RESUMEN
This study performed a systems analysis of the process by which patients under the care of a specialist palliative home care obtained medications, and highlighted factors that delay this process. Systems analysis is the science dealing with analysis of complex, large-scale systems and the interactions within those systems. This study used a mixed-methods approach of questionnaires of general practitioners, pharmacists and patients, and a prospective observational study of delays experienced by patients referred to the home care team over a three-month period. This study found the main factors causing delay to be: medications not being in stock in pharmacies, medications not being available on state reimbursed schemes and inability of patients and carers to courier medications.
Asunto(s)
Servicios Comunitarios de Farmacia/provisión & distribución , Atención a la Salud/normas , Cuidados Paliativos/normas , Preparaciones Farmacéuticas/provisión & distribución , Calidad de la Atención de Salud/normas , Cuidado Terminal/normas , Servicios Comunitarios de Farmacia/normas , Atención a la Salud/organización & administración , Medicina Familiar y Comunitaria/organización & administración , Medicina Familiar y Comunitaria/normas , Servicios de Atención de Salud a Domicilio/organización & administración , Servicios de Atención de Salud a Domicilio/normas , Humanos , Cuidados Paliativos/organización & administración , Satisfacción del Paciente , Calidad de la Atención de Salud/organización & administración , Análisis de Sistemas , Cuidado Terminal/organización & administraciónRESUMEN
BACKGROUND: In recent years, the discipline of paediatric palliative care has emerged in response to the awareness of the distinct needs of dying children. To date, in Ireland there is no paediatrician trained in palliative medicine, and specialist paediatric palliative care is generally delivered by adult trained teams. AIMS: We wished to examine the experience of an adult palliative care service providing palliative care to children. METHODS: The study entailed three stages: (1) a retrospective chart review of all children referred to the service; (2) a questionnaire survey; and (3) a focus group to explore the views of staff in caring for children. RESULTS: The main themes highlighted were staff competence, staff stress, uncertainty of prognosis, resource implications and co-operation with other teams. CONCLUSION: This study highlights some of the challenges for an adult palliative care team providing paediatric palliative care. Many skills developed for adult patients can be used in paediatric palliative care. Adult palliative care teams and paediatric teams have complementary skills. The challenge is to integrate services to meet the needs of terminally ill children.