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Am J Intellect Dev Disabil ; 122(6): 457-475, 2017 11.
Artículo en Inglés | MEDLINE | ID: mdl-29115871

RESUMEN

The objectives were to describe the demographic characteristics of children with Fragile X syndrome (FXS) and to determine predictors of attendance at Fragile X (FX) clinics. Findings from the Community Support Network (CSN) and Our Fragile X World (OFXW) samples showed that children who attended FX Clinics were mostly male, high-school aged or younger, and white, non-Hispanic. Using logistic regression models, awareness about FX Clinic services, guardian education, and income (CSN), and child age, family income, and total number of co-occurring conditions (OFXW) were predictors of clinic attendance. Demographic and child characteristics accounted for a large portion of the explained variance. Importantly, symptom severity and parent knowledge about services were independent predictors beyond the demographic characteristics of families.


Asunto(s)
Síndrome del Cromosoma X Frágil/epidemiología , Síndrome del Cromosoma X Frágil/terapia , Servicio Ambulatorio en Hospital/estadística & datos numéricos , Aceptación de la Atención de Salud/estadística & datos numéricos , Sistema de Registros/estadística & datos numéricos , Grupos de Autoayuda/estadística & datos numéricos , Clase Social , Factores Socioeconómicos , Adolescente , Niño , Preescolar , Femenino , Humanos , Masculino , Estados Unidos/epidemiología
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