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J Palliat Med ; 22(4): 464-467, 2019 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-30513050

RESUMEN

For most families, the preferred location of death for their child is home, yet most children still die in the hospital. Many children with life-threatening and life-limiting illness are medically dependent on technology, and palliative transport can serve as a bridge from the intensive care unit to the family's home to achieve family-centered goals of care. Palliative transport may also present an opportunity to prioritize cultural care and rituals at end of life which cannot be provided in the hospital. We describe a case series of pediatric patients from communities espousing markedly diverse cross-cultural values and limited financial resources. Specific cultural considerations at end of life for these children included optimizing the presence of the shared community or tribe, the centrality of healing rituals, and varied attitudes toward withdrawal of life-sustaining medical treatment. By addressing each of these components, we were able to coordinate palliative transport to enhance cross-cultural care and meaning at end of life for children with life-limiting illness.


Asunto(s)
Actitud Frente a la Muerte , Asistencia Sanitaria Culturalmente Competente/normas , Familia/psicología , Servicios de Atención de Salud a Domicilio/normas , Pediatría/normas , Cuidado Terminal/psicología , Cuidado Terminal/normas , Adulto , Amish/psicología , Huesos/anomalías , Encéfalo/anomalías , Femenino , Trastornos del Crecimiento/enfermería , Trastornos del Crecimiento/psicología , Insuficiencia Cardíaca/enfermería , Insuficiencia Cardíaca/psicología , Humanos , Indígenas Norteamericanos/psicología , Lactante , Recién Nacido , Masculino , Persona de Mediana Edad , Insuficiencia Multiorgánica/enfermería , Insuficiencia Multiorgánica/psicología , Síndrome Nefrótico/enfermería , Síndrome Nefrótico/psicología , Guías de Práctica Clínica como Asunto
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