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1.
J Holist Nurs ; 32(1): 35-43, 2014 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-23926216

RESUMEN

PURPOSE: The purpose of the study is to examine liminal experiences of living with the uncertainty of life-threatening illness. Increasing numbers of people with life-threatening illness live in-between the promise of treatment and the threat of recurrence or progression of disease, and yet this experience is not well understood. DESIGN: A narrative inquiry methodology within a constructionist frame was used. METHOD: Semistructured in-depth interviews were conducted with 32 participants from three populations of interest: (a) 10 people living with cancer, (b) 13 people with chronic renal disease, and (c) 9 people living with HIV/AIDS. FINDINGS: An overarching theme of "pervasive liminality" and four narratives are identified: storying into fear(lessness), being alive but not living; knowing and not knowing, and the (in)visibility of disease. CONCLUSIONS: Over time, living with a life-threatening illness produces complex and paradoxical experiences that do not easily fit within familiar categories of experience. Findings highlight pervasive liminal experiences as in-between narratives that are neither problematic nor need to be resolved, and endure over time.


Asunto(s)
Infecciones por VIH/psicología , Salud Holística , Fallo Renal Crónico/psicología , Neoplasias/psicología , Espiritualidad , Adaptación Psicológica , Adulto , Anciano , Humanos , Persona de Mediana Edad , Narrativas Personales como Asunto
2.
Nurse Res ; 21(1): 23-8, 2013.
Artículo en Inglés | MEDLINE | ID: mdl-24004428

RESUMEN

AIM: To present a case example of using an arts-based approach and the development of an art exhibit to disseminate research findings from a narrative research study. BACKGROUND: Once a study has been completed, the final step of dissemination of findings is crucial. In this paper, we explore the benefits of bringing nursing research into public spaces using an arts-based approach. DATA SOURCES: Findings from a qualitative narrative study exploring experiences of living with life-threatening illnesses. REVIEW METHODS: Semi-structured in-depth interviews were conducted with 32 participants living with cancer, chronic renal disease, or HIV/AIDS. Participants were invited to share a symbol representing their experience of living with life-threatening illness and the meaning it held for them. DISCUSSION: The exhibit conveyed experiences of how people story and re-story their lives when living with chronic kidney disease, cancer or HIV. Photographic images of symbolic representations of study participants' experiences and poetic narratives from their stories were exhibited in a public art gallery. The theoretical underpinning of arts-based approaches and the lessons learned in creating an art exhibit from research findings are explored. CONCLUSION: Creative art forms for research and disseminating knowledge offer new ways of understanding and knowing that are under-used in nursing. IMPLICATIONS FOR PRACTICE/RESEARCH: Arts-based approaches make visible patients' experiences that are often left unarticulated or hidden. Creative dissemination approaches such as art exhibits can promote insight and new ways of knowing that communicate nursing research to both public and professional audiences.


Asunto(s)
Arte , Difusión de la Información/métodos , Creatividad , Infecciones por VIH/fisiopatología , Infecciones por VIH/psicología , Humanos , Fallo Renal Crónico/fisiopatología , Fallo Renal Crónico/psicología , Neoplasias/fisiopatología , Neoplasias/psicología
3.
Nephrol Nurs J ; 39(3): 197-204, 2012.
Artículo en Inglés | MEDLINE | ID: mdl-22866359

RESUMEN

This research explores perceptions regarding death and dying among people with chronic kidney disease. The methodology for the study was narrative inquiry informed by social constructivism. In-depth narrative interviews were conducted on two occasions with 14 participants. The participants included 10 men and 4 women (mean age of 66) who were treated in a mid-size Canadian city. Four themes relating to death and dying emerged from the data: awareness of death as a consequence of kidney failure, close calls, contemplation of suicide and/or withdrawal from dialysis, and preparing for death while living life. From the findings, it appeared that participants were very aware of the risk of dying from their illness, experienced serious health crises, and planned for their deaths. They were comfortable in discussing death and dying and acknowledged withdrawal from dialysis as an option.


Asunto(s)
Actitud Frente a la Muerte , Fallo Renal Crónico/psicología , Calidad de Vida , Diálisis Renal/psicología , Adaptación Psicológica , Adulto , Anciano , Anciano de 80 o más Años , Canadá , Femenino , Humanos , Fallo Renal Crónico/terapia , Masculino , Persona de Mediana Edad , Narración , Investigación Cualitativa , Ideación Suicida
4.
J Clin Nurs ; 21(15-16): 2347-56, 2012 Aug.
Artículo en Inglés | MEDLINE | ID: mdl-22788566

RESUMEN

AIMS AND OBJECTIVES: To examine stories of spirituality in people living with serious illness. BACKGROUND: Although knowledge about the experience of people with various chronic illnesses is growing, there is little known about peoples' beliefs and perspectives relating to spirituality where there is a diagnosis of a serious chronic and life-limiting illness. DESIGN OF THE STUDY: A social constructionist approach to narrative inquiry was used. METHODS: In-depth narrative interviews were conducted on one occasion with 32 participants. This included 10 people with cancer, 14 people with end stage renal disease (ESRD) and eight people with HIV/AIDS. They ranged in age from 37-83 and included 18 men and 14 women. RESULTS: The themes were reflecting on spiritual religious and personal beliefs, crafting beliefs for their own lives, finding meaning and transcending beyond words. Participants melded various belief systems to fit their own lives. They also looked to find meaning in their illness experience and described what gave life meaning. For some aspects of these belief systems, participants could not or would not express themselves verbally, and it seemed that aspects of their experience were beyond language. CONCLUSIONS: The stories revealed considerable depth relating to perspectives on life, illness and existential questions, but many participants were not comfortable with the term 'spirituality'. RELEVANCE TO CLINICAL PRACTICE: Nurses must remain open to learning about belief systems of each individual in their care, regardless of that individual's declared religious affiliation or declaration of no religious affiliation, given that personal beliefs and practices do not always fit into specific categories.


Asunto(s)
Adaptación Psicológica , Seropositividad para VIH/psicología , Fallo Renal Crónico/psicología , Neoplasias/psicología , Espiritualidad , Adulto , Anciano , Anciano de 80 o más Años , Femenino , Seropositividad para VIH/fisiopatología , Humanos , Fallo Renal Crónico/fisiopatología , Masculino , Persona de Mediana Edad , Neoplasias/fisiopatología , Narrativas Personales como Asunto , Investigación Cualitativa , Índice de Severidad de la Enfermedad
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