RESUMEN
This study assessed the effectiveness of using focus groups to obtain information about the characteristics of pain and quality of life in adults with sickle cell disease and their families. Five focus group sessions were held. Four groups consisted of adults diagnosed with sickle cell disease and one was composed of family members. Although focus groups were useful for addressing the purposes of the study, several volunteers in the patient group were unable to attend due to the occurrence of pain episodes. Adults with sickle cell disease identified recurring disabling pain and its consequences as interfering with their physical, emotional, and social quality of life. Several reported a pain aura that signaled the initiation of a painful episode. Useful self-care techniques and coping strategies were also identified. Common emotional responses included anger, hostility, depression, disenfranchisement, death anxiety and fatalism. The belief by those with sickle cell disease that health professionals viewed them as drug dependent often fueled angry and hostile responses. Religion was a major source for coping. Family members' quality of life was affected and they felt the negative impact of sickle cell disease on family relationships. Family members also reported feelings of helplessness, guilt, and parental self-blame. Health care providers could use information gained through this study to positively influence the care of adults with sickle cell disease.
Asunto(s)
Anemia de Células Falciformes , Grupos Focales , Dolor , Calidad de Vida , Adaptación Psicológica , Adulto , Anemia de Células Falciformes/psicología , Anemia de Células Falciformes/rehabilitación , Familia/psicología , Femenino , Humanos , Masculino , Persona de Mediana Edad , Dolor/psicología , Dolor/rehabilitación , AutocuidadoRESUMEN
Outbreaks of neoplastic disease defined as haemangiosarcoma occurred among layer flocks of chickens in Israel. The disease caused bleeding tumours in the skin and internal organs of young layers, followed by anaemia, cessation of egg production and high mortality up to 20%. Avian leukosis virus was isolated from tumour cells which contain several viral DNA copies integrated in the cell genome. The isolated virus induced haemangiosarcomas in more than 30% of birds inoculated on the day of hatching. Congenital transmission of viruses from tumour-bearing hens to their offspring was observed.
RESUMEN
Suicide is an increasing problem among adolescents. Developmental concerns and inability to resolve problems stemming from feelings of alienation are often at the core of an adolescent's suicide attempt. Nurses can be instrumental in primary prevention by educating the public about persons at risk for suicide, in helping parents deal more effectively with children's growth, and by supporting programs in the school system and other agencies that help young people communicate with others and resolve problems before they become crises. The nurse can also play an important role in secondary prevention through participation in or referral to hotline services, through intervention in the emergency service, or in community mental health programs or inpatient treatment programs. The psychiatric nurse specialist, in particular, can play a very significant role in the treatment of the adolescent in a suicidal crisis and also in consultation with other nurses and professionals who may assess suicidal risk in young people in the community. Finally, tertiary prevention may be necessary to help families and friends resolve their grief over the loss if a family member or close friend has succeeded at a suicide attempt. Feelings of guilt, anxiety, anger, and depression are usually present in the surviving family members of a successful suicide. They need to be given the opportunity to talk about the events leading up to the suicide, their feelings about the persons involved, especially the lost person, and to ventilate their anger, guilt, and sadness. The rising rate of suicide or suicide attempts among this country's adolescents--the third cause of death among adolescents--cries out for stronger support systems for our young people.(ABSTRACT TRUNCATED AT 250 WORDS)