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PURPOSE: To describe the biometric and corneal characteristics of patients with Marfan Syndrome (MFS) and ectopia lentis. STUDY DESIGN: Observational, descriptive, prospective study. Subjects Individuals with MFS with ectopia lentis (EL). METHODS: Fourty-four eyes of 23 patients underwent Scheimpflug analysis using the Pentacam (Oculus, Wetzlar, Germany), axial length (AL) using the IOL master 700 (Carl Zeiss AG, Oberkochen, Germany), endothelial cell count (ECC) using the CEM-350 (NIDEK, Maihama, Japan) and corneal biomechanics evaluation with the Ocular Response Analyzer: ORA (Reichert Ophthalmic Instruments, Buffalo, New York, USA) and Corvis (Oculus, Wetzlar, Germany). Statistical analysis was performed using IBM SPSS Statistics 25.0. RESULTS: The direction of lens subluxation was most frequently supero-nasal 40.9% (18/44). Mean keratometry (Km) was 40.22±1.76 Diopters (D); mean corneal astigmatism was 1.68±0.83 D; total corneal aberrometric root mean square (RMS) was 2.237±0.795µm; higher-order aberrations (HOAs) RMS were 0.576±0.272µm; mean AL was 25.63±3.65mm; mean ECC was 3315±459cell/mm2; mean CBI was 0.13±0.24, mean TBI was 0.31±0.25, mean posterior elevation was 4.3±4.5µm; mean total corneal densitometry was 16.0±2.14 grayscale units (GSU). CONCLUSION: Increased axial length, flatter and thicker corneas with higher regular astigmatism, normal densitometry, normal corneal biomechanical indices and normal posterior elevation were observed in Marfan patients with EL.
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Astigmatismo , Desplazamiento del Cristalino , Síndrome de Marfan , Humanos , Biometría , Córnea/diagnóstico por imagen , Desplazamiento del Cristalino/diagnóstico , Desplazamiento del Cristalino/epidemiología , Desplazamiento del Cristalino/etiología , Síndrome de Marfan/complicaciones , Síndrome de Marfan/diagnóstico , Estudios Prospectivos , Agudeza VisualRESUMEN
It is well documented that Chagas disease (CD) can pose a public health problem to countries. As one of the World Health Organization Neglected Tropical Diseases undoubtedly calls for comprehensive healthcare, transcending a restricted biomedical approach. After more than a century since their discovery, in 1909, people affected by CD are still frequently marginalised and/or neglected. The aim of this article is to tell the story of their activism, highlighting key historical experiences and successful initiatives, from 1909 to 2019. The first association was created in 1987, in the city of Recife, Brazil. So far, thirty associations have been reported on five continents. They were created as independent non-profit civil society organisations and run democratically by affected people. Among the common associations' objectives, we notably find: increase the visibility of the affected; make their voice heard; build bridges between patients, health system professionals, public health officials, policy makers and the academic and scientific communities. The International Federation of Associations of People Affected by CD - FINDECHAGAS, created in 2010 with the input of the Americas, Europe and the Western Pacific, counts as one of the main responses to the globalisation of CD. Despite all the obstacles and difficulties encountered, the Federation has thrived, grown, and matured. As a result of this mobilisation along with the support of many national and international partners, in May 2019 the 72nd World Health Assembly decided to establish World Chagas Disease Day, on 14 April. The associative movement has increased the understanding of the challenges related to the disease and breaks the silence around Chagas disease, improving surveillance, and sustaining engagement towards the United Nations 2030 agenda.
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Enfermedad de Chagas , Salud Global , Aniversarios y Eventos Especiales , Enfermedad de Chagas/epidemiología , Enfermedad de Chagas/historia , Enfermedad de Chagas/prevención & control , Salud Global/historia , Salud Global/estadística & datos numéricos , Historia del Siglo XX , Historia del Siglo XXI , Humanos , Organización Mundial de la SaludRESUMEN
Chagas is a complex, multidimensional phenomenon in which political, economic, environmental, biomedical, epidemiological, psychological, and sociocultural factors intersect. Nonetheless, the hegemonic conceptualisation has long envisioned Chagas as primarily a biomedical question, while ignoring or downplaying the other dimensions, and this limited view has reinforced the disease's long neglect. Integrating the multiple dimensions of the problem into a coherent approach adapted to field realities and needs represents an immense challenge, but the payoff is more effective and sustainable experiences, with higher social awareness, increased case detection and follow-up, improved adherence to care, and integrated participation of various actors from multiple action levels. Information, Education, and Communication (IEC) initiatives have great potential for impact in the implementation of multidimensional programs of prevention and control successfully customised to the diverse and complex contexts where Chagas disease persists.
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Enfermedad de Chagas , Comprensión , Enfermedad de Chagas/prevención & control , Comunicación , HumanosRESUMEN
BACKGROUND: As a Neglected Tropical Disease associated with Latin America, Chagas Disease (CD) is little known in non-endemic territories of the Americas, Europe and Western Pacific, making its control challenging, with limited detection rates, healthcare access and consequent epidemiological silence. This is reinforced by its biomedical characteristics-it is usually asymptomatic-and the fact that it mostly affects people with low social and financial resources. Because CD is mainly a chronic infection, which principally causes a cardiomyopathy and can also cause a prothrombotic status, it increases the risk of contracting severe COVID-19. METHODS: In order to get an accurate picture of CD and COVID-19 overlapping and co-infection, this operational research draws on community-based experience and participative-action-research components. It was conducted during the Bolivian elections in Barcelona on a representative sample of that community. RESULTS: The results show that 55% of the people interviewed had already undergone a previous T. cruzi infection screening-among which 81% were diagnosed in Catalonia and 19% in Bolivia. The prevalence of T. cruzi infection was 18.3% (with 3.3% of discordant results), the SARS-CoV-2 22.3% and the coinfection rate, 6%. The benefits of an integrated approach for COVID-19 and CD were shown, since it only took an average of 25% of additional time per patient and undoubtedly empowered the patients about the co-infection, its detection and care. Finally, the rapid diagnostic test used for COVID-19 showed a sensitivity of 89.5%. CONCLUSIONS: This research addresses CD and its co-infection, through an innovative way, an opportunity of systematic integration, during the COVID-19 pandemic.
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COVID-19 , Enfermedad de Chagas , Bolivia/epidemiología , COVID-19/epidemiología , Enfermedad de Chagas/diagnóstico , Enfermedad de Chagas/epidemiología , Humanos , Pandemias , SARS-CoV-2RESUMEN
It is well documented that Chagas disease (CD) can pose a public health problem to countries. As one of the World Health Organization Neglected Tropical Diseases undoubtedly calls for comprehensive healthcare, transcending a restricted biomedical approach. After more than a century since their discovery, in 1909, people affected by CD are still frequently marginalised and/or neglected. The aim of this article is to tell the story of their activism, highlighting key historical experiences and successful initiatives, from 1909 to 2019. The first association was created in 1987, in the city of Recife, Brazil. So far, thirty associations have been reported on five continents. They were created as independent non-profit civil society organisations and run democratically by affected people. Among the common associations' objectives, we notably find: increase the visibility of the affected; make their voice heard; build bridges between patients, health system professionals, public health officials, policy makers and the academic and scientific communities. The International Federation of Associations of People Affected by CD - FINDECHAGAS, created in 2010 with the input of the Americas, Europe and the Western Pacific, counts as one of the main responses to the globalisation of CD. Despite all the obstacles and difficulties encountered, the Federation has thrived, grown, and matured. As a result of this mobilisation along with the support of many national and international partners, in May 2019 the 72nd World Health Assembly decided to establish World Chagas Disease Day, on 14 April. The associative movement has increased the understanding of the challenges related to the disease and breaks the silence around Chagas disease, improving surveillance, and sustaining engagement towards the United Nations 2030 agenda.
RESUMEN
Chagas is a complex, multidimensional phenomenon in which political, economic, environmental, biomedical, epidemiological, psychological, and sociocultural factors intersect. Nonetheless, the hegemonic conceptualisation has long envisioned Chagas as primarily a biomedical question, while ignoring or downplaying the other dimensions, and this limited view has reinforced the disease's long neglect. Integrating the multiple dimensions of the problem into a coherent approach adapted to field realities and needs represents an immense challenge, but the payoff is more effective and sustainable experiences, with higher social awareness, increased case detection and follow-up, improved adherence to care, and integrated participation of various actors from multiple action levels. Information, Education, and Communication (IEC) initiatives have great potential for impact in the implementation of multidimensional programs of prevention and control successfully customised to the diverse and complex contexts where Chagas disease persists.
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INTRODUCTION: Malaria case management is a pivotal intervention in malaria elimination. However, many remote areas in Brazil still lack access to basic health services. This study describes a community-based approach (CBA) for malaria case management in the large remote area of the Jaú National Park (JNP), Amazonas, Brazil. METHODS: In 2001, a general health CBA was initiated with a motor group (MG); a participative community health diagnosis (PCHD) was subsequently implemented between 2001 and 2005. In 2006, a CBA for malaria case management started with an expanded MG including all sectors with a stake in malaria control, from the local residents to the federal government. In 2008, community microscopists were selected and trained to diagnose hemoparasites. A full malaria strategy was implemented in 2009 with subsequent quality control follow-up. RESULTS: Two educational materials were co-created with local communities. The MG identified malaria as a major health problem and the malaria MG planned the control activities. Ten communities selected a resident to become malaria microscopists, and ten solar-operated health centers were built. The number of slide readings increased from 923 in 2006 to 1,900 in 2009, while malaria infections decreased from 354 cases in 2005 to 20 cases in 2015. The excess time (≥ 48 hours) between first symptoms and diagnosis/treatment decreased from 68.9% of cases in 2005 to 14.3% in 2010. CONCLUSIONS: While many factors were likely involved in the reduction of malaria transmission in the JNP, the CBA played an important role in the sustained success of the initiative.
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Manejo de Caso , Servicios de Salud Comunitaria/organización & administración , Malaria , Población Rural , Brasil , Investigación Participativa Basada en la Comunidad , Humanos , Malaria/diagnóstico , Malaria/tratamiento farmacológico , Salud PúblicaRESUMEN
OBJECTIVES: Carbapenem-resistant Gram-negative bacilli (CRGNB) have been reported in different wastewater treatment plants (WWTPs) throughout the world; however, few studies have described the antimicrobial resistance profile in different CRGNB throughout WWTPs, information that would identify points of selection of resistant bacteria. The objective of this work was to characterize the resistance profile of CRGNB harbouring blaKPC-2 from a Colombian WWTP. METHODS: Six samples were taken from four points of a WWTP. CRGNB were selected in chromID® CARBA and identified by 16S rRNA. Carbapenemases were determined by polymerase chain reaction (PCR), and susceptibility was assessed using VITEK2. RESULTS: One hundred and forty-two CRGNB harbouring blaKPC-2 were detected: 41% corresponded to Aeromonas spp. (n = 58) and 59% to Enterobacteriaceae. To establish the resistance profile, 50% of the isolates were selected proportionally by family and sampling point (26 Aeromonadaceae and 45 Enterobacteriaceae). All Enterobacteriaceae showed resistance to carbapenems and penicillins + inhibitors, high percentages of resistance to ceftriaxone (88.9%), and ciprofloxacin (44.4%), and low resistance to other antibiotics (>30%). In Aeromonadaceae, 76.9% were resistant to ceftriaxone, 58% to carbapenems, and 65.4% to ciprofloxacin. Twenty-one resistance profiles were observed, the most common of which were resistant to penicillins + inhibitor, cephalosporins (third to fourth generation), and carbapenems (19%). The percentage of multidrug resistance was 91% and was similar at all points of the WWTP. CONCLUSIONS: The high frequency of multidrug resistance and great diversity of resistance profiles observed throughout the WWTP is of concern, and shows the role of WWTP as a reservoir and dissemination source of antimicrobial resistance to water sources.
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Carbapenémicos , Purificación del Agua , Carbapenémicos/farmacología , Colombia , Resistencia a Múltiples Medicamentos , ARN Ribosómico 16S/genéticaRESUMEN
Resumen Introducción: La higiene de manos quirúrgica, procedimiento esencial en cirugía; es una técnica que ha evolucionado y se ha ido actualizando tras el surgimiento de evidencia científica. El manual de la Organización Mundial de la Salud (OMS) publicado hace diez años es uno de los documentos que plasman cambios de esta técnica, como dejar de usar el cepillo. Sin embargo, es necesario analizar la evidencia actual con la finalidad de reconocer las nuevas tendencias de acuerdo con los resultados de las investigaciones publicadas. Objetivo: Realizar una revisión actualizada de la literatura sobre la higiene de manos quirúrgica. Desarrollo: El lavado de manos quirúrgico con cepillo es un procedimiento que se realiza en la mayoría de las instituciones hospitalarias de México; pocas han incursionado en la técnica en la que se omite el uso de cepillo. Existen diversos estudios que sustentan que el uso de cepillos debe ser erradicado debido al daño tisular que estos ocasionan. La abrasión dérmica provocada por el uso de cepillos origina que el personal se cepille las superficies de las manos y brazos por menos tiempo que el recomendado y esto a su vez impide un efecto idóneo por parte de los antisépticos. Las sustancias más recomendadas son la clorhexidina y las soluciones a base de alcohol. Conclusiones: La higiene de manos quirúrgica sin cepillo debe ser considerada debido a que disminuye costos hospitalarios, garantiza la efectividad de la descontaminación de manos, ocasiona menos lesiones dérmicas y contribuye a la reducción de las infecciones relacionadas al sitio quirúrgico.
Abstract Introduction: Hand hygiene for surgery is an essential clinical procedure whose technique has been evolving as the result of new scientific evidence. The related WHO manuals reflect the changes in this procedure; for example, the now non-binding need of using a brush. Nevertheless, it is necessary to continue analyzing the current evidence in order to recognize the new guidelines which are being established as the result of new published research. Objective: To carry out an updated literature review on hand hygiene for surgery. Development: Hand washing for surgery using a brush has long been a regular practice in Mexican hospitals, however, there are diverse studies which support the omission of brushes due to the tissue damage which these utensils can cause - including dermal abrasions which can make the staff tend to brush their hands and arms for less time in comparison to the recommended standards, resulting in incomplete antiseptic effects. Conclusions: Having in mind that some of the most recommended antiseptic substances are chlorhexidine and alcohol-based gels, hand hygiene for surgery without using a brush should be considered because it can reduce costs, guarantee hands decontamination, generate less dermal lesions, and contribute to the reduction of related surgical site infections.
Resumo Introdução: A higiene de mãos cirúrgica é um procedimento essencial em cirurgia; é uma técnica que evoluiu e se tem ido atualizando trás o surgimento de evidência científica. O manual da OMS publicado faz dez anos é um dos documentos que traduzem as mudanças desta técnica, como é deixar de usar a escova. No entanto, é necessário analisar a evidência atual com a finalidade de reconhecer as novas tendências conforme os resultados das pesquisas publicadas. Objetivo: Realizar uma revisão atualizada da literatura sobre a higiene de mãos cirúrgica. Desenvolvimento: O lavado de mãos cirúrgico com escova é um procedimento que se realiza na maioria das instituições hospitalares do México; poucas incursionaram na técnica na qual se omite o uso de escova. Existem diversos estudos que sustentam que o uso de escovas deve ser erradicado devido ao dano tissular que estes ocasionam. A abrasão dérmica provocada pelo uso de escovas origina que o pessoal se escove as superfícies das mãos e braços por menos tempo que o recomendado e isto por sua vez impede um efeito idóneo por parte dos antissépticos. As sustâncias mais recomendadas são a clorexidina e as soluções a base de álcool. Conclusões: A higiene de mãos cirúrgica sem escova deve ser considerada devido a que diminui custos hospitalares, garante a efetividade da descontaminação de mãos, ocasiona menos lesões dérmicas e contribui à redução das infecções relacionadas ao sítio cirúrgico.
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Abstract INTRODUCTION Malaria case management is a pivotal intervention in malaria elimination. However, many remote areas in Brazil still lack access to basic health services. This study describes a community-based approach (CBA) for malaria case management in the large remote area of the Jaú National Park (JNP), Amazonas, Brazil. METHODS In 2001, a general health CBA was initiated with a motor group (MG); a participative community health diagnosis (PCHD) was subsequently implemented between 2001 and 2005. In 2006, a CBA for malaria case management started with an expanded MG including all sectors with a stake in malaria control, from the local residents to the federal government. In 2008, community microscopists were selected and trained to diagnose hemoparasites. A full malaria strategy was implemented in 2009 with subsequent quality control follow-up. RESULTS Two educational materials were co-created with local communities. The MG identified malaria as a major health problem and the malaria MG planned the control activities. Ten communities selected a resident to become malaria microscopists, and ten solar-operated health centers were built. The number of slide readings increased from 923 in 2006 to 1,900 in 2009, while malaria infections decreased from 354 cases in 2005 to 20 cases in 2015. The excess time (≥ 48 hours) between first symptoms and diagnosis/treatment decreased from 68.9% of cases in 2005 to 14.3% in 2010. CONCLUSIONS While many factors were likely involved in the reduction of malaria transmission in the JNP, the CBA played an important role in the sustained success of the initiative.
Asunto(s)
Humanos , Población Rural , Servicios de Salud Comunitaria/organización & administración , Manejo de Caso , Malaria/diagnóstico , Malaria/tratamiento farmacológico , Brasil , Salud Pública , Investigación Participativa Basada en la ComunidadRESUMEN
It is presented an alternative biological method based on biomineralization mechanisms of Magnetotactic Bacteria (MTB) for the removal in groundwater, of soluble elements such as Fe+2and Mn+2. In first place, it was compared the effectiveness of MTB retention methods for obtention of concentrated volumes in microorganisms, then, it was carried out an inoculation process in groundwater samples and evaluate the removal rate of Fe+2 and Mn+2 in constant conditions of pH and temperature. It was identified electromagnetic method is more efficient in MTB retention, and that the inoculation processes of an enriched solution with MTB in groundwater samples allow to get average removal rates of 47.86% for Fe+2 and 15.26% for Mn+2. In addition, it was evaluated the removal rate of other metals due to magnetic properties of biominerals inside of MTB magnetosome. The highest removal in all cases occurred between the interval of 3 and 5â¯min of interaction and tended to stabilize in time.
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Agua Subterránea , Magnetosomas , Bacterias Aerobias , Hierro , ManganesoRESUMEN
Chagas disease (CHD) has become a challenge in Spain due to the high prevalence of immigrants coming from endemic areas. One of the main difficulties for its control and elimination is its underdiagnosis. The identification and integral treatment of CHD are key to increasing rates of diagnosis, overcoming psycho-social barriers and avoiding CHD progression. Community interventions with in situ screening have proven to be a useful tool in detecting CHD among those with difficulties accessing health services. To determine the underdiagnosis rate of the population most susceptible to CHD among those attending two different Bolivian cultural events celebrated in Barcelona; to describe the sociodemographic characteristics of the people screened; and to analyse the results of the screening. The community interventions were carried out at two Bolivian cultural events held in Barcelona in 2017. Participants were recruited through community health agents. A questionnaire was given to determine the participants' prior knowledge of CHD. In situ screening was offered to those who had not previously been screened. Those who did not wish to be screened were asked for the reason behind their decision. Results were gathered in a database and statistical analyses were performed using STATA v14. 635 interviews were carried out. 95% of the subjects reported prior knowledge of CHD. 271 subjects were screened: 71.2% women and 28.8% men, of whom 87.8% were of Bolivian origin. The prevalence of CHD was 8.9%. Community health interventions with in situ screening are essential to facilitating access to diagnosis.
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Enfermedad de Chagas , Bolivia/etnología , Enfermedad de Chagas/diagnóstico , Enfermedad de Chagas/epidemiología , Enfermedad de Chagas/etnología , Servicios de Salud Comunitaria , Emigrantes e Inmigrantes , Femenino , Conocimientos, Actitudes y Práctica en Salud , Humanos , Masculino , Tamizaje Masivo , Prevalencia , EspañaRESUMEN
With the objective of providing an insightful analysis of Chagas disease in the world, the authors share their collective reflections about the current situation of this public health problem in: rural environments of Latin America; urban environments of endemic and non-endemic areas everywhere; and, at a global level. A perspective based on the 'Democracy and Health Promotion' axis allowed the development of an innovative update about Chagas disease as a model of a complex socio-environmental health problem, with a key set of elements that goes beyond biomedical aspects. The authors created a dialogue between the fundamental elements of the Curitiba Statement on Health Promotion and Equity and crucial aspects of a reflection on the reality of Chagas disease today that at the same time challenges the different actors involved. With that reference, the call to promote a 'critical analysis of viabilities and opportunities for action, considering the potentialities and barriers imposed by the complexity of social movements in the present context of recedes and the loss of rights' was emphasized repeatedly. Finally, on the occasion of the recent creation of the Technical Group on Information, Education and Communication to control Chagas disease, WHO Department of Control of Neglected Tropical Diseases, the authors share reflections to propose an inclusive and transformative approach of health promotion-what we hope is a new horizon for people affected, directly and indirectly, by Chagas disease.
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Enfermedad de Chagas/prevención & control , Promoción de la Salud/organización & administración , Femenino , Promoción de la Salud/métodos , Derechos Humanos , Humanos , Masculino , Enfermedades Desatendidas/prevención & control , Política , Factores Socioeconómicos , Trypanosoma cruziRESUMEN
Inhaled radon and its progenies induce health concern due to high activity-concentration in selected thermal spas of Boyacá region. Hydrogeothermal water sources in a high risk seismic area, are studied to determine by water bubbling method radon concentration values; their occurrence is between few hundreds and 2000â¯Bqâ¯dm-3. Deposits, existing in this area, reach at the surface soil gas radon concentration up to 210â¯kBqâ¯m-3. Maintenance workers, health tourists and visitor's possible detrimental health effects, are discussed in relation to radon balneotherapy beneficial aspects.
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Balneología , Manantiales de Aguas Termales/análisis , Radón/análisis , Contaminantes Radiactivos del Agua/análisis , Colombia , Humanos , Turismo Médico , Exposición Profesional/efectos adversos , Exposición Profesional/análisis , Monitoreo de Radiación , Radón/efectos adversos , Contaminantes Radiactivos del Suelo/efectos adversos , Contaminantes Radiactivos del Suelo/análisis , Contaminantes Radiactivos del Agua/efectos adversosRESUMEN
RESUMEN El carcinoma metaplásico de mama es un tipo de cáncer infiltrante que asemeja un carcinoma de alto grado histológico, pero cuya incidencia es muy baja (< 1%). Desde el punto de vista anatomopatológico presenta un componente mixto epitelial y mesenquimal; siendo lo más característico su comportamiento clínico altamente agresivo junto con unas características anatomopatológicas, inmunohistoquímicas concordantes, como son el HER2/neu negativo, los receptores hormonales negativos, el tamaño tumoral grande y el alto grado histológico. Por todo ello, resulta de especial interés conocer esta entidad, con la finalidad de realizar un diagnóstico preciso y llevar a cabo un tratamiento adecuado en estas pacientes. En el presente artículo se presenta la revisión de dos casos clínicos de cáncer de mama metaplásico, diagnosticados y tratados en nuestro Hospital durante el año 2015 y 2018.
ABSTRACT The metaplastic breast cancer is a subtype of an infiltranting breast cancer and it's usually high grade. However it is a rare subtype of cancer (incidence <1%). This cancer has an epithelial and connective tissues, which has an epithelial invasor ductal breast cancer with high grade and sarcomas breast. The main characteristic of the metaplastic breast cancer is their high agressive behavior as clinical as anatomopathological, which immunohistochemical expression is like a triple negative breast cancer. Because of this we consider that their knowledge is very important with the purpose of being diagnosed in women. In this paper it is showed a revision of two cases of metaplastic breast cancer, whose diagnostic and treatment were reported in our Centre.
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Humanos , Femenino , Persona de Mediana Edad , Anciano , Neoplasias de la Mama/patología , Carcinoma/patología , Metaplasia/patología , Sarcoma , Neoplasias de la Mama/terapia , Neoplasias de la Mama/diagnóstico por imagen , Carcinoma/terapia , Carcinoma/diagnóstico por imagen , MastectomíaAsunto(s)
Enfermedad de Chagas/diagnóstico , Accesibilidad a los Servicios de Salud , Adulto , Bolivia/etnología , Enfermedad de Chagas/epidemiología , Enfermedad de Chagas/terapia , Servicios de Salud Comunitaria , Femenino , Humanos , Masculino , Tamizaje Masivo , Prevalencia , España/epidemiologíaRESUMEN
The Catalonian Expert Patient Programme on Chagas disease is a initiative, which is part of the Chronic Disease Programme. It aims to boost responsibility of patients for their own health and to promote self-care. The programme is based on nine sessions conducted by an expert patient. Evaluation was focusing in: habits and lifestyle/self-care, knowledge of disease, perception of health, self-esteem, participant satisfaction, and compliance with medical follow-up visits. Eighteen participants initiated the programme and 15 completed it. The participants were Bolivians. The 66.7 % of them had been diagnosed with chagas disease in Spain. The 100 % mentioned that they would participate in this activity again and would recommend it to family and friends. The knowledge about disease improve after sessions. The method used in the programme could serve as a key strategy in the field of comprehensive care for individuals with this disease.
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Enfermedad de Chagas/etnología , Enfermedad de Chagas/terapia , Conocimientos, Actitudes y Práctica en Salud/etnología , Educación del Paciente como Asunto/organización & administración , Autocuidado/métodos , Adulto , Bolivia/etnología , Enfermedad de Chagas/psicología , Enfermedad Crónica , Estado de Salud , Humanos , Estilo de Vida , Persona de Mediana Edad , Cooperación del Paciente/etnología , Satisfacción del Paciente/etnología , Percepción , Autoimagen , España/epidemiologíaRESUMEN
El artículo da cuenta de un estudio internacional realizado entre octubre de 2011 y enero de 2012, como fundamento para el diseño y elaboración de un material audiovisual (spot) con el objeto de sensibilizar y visibilizar la problemática del Chagas. La investigación, de carácter cualitativo, recogió los datos de 38 encuestas, respondidas por personas afectadas y especialistas en la temática. La información para cada grupo se ordenó según aspectos que las personas asociaban con la palabra Chagas, y dificultades, retos, desafíos y logros vinculados. Para cada punto se presenta un análisis de las respuestas, relatos y anécdotas relacionadas. Las conclusiones refuerzan la necesidad de conocer y dar a conocer las dificultades que viven las personas afectadas por el Chagas, considerando que se trata de una realidad que tiene diversas manifestaciones dependiendo del contexto...
O artigo apresenta um estudo internacional realizado entre outubro de 2011 e janeiro de 2012, no qual se baseou o desenho e elaboração de um vídeo (spot) que tinha como objetivo a sensibilização e promoção da visibilidade da problemática vinculada à doença de Chagas. A pesquisa, de caráter qualitativo, analisou a informação recolhida por meio de 38 questionários respondidos por pessoas afetadas e especialistas sobre a doença. A informação, para cada um dos dois grupos, foi classificada de acordo com os aspectos que as pessoas associavam com a palavra Chagas, e as dificuldades, adversidades, desafios e conquistas vinculadas com a doença. Para cada um dos referidos aspectos, apresenta-se uma análise das respostas, relatos e anedotas. As conclusões reforçam a necessidade de se conhecer e divulgar as dificuldades vividas pelas pessoas afetadas pela doença de Chagas, tendo em mente que se trata de uma realidade que se manifesta de forma diversa dependendo do contexto...
This paper presents an international study that was conducted between October 2011 and January 2012, in which a video (spot) to boost awareness and raise the profile of Chagas disease issues was designed and developed. This study was of qualitative nature and analyzed information that was gathered from 38 questionnaires that had been answered by individuals affected by the disease and by specialists on this disease. The information from each group was classified according to factors that they associated with the word Chagas, along with the difficulties, adversities, challenges, objectives and achievements relating to the disease. The responses, reports and anecdotes relating to each of these factors were analyzed. The conclusions emphasize the need to know and make known the difficulties that people affected by Chagas disease experience, bearing in mind that the realities are manifested differently depending on the context...
Asunto(s)
Humanos , Masculino , Femenino , Adulto , Persona de Mediana Edad , Enfermedad de Chagas , Materiales Educativos y de Divulgación , Comunicación en SaludRESUMEN
La relación enfermera-paciente es un proceso de interacción basado en una serie de contactos donde se establece la comunicación. La empatía y el respeto son componentes de una relación terapéutica que se manifiestan por medio de la comunicación verbal y no verbal de los individuos. La transmisión de mensajes que establece el personal de enfermería al brindar cuidado puede ser terapéutica generando aspectos benéficos y cambios positivos en la salud de los individuos. El conocer la percepción de los pacientes sobre los comportamientos de las enfermeras que reflejan empatía y respeto, permite detectar fortalezas y aspectos a mejorar en la relación enfermera-paciente y contribuir al incremento en la satisfacción de los usuarios. Objetivo. Describir la percepción de los pacientes sobre la empatía y el respeto que manifiestan las enfermeras y contribuir a la validez de constructo del instrumento CECOP. Metodología. Observacional, descriptivo y transversal realizado en un hospital de tercer nivel de atención de la ciudad de México. La muestra probabilística fue integrada por 350 pacientes hospitalizados. Se empleó el instrumento CECOP-23 el cual cuenta con validez de contenido. Resultados. La percepción de los pacientes sobre el respeto que le manifiestan las enfermeras fueron altos (49.04/55±5.00), teniendo mayor puntaje que la empatía (44.35/60±8.84). Ambos resultados coinciden con las calificaciones otorgadas por los pacientes en una escala análoga: empatía (8.83) y respeto (9.31). La valoración global de la relación enfermera-paciente también obtuvo puntajes altos (93.39/115±12.18). Conclusiones. La empatía y el respeto que manifiestan las enfermeras es percibida por los pacientes dentro de estándares altos, lo anterior favorece la relación terapéutica. Los componentes que la conforman deben evaluarse constantemente para asegurar una atención de calidad, empática y respetuosa. Implicaciones para la práctica. Se propone desarrollar programas de educación continua dirigidos a las enfermeras para incrementar sus habilidades en la comunicación enfermera-paciente enfatizando los aspectos relacionados con la empatía para con ello desencadenar una relación terapéutica óptima que incremente la satisfacción del profesional de enfermería y de los pacientes.
The nurse-patient relationship is an interaction process based on a series of contacts where communication is established. Empathy and respect are components of a therapeutic relationship that are manifested through verbal and non-verbal communication of individuals. The transmission of messages established by the nursing staff when providing care can be therapeutic, generating beneficial aspects and positive changes in the health of individuals. Knowing the perception of patients on the behaviors of nurses that reflect empathy and respect, allows to detect strengths and aspects to improve in the nurse-patient relationship and contribute to the increase in user satisfaction. Objective. Describe the perception of patients about the empathy and respect shown by nurses and contribute to the construct validity of the CECOP instrument. Methodology. Observational, descriptive and cross-sectional carried out in a tertiary care hospital in Mexico City. The probabilistic sample consisted of 350 hospitalized patients. The CECOP-23 instrument was used, which has content validity. Results. The patients' perception of the respect shown by the nurses was high (49.04 / 55 ± 5.00), having a higher score than empathy (44.35 / 60 ± 8.84). Both results coincide with the scores given by the patients on an analogous scale: empathy (8.83) and respect (9.31). The global assessment of the nurse-patient relationship also obtained high scores (93.39 / 115 ± 12.18). Conclusions. The empathy and respect shown by the nurses is perceived by the patients within high standards, the above favors the therapeutic relationship. The components that comprise it must be constantly evaluated to ensure quality, empathetic and respectful care. Implications for practice. It is proposed to develop continuing education programs aimed at nurses to increase their skills in nurse-patient communication, emphasizing aspects related to empathy in order to trigger an optimal therapeutic relationship that increases the satisfaction of the nursing professional and the patients.
Asunto(s)
Humanos , Respeto , Pacientes , EmpatíaRESUMEN
BACKGROUND: Chagas disease (CD) is endemic in countries of continental Latin America. Congenital transmission is a major concern worldwide. In 2010, the Public Health Agency of Catalonia (ASPCAT) launched a screening protocol for Trypanosoma cruzi infection in pregnant women and their newborns. In 2012, ASPCAT detected appropriate follow-up of pregnant women but incomplete information about their offspring. METHODS: The PROSICS community health team carried out active surveillance and community health action in target populations. These activities included active case searches, group awareness workshops and visualization campaigns as well as investigation of all lost children born from pregnant women with CD and their families. RESULTS: Overall, 42/179 (23.5%) cases were included in the study: 35/42 (83.3%) children were born in Hospitalet de Llobregat (Catalonia, Spain); 4/42 (16.7%) were born in Latin America; two were miscarried and one was stillborn. The mean age of pregnant women was 31.3 years (SD 5.52; range: 21-44): 90.5% were Bolivian, of whom 74% were diagnosed with CD during pregnancy. Of the 35 newborns, 31 were recovered by community health action; 12/31 were correctly controlled at Hospitalet de Llobregat and 19/31 were controlled at a primary health centre. Of these 19 (73.7%) cases, 14 were not tested for CD by family paediatricians and were recovered by the PROSICS community health team. Finally, two (6.9%) of the 29 newborns tested with serology were positive. CONCLUSIONS: It is essential to implement active surveillance, education and information activities at paediatric primary care and community levels to avoid the loss of CD-infected mothers and their newborns. Training sessions addressed to paediatricians and other involved health professionals would consolidate surveillance and care reference circuits, improving the control of congenital CD.