RESUMEN
Resumen En el ámbito de la discapacidad intelectual, el desarrollo de una vida independiente se ha configurado como un derecho humano y civil que permite a estas personas articular planes de vida deseados. Esta investigación analiza, mediante un estudio de caso, los significados que un grupo asesor compuesto por ocho personas adultas con discapacidad intelectual tiene sobre el concepto de vida independiente en el contexto chileno. Para la recopilación de los datos se diseñó una entrevista grupal semiestructurada acompañada de moodboards que facilitaron la verbalización de las respuestas. Sobre los relatos obtenidos a partir de las entrevistas se realizó un análisis de contenido temático. Los resultados muestran cómo el desempeño de una actividad laboral remunerada o el establecimiento de relaciones afectivas sólidas se conforman como elementos imprescindibles para la independencia personal. La dificultad para ser económicamente independientes o la falta de accesibilidad en el entorno laboral se identifican también como principales barreras para la concreción de este derecho. Igualmente, se destaca el rol que desempeñan la pareja y las amistades como figuras de apoyo constante a la independencia y al empoderamiento personal. Estos resultados sugieren algunas orientaciones para la planificación de intervenciones sobre este constructo, las cuales deben procurar la adquisición de habilidades que fortalezcan la capacidad de autocuidado de este colectivo, promover el incremento de oportunidades para la realización de elecciones significativas en el ámbito laboral, personal y comunitario, y adaptarse a los espacios en los que se desenvuelven las personas con discapacidad intelectual en la edad adulta.
Abstract In the field of intellectual disability, the development of an independent life has been configured as a human and civil right that allows these people to articulate desired life plans. Despite the advances, at the international level, research on aspects related to independent living in people with intellectual disabilities continues to be very scarce. Generally, the approaches to the study of this construct are based on broader investigations dedicated to evaluating the levels of quality of life or self-determination of this population in residential services or sheltered housing. Precisely, this study analyzes, through a case study, the meanings that an advisory group made up of eight adults with intellectual disabilities has on the concept of independent living in the Chilean context in order, on the one hand, to identify relevant elements for the definition of the construct from the perceptions and experiences of this population; and on the other, to propose guidelines at various levels that allow progress in the realization of this right. To collect the data, a semi-structured group interview was designed whose questions were grouped around four themes: previous conceptions of the participants about the construct of independent life, satisfaction with life and possibilities of the context for the development of personal independence, role of family, friendship and partner in independent life, and opportunities of the work context for the achievement of personal independence. During the interview, another strategy was incorporated in which visual language gained more relevance. Specifically, a set of ten moodboards were used that allowed participants to delve into the different topics addressed. The results of the code validation process were calculated using Krippendorff's alpha statistics (.954) and Cohen's kappa (.953), which showed a high level of inter-judge agreement. As a result of this process, categories (N = 6) and subcategories (N = 17) were established. The results show how various needs, barriers and facilitators for the development of independent life are identified from the interviews of the interviewees. Among the main needs is the performance of a paid work activity or the establishment of solid affective relationships. With regard to the barriers that hinder personal independence, the most notorious are related to the difficulty of being financially independent or to the lack of accessibility in the work environment. Regarding the elements that facilitate the development of an independent life, the role of the couple stands out as a constant figure of support for independence and personal empowerment. These results suggest some guidelines for planning interventions on this construct. Among others, they should seek the acquisition of skills that strengthen the self-care capacity of this group; should promote increased opportunities for making meaningful choices in the workplace, personal and community; and they must adapt to the spaces in which people with intellectual disabilities operate in adulthood. On the other hand, it is assumed that one of the main limitations of this research is that the results are not generalizable. However, this study has some strengths. Among others, it contributes to enriching the bulk of research on independent living, this being an aspect barely addressed in the literature. It also complements the results of other research regarding the elements that can condition the development of skills for personal independence. This allows for the design of interventions that provide opportunities for independent living based on the felt needs of these people. In addition, it raises future lines of research related, for example, to the importance of the informed choice of the residential environment or to the study of the possibilities of the digital world as an incident phenomenon in the acquisition of skills for personal independence.
RESUMEN
Antecedentes: En la adolescencia, se han encontrado múltiples diferencias en la forma en que los varones y las mujeres se perciben a sí mismos. Esto lleva a preguntarse por la forma en que los y las adolescentes se perciben a sí mismos en el futuro, es decir, los posibles sí mismos (PSs) que pueden generar. Objetivo: Indagar las diferencias en función del sexo en los PSs de adolescentes de la Ciudad Autónoma de Buenos Aires (CABA). Método: Participaron adolescentes ( n = 392) de ambos sexos (mujeres = 54.9%) que asistían a escuelas secundarias de la CABA (edad M = 14.92; SD = 1.52). Los adolescentes respondieron un cuestionario de preguntas abiertas en el que se les pidió que realicen un listado de sus PSs cuando terminen el secundario. Se realizó un análisis de contenido temático de las respuestas y conteo de frecuencias. Se utilizaron pruebas de ji cuadrado y U de Mann-Whitney para estudiar las diferencias por sexo en el contenido, diversidad y balance en los PSs. Resultados: Las cuatro categorías más mencionadas de PSs por varones y mujeres fueron el estudio, el trabajo, la profesión, el estilo de vida, y la familia y seres queridos. Sin embargo, existen diferencias en la proporción en que varones y mujeres generaron PSs en varios dominios. Por otro lado, las mujeres presentan mayor diversidad de PSs esperados y deseados que los varones. No se encontraron diferencias en el balance en los PSs. Conclusiones: se observa una coincidencia en los dominios de los PSs mencionados por los varones y las mujeres. Sin embargo, las mujeres tienen una mirada más amplia de sí mismas en el futuro y el dominio de la familia y los seres queridos sigue siendo más prevalente para ellas.
Background: In adolescence, multiple differences have been found in the way boys and girls perceive themselves. This leads to wondering about the way in which adolescents perceive themselves in the future, that is, the possible selves (PSs) that they can generate. Objective: To investigate the differences according to sex in the PSs of adolescents of the Autonomous City of Buenos Aires (CABA). Method: The participants were adolescents ( n = 392) of both sexes (women = 54.9%) who attended secondary schools in the CABA ( M = 14.92, SD = 1.52). The adolescents completed an open-ended questionnaire in which they were asked to make a list of their PSs when they finish high school. A thematic content analysis of responses and a frequency count of categories were conducted. Chi-Square and Mann-Whitney U tests were used to study the differences in content, diversity and balance in the PSs according to sex. Results: The four categories of PSs most mentioned by boys and girls were study, work, profession, lifestyle, and family and loved ones. However, there were differences in the proportion in which males and females generated PSs in several domains. On the other hand, women had more diversity in the expected and desired PSs than men. No differences were found in the balance of the PSs. Conclusions: There is a correspondence between the domains of the PSs mentioned by boys and girls. However, women have a wider view of themselves in the future, and the domain of family and loved ones is still more prevalent in them.