RESUMEN
OBJECTIVE: Parents of children with developmental malformations of different kinds are vulnerable to many consequences of the experienced stress and attempts to cope with it. The aim of the study was to determine the psychological correlates of affect for parents of such children. PATIENTS AND METHODS: The study included 78 respondents: 69 women and 9 men, aged between 20 and 45, all of them parents of children with craniofacial malformations who had their routine check-ups at an orthodontics clinic. The respondents were evaluated using pencil-and-paper questionnaires, the same survey set for all respondents. The following tools were used in the study: the Inventory for Measuring Coping with Stress (Mini-COPE), the Family Resilience Assessment Scale (FRAS), and the Positive and Negative Affect Schedule (PANAS). The guardians' demographic data and the details of the child's medical history were gathered using a questionnaire constructed for the purposes of the study. RESULTS: The present study confirmed significant correlations between affect and preferred stress coping strategies, as well as between affect and family resilience. Coping strategies and family resilience, treated as a resource, were also significantly correlated in the group of respondents. CONCLUSIONS: Mental resilience is an important resource contributing to effective stress coping in a situation where a child suffers from malformation.
Asunto(s)
Afecto/fisiología , Labio Leporino/psicología , Fisura del Paladar/psicología , Relaciones Padres-Hijo , Padres/psicología , Adaptación Psicológica , Adulto , Preescolar , Femenino , Humanos , Lactante , Recién Nacido , Masculino , Persona de Mediana Edad , Resiliencia Psicológica , Estrés Psicológico , Encuestas y Cuestionarios , Adulto JovenRESUMEN
OBJECTIVE: The description of clinical manifestation of hearing problems in cleidocranial dysplasia (CCD) remains limited and incomplete, since CCD constitutes a rare congenital disorder. The study aims to provide a complex panel analysis of the auditory system in patients suffering from the disease. PATIENTS AND METHODS: The study group consisted of 4 children with CCD (aged: 12-15), who underwent orthodontic treatment. A full panel analysis of their auditory systems was performed, including high-frequency audiometry and a new method of middle ear assessment - WBT (Wideband Tympanometry). RESULTS: A slight conductive hearing loss was diagnosed in 3 out of 4 patients. While high frequency audiometry has shown a deterioration of hearing in 3 patients, in one case, the obtained thresholds were within the normal range. A decrease of absorbance in low frequencies has been observed in one or both ears. Only one patient has had a shift of maximum absorbance towards high frequencies in the left ear. CONCLUSIONS: The presented manuscript is the first with a complete evaluation of the auditory system comprising 4 cases of children in a similar age group. All of the examined patients presented an air-bone gap indicating conductive disorders.