RESUMEN
Since sonographic evaluation of the fetus became routine, prenatally established diagnosis of multiple or severe malformations raises the question of whether a pregnancy should be terminated. To answer this question properly, all aspects concerning the life of a child born with a serious malformation, such as exstrophy of the bladder, must be considered. Therefore, more than ever an evaluation of the quality of life of these patients is necessary to be able to make a solid based decision. We studied the psychosexual and socioeconomic development of 22 adult exstrophy patients (11 men and 11 women) by a standardized personal interview, evaluation of a standard performance test SCL-90 (symptom checklist 1990) and an adapted personality score test. The latter 2 tests are well established and provide reproducible results. Based on several large scale investigations, standard scores are available. Nine women (82%) and 10 men (91%) scored better or in accordance with the standard scores. Exstrophy of the bladder does influence the psychosexual and socioeconomic development. The quality of life is hardly ever considered so poor that termination of pregnancy is a realistic alternative.
Asunto(s)
Extrofia de la Vejiga/psicología , Adulto , Escolaridad , Femenino , Humanos , Entrevistas como Asunto , Masculino , Persona de Mediana Edad , Pruebas de Personalidad , Calidad de Vida , Estudios Retrospectivos , Ajuste Social , Factores Socioeconómicos , Resultado del TratamientoRESUMEN
We reviewed our experience with the pedicled island flap technique in severe urethral strictures, especially in regard of the long-term follow-up of functional parameters: micturition patterns and sexual behavior. Analysis of 59 consecutive cases treated with this approach has proven the value of this technique. The results of a questionnaire and the current clinical status showed that, of the 59 cases, 12 patients were subjectively dissatisfied with their micturition, independent of the results of functional voiding measurements, and 2 patients complained of impaired potency: 1 immediately after the original trauma, the other after the surgical repair. The most frequent reported micturition complaints were only minor: dribbling, nycturia and frequency, mostly already existing before the operation. The objective results, obtained postoperatively by uroflowmetry were good, but often did not correlate with the subjective results. The overall results are satisfactory. Only 3 patients replied to say that they regret having had the open operative procedure.