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1.
PLOS Glob Public Health ; 4(9): e0003457, 2024.
Artículo en Inglés | MEDLINE | ID: mdl-39240928

RESUMEN

Person-centered care (PCC) is foundational to improve client's experiences in care while advancing HIV-related outcomes. However, information is scarce on how to assess PCC in HIV treatment settings. This study team developed the PCC assessment tool (PCC-AT) to assess the performance in HIV clinics in Ghana. The objectives of this study were to: (1) pilot the PCC-AT and assess scoring consistency and reliability among clients and providers; and (2) assess content validity of the PCC-AT through client key informant perspectives and experiences. An analysis of similarities and differences in PCC-AT domain scores between ART providers and clients was conducted to assess score reliability. Axial and open coding of transcripts using NVivo identified key themes. Findings indicate that the PCC framework aligns with client's priorities, additionally two out of the three PCC domain scores demonstrated consistency between ART providers and clients. Emerging differences in ART provider and client perspectives highlighted opportunities for growth and underscored the importance of continually gathering client feedback as an integral component of a PCC assessment to continually strengthen ART services.

2.
JMIR Res Protoc ; 13: e54129, 2024 Jul 23.
Artículo en Inglés | MEDLINE | ID: mdl-39042423

RESUMEN

BACKGROUND: Person-centered care (PCC) within HIV treatment services has demonstrated potential to overcome inequities in HIV service access while improving treatment outcomes. Despite PCC being widely considered a best practice, no consensus exists on its assessment and measurement. This study in Zambia builds upon previous research that informed development of a framework for PCC and a PCC assessment tool (PCC-AT). OBJECTIVE: This mixed methods study aims to examine the preliminary effectiveness of the PCC-AT through assessing the association between client HIV service delivery indicators and facility PCC-AT scores. We hypothesize that facilities with higher PCC-AT scores will demonstrate more favorable HIV treatment continuity, viral load (VL) coverage, and viral suppression in comparison to those of facilities with lower PCC-AT scores. METHODS: We will implement the PCC-AT at 30 randomly selected health facilities in the Copperbelt and Central provinces of Zambia. For each study facility, data will be gathered from 3 sources: (1) PCC-AT scores, (2) PCC-AT action plans, and (3) facility characteristics, along with service delivery data. Quantitative analysis, using STATA, will include descriptive statistics on the PCC-AT results stratified by facility characteristics. Cross-tabulations and/or regression analysis will be used to determine associations between scores and treatment continuity, VL coverage, and/or viral suppression. Qualitative data will be collected via action planning, with detailed notes collected and recorded into an action plan template. Descriptive coding and emerging themes will be analyzed with NVivo software. RESULTS: As of May 2024, we enrolled 29 facilities in the study and data analysis from the key informant interviews is currently underway. Results are expected to be published by September 2024. CONCLUSIONS: Assessment and measurement of PCC within HIV treatment settings is a novel approach that offers HIV treatment practitioners the opportunity to examine their services and identify actions to improve PCC performance. Study results and the PCC-AT will be broadly disseminated for use among all project sites in Zambia as well as other HIV treatment programs, in addition to making the PCC-AT publicly available to global HIV practitioners. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/54129.


Asunto(s)
Infecciones por VIH , Instituciones de Salud , Atención Dirigida al Paciente , Zambia , Humanos , Estudios Transversales , Infecciones por VIH/terapia , Infecciones por VIH/diagnóstico
3.
HIV Res Clin Pract ; 25(1): 2371174, 2024 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-38944816

RESUMEN

BACKGROUND: Zimbabwe antenatal HIV prevalence rate is 16.1%. HIV-positive pregnant adolescent girls and young women (AYW) are at high risk to experience perinatal mental health challenges, attributed to a combination of factors including HIV status, stigma and perinatal depression. Perinatal depression and stigma among AYW is understudied in Zimbabwe and may affect short- and long-term health of HIV positive mothers and their children, and can impact treatment adherence. METHODS: Qualitative data was gathered from four focus group discussions with (2 urban and 2 rural) PMTCT providers (N = 17). Focus group discussions were also conducted among AYW clients (N = 20) from two clinics in Mashonaland East. RESULTS: Qualitative analyses identified patterns related to: (1) drop out and loss to follow up, (2) retention and adherence, (3) recurring feelings of internalized stigma; and (4) acceptability of potential MH interventions. MH services are not available and AYW have limited access to adherence counseling (1-2 times at onset). Psychological support was not available at either clinic, despite both providers and clients perceiving high rates of stigma, discrimination, and challenges with disclosure. Challenges related to long waits for ART distribution and gaps in disclosure support emerged as barriers. Providers noted that AYW present as anxious (non-diagnosed), and attribute depression to those clients who are lost to follow up, stating lack of time to screen for MH related issues or actively refer them for services. Challenges related to the ability to provide strong advice and support for disclosure also emerged among providers. CONCLUSIONS: This study can contribute to policy and practice recommendations to better integrate MH into HIV services and develop person-centered service models for HIV positive AYW. HIGHLIGHTSPerinatal adolescents and young women (AYW) living with HIV have gaps in retention and care in the current Zimbabwe PMTCT service model.Mental health stigma must be addressed to integrate mental health into HIV services.HIV providers are aware of the need to provide mental health support to reduce loss to follow-up.Mental health screening and referrals for services are not part of standard care for perinatal HIV positive AYW in Zimbabwe.Linkages between disclosure and AYW mental health was identified as a challenge by HIV providers.Context responsive interventions can support integration of mental health screening, services, and referrals.


Asunto(s)
Grupos Focales , Infecciones por VIH , Transmisión Vertical de Enfermedad Infecciosa , Estigma Social , Humanos , Femenino , Zimbabwe/epidemiología , Adolescente , Infecciones por VIH/psicología , Infecciones por VIH/tratamiento farmacológico , Adulto Joven , Embarazo , Transmisión Vertical de Enfermedad Infecciosa/prevención & control , Adulto , Investigación Cualitativa , Complicaciones Infecciosas del Embarazo/psicología , Complicaciones Infecciosas del Embarazo/epidemiología , Aceptación de la Atención de Salud/estadística & datos numéricos , Aceptación de la Atención de Salud/psicología
4.
HIV Res Clin Pract ; 25(1): 2312319, 2024 Feb.
Artículo en Inglés | MEDLINE | ID: mdl-38348872

RESUMEN

Person-centered care (PCC) aims to improve client's experiences in HIV care while advancing outcomes. This study team developed the PCC assessment tool (PCC-AT) to assess PCC service performance in HIV treatment settings in Ghana. Study objectives aimed to describe the range of PCC-AT scores within and across study facilities and examine the feasibility of PCC-AT implementation in diverse HIV treatment settings. The PCC-AT was piloted at five health facilities providing HIV services among 37 staff. Immediately following each pilot, focus group discussions (FGDs) were conducted to gather feasibility data. Thematic qualitative analysis was conducted on translated FGD transcripts. Across facilities, providers scored highest in the staffing domain, followed by service provision, and direct client support. Time required to implement the PCC-AT averaged 62 minutes. Providers described the tool as well-structured, user-friendly, relevant, reflective of the core PCC delivery elements, and useful in elucidating actions to improve PCC service delivery across domains. The PCC-AT holds potential to strengthen activities that support clients' broader clinical, mental and psychosocial wellbeing by offering friendly services that attend to each client's holistic needs while contributing progress towards epidemic control.


Asunto(s)
Infecciones por VIH , Atención Dirigida al Paciente , Humanos , Ghana , Estudios de Factibilidad , Grupos Focales , Infecciones por VIH/tratamiento farmacológico , Infecciones por VIH/psicología
5.
PLoS One ; 19(1): e0295818, 2024.
Artículo en Inglés | MEDLINE | ID: mdl-38181001

RESUMEN

INTRODUCTION: Evidence suggests that person-centered care (PCC) has the potential to overcome inequities in access to HIV services, support quality care that is responsive to diverse needs while increasing efficiencies and resilience of the health system. Despite emerging evidence on the effectiveness of PCC, there is limited information available on how to assess it in diverse clinical settings. This work builds upon a systematic literature review published elsewhere by this study team to develop a PCC framework for HIV treatment service delivery. OBJECTIVES: The PCC framework informed the development of the PCC assessment tool (PCC-AT) to assess the degree to which PCC activities are operationalized in diverse HIV treatment settings. The study objectives are to assess: (1) content validity of the PCC framework; (2) PCC-AT score consistency and reliability between health facility staff and clients; and (3) PCC-AT feasibility in HIV treatment settings. METHODS: The study team will pilot the PCC-AT among staff in five health facilities and conduct subsequent focus group discussions (FGDs) to determine PCC-AT feasibility. Key informant interviews (KIIs) with clients will explore content validity among PLHIV relative to each subdomain of the PCC-AT and provide a basis to compare score concordance. Quantitative data among health facility staff will examine how many and which cadres participated in the PCC-AT pilot and FGD, years of experience, gender, and the time required to complete the PCC-AT. Information on clients will include total time accessing treatment at the study health facility, years since diagnosis, age and gender. Qualitative data analysis, using descriptive coding with NVivo or a similar software, will be drawn from transcripts from the PCC-AT pilots, FGDs and KIIs. DISCUSSION: PCC assessment is a novel approach that aims to help health facilities assess and strengthen their ability to deliver PCC services to improve client outcomes.


Asunto(s)
Infecciones por VIH , Atención Dirigida al Paciente , Humanos , Ghana , Proyectos Piloto , Reproducibilidad de los Resultados , Infecciones por VIH/tratamiento farmacológico , Revisiones Sistemáticas como Asunto
6.
Trop Med Int Health ; 27(5): 479-493, 2022 05.
Artículo en Inglés | MEDLINE | ID: mdl-35316549

RESUMEN

OBJECTIVES: Person-centred care (PCC) meets the needs of individuals by increasing convenience, providing supportive and culturally appropriate services to diverse populations, and engaging families, communities, and stakeholders in planning and provision of care. While the evidence demonstrates that PCC approaches can lead to clinical improvements across the HIV care continuum, it is not yet well defined in the context of HIV service delivery. METHODS: A systematic review was conducted to define PCC practices for HIV treatment services in health facilities in sub-Saharan Africa. Data synthesis led to the development of a PCC framework including domain and sub-domain development. The study team used the Effective Public Health Project Practice tool for quantitative studies to assess the quality of the included studies. RESULTS: Thirty-one studies from 12 countries met the inclusion criteria, including 56,586 study participants (females 42%-100% and males 0%-58%), resulting in three major domains and 11 sub-domains. These include staffing (sub-domains of composition, availability, and competency); service delivery standards (sub-domains of client feedback mechanisms; service efficiency and integration; convenience and access; and digital health worker support tools); and direct client support services (sub-domains of psychosocial services, logistics support, client-agency, and digital client support tools). Twenty-five of the person-centred interventions within these domains resulted in improvements in linkage to care, treatment retention, and/or viral suppression. CONCLUSIONS: The PCC framework can help to provide a more consistent classification of HIV treatment interventions and will support improved assessment of these interventions to ensure that people receive personalised care.


Asunto(s)
Infecciones por VIH , Instituciones de Salud , África del Sur del Sahara , Femenino , Infecciones por VIH/tratamiento farmacológico , Humanos , Masculino , Atención Dirigida al Paciente/métodos
7.
J Assoc Nurses AIDS Care ; 30(5): e132-e143, 2019.
Artículo en Inglés | MEDLINE | ID: mdl-31135515

RESUMEN

Emerging HIV treatment distribution models across sub-Saharan Africa seek to overcome barriers to attaining antiretroviral therapy and to strengthen adherence in people living with HIV. We describe enablers, barriers, and benefits of differentiated treatment distribution models in South Africa, Uganda, and Zimbabwe. Data collection included semistructured interviews and focus group discussions with 163 stakeholders from policy, program, and patient levels. Four types of facility-based and 3 types of community-based models were identified. Enablers included policy, leadership, and guidance; functional information systems; strong care linkages; steady drug supply; patient education; and peer support. Barriers included insufficient drug supply, stigma, discrimination, and poor care linkages. Benefits included perceived improved adherence, peer support, reduced stigma and discrimination, increased time for providers to spend with complex patients, and travel and cost savings for patients. Differentiated treatment distribution models can enhance treatment access for patients who are clinically stable.


Asunto(s)
Fármacos Anti-VIH/provisión & distribución , Antirretrovirales/provisión & distribución , Terapia Antirretroviral Altamente Activa/métodos , Servicios de Salud Comunitaria/organización & administración , Infecciones por VIH/tratamiento farmacológico , Cumplimiento de la Medicación/psicología , Atención Dirigida al Paciente , Estigma Social , Fármacos Anti-VIH/uso terapéutico , Antirretrovirales/uso terapéutico , Femenino , Grupos Focales , Infecciones por VIH/psicología , Accesibilidad a los Servicios de Salud , Humanos , Entrevistas como Asunto , Masculino , Cumplimiento de la Medicación/estadística & datos numéricos , Grupo de Atención al Paciente , Desarrollo de Programa , Investigación Cualitativa , Capital Social , Sudáfrica , Uganda , Zimbabwe
8.
J Assoc Nurses AIDS Care ; 30(5): 511-520, 2019.
Artículo en Inglés | MEDLINE | ID: mdl-30720561

RESUMEN

Scale-up of antiretroviral therapy (ART) for people living with HIV requires differentiated models of ART delivery to improve access and contribute to achieving viral suppression for 95% of people on ART. We examined barriers and enablers in South Africa via semistructured interviews with 33 respondents (program implementers, nurses, and other health care providers) from 11 organizations. The interviews were recorded, transcribed, and analyzed for emerging themes using NVivo 11 software. Major enablers of ART delivery included model flexibility, provision of standardized guidance, and an increased focus on person-centered care. Major barriers were related to financial, human, and space resources and the need for time to allow buy-in. Stigma emerged as both a barrier and an enabler. Findings suggest that creating and strengthening models that cater to client needs can achieve better health outcomes. South Africa's efforts can inform emerging models in other settings to achieve epidemic control.


Asunto(s)
Fármacos Anti-VIH/provisión & distribución , Antirretrovirales/provisión & distribución , Terapia Antirretroviral Altamente Activa/métodos , Servicios de Salud Comunitaria/organización & administración , Infecciones por VIH/tratamiento farmacológico , Personal de Salud/psicología , Accesibilidad a los Servicios de Salud , Cumplimiento de la Medicación/psicología , Atención Dirigida al Paciente , Estigma Social , Fármacos Anti-VIH/uso terapéutico , Antirretrovirales/uso terapéutico , Actitud del Personal de Salud , Investigación Participativa Basada en la Comunidad , Femenino , Grupos Focales , Infecciones por VIH/epidemiología , Infecciones por VIH/psicología , Humanos , Entrevistas como Asunto , Cumplimiento de la Medicación/estadística & datos numéricos , Grupo de Atención al Paciente , Investigación Cualitativa , Sudáfrica
9.
AIDS Care ; 30(8): 1010-1016, 2018 08.
Artículo en Inglés | MEDLINE | ID: mdl-29471667

RESUMEN

In response to global trends of maximizing the number of patients receiving antiretroviral therapy (ART), this review summarizes literature describing differentiated models of ART distribution at facility and community levels in order to highlight promising strategies and identify evidence gaps. Databases and gray literature were searched, yielding thirteen final articles on differentiated ART distribution models supporting stable adult patients. Of these, seven articles focused on distribution at facility level and six at community level. Findings suggest that differentiated models of ART distribution contribute to higher retention, lower attrition, and less loss to follow-up (LTFU). These models also reduced patient wait time, travel costs, and time lost from work for drug pick-up. Facility- and community-level ART distribution models have the potential to extend treatment availability, enable improved access and adherence among people living with HIV (PLHIV), and facilitate retention in treatment and care. Gaps remain in understanding the desirability of these models for PLHIV, and the need for more information the negative and positive impacts of stigma, and identifying models to reach traditionally marginalized groups such as key populations and youth. Replicating differentiated care so efforts can reach more PLHIV will be critical to scaling these approaches across varying contexts.


Asunto(s)
Fármacos Anti-VIH/uso terapéutico , Infecciones por VIH/tratamiento farmacológico , Adolescente , Adulto , Femenino , Humanos , Masculino , Estigma Social
10.
J Assoc Nurses AIDS Care ; 28(2): 186-198, 2017.
Artículo en Inglés | MEDLINE | ID: mdl-26525564

RESUMEN

Alcohol use and depression negatively impact adherence, retention in care, and HIV progression, and people living with HIV (PLWH) have disproportionately higher depression rates. In developing countries, more than 76% of people with mental health issues receive no treatment. We hypothesized that stepped-care mental health/HIV integration provided by multiple service professionals in Zimbabwe would be acceptable and feasible. A three-phase mixed-method design was used with a longitudinal cohort of 325 nurses, community health workers, and traditional medicine practitioners in nine communities. During Phase 3, 312 PLWH were screened by nurses for mental health symptoms; 28% were positive. Of 59 PLWH screened for harmful alcohol and substance use, 36% were positive. Community health workers and traditional medicine practitioners screened 123 PLWH; 54% were positive for mental health symptoms and 29% were positive for alcohol and substance abuse. Findings indicated that stepped-care was acceptable and feasible for all provider types.


Asunto(s)
Técnicos Medios en Salud , Agentes Comunitarios de Salud , Prestación Integrada de Atención de Salud , Infecciones por VIH/tratamiento farmacológico , Trastornos Mentales/terapia , Enfermeras y Enfermeros , Trastornos Relacionados con Sustancias/terapia , Trastornos Relacionados con Alcohol/terapia , Relaciones Comunidad-Institución , Estudios de Factibilidad , Infecciones por VIH/psicología , Humanos , Salud Mental , Aceptación de la Atención de Salud , Proyectos Piloto , Recursos Humanos , Zimbabwe
11.
AIDS Care ; 28 Suppl 2: 110-7, 2016 03.
Artículo en Inglés | MEDLINE | ID: mdl-27392006

RESUMEN

Children affected by HIV and AIDS have significantly higher rates of mental health problems than unaffected children. There is a need for research to examine how social support functions as a source of resiliency for children in high HIV-prevalence settings such as South Africa. The purpose of this research was to explore how family social support relates to depression, anxiety, and post-traumatic stress (PTS). Using the ecological model as a frame, data were drawn from a 2011 cross-sectional study of 1380 children classified as either orphaned by AIDS and/or living with an AIDS sick family member. The children were from high-poverty, high HIV-prevalent rural and urban communities in South Africa. Social support was analyzed in depth by examining the source (e.g. caregiver, sibling) and the type (e.g. emotional, instrumental, quality). These variables were entered into multiple regression analyses to estimate the most parsimonious regression models to show the relationships between social support and depression, anxiety, and PTS symptoms among the children. Siblings emerged as the most consistent source of social support on mental health. Overall caregiver and sibling support explained 13% variance in depression, 12% in anxiety, and 11% in PTS. Emotional support was the most frequent type of social support associated with mental health in all regression models, with higher levels of quality and instrumental support having the strongest relation to positive mental health outcomes. Although instrumental and quality support from siblings were related to positive mental health, unexpectedly, the higher the level of emotional support received from a sibling resulted in the child reporting more symptoms of depression, anxiety, and PTS. The opposite was true for emotional support provided via caregivers, higher levels of this support was related to lower levels of all mental health symptoms. Sex was significant in all regressions, indicating the presence of moderation.


Asunto(s)
Ansiedad/psicología , Cuidadores/psicología , Depresión/psicología , Infecciones por VIH/psicología , Hermanos/psicología , Apoyo Social , Síndrome de Inmunodeficiencia Adquirida/psicología , Adolescente , Adulto , Niño , Niños Huérfanos/psicología , Estudios Transversales , Trastorno Depresivo/psicología , Femenino , Humanos , Estudios Longitudinales , Masculino , Salud Mental , Pobreza , Calidad de Vida , Población Rural , Sudáfrica , Trastornos por Estrés Postraumático/psicología , Encuestas y Cuestionarios , Población Urbana
12.
Confl Health ; 5: 11, 2011 Jul 13.
Artículo en Inglés | MEDLINE | ID: mdl-21752241

RESUMEN

BACKGROUND: Despite the serious consequences of conflict for reproductive health, populations affected by conflict and its aftermath face tremendous barriers to accessing reproductive health services, due to insecurity, inadequate numbers of trained personnel and lack of supplies. Family planning is often particularly neglected. METHODS: In six conflict-affected areas in Sudan, northern Uganda and the Democratic Republic of Congo, household surveys of married or in-union women of reproductive age were conducted to determine baseline measures of family planning knowledge, attitudes and behaviors regarding contraception. Health facility assessments were carried out to assess baseline measures of family planning services availability. Data were double-entered into CSPro 3.2 and exported to SAS 9.2, which was used to calculate descriptive statistics. The studies' purposes were to guide program activities and to serve as a baseline against which program accomplishments could be measured. RESULTS: Knowledge of modern contraceptive methods was low relative to other sub-Saharan African countries, and use of modern methods was under 4% in four sites; in two sites with prior family planning services it was 12% and 16.2%. From 30% to 40% of women reported they did not want a child within two years, however, and an additional 12% to 35% wanted no additional children, suggesting a clear need for family planning services. The health facilities assessment showed that at most only one-third of the facilities mandated to provide family planning had the necessary staff, equipment and supplies to do so adequately; in some areas, none of the facilities were prepared to offer such services. CONCLUSIONS: Family planning services are desired by women living in crisis situations when offered in a manner appropriate to their needs, yet services are rarely adequate to meet these needs. Refugee and internally displaced women must be included in national and donors' plans to improve family planning in Africa.

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