RESUMEN
The main characteristic of Moebius syndrome is a lack of facial expressions, which involves stigmatization in many social contexts. We examined whether an applicant with this syndrome would be rated lower in personnel selection despite having equal qualifications. In two experiments, participants rated two applicants. Ratings of an applicant with Moebius syndrome were significantly lower when videos of job interviews had been watched without giving information about the syndrome. However, ratings did not differ when still images had been presented accompanied by an audio track or when participants were informed about Moebius syndrome ahead of the video. Discriminatory decisions in personnel selection could be reduced by educating about stigma, here, a neurologically caused lack of facial expressions.
Asunto(s)
Síndrome de Mobius , Humanos , Masculino , Femenino , Adulto , Selección de Personal , Adulto Joven , Expresión Facial , Discriminación Social , Solicitud de Empleo , Estigma SocialRESUMEN
INTRODUCTION: Moebius syndrome is a rare congenital disorder characterized by congenital facial paralysis and impairment of ocular abduction. The absence of facial expression in people with Moebius syndrome may impair social interaction. The present study aims at replicating prior findings on psychological adjustment in children and adolescents with Moebius syndrome and providing first data on quality of life. PARTICIPANTS AND METHODS: Parents (n=26) and children and adolescents (n=14) with Moebius-Syndrome completed the KINDL(R) (Questionnaire for Measuring Health-Related Quality of Life in Children and Adolescents), the SDQ (Strengths and Difficulties Questionnaire), and a newly devised questionnaire on the global, social, and emotional impact of Moebius syndrome, including a scale that addressed what conjectures were made concerning the thoughts of other people about a child with Moebius syndrome. RESULTS: In comparison with normative data, quality of life was reduced for the subscale Friends (large effect for both parental ratings and self-report) and the Total Score of the KINDL(R). Parents reported elevated levels of peer problems on the respective subscale of the SDQ. In SDQ self-report data, cases classified as abnormal were observed on Peer Problems only. Moebius-specific scales showed adequate reliabilities, and were related, most notably for parent-report, to quality of life. 29% of children reported feelings of anger when being stared at, and wished that they were not affected by Moebius syndrome. CONCLUSIONS: Although most children and adolescents in our sample did not show behavioral problems or reduced quality of life, our results indicate that their emotional and social development should be closely monitored. Maintaining satisfying peer relationships seems to be a special challenge for children and adolescents with Moebius syndrome.