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1.
BMC Med ; 21(1): 370, 2023 10 02.
Artículo en Inglés | MEDLINE | ID: mdl-37784145

RESUMEN

BACKGROUND: Perinatal mental illness affects one third of new and expectant mothers. Individuals from ethnic minority groups experience higher rates of mental health problems and higher suicide rates. Despite this, women from ethnic minorities-Black and South Asian women in particular-are less likely to receive support from mental health services in the perinatal period. Healthcare professionals (HCPs) who have contact with women during this period have a unique perspective, and their views may provide insights to understand and remedy this health inequality. This study aimed to identify healthcare professionals' views on the current accessibility and acceptability of perinatal mental health services, and ways of improving services by addressing the barriers for these women. METHODS: Semi-structured interviews were conducted with twenty-four healthcare professionals who work with patients in the perinatal period. Purposive sampling was used to select HCPs from a range of different professions (including mental health staff, midwifery, primary care, social care). The data were analysed using Framework Analysis. RESULTS: Three main themes were identified from the data: (1) lack of awareness and understanding of perinatal mental illness and service structure in both healthcare professionals and patients; (2) patients' relationships with family, friends and healthcare professionals can both hinder and facilitate access to services; (3) healthcare professionals encourage raising awareness, flexibility, developing shared understandings and questioning assumptions to improve the accessibility and acceptability of services. CONCLUSION: Key insights into explaining and remedying the health inequalities observed between ethnic groups were proposed by healthcare professionals. Recommendations included sharing information; taking steps to ensure each woman was considered as an individual in her relationship with her culture, ethnicity and childrearing practices; and healthcare professionals addressing their possible unconscious biases through engaging in personal reflexive practices. Reasons these are currently not being implemented deserve further research, and the potential of novel roles such as peer support workers in bridging the space between ideals and practice needs further investigation.


Asunto(s)
Etnicidad , Servicios de Salud Mental , Humanos , Embarazo , Femenino , Disparidades en el Estado de Salud , Grupos Minoritarios , Atención a la Salud
2.
Front Psychiatry ; 14: 1119998, 2023.
Artículo en Inglés | MEDLINE | ID: mdl-37077277

RESUMEN

Background and aims: In the United Kingdom (UK), Black and South Asian women are less likely than White British women to access support from perinatal mental health services, despite experiencing similar, or higher, levels of distress. This inequality needs to be understood and remedied. The aim of this study was to answer two questions: how do Black and South Asian women experience (1) access to perinatal mental health services and (2) care received from perinatal mental health services? Method: Semi-structured interviews were conducted with Black and South Asian women (n = 37), including four women who were interviewed with an interpreter. Interviews were recorded and transcribed line-by-line. Data were analyzed using framework analysis, by an ethnically diverse multidisciplinary team of clinicians, researchers and people with lived experience of perinatal mental illness. Results: Participants described a complex interplay of factors that impacted on seeking, and receiving help, and benefiting from services. Four themes emerged that captured the highly varied experiences of individuals: (1) Self-identity, social expectations and different attributions of distress deter help-seeking; (2) Hidden and disorganized services impede getting support; (3) The role of curiosity, kindness and flexibility in making women feel heard, accepted and supported by clinicians; (4) A shared cultural background may support or hinder trust and rapport. Conclusion: Women described a wide range of experiences and a complex interplay of factors impacting access to, and experience of, services. Women described services as giving them strength and also leaving them disappointed and confused about where to get help. The main barriers to access were attributions related to mental distress, stigma, mistrust and lack of visibility of services, and organizational gaps in the referral process. These findings describe that many women feel heard, and supported by services, reporting that services provide a high quality of care that was inclusive of diverse experiences and understandings of mental health problems. Transparency around what PMHS are, and what support is available would improve the accessibility of PMHS.

3.
J Ment Health ; 31(5): 673-682, 2022 Oct.
Artículo en Inglés | MEDLINE | ID: mdl-33612060

RESUMEN

BACKGROUND: Many patients with psychosis are socially isolated and struggle to maintain or establish satisfying social relationships. This has been explained as resulting from a reduced ability to understand one's own mind, others' minds, and how these interact. This understanding of one's own and others' minds is the foundation of many different theories and models from developmental to cognitive psychiatry. Increasing this ability is the goal of many therapeutic approaches and may facilitate establishing a positive therapeutic relationship. Although much interest has focused on what clinicians say in clinical encounters, few scales exist to categorize the content of patients' communication. AIM: Theoretically founded in literature on metacognition, theory of mind and cognitive theory, the aim of this study was to create a framework to capture and quantify how patients with psychosis talk about their own and others' thoughts, feelings and behaviors in clinical interactions. METHOD: A two-stage iterative process of analysis, refinement and reliability testing was undertaken. In the first stage, thematic analysis, using a combined inductive and deductive approach, was carried out on 14 Italian transcripts of real clinical encounters in acute setting. An initial framework was developed from Italian transcripts, refined, translated and then applied to a sample of 15 English transcripts of real clinical encounters. The framework was further refined, finalized and concordance between independent raters was calculated. RESULTS: A framework comprised of 8 categories was developed to categorize verbal displays in which patients recognize and communicate their own emotions, mental states, desires and plans, relevant narratives of their own life and experiences as expressed in routine clinical interactions. Good reliability was obtained in both English (k = 0.87) and Italian transcripts (k = 0.90). CONCLUSION: Patients' thoughts about their thoughts, feelings and behaviors, and others' can be reliably assessed in routine clinical encounters using this newly developed framework. Future research should broaden the scope of this research to explore how the questions asked by psychiatrists may influence how patients talk about their thoughts, feelings and actions, and if/how they are correlated with the therapeutic relationship and clinical outcomes.


Asunto(s)
Metacognición , Trastornos Psicóticos , Teoría de la Mente , Emociones , Humanos , Trastornos Psicóticos/terapia , Reproducibilidad de los Resultados
4.
BMC Psychiatry ; 17(1): 65, 2017 02 10.
Artículo en Inglés | MEDLINE | ID: mdl-28183293

RESUMEN

BACKGROUND: Research has shown that interactions in group therapies for people with schizophrenia are associated with a reduction in negative symptoms. However, it is unclear which specific interactions in groups are linked with these improvements. The aims of this exploratory study were to i) develop and test the reliability of using video-annotation software to measure interactions in group therapies in schizophrenia and ii) explore the relationship between interactions in group therapies for schizophrenia with clinically relevant changes in negative symptoms. METHODS: Video-annotation software was used to annotate interactions from participants selected across nine video-recorded out-patient therapy groups (N = 81). Using the Individual Group Member Interpersonal Process Scale, interactions were coded from participants who demonstrated either a clinically significant improvement (N = 9) or no change (N = 8) in negative symptoms at the end of therapy. Interactions were measured from the first and last sessions of attendance (>25 h of therapy). Inter-rater reliability between two independent raters was measured. Binary logistic regression analysis was used to explore the association between the frequency of interactive behaviors and changes in negative symptoms, assessed using the Positive and Negative Syndrome Scale. RESULTS: Of the 1275 statements that were annotated using ELAN, 1191 (93%) had sufficient audio and visual quality to be coded using the Individual Group Member Interpersonal Process Scale. Rater-agreement was high across all interaction categories (>95% average agreement). A higher frequency of self-initiated statements measured in the first session was associated with improvements in negative symptoms. The frequency of questions and giving advice measured in the first session of attendance was associated with improvements in negative symptoms; although this was only a trend. CONCLUSION: Video-annotation software can be used to reliably identify interactive behaviors in groups for schizophrenia. The results suggest that proactive communicative gestures, as assessed by the video-analysis, predict outcomes. Future research should use this novel method in larger and clinically different samples to explore which aspects of therapy facilitate such proactive communication early on in therapy.


Asunto(s)
Variaciones Dependientes del Observador , Psicoterapia de Grupo/métodos , Esquizofrenia/terapia , Psicología del Esquizofrénico , Programas Informáticos , Grabación en Video , Adolescente , Adulto , Anciano , Femenino , Humanos , Relaciones Interpersonales , Masculino , Persona de Mediana Edad , Resultado del Tratamiento , Adulto Joven
5.
J Behav Ther Exp Psychiatry ; 52: 147-156, 2016 09.
Artículo en Inglés | MEDLINE | ID: mdl-27132175

RESUMEN

BACKGROUND AND OBJECTIVES: Dialectical behaviour therapy (DBT) trains participants to use behavioural skills for managing their emotions. The study aimed to evaluate whether skills use is associated with positive treatment outcomes independently of treatment processes that are common across different therapeutic models. METHOD: Use of the DBT skills and three common treatment processes (therapeutic alliance, treatment credibility and self-efficacy) were assessed every 2 months for a year in 70 individuals with borderline personality disorder receiving DBT. Mixed-multilevel modelling was used to determine the association of these factors with frequency of self-harm and with treatment dropout. RESULTS: Participants who used the skills less often at any timepoint were more likely to drop out of DBT in the subsequent two months, independently of their self-efficacy, therapeutic alliance or perceived treatment credibility. More frequent use of the DBT skills and higher self-efficacy were each independently associated with less frequent concurrent self-harm. Treatment credibility and the alliance were not independently associated with self-harm or treatment dropout. LIMITATIONS: The skills use measure could not be applied to a control group who did not receive DBT. The sample size was insufficient for structural equation modelling. CONCLUSION: Practising the DBT skills and building an increased sense of self-efficacy may be important and partially independent treatment processes in dialectical behaviour therapy. However, the direction of the association between these variables and self-harm requires further evaluation.


Asunto(s)
Terapia Conductista/métodos , Trastorno de Personalidad Limítrofe/fisiopatología , Trastorno de Personalidad Limítrofe/rehabilitación , Desempeño Psicomotor/fisiología , Adulto , Trastorno de Personalidad Limítrofe/diagnóstico , Estudios de Cohortes , Femenino , Humanos , Masculino , Evaluación de Resultado en la Atención de Salud , Autoinforme , Conducta Autodestructiva/etiología , Adulto Joven
6.
Psychother Psychosom ; 84(5): 304-13, 2015.
Artículo en Inglés | MEDLINE | ID: mdl-26278784

RESUMEN

BACKGROUND: DIALOG+ was developed as a computer-mediated intervention, consisting of a structured assessment of patients' concerns combined with a solution-focused approach to initiate change. This study tested the effectiveness of DIALOG+ in the community treatment of patients with psychosis. METHOD: This was a pragmatic, exploratory, parallel-group, cluster-randomised controlled trial. Clinicians within community teams - along with patients with psychosis under their care - were randomised to use DIALOG+ once per month for 6 months or an active control. The primary outcome (subjective quality of life, SQOL) and secondary outcomes were assessed after 3, 6 and 12 months by blinded assessors and analysed using mixed-effect models. RESULTS: A total of 49 clinicians and 179 patients were randomised. Implementation of DIALOG+ was variable, with an average of 1.8 sessions (SD = 1.6) in the first 3 months and 1.1 (SD = 1.2) in the following 3 months. Patients in the DIALOG+ arm had better SQOL at 3, 6 and 12 months (p = 0.035, 0.058 and 0.014, respectively; Cohen's d = 0.29-0.34). They also had significantly fewer unmet needs at 3 and 6 months, fewer general psychopathological symptoms at all time points and better objective social outcomes at 12 months, with no significant differences in other outcomes. Overall care costs were lower in the intervention group. CONCLUSION: Despite variable implementation, DIALOG+ is a beneficial intervention for community patients with psychosis. As a non-expensive and potentially cost-saving, generic intervention, DIALOG+ may be widely used and may improve the effectiveness of community treatment. Further trials should test DIALOG+ in different patient groups and contexts.


Asunto(s)
Trastornos Psicóticos/terapia , Terapia Asistida por Computador/métodos , Adulto , Anciano , Análisis por Conglomerados , Servicios Comunitarios de Salud Mental/economía , Análisis Costo-Beneficio , Femenino , Humanos , Masculino , Persona de Mediana Edad , Evaluación de Resultado en la Atención de Salud , Atención Dirigida al Paciente , Calidad de Vida , Esquizofrenia/terapia , Terapia Asistida por Computador/economía , Adulto Joven
7.
PLoS One ; 9(7): e100153, 2014.
Artículo en Inglés | MEDLINE | ID: mdl-25010773

RESUMEN

BACKGROUND: Poor service user experiences are often reported on mental health inpatient wards. Crisis houses are an alternative, but evidence is limited. This paper investigates therapeutic alliances in acute wards and crisis houses, exploring how far stronger therapeutic alliance may underlie greater client satisfaction in crisis houses. METHODS AND FINDINGS: Mixed methods were used. In the quantitative component, 108 crisis house and 247 acute ward service users responded to measures of satisfaction, therapeutic relationships, informal peer support, recovery and negative events experienced during the admission. Linear regressions were conducted to estimate the association between service setting and measures, and to model the factors associated with satisfaction. Qualitative interviews exploring therapeutic alliances were conducted with service users and staff in each setting and analysed thematically. RESULTS: We found that therapeutic alliances, service user satisfaction and informal peer support were greater in crisis houses than on acute wards, whilst self-rated recovery and numbers of negative events were lower. Adjusted multivariable analyses suggest that therapeutic relationships, informal peer support and negative experiences related to staff may be important factors in accounting for greater satisfaction in crisis houses. Qualitative results suggest factors that influence therapeutic alliances include service user perceptions of basic human qualities such as kindness and empathy in staff and, at service level, the extent of loss of liberty and autonomy. CONCLUSIONS AND IMPLICATIONS: We found that service users experience better therapeutic relationships and higher satisfaction in crisis houses compared to acute wards, although we cannot exclude the possibility that differences in service user characteristics contribute to this. This finding provides some support for the expansion of crisis house provision. Further research is needed to investigate why acute ward service users experience a lack of compassion and humanity from ward staff and how this could be changed.


Asunto(s)
Pacientes Internos/psicología , Servicios de Salud Mental/estadística & datos numéricos , Satisfacción del Paciente/estadística & datos numéricos , Adulto , Actitud del Personal de Salud , Estudios Transversales , Ambiente , Femenino , Personal de Salud/psicología , Humanos , Masculino , Modelos Teóricos , Moral , Apoyo Social
8.
BMC Psychiatry ; 14: 178, 2014 Jun 16.
Artículo en Inglés | MEDLINE | ID: mdl-24935678

RESUMEN

BACKGROUND: Communicating about delusions can be challenging, particularly when a therapeutic relationship needs to be established in acute care. So far, no systematic research has explored how psychiatrists address patients' delusional beliefs in first meetings in acute care. The aim of this study was to describe how psychiatrists address patients' delusional experiences in acute in-patient care. METHODS: First meetings between five psychiatrists and 14 patients in acute care were audio-recorded and analysed using thematic content analysis. RESULTS: 296 psychiatrist statements about delusions were identified and coded. Three commonly used approaches (with a total of 6 subthemes) were identified. The most common approaches were eliciting the content (1 subtheme: eliciting content and evidence) and understanding the impact (3 subthemes: identifying emotions, exploring links with dysfunctional behaviour and discussing reasons for hospital admission) while questioning the validity of the beliefs (2 subthemes: challenging content and exploring alternative explanations) was less common. The last approach sometimes put patients in a defensive position. CONCLUSIONS: Psychiatrists commonly use three approaches to address patients' delusions in the first meeting in acute in-patient care. Questioning the patients' beliefs can lead to disagreement which might hinder establishing a positive therapeutic relationship. Future research should explore the impact of such an approach on outcomes and specify to what extent questioning the validity of delusional beliefs is appropriate in the first meeting.


Asunto(s)
Actitud del Personal de Salud , Cuidados Críticos , Deluciones/diagnóstico , Relaciones Médico-Paciente , Psiquiatría , Adulto , Emociones , Femenino , Humanos , Masculino , Persona de Mediana Edad , Admisión del Paciente , Investigación Cualitativa , Recursos Humanos
9.
PLoS One ; 9(1): e77506, 2014.
Artículo en Inglés | MEDLINE | ID: mdl-24465363

RESUMEN

BACKGROUND: Patients with a diagnosis of schizophrenia are socially excluded. The aim of this study was to investigate how patients participate in first encounters with unfamiliar healthy participants, who are unaware of their diagnosis. METHODS: Patterns of participation were investigated during interactions involving three-people. Three conversation roles were analysed: (i) speaker, (ii) primary recipient- focus of the speaker's attention and (iii) secondary recipient- unaddressed individual. Twenty patient interactions (1 patient, 2 healthy controls) and 20 control interactions (3 healthy participants) were recorded and motion captured in 3D. The participation of patients and their partners, in each conversation role, was compared with controls at the start, middle and end of the interaction. The relationship between patients' participation, their symptoms and the rapport others experienced with them was also explored. RESULTS: At the start of the interaction patients spoke less (ß = -.639, p = .02) and spent more time as secondary recipient (ß = .349, p = .02). Patients' participation at the middle and end of the interaction did not differ from controls. Patients' partners experienced poorer rapport with patients who spent more time as a primary recipient at the start of the interaction (Rho(11) = -.755, p<.01). Patients' participation was not associated with symptoms. CONCLUSION: Despite their increased participation over time, patients' initial participation appears to be associated with others' experience of rapport with them. Thus, the opening moments of patients' first encounters appear to be interpersonally significant. Further investigation of patient and others' behaviour during these critical moments is warranted in order to understand, and possibly develop interventions to address, the difficulties schizophrenia patients experience here.


Asunto(s)
Esquizofrenia/fisiopatología , Adulto , Comunicación , Femenino , Humanos , Relaciones Interpersonales , Masculino , Persona de Mediana Edad , Participación del Paciente , Psicología del Esquizofrénico
10.
J Nerv Ment Dis ; 202(1): 47-54, 2014 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-24375212

RESUMEN

Patients with a diagnosis of schizophrenia display social cognitive deficits. However, little is known about patients' nonverbal communication during their social encounters with others. This review identified 17 studies investigating nonverbal communication in patients' unscripted face-to-face interactions, addressing a) nonverbal differences between patients and others, b) nonverbal behavior of the patients' partners, c) the association between nonverbal behavior and symptoms, and d) the association between nonverbal behavior and social outcomes. Patients displayed fewer nonverbal behaviors inviting interaction, with negative symptoms exacerbating this pattern. Positive symptoms were associated with heightened nonverbal behavior. Patients' partners changed their own nonverbal behavior in response to the patient. Reduced prosocial behaviors, inviting interaction, were associated with poorer social outcomes. The evidence suggests that patients' nonverbal behavior, during face-to-face interaction, is influenced by patients symptoms and impacts the success of their social interactions.


Asunto(s)
Cognición , Expresión Facial , Relaciones Interpersonales , Cinésica , Esquizofrenia/diagnóstico , Psicología del Esquizofrénico , Etología/métodos , Gestos , Humanos , Comunicación no Verbal/psicología , Habla , Conducta Verbal
11.
Patient Educ Couns ; 93(1): 73-9, 2013 Oct.
Artículo en Inglés | MEDLINE | ID: mdl-23856552

RESUMEN

OBJECTIVE: Effective doctor-patient communication, including a shared understanding, is associated with treatment adherence across medicine. However, communication is affected by a diagnosis of schizophrenia and reaching a shared understanding can be challenging. During conversation, people detect and deal with possible misunderstanding using a conversational process called repair. This study tested the hypothesis that more frequent repair in psychiatrist-patient communication is associated with better treatment adherence in schizophrenia. METHODS: Routine psychiatric consultations involving patients with (DSM-IV) schizophrenia or schizoaffective disorder were audio-visually recorded. Consultations were coded for repair and patients' symptoms and insight assessed. Adherence was assessed six months later. A principal components analysis reduced the repair data for further analysis. Random effects models examined the association between repair and adherence, adjusting for symptoms, consultation length and the amount patients spoke. RESULTS: 138 consultations were recorded, 118 were followed up. Patients requesting clarification of the psychiatrist's talk and the clarification provided by the psychiatrist was associated with adherence six months later (OR 5.82, 95% CI 1.31-25.82, p=0.02). CONCLUSION: The quality of doctor-patient communication also appears to influence adherence in schizophrenia. PRACTICE IMPLICATIONS: Future research should investigate how patient clarification can be encouraged among patients and facilitated by psychiatrists' communication.


Asunto(s)
Antipsicóticos/uso terapéutico , Comunicación , Cooperación del Paciente , Relaciones Médico-Paciente , Psicoterapia , Esquizofrenia/terapia , Adulto , Análisis por Conglomerados , Comprensión , Femenino , Humanos , Masculino , Persona de Mediana Edad , Análisis de Componente Principal , Trastornos Psicóticos/psicología , Trastornos Psicóticos/terapia , Análisis de Regresión , Esquizofrenia/diagnóstico , Factores Socioeconómicos , Factores de Tiempo , Grabación en Video
12.
BMC Psychiatry ; 13: 173, 2013 Jun 26.
Artículo en Inglés | MEDLINE | ID: mdl-23802602

RESUMEN

BACKGROUND: Large numbers of patients with psychosis have regular meetings with key clinicians in the community. There is little evidence on how these meetings should be conducted to be therapeutically effective. DIALOG, a computer mediated procedure, was shown to improve outcomes in a European multi-centre trial. DIALOG structures the patient-clinician communication and makes it patient-centred, but does not guide clinicians as to how to respond to patients' concerns. DIALOG has been further developed into DIALOG+, which uses advanced software and, additionally, provides a four step approach--based on a solution focused model--for addressing patients' concerns. We designed a cluster randomised controlled trial to test the effectiveness of DIALOG+ in improving treatment outcomes of patients with psychosis in the community. METHODS/DESIGN: Key workers are recruited from community mental health teams in East London and randomly allocated to either the intervention or control group. Out of their case loads, we identify patients with schizophrenia (F 20-29) and a moderate or lower level of subjective quality of life (MANSA score <5), who are treated according to the allocation of their key workers. Key workers in the intervention group are trained in using DIALOG+ and use it with each patient over a six-month period. Control patients rate their satisfaction with life and treatment on a tablet to control for the effect of regular ratings and the use of modern technology. We are recruiting up to 42 key workers to reach a total sample size of 180 patients. Clinical and social outcomes including costs are assessed after 3, 6 and 12 months. Primary outcome is subjective quality-of-life at 6 months. DISCUSSION: The trial aims to evaluate the effectiveness of a novel intervention (DIALOG+) which uses modern technology to support routine patient-clinician meetings in community care, makes the communication patient centred and guides patients and clinicians to address concerns. DIALOG+ is a generic and widely applicable intervention. If shown as effective, it can be used to improve outcomes of community care on a large scale, ensuring that routine encounters are therapeutically effective. DIALOG+ can also be implemented across services at relatively low additional costs. TRIAL REGISTRATION: Current Controlled Trials ISRCTN34757603.


Asunto(s)
Comunicación , Servicios Comunitarios de Salud Mental/métodos , Relaciones Médico-Paciente , Trastornos Psicóticos/terapia , Esquizofrenia/terapia , Adolescente , Adulto , Anciano , Femenino , Humanos , Masculino , Persona de Mediana Edad , Satisfacción del Paciente , Trastornos Psicóticos/psicología , Resultado del Tratamiento
13.
Psychiatry Res ; 209(3): 711-20, 2013 Oct 30.
Artículo en Inglés | MEDLINE | ID: mdl-23452753

RESUMEN

Measuring outcomes of treatments for psychosis such as needs and the quality of the therapeutic relationship is important in research and routine care. However, evidence on the validity of existing outcome measures is limited. We aimed to test the convergent, discriminant, and predictive validity of two widely used patient- and clinician-rated measures of needs and the therapeutic relationship. Multitrait-multimethod (MTMM) analysis was conducted on the Camberwell Assessment of Need Short Appraisal Schedule (CANSAS) and the Helping Alliance Scale (HAS), both the clinician (CANSAS-C, HAS-C) and patient (CANSAS-P, HAS-P) versions, in a pooled sample of 605 psychotic patients and their clinicians. CANSAS-C and CANSAS-P items loaded substantially into one common unmet needs factor. By comparison, substantial factor loadings were found for HAS-C and HAS-P items on two separate clinician- and patient-rated therapeutic relationship factors. Common unmet needs and clinician-rated therapeutic relationship factors significantly predicted reduced psychiatric in-patient days. Our findings support the convergent validity of the CANSAS, discriminant validity of the HAS, and predictive validity of CANSAS and HAS-C. The findings may inform the use of CANSAS and HAS as psychosis outcome measures in research and routine care.


Asunto(s)
Necesidades y Demandas de Servicios de Salud/estadística & datos numéricos , Evaluación de Resultado en la Atención de Salud , Trastornos Psicóticos/psicología , Trastornos Psicóticos/terapia , Adolescente , Adulto , Factores de Edad , Anciano , Femenino , Humanos , Cooperación Internacional , Masculino , Persona de Mediana Edad , Modelos Estadísticos , Evaluación de Necesidades/estadística & datos numéricos , Escalas de Valoración Psiquiátrica , Psicometría , Reproducibilidad de los Resultados , Estudios Retrospectivos , Adulto Joven
14.
Syst Rev ; 2: 15, 2013 Feb 25.
Artículo en Inglés | MEDLINE | ID: mdl-23442299

RESUMEN

BACKGROUND: Black and Minority Ethnic (BME) groups in receipt of specialist mental health care have reported higher rates of detention under the mental health act, less use of psychological therapies, and more dissatisfaction. Although many explanations have been put forward to explain this, a failure of therapeutic communications may explain poorer satisfaction, disengagement from services and ethnic variations in access to less coercive care. Interventions that improve therapeutic communications may offer new approaches to tackle ethnic inequalities in experiences and outcomes. METHODS: The THERACOM project is an HTA-funded evidence synthesis review of interventions to improve therapeutic communications between black and minority ethnic patients in contact with specialist mental health services and staff providing those services. This article sets out the protocol methods for a necessarily broad review topic, including appropriate search strategies, dilemmas for classifying different types of therapeutic communications and expectations of the types of interventions to improve them. The review methods will accommodate unexpected types of study and interventions. The findings will be reported in 2013, including a synthesis of the quantitative and grey literature. DISCUSSION: A particular methodological challenge is to identify and rate the quality of many different study types, for example, randomised controlled trials, observational quantitative studies, qualitative studies and case studies, which comprise the full range of hierarchies of evidence. We discuss the preliminary methodological challenges and some solutions. (PROSPERO registration number: CRD42011001661).


Asunto(s)
Población Negra , Comunicación , Competencia Cultural , Etnicidad , Disparidades en Atención de Salud/etnología , Servicios de Salud Mental/normas , Grupos Minoritarios , Humanos , Salud Mental/etnología , Satisfacción del Paciente/etnología , Mejoramiento de la Calidad , Proyectos de Investigación
15.
Schizophr Bull ; 39(5): 1150-8, 2013 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-22941744

RESUMEN

BACKGROUND: Nonverbal communication is a critical feature of successful social interaction and interpersonal rapport. Social exclusion is a feature of schizophrenia. This experimental study investigated if the undisclosed presence of a patient with schizophrenia in interaction changes nonverbal communication (ie, speaker gesture and listener nodding). METHOD: 3D motion-capture techniques recorded 20 patient (1 patient, 2 healthy participants) and 20 control (3 healthy participants) interactions. Participants rated their experience of rapport with each interacting partner. Patients' symptoms, social cognition, and executive functioning were assessed. Four hypotheses were tested: (1) Compared to controls, patients display less speaking gestures and listener nods. (2) Patients' increased symptom severity and poorer social cognition are associated with patients' reduced gesture and nods. (3) Patients' partners compensate for patients' reduced nonverbal behavior by gesturing more when speaking and nodding more when listening. (4) Patients' reduced nonverbal behavior, increased symptom severity, and poorer social cognition are associated with others experiencing poorer rapport with the patient. RESULTS: Patients gestured less when speaking. Patients with more negative symptoms nodded less as listeners, while their partners appeared to compensate by gesturing more as speakers. Patients with more negative symptoms also gestured more when speaking, which, alongside increased negative symptoms and poorer social cognition, was associated with others experiencing poorer patient rapport. CONCLUSIONS: Patients' symptoms are associated with the nonverbal behavior of patients and their partners. Patients' increased negative symptoms and gesture use are associated with poorer interpersonal rapport. This study provides specific evidence about how negative symptoms impact patients' social interactions.


Asunto(s)
Gestos , Movimientos de la Cabeza/fisiología , Relaciones Interpersonales , Comunicación no Verbal/psicología , Esquizofrenia/fisiopatología , Adulto , Función Ejecutiva/fisiología , Femenino , Humanos , Inteligencia/fisiología , Masculino , Persona de Mediana Edad , Pruebas Neuropsicológicas , Psicología del Esquizofrénico , Índice de Severidad de la Enfermedad , Conducta Social , Factores de Tiempo , Adulto Joven
16.
BMC Psychiatry ; 12: 113, 2012 Aug 17.
Artículo en Inglés | MEDLINE | ID: mdl-22900667

RESUMEN

BACKGROUND: DIALOG is an intervention to structure the communication between patient and key worker, which has been shown to improve patient outcomes in community mental health care. As part of the intervention, patients provide ratings of their subjective quality of life (SQOL) on eight Likert type items and their treatment satisfaction on three such items. This study explored the psychometric qualities of the outcome data generated in the DIALOG intervention to explore whether they may be used for evaluating treatment outcomes. METHOD: Data were taken from 271 patients who received the DIALOG intervention. All patients were diagnosed with schizophrenia or a related disorder and treated in community mental health care. For SQOL and treatment satisfaction as assessed in the DIALOG intervention, we established the internal consistency (Cronbach's alpha), the convergent validity of SQOL items (correlation with Manchester Short Assessment of Quality of Life [MANSA]) and treatment satisfaction items (correlation with Client Satisfaction Questionnaire [CSQ]), the concurrent validity (correlations with Positive and Negative Syndrome Scale [PANSS]) and the sensitivity to change (t-test comparing ratings of the first and last intervention). We also explored the factorial structure of the eight SQOL items. RESULTS: The internal consistency of the eight SQOL items was .71 and of the three treatment satisfaction items .57. SQOL scores were correlated with the MANSA (r = .95) and PANSS scores (general psychopathology: r = -.37, positive symptoms: r = -.27, negative symptoms: r = -.27). Treatment satisfaction scores were correlated with the CSQ (r = 0.36) and the PANSS (r = -.29, -.20, -.20). SQOL and treatment satisfaction score improved significantly over time. SQOL items loaded on two meaningful factors, one capturing health and personal safety and one reflecting other life domains. CONCLUSIONS: The psychometric qualities of the SQOL scores generated in DIALOG are strong. The properties of the three treatment satisfaction items may be seen as acceptable. Although DIALOG has been designed as a therapeutic intervention, it can generate outcome data on SQOL and treatment satisfaction with acceptable psychometric qualities.


Asunto(s)
Servicios Comunitarios de Salud Mental , Trastornos Mentales/terapia , Salud Mental , Satisfacción del Paciente , Relaciones Profesional-Paciente , Adulto , Femenino , Humanos , Masculino , Persona de Mediana Edad , Psicometría , Calidad de Vida , Encuestas y Cuestionarios
17.
PLoS One ; 7(4): e36080, 2012.
Artículo en Inglés | MEDLINE | ID: mdl-22558336

RESUMEN

OBJECTIVE: Previous research has shown that a better therapeutic relationship (TR) predicts more positive attitudes towards antipsychotic medication, but did not address whether it is also linked with actual adherence. This study investigated whether the TR is associated with adherence to antipsychotics in patients with schizophrenia. METHODS: 134 clinicians and 507 of their patients with schizophrenia or a related psychotic disorder participated in a European multi-centre study. A logistic regression model examined how the TR as rated by patients and by clinicians is associated with medication adherence, adjusting for clinician clustering and symptom severity. RESULTS: Patient and clinician ratings of the TR were weakly inter-correlated (r(s) = 0.13, p = 0.004), but each was independently linked with better adherence. After adjusting for patient rated TR and symptom severity, each unit increase in clinician rated TR was associated with an increase of the odds ratio of good compliance by 65.9% (95% CI: 34.6% to 104.5%). After adjusting for clinician rated TR and symptom severity, for each unit increase in patient rated TR the odds ratio of good compliance was increased by 20.8% (95% CI: 4.4% to 39.8%). CONCLUSIONS: A better TR is associated with better adherence to medication among patients with schizophrenia. Patients' and clinicians' perspectives of the TR are both important, but may reflect distinct aspects.


Asunto(s)
Antipsicóticos/uso terapéutico , Cumplimiento de la Medicación/psicología , Relaciones Médico-Paciente , Esquizofrenia/tratamiento farmacológico , Adulto , Demografía , Femenino , Humanos , Masculino , Médicos , Competencia Profesional , Análisis de Regresión , Factores de Tiempo , Resultado del Tratamiento
18.
Qual Life Res ; 21(2): 237-46, 2012 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-21667228

RESUMEN

PURPOSE: Subjective quality of life (SQOL) is an established patient-reported outcome in the evaluation of treatments for psychosis. The use of SQOL measures in the presence of psychiatric symptoms and cognitive deficits has been questioned. However, there is little evidence on whether items function differently as indicators of SQOL in psychotic patients with different levels of symptoms and deficits. Substantial differential item functioning (DIF) would, indeed, challenge the validity of established measures. We aimed to investigate the validity of a widely used measure of subjective quality of life (SQOL), i.e., the Lancashire Quality of Life Profile (LQOLP), in the presence of cognitive deficits and psychiatric symptoms in patients with severe and enduring psychosis. METHOD: We analysed SQOL ratings of 690 psychotic patients on the LQOLP using item response modelling to detect differential item functioning (DIF) attributable to psychiatric symptoms and cognitive deficits. RESULTS: Patients with more severe general psychopathology were less likely to rate their 'personal safety' positively (OR .96, 95% CI .93-.99). More severely depressed patients were less likely to endorse positive 'life as a whole' (OR .93, 95% CI .89-.98) and 'mental health' (OR .93, 95% CI .91-.97) ratings. There was no DIF attributable to cognitive deficits. CONCLUSIONS: The findings suggest that the validity of the LQOLP in psychotic patients may be impaired by DIF due to psychopathology, although the magnitude of effects is unlikely to be of clinical significance. The validity appears not to be compromised by cognitive deficits.


Asunto(s)
Psicopatología/instrumentación , Trastornos Psicóticos/psicología , Calidad de Vida/psicología , Adolescente , Adulto , Anciano , Trastornos del Conocimiento/psicología , Femenino , Humanos , Masculino , Persona de Mediana Edad , Escalas de Valoración Psiquiátrica , Reproducibilidad de los Resultados , Adulto Joven
19.
Soc Psychiatry Psychiatr Epidemiol ; 47(7): 1169-79, 2012 Jul.
Artículo en Inglés | MEDLINE | ID: mdl-21863281

RESUMEN

PURPOSE: To explore involuntary patients' retrospective views on why their hospitalisation was right or wrong. METHODS: Involuntary patients were recruited from 22 hospitals in England and interviewed in-depth. The study drew on grounded theory and thematic analysis. RESULTS: Most of the patients felt mentally unwell before admission and out of control during their treatment. Despite these common experiences, three groups of patients with distinct views on their involuntary hospitalisation were identified: those who believed that it was right, those who thought it was wrong and those with ambivalent views. Those with retrospectively positive views believed that hospitalisation ensured that they received treatment, averted further harm and offered them the opportunity to recover in a safe place. They felt that coercion was necessary, as they could not recognise that they needed help when acutely unwell. Those who believed that involuntary admission was wrong thought that their problems could have been managed through less coercive interventions, and experienced hospitalisation as an unjust infringement of their autonomy, posing a permanent threat to their independence. Patients with ambivalent views believed that they needed acute treatment and that hospitalisation averted further harm. Nonetheless, they thought that their problems might have been managed through less coercive community interventions or a shorter voluntary hospitalisation. CONCLUSIONS: The study illustrates why some patients view their involuntary hospitalisation positively, whereas others believe it was wrong. This knowledge could inform the development of interventions to improve patients' views and treatment experiences.


Asunto(s)
Actitud , Internamiento Obligatorio del Enfermo Mental , Hospitalización , Trastornos Mentales/psicología , Adulto , Coerción , Inglaterra , Femenino , Humanos , Masculino , Persona de Mediana Edad , Investigación Cualitativa
20.
PLoS One ; 6(10): e25425, 2011.
Artículo en Inglés | MEDLINE | ID: mdl-22022393

RESUMEN

BACKGROUND: Family caregivers of people with mental disorders are frequently involved in involuntary hospital admissions of their relatives. OBJECTIVE: To explore family caregivers' experience of involuntary admission of their relative. METHOD: 30 in-depth interviews were conducted with family caregivers of 29 patients who had been involuntarily admitted to 12 hospitals across England. Interviews were analysed using thematic analysis. RESULTS: Four major themes of experiences were identified: relief and conflicting emotions in response to the relative's admission; frustration with a delay in getting help; being given the burden of care by services; and difficulties with confidentiality. Relief was a predominant emotion as a response to the relative's admission and it was accompanied by feelings of guilt and worry. Family caregivers frequently experienced difficulties in obtaining help from services prior to involuntary admission and some thought that services responded to crises rather than prevented them. Family caregivers experienced increased burden when services shifted the responsibility of caring for their mentally unwell relatives to them. Confidentiality was a delicate issue with family caregivers wanting more information and a say in decisions when they were responsible for aftercare, and being concerned about confidentiality of information they provided to services. CONCLUSION: Compulsory admission of a close relative can be a complex and stressful experience for family caregivers. In order for caregivers to be effective partners in care, a balance needs to be struck between valuing their involvement in providing care for a patient and not overburdening them.


Asunto(s)
Cuidadores/psicología , Familia , Hospitales Psiquiátricos , Admisión del Paciente , Investigación Cualitativa , Adolescente , Adulto , Femenino , Humanos , Entrevistas como Asunto , Masculino , Persona de Mediana Edad , Encuestas y Cuestionarios , Adulto Joven
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