ScienceDirect, SocINDEX, SwePub, SciELO, Complementary Index, Academic Search Ultimate, Supplemental Index, Education Source and Directory of Open Access Journals. Search terms included: nurses' perceptions, ICUs, 'good deaths', quality of death and dignified deaths. FINDINGS: Seven articles met the search criteria, five used qualitative methods, one used a quantitative method and one used a mixed method design. Each of these were critically analysed. A process of thematic analysis identified three prevalent themes: ensuring physical comfort, providing an appropriate physical environment and the importance of relatives. CONCLUSION: The review revealed that creating a less technical environment within the ICU can influence a 'good death', but further research is needed to establish how this can be enacted. More effective management of physical symptoms such as pain and dyspnoea are also recommended. Including care of relatives in care plans was also found to contribute toward a 'good death' and that this could be facilitated through improved staff education. Providing a private area for grieving relatives within the ICU has also had an impact in enabling a 'good death'.


Asunto(s)
COVID-19 , Enfermeras y Enfermeros , Personal de Salud , Humanos , Unidades de Cuidados Intensivos , Pandemias
8.
Rev. colomb. anestesiol ; 50(2): e203, Jan.-June 2022. tab, graf
Artículo en Inglés | LILACS | ID: biblio-1376819

RESUMEN

Abstract Introduction: The Advanced Directives Document (ADD) is a bioethical quality benchmark for healthcare and assurance of compliance with the rights of autonomy, self-determination and dignity of the patient. This document was established over the past decade and currently there is no evidence about the attitudes and knowledge of the healthcare professionals with regards to the use of this tool in clinical practice in Colombia. Objective: To describe the knowledge and experiences of healthcare professionals members of six Colombian Scientific Societies regarding the right to sign an ADD and explore the barriers to its applicability in clinical daily practice. Methods: Descriptive, cross-sectional study conducted using an anonymous and voluntary e-survey with the participation of six Colombian Medical Societies. A questionnaire was designed comprising five groups of variables: general, ADD knowledge, medical experiences and personal experiences regarding advanced directives and potential obstacles to its implementation. Results: 533 professionals participated in the survey. 54 % (n = 286) expressed their lack of awareness about the fact that there is law governing the ADD in Colombia; 34.33 % (n = 183) said they were familiar with the requirements of the document. Over the last year, 24 % of the professionals received one or more ADDs from their patients. Only 11.7 % of healthcare practitioners had themselves completed an ADD. 77.1 % of the professionals surveyed believe that the number of individuals with an ADD has not changed after the approval and regulation of the right to an advanced directives document. 86.6 % of the practitioners said they respected the ADD, notwithstanding the fact that the patient could benefit otherwise. Conclusions: The overall perception of healthcare professionals with regards to the number of ADDs signed by patients is that the number has not changed after the approval of the Law in Colombia. This study evidenced that medical practitioners have a poor knowledge about the ADD and that there is a need to educate healthcare professionals about the ADD and to promptly implement institutional programs about Planning of Advanced Directives (PAD). Both strategies are challenging for the applicability of AD in Colombia.


Resumen Introducción: El Documento Voluntades Anticipadas (DVA) es un referente bioético de calidad de atención en salud y garantía de cumplimiento de los derechos de autonomía, autodeterminación y dignidad de los pacientes. Este documento fue reglamentado en la última década, y actualmente, no existe evidencia sobre las actitudes y conocimientos de los profesionales de la salud sobre el uso de esta herramienta en la práctica clínica en Colombia. Objetivo: Describir los conocimientos y experiencias de los profesionales de la salud pertenecientes a seis sociedades científicas colombianas frente al derecho de suscribir el DVA e investigar sobre las barreras para la aplicabilidad del DVA en la práctica clínica diaria. Métodos: Estudio descriptivo de corte transversal, realizado mediante encuesta electrónica anónima y voluntaria en seis sociedades médicas colombianas. Se diseñó un cuestionario compuesto por cinco grupos de variables: generales, conocimiento de DVA, experiencias médicas y experiencias personales sobre voluntad anticipada y posibles limitaciones para su aplicación. Resultados: Participaron 533 profesionales. El 54 % (n = 286) afirmó no saber que existe la ley que regula el DVA en Colombia; un 34,33 % (n = 183) manifestó conocer los requisitos que debe cumplir dicho documento. En el último año, el 24 % de los profesionales recibió de sus pacientes uno o más DVA. Solo el 11,7 % de los profesionales de salud tenía un DVA elaborado. El 77,1 % de los encuestados perciben que el número de personas con DVA sigue igual después de aprobado y reglamentado el derecho de DVA. El 86,6 % de los profesionales de salud aseguraron respetar el DVA, aunque el paciente pueda beneficiarse de lo contrario. Conclusiones: La percepción general de los profesionales de la salud sobre el número de DVA suscrito por los pacientes sigue igual después de reglamentada la Ley en Colombia. Este estudio permitió evidenciar que los profesionales de la salud poseen poco conocimiento sobre el DVA. Es indispensable capacitar a todos los profesionales de salud sobre el DVA y la pronta implementación institucional de programas sobre Planificación de Decisiones Anticipadas (PDA). Ambas estrategias constituyen un desafío para la aplicabilidad de las VA en Colombia.


Asunto(s)
Pancreas Divisum
9.
Rev. latinoam. bioét ; 21(2): 127-142, jul.-dic. 2021.
Artículo en Portugués | LILACS-Express | LILACS | ID: biblio-1361040

RESUMEN

Resumo: O presente artigo, por meio de pesquisa teórica de natureza exploratória, aborda como o direito de morrer é tratado no ordenamento jurídico brasileiro; assim, destaca suas principais nomenclaturas, a saber: distanásia, ortotanásia, cuidados paliativos, diretivas antecipadas de vontade e morte medicamente assistida. Destarte, o objetivo principal é tratar da interrupção voluntária de comer e beber, como possibilidade de antecipar a morte e, por conseguinte, discutir se é um meio viável ou não para se alcançar uma morte digna. Ressalta-se que o procedimento não está previsto de forma explícita nas normas brasileiras e inexistem pesquisas sobre a sua legitimidade no ordenamento pátrio como meio de se alcançar a morte digna, razão pela qual o presente artigo se justifica.


Abstract: Through theoretical research of an exploratory nature, this article addresses how the right to die is treated in the Brazilian legal system; thus, it highlights its main nomenclatures: dysthanasia, orthothanasia, palliative care, advance directives of will, and medically assisted death. The primary purpose is to deal with the voluntary interruption of eating and drinking as a possibility to hasten death and, therefore, discuss whether it is a viable means to have a dignified death. We emphasize that the procedure is not explicitly provided for in the Brazilian regulations and that there are no studies into its legitimacy as a means to achieve a dignified death in the national system, which justifies this article.


Resumen: El presente artículo, mediante investigación teórica de naturaleza exploratoria, aborda cómo el derecho de morir es tratado en el ordenamiento jurídico brasileño; así, destaca sus principales nomenclaturas: distanasia, ortotanasia, cuidados paliativos, directivas anticipadas de voluntad y muerte médicamente asistida. De este modo, el propósito principal es ocuparse de la interrupción voluntaria de comer y beber, como posibilidad de adelantar la muerte y, por ende, discutir si es un medio viable o no para lograr una muerte digna. Se resalta que el procedimiento no está previsto de forma explícita en las normas brasileñas y no existen investigaciones sobre su legitimidad en el ordenamiento patrio como medio de alcanzar la muerte digna, por lo cual el artículo se justifica.

10.
Rev. colomb. bioét ; 16(2)dic. 2021.
Artículo en Español | LILACS-Express | LILACS | ID: biblio-1535742

RESUMEN

Propósito/Contexto. Identificar mediante un cuestionario si personas con diferentes características sociodemográficas que viven en la República Mexicana conocen la importancia de la Ley de Voluntad Anticipada (LVA). Metodología/Enfoque. Se realizó un estudio cuantitativo observacional, descriptivo y transversal. También se llevó a cabo una encuesta de opinión a la población general con una representatividad a nivel nacional, el margen de error fue de +/- 3,46 % con un nivel de confianza del 95 %. Resultados/Hallazgos. El 49,6 % de las personas encuestadas desconocen la LVA y el 41,4 % considera que ayudaría a tener una muerte digna. En cuanto a la pregunta de si en su estado existe esta ley, el 63 % opina que no lo sabe y respecto a la pregunta de si en el estado en el que viven es necesario implementarla, el 41,3 % está totalmente de acuerdo. Discusión/Conclusiones/Contribuciones. En este estudio se observó que la población no tiene información acerca de esta ley y expresa su interés en conocer y en afirmar que están de acuerdo con una muerte digna, evitar el sufrimiento y el dolor.


Purpose/Context. Identify through a questionnaire if people with different sociodemographic characteristics living in the Mexican Republic know the importance of the Advance Will Law (LVA). Methodology/Approach. An observational, descriptive, cross-sectional quantitative study was performed. An opinion survey of the general population was carried out with a national representation; the margin of error was +/- 3.46% with a confidence level of 95%. Results/Findings. 49.6% of the people surveyed do not know the LVA and 41.4% consider that it would help people to have a dignified death. As for the question of whether this law exists in their state, 63% think they do not know; and regarding the question of whether in the state in which they live it is necessary to implement the LVA, 41.3% totally agree. Discussion/Conclusions/Contributions. In this study it was observed that the population does not have information about this law and expresses their interest in knowing and affirming that they agree with a dignified death, avoiding suffering and pain.


Objetivo/Contexto. O objetivo deste artigo é identificar, mediante um questionário, se pessoas com diferentes características sociodemográficas que vivem na República Mexicana, conhecem a importância da Lei de Vontade Antecipada (LVA). Metodologia/Abordagem. Realizou-se um estudo quantitativo observacional, descritivo, transversal. Foi realizado um inquérito de opinião à população em geral com uma representatividade a nível nacional; a margem de erro foi de +/-3,46 %, com um nível de confiança de 95 %. Resultados/Conclusões. O 49,6 % das pessoas entrevistadas desconhecem a LVA e 41,4 % consideram que isso ajudaria a ter uma morte digna. No que se refere à questão de saber se a lei existe no seu Estado, o 63% consideram que não sabem; e no que se refere à questão de saber se, no Estado-Membro em que vivem, é necessário implementá-la, 41,3% concordam plenamente. Discussão/Conclusões/Contribuições. Neste estudo observou-se que a população não tem informação sobre esta lei e expressa seu interesse em conhecer e em afirmar que estão de acordo com uma morte digna, evitar o sofrimento e a dor.

11.
Rev. cuba. salud pública ; 47(3)sept. 2021.
Artículo en Español | LILACS, CUMED | ID: biblio-1409239

RESUMEN

Los dilemas éticos respecto al cuidado al final de la vida son los más delicados e importantes en la práctica médica contemporánea; rebasan el campo de la bioética por sus implicaciones legales, sociales, culturales y religiosas. Independientemente de la universalidad de los postulados bioéticos, estos deben ser contextualizados atendiendo las características propias de cada nación. El panorama demográfico y epidemiológico de Cuba hace que la problemática tenga un comportamiento similar al mundo desarrollado, lo cual nos motivó a realizar un acercamiento teórico a la práctica de la limitación del esfuerzo terapéutico. Para ello partimos de los principios éticos de la nacionalidad cubana, el escenario social-demográfico, el marco legal vigente y la política de salud en el contexto de las transformaciones económicas que vive el país. Esa estrategia terapéutica no guarda relación alguna con la eutanasia y permite retirar del escenario clínico la distanasia. A la vez, constituye un punto de partida hacia los cuidados paliativos con impacto en lo económico y en el ordenamiento eficiente de los servicios de salud potencialmente beneficioso. Existe en la literatura nacional un movimiento favorable respecto a esa práctica médica; pero la principal debilidad en el país es la falta de un marco legal que condene la distanasia y reconozca la limitación del esfuerzo terapéutico como la medida que la evita(AU)


Ethical dilemmas regarding end-of-life care are the most delicate and important in contemporary medical practice; this care goes beyond the field of bioethics due to legal, social, cultural and religious implications. Regardless of the universality of bioethical postulates, they must be contextualized taking into account the characteristics of each nation. The demographic and epidemiological panorama of Cuba makes the problem behave similarly to the developed world, which motivated us to make a theoretical approach to the practice of limiting the therapeutic effort. For this purpose, we start from the ethical principles of Cuban nationality, the social-demographic scenario, the current legal framework and the health policy in the context of the economic transformations that the country is experiencing. This therapeutic strategy is not related to euthanasia and it allows dysthanasia to be removed from the clinical setting. At the same time, it constitutes a starting point towards palliative care with an economic impact and in the efficient organization of potentially beneficial health services. There is a favorable movement in the national literature regarding this medical practice; but the main weakness in the country is the lack of a legal framework that condemns dysthanasia and it recognizes the limitation of therapeutic effort as the measure that avoids it(AU)


Asunto(s)
Humanos , Masculino , Femenino , Derecho a Morir , Cuidados Paliativos al Final de la Vida
12.
J Pers Med ; 11(5)2021 May 19.
Artículo en Inglés | MEDLINE | ID: mdl-34069545

RESUMEN

Due to the interplay of multiple complex and interrelated factors, long-term care (LTC) home residents are increasingly vulnerable to sustaining poor outcomes in crisis situations such as the COVID-19 pandemic. While death is considered an unavoidable end for LTC home residents, the importance of facilitating a good death is one of the primary goals of palliative and end-of-life care. Nurse practitioners (NPs) are well-situated to optimize the palliative and end-of-life care needs of LTC home residents. This study explores the role of NPs in facilitating a dignified death for LTC home residents while also facing increased pressures related to the COVID-19 pandemic. The current exploratory qualitative study employed a phenomenological approach. A purposive sample of 14 NPs working in LTC homes was recruited. Data were generated using semi-structured interviews and examined using thematic analysis. Three categories were derived: (a) advance care planning and goals of care discussions; (b) pain and symptom management at the end-of-life; and (c) care after death. The findings suggest that further implementation of the NP role in LTC homes in collaboration with LTC home team and external partners will promote a good death and optimize the experiences of residents and their care partners during the end-of-life journey.

13.
Semin Oncol Nurs ; 37(3): 151147, 2021 06.
Artículo en Inglés | MEDLINE | ID: mdl-33895014

RESUMEN

OBJECTIVES: In recent years, South Korea has become more concerned about a dignified death and the 'well-dying' law has been enacted. Oncology nurses' perceptions of death are crucial in maintaining dying patients' sense of dignity; fostering their physical, mental, and spiritual quality of life; and ensuring that they die a comfortable death. This study accordingly examined the relationships between attitudes towards a dignified death, compassion competence, resilience, and occupational stress to provide basic data to promote better attitudes towards death among oncology nurses in South Korea. DATA SOURCES: This study, conducted between 2 to 31 January 2018, adopted a descriptive cross-sectional design. Oncology nurses (N = 329) participated, and the differences in their attitudes towards a dignified death correlating to their demographic and work-related characteristics were analysed using t-tests and analyses of variance. Pearson's correlations were used to examine the relationships between nurses' attitudes towards a dignified death, compassion competence, resilience, and occupational stress. CONCLUSION: Participants' attitudes towards a dignified death were weaker than those of the general population but stronger than those of non-oncology nurses. Attitudes towards a dignified death were significantly correlated with compassion competence and resilience-traits that appear to enable nurses' efficient response to various stressful situations. IMPLICATIONS FOR NURSING PRACTICE: Educational programmes should promote nurses' compassion competence and resilience. Nurses should receive death-related education to reduce the stress that arises from providing end-of-life care and enhance their attitudes towards a dignified death.


Asunto(s)
Enfermeras y Enfermeros , Estrés Laboral , Actitud del Personal de Salud , Estudios Transversales , Empatía , Humanos , Calidad de Vida , República de Corea
14.
Wiad Lek ; 74(11 cz 2): 3108-3112, 2021.
Artículo en Inglés | MEDLINE | ID: mdl-35029588

RESUMEN

OBJECTIVE: The aim: To analyze law enforcement practice on the basis of the national legislation of foreign states to single out features of legal regulation of the right to euthanasia realization and to outline the Ukrainian prospects of euthanasia legalization. PATIENTS AND METHODS: Materials and methods: The empirical basis of the research is the legislation of some European countries (Belgium, Spain, Italy, Portugal, and the Netherlands) and Canada; decisions of the European Court of Human Rights on the right to voluntary death and the obligations of states; the results of a survey of 750 respondents conducted by the authors. The methodological basis of the study were philosophical views on life, death, and the right to certainty, formal-logical method (analysis, synthesis, induction, deduction, etc.), comparative, analytical, statistical, sociological methods of cognition, as well as a synergetic approach. CONCLUSION: Conclusions: The issue of legal regulation of euthanasia is multifactorial, socially conditioned, and requires a positive action of the state both in terms of regulation and/or prohibition, and the proper provision of citizens with health care. Legislative support for the human right to a "dignified death" is dictated, to some extent, by society's demand, which must be finally resulted in the draft law. As for Ukraine, the adoption of such a law is obviously premature. Although according to a survey of citizens on euthanasia and the feasibility of introducing such a law in Ukraine, 57% are positive about the experience of other countries, and 41% were in favor of adopting a law in Ukraine, it is not possible to assess their opinion due to ignorance of legislation where euthanasia is allowed.


Asunto(s)
Eutanasia , Valor de la Vida , Europa (Continente) , Derechos Humanos , Humanos , Autonomía Personal , Ucrania
15.
Front Psychol ; 11: 583233, 2020.
Artículo en Inglés | MEDLINE | ID: mdl-33178084
16.
Pers. bioet ; 21(2): 243-258, jul.-dic. 2017.
Artículo en Español | LILACS, BDENF - Enfermería, COLNAL | ID: biblio-955259

RESUMEN

Resumen El profesional de la salud no puede perder de vista que la precariedad es una circunstancia profundamente humana que exige respeto incondicionado del enfermo moribundo. El presente estudio descriptivo es una reflexión biojurídica respecto de la muerte digna en los casos de enfermedades que conllevan largos procesos de deterioro y sufrimiento físico y psíquico. Se tomará en cuenta la legislación comparada y la jurisprudencia más emblemática, a la luz de los derechos fundamentales implicados. Se concluye que es legítimo respetar la voluntad del paciente respecto de su proceso de muerte mientras no se vulnere la dignidad que le es propia: cualquier conducta que lo conduzca a la muerte o se la provoque de manera deliberada no puede permitirse.


Abstract Healthcare professionals cannot lose sight of the fact that precariousness is a deeply human circumstance that demands unconditional respect for the dying patient. This descriptive study is a bio-legislation reflection about dignified death in cases of diseases entailing long processes of deterioration and physical and psychological suffering. Comparative legislation and the most emblematic jurisprudence will be considered, in light of the fundamental rights involved. It is concluded that it is legitimate to respect the patient's wishes regarding his or her dying process, so long as their dignity is not violated: any conduct that leads them to death or which deliberately causes it cannot be allowed.


Resumo O profissional da saúde não pode perder de vista que a precariedade é uma circunstância profundamente humana que exige respeito incondicional ao doente moribundo. O presente estudo descritivo é uma reflexão biojurídica com respeito à morte digna nos casos de doenças que implicam longos processos de deterioração e sofrimento físico e psíquico. A legislação comparada e a jurisprudência mais emblemática serão levadas em consideração à luz dos direitos fundamentais implicados. Conclui-se que é legítimo respeitar a vontade do paciente com respeito a seu processo de morte uma vez que a dignidade que lhe cabe não seja ferida: qualquer conduta que o conduza à morte ou a provoque de maneira deliberada não pode ser permitida.


Asunto(s)
Humanos , Pacientes , Derecho a Morir , Eutanasia , Personeidad , Muerte
17.
Rev. latinoam. bioét ; 17(1)ene.-jun. 2017.
Artículo en Español | LILACS-Express | LILACS | ID: biblio-1536493

RESUMEN

Este artículo aborda de manera reflexiva las incidencias del bioderecho sobre situaciones de eutanasia en Colombia, al interpretar conflictos morales y jurídicos suscitados por las sentencias de la Corte Constitucional C239 de 1997, T970 de 2014 y la Resolución del Ministerio de Salud y Protección Social 1216, de 2015. El propósito fundamental es el análisis de las decisiones judiciales sobre el final de la vida humana. Por lo tanto, se realiza una revisión de la construcción histórica y jurídica del concepto de eutanasia y se propone la discusión sobre su manejo jurídico y su influencia en el colectivo moral. Asimismo, se diserta sobre el concepto de dignidad humana y muerte digna, como precedentes para dirimir los conflictos éticos que la eutanasia suscita. Al final, se analiza el caso de don Ovidio González, quien se convirtió en 2015 en el primer colombiano en recibir la eutanasia de manera legal dentro del sistema de salud.


This paper reflectively addresses the incidence of bio-law on euthanasia situations in Colombia by interpreting moral and legal disputes arising from the sentences of the Constitutional Court C239 of 1997, T970 of 2014, and Resolution 1216 of the Ministry of Health and Social Protection of 2015. The main purpose is the analysis of judicial decisions regarding the end of human life. A review of the historical and legal construction of the euthanasia concept is done, and a discussion of its legal management and its influence on the moral collective is proposed. The concept of human dignity and dignified death are discussed to solve the ethical conflicts that euthanasia causes. Finally, the case of Ovidio González is analyzed; Mr Gonzalez became the first Colombian to receive euthanasia in a legal way within the health system in 2015.


Este artigo aborda de maneira reflexiva as incidências do Biodireito sobre situações de eutanásia na Colômbia, ao interpretar as disputas morais e legais decorrentes das decisões da Corte Constitucional C239 de 1997 T970 de 2014 e a Resolução do Ministério da Saúde e Proteção Social 1216, de 2015. O objetivo principal é a análise das decisões judiciais sobre o fim da vida humana. Portanto, realiza-se uma revisão da construção histórica e jurídica do conceito de eutanásia e propõe-se a discussão de sua administração legal e sua influência sobre o coletivo moral. Igualmente, expõe-se sobre o conceito de dignidade humana e morte digna, como precedentes para resolver os conflitos éticos que a eutanásia suscita. No final, e analisado o caso de Dom Ovidio González, que em 2015 se tornou o primeiro colombiano a receber a eutanásia legalmente no interior do sistema de saúde.

18.
Artículo en Español | LILACS | ID: lil-777916

RESUMEN

Este trabajo se desprende de un proyecto de investigación en curso que se propone conocer cómo se configura el campo discursivo sobre las nuevas leyes civiles en la Argentina, para esclarecer así, de qué manera estos discursos actuales nos sitúan en el problema de la biopolítica. Desde esta perspectiva, el trabajo sobre el discurso jurídico nos permite focalizar ciertos cambios que la sociedad argentina ha experimentado en los últimos años en cuanto a lazos sociales y familiares. Estos cambios, consideramos, surgen, por un lado, de la apropiación ciudadana de los derechos humanos, en un sentido amplio, progresivo y no restrictivo. Y por el otro, a nivel legislativo, del reconocimiento de demandas y reivindicaciones ciudadanas que quedaron incorporadas con fuerza de ley al aparato jurídico, tales como la Ley de Matrimonio Igualitario, la Ley sobre Muerte Digna, la Ley de Identidad de Género y la Ley de Reproducción Médicamente Asistida. Así, la Teoría de los discursos sociales, el Análisis crítico del discurso y las concepciones foucaultianas sobre la biopolítica, son nuestras herramientas de estudio e investigación. Al mismo tiempo, hemos recurrido a la teoría psi-coanalítica para reflexionar y esclarecer algunos in-terrogantes que se han abierto acerca de estas leyes. Desde esta perspectiva, en esta oportunidad, nos interesa plantear algunas primeras reflexiones sobre la Ley de Identidad de Género y la Ley de Muerte Digna. Para ello, situamos la cuestión en un marco mínimo referencial de trabajo lo que nos permite arribar a unas primeras reflexiones sobre el tema...


This work shows an in progress research project that pretends to identify how the discursive field about the new civil laws in Argentina is configured in order to clarify, how these current discourses situate us in the problem of biopolitics. From this perspective, the work on juridical discourse allows us to focus the changes that the argentine society has experienced in recent years in terms of social and family ties. These changes, we believe, come, on one side, citizen ownership of human rights in a broad, progressive and not restrictive. And on the other, at the legislative level, the recognition of citizens demands and claims which were incorporated with force of law in the juridical red as the Equal Marriage Law, the Death with Dignity Law, the Gender Identity Law and the Medically Assisted Reproduction Law. So, the theory of social discourse, the critical discourse analysis and Foucault conceptions of biopolitics, are our tools for study and research. At the same time, we have used psychoanalytic theory to think about and clarify some questions that have been open about these laws. From this perspective, this time, we want to raise some initial reflections on Gender Identity Law and the Death with Dignity Act. To do this, we put the question in a minimum referential framework which allows us to arrive at some initial thoughts on the subject


Asunto(s)
Humanos , Derechos Humanos/legislación & jurisprudencia , Política , Teoría Psicoanalítica , Argentina , Suicidio Asistido/legislación & jurisprudencia
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