RESUMEN
BACKGROUND: French laypeople's views on living organ donation (LOD) were examined. METHODS: From 2010 to 2014, 327 adults (including 21 nurses) judged the acceptability of LOD in 60 realistic scenarios composed of all combinations of 5 factors: 1. type of organ; 2. whether it could have been obtained from a cadaver; 3. donor-recipient relationship; 4. donor's level of autonomy; 5. financial compensation; and 6. patients' level of responsibility for their illness. In all scenarios, the patients were in need of a kidney or liver transplantation. The ratings were subjected to cluster analysis and analyses of variance. RESULTS: Five qualitatively different positions were found that were termed Free Market (22%), Pragmatism (15%), Altruism (48%), Always Acceptable (7%), and Undetermined (8%). Nurses comprised the majority (90%) of the members of the altruism cluster. Younger and more-educated people were, more frequently than older and less-educated people, members either of the pragmatism or of the free market cluster. CONCLUSIONS: Half of French adults support the altruism model of LOD. A substantial minority, however, mostly young and more educated people, support alternative models allowing the introduction of financial incentives.
Asunto(s)
Conocimientos, Actitudes y Práctica en Salud , Donadores Vivos , Donantes de Tejidos/provisión & distribución , Obtención de Tejidos y Órganos , Adulto , Altruismo , Compensación y Reparación/ética , Femenino , Francia , Humanos , Masculino , Motivación , Trasplante de Órganos/psicología , Obtención de Tejidos y Órganos/ética , Obtención de Tejidos y Órganos/métodosRESUMEN
BACKGROUND: What to tell children when their mother's life is seriously endangered is a largely unstudied issue. METHODS: We had 255 lay persons in France judge the appropriateness of the parents' behaviour in 48 scenarios of parents dealing with this problem. The scenarios comprised according to a four within-subject orthogonal design: child's age (4, 6, 8 or 10 years), severity of disease (lethal or worrisome but curable), child's concern or not about his or her mother's illness and parents' decision about how much to tell (tell nothing, minimize or tell the full truth). RESULTS: Cluster analysis revealed four clusters, labelled 'always tell the truth' (33%), 'tell the truth or minimize' (16%), 'tell nothing or minimize' (22%) and 'depends on child's age and level of concern' (29%). Women and participants who had already faced breaking bad news like this to children were more frequently members of the two 'tell the truth' clusters than other participants. CONCLUSIONS: People who have already experienced a situation of having to tell a child about their mother's bad health tend to think, more than others, that telling the truth is the best policy.
Asunto(s)
Hijo de Padres Discapacitados , Acontecimientos que Cambian la Vida , Relaciones Madre-Hijo/psicología , Madres , Enfermo Terminal , Revelación de la Verdad , Niño , Conducta Infantil , Preescolar , Análisis por Conglomerados , Femenino , Francia/epidemiología , Guías como Asunto , Humanos , Masculino , Madres/psicología , Psicología InfantilRESUMEN
BACKGROUND: Bad health news is difficult to communicate, especially when parents must give bad news to their children. METHODS: We had 170 lay persons, 33 nurses and six physicians in Toulouse, France, judge the appropriateness of the parents' behaviour in 64 scenarios of parents dealing with this problem. The scenarios were composed according to a four within-subject orthogonal design: child's age (4, 6, 8 or 10), severity of disease (lethal or worrisome but curable), child's concern or not about his illness and parents' decision about communicating the news (tell nothing, minimize, tell the truth or ask the physician to tell the truth). RESULTS: Cluster analysis revealed four clusters, labelled 'Always Tell the Truth' (33%, including a majority of doctors and nurses), 'Tell Nothing or Minimize' (16%, with an older average age), 'Tell the Truth Except in Cases of Incurable Illness' (22%) and 'Depends on Child's Characteristics' (29%). CONCLUSIONS: Physicians in training and in practice need to be aware that lay people--and likely parents as well--have diverse and complex opinions about when and how parents should give bad health news to their children.
Asunto(s)
Actitud del Personal de Salud , Conducta Infantil/psicología , Relaciones Padres-Hijo , Padres , Revelación de la Verdad , Adulto , Factores de Edad , Anciano , Anciano de 80 o más Años , Actitud Frente a la Salud , Niño , Preescolar , Análisis por Conglomerados , Femenino , Francia , Humanos , Masculino , Persona de Mediana Edad , Enfermeras y Enfermeros , Padres/psicología , Médicos , Psicología Infantil , Índice de Severidad de la Enfermedad , Revelación de la Verdad/éticaRESUMEN
OBJECTIVES: To clarify how lay people and health professionals judge the acceptability of ending the life of a terminally ill patient. DESIGN: Participants judged this acceptability in a set of 16 scenarios that combined four factors: the identity of the actor (patient or physician), the patient's statement or not of a desire to have his life ended, the nature of the action as relatively active (injecting a toxin) or passive (disconnecting life support), and the type of suffering (intractable physical pain, complete dependence, or severe psychiatric illness). PARTICIPANTS: 115 lay people and 72 health professionals (22 nurse's aides, 44 nurses, six physicians) in Toulouse, France. MAIN MEASUREMENTS: Mean acceptability ratings for each scenario for each group. RESULTS: Life ending interventions are more acceptable to lay people than to the health professionals. For both, acceptability is highest for intractable physical suffering; is higher when patients end their own lives than when physicians do so; and, when physicians are the actors, is higher when patients have expressed a desire to die (voluntary euthanasia) than when they have not (involuntary euthanasia). In contrast, when patients perform the action, acceptability for the lay people and nurse's aides does not depend on whether the patient has expressed a desire to die, while for the nurses and physicians unassisted suicide is more acceptable than physician assisted suicide. CONCLUSIONS: Lay participants judge the acceptability of life ending actions in largely the same way as do healthcare professionals.
Asunto(s)
Eutanasia Activa/ética , Cuidado Terminal/ética , Enfermo Terminal , Adolescente , Adulto , Actitud del Personal de Salud , Actitud Frente a la Salud , Eutanasia Activa/psicología , Eutanasia Activa Voluntaria/ética , Eutanasia Activa Voluntaria/psicología , Femenino , Humanos , Masculino , Cuerpo Médico/psicología , Persona de Mediana Edad , Personal de Enfermería/psicología , Dolor Intratable/psicología , Suicidio Asistido/ética , Suicidio Asistido/psicología , Cuidado Terminal/psicologíaRESUMEN
OBJECTIVES: To discover what factors affect lay people's judgments of the acceptability of physician assisted suicide and euthanasia and how these factors interact. DESIGN: Participants rated the acceptability of either physician assisted suicide or euthanasia for 72 patient vignettes with a five factor design--that is, all combinations of patient's age (three levels); curability of illness (two levels); degree of suffering (two levels); patient's mental status (two levels), and extent of patient's requests for the procedure (three levels). PARTICIPANTS: Convenience sample of 66 young adults, 62 middle aged adults, and 66 older adults living in western France. MAIN MEASUREMENTS: In accordance with the functional theory of cognition of N H Anderson, main effects, and interactions among patient factors and participants' characteristics were investigated by means of both graphs and ANOVA. RESULTS: Patient requests were the most potent determinant of acceptability. Euthanasia was generally less acceptable than physician assisted suicide, but this difference disappeared when requests were repetitive. As their own age increased, participants placed more weight on patient age as a criterion of acceptability. CONCLUSIONS: People's judgments concur with legislation to require a repetition of patients' requests for a life ending act. Younger people, who frequently are decision makers for elderly relatives, place less emphasis on patient's age itself than do older people.
Asunto(s)
Actitud Frente a la Muerte , Eutanasia/ética , Suicidio Asistido/ética , Adulto , Factores de Edad , Anciano , Actitud Frente a la Salud , Eutanasia/psicología , Femenino , Humanos , Masculino , Salud Mental , Persona de Mediana Edad , Calidad de Vida , Suicidio Asistido/psicología , Enfermo Terminal , Valor de la VidaRESUMEN
PURPOSE: To investigate predictors of quality of life in refractive surgery: psychological status, quality of vision, visual acuity, and patient satisfaction. METHODS: In a prospective study, 143 patients were evaluated preoperatively and after the third postoperative month using the same questionnaire. Quality of vision, visual acuity, well-being, self-esteem, coping, and patient satisfaction were analyzed with 47 parameters. Refractive procedures included PRK, LASIK, and phakic IOL. Four groups of low (G1), medium (G2), and high myopia (G3) and hyperopia (G4) were individualized to compare the results. RESULTS: We noted a mean postoperative best corrected visual acuity (BCVA) of 20/25 or more for the G1, G2, and G4 groups. For the G3 group, the mean BCVA was increased, with a gain of two Snellen Lines from 20/50 to 20/32. Postoperative patient satisfaction improved, with a significant difference (p<0.05) in all groups. We noted no significant difference in all myopic groups in well-being and no significant decrease in G4. Concerning self-esteem and coping, scores improved, with a significant difference in G3 group (p<0.05). Quality of vision was directly correlated with improvement of quality of life (psychological status), satisfaction scores, and BCVA preoperatively and postoperatively in all patients, but no correlation was noted between visual acuity and patient satisfaction. CONCLUSION: In spite of good refractive results, modification of patient satisfaction depends on quality of vision and quality of life (psychological status) scores. These results give us a new tool that provides useful additional information in refractive surgery.
Asunto(s)
Hiperopía/cirugía , Queratomileusis por Láser In Situ/psicología , Implantación de Lentes Intraoculares/psicología , Miopía/cirugía , Queratectomía Fotorrefractiva/psicología , Calidad de Vida , Adulto , Femenino , Humanos , Hiperopía/psicología , Láseres de Excímeros , Masculino , Persona de Mediana Edad , Miopía/psicología , Satisfacción del Paciente , Estudios Prospectivos , Encuestas y Cuestionarios , Visión Ocular , Agudeza VisualRESUMEN
BACKGROUND: in helping patients decide about treatments, such as whether to authorize cardiopulmonary resuscitation (CPR), physicians typically present information about the possible outcomes and their likelihoods. The aim of this study was to elicit patient disutilities for the adverse outcomes of cardiopulmonary resuscitation (CPR) using the methodology of NH Anderson's functional theory of cognition and to determine how patients integrate the disutility and the likelihood of an outcome. METHODS: 77 French adults rated scenarios of possible outcomes of CPR on a linear scale with anchors "what would be the best (or worst) for me." In 25 of the 27 scenarios, the result would be either total recovery or one of five adverse outcomes (chest injury, mild reversible brain damage, severe irreversible brain damage, death after intensive care, immediate death) with one of five likelihoods (one to five chances out of ten). In the other two, the only possible result was either total recovery or immediate death. RESULTS: the mean disutilities relative to 0 for chest injury and 100 for severe brain damage were 13 for mild brain injury, 68 for death after intensive care, and 69 for immediate death. The graphs of the ratings of each adverse outcome in relation to its frequency were fan-shaped, showing that participants integrated this information multiplicatively. CONCLUSIONS: the functional theory of cognition provides an alternate method of eliciting patient utilities for the outcomes of CPR and supports clinicians' assumption that people combine utility and likelihood multiplicatively.
Asunto(s)
Reanimación Cardiopulmonar/efectos adversos , Aceptación de la Atención de Salud , Adulto , Anciano , Análisis de Varianza , Cognición , Árboles de Decisión , Femenino , Humanos , Consentimiento Informado , Masculino , Persona de Mediana Edad , Aceptación de la Atención de Salud/estadística & datos numéricos , Calidad de VidaRESUMEN
OBJECTIVE: The objective was to study people's judgments, through the use of external indices, of their expected degree of inebriation and to characterize the cognitive processes involved in making these judgments. METHOD: The participants were 143 adults living in France. In accordance with N. H. Anderson's functional theory of cognition (1982, 1996), their primary task was to read 64 cards depicting drinking situations characterized by three parameters: number of glasses, type of drink, and temporal relation to eating; to associate with each situation a certain degree of personal intoxication; and to indicate this degree of expected intoxication on linear scale anchored by Not at all drunk and Extremely drunk. RESULTS: Participants were able to judge the general direction and combination of effects. They indicated incorrectly, however, that incremental effects decrease at higher levels of consumption (4 or more glasses) and at higher concentrations of alcohol in a drink. On the other hand, they indicated correctly that eating food decreases the impact of drinking alcohol. Drinkers and nondrinkers used different rules for self-assessment from external indices. IMPICATIONS: The systematic errors in both drinkers' and nondrinkers' use of external clues could, unless corrected, result in their becoming more inebriated than intended.