RESUMEN
BACKGROUND: To effectively care for people who are terminally ill, including those without decision-making capacity, palliative care physicians must know and understand the legal standing of Advance Care Planning in their jurisdiction of practice. This includes the use of advance directives/living wills and substitute decision-makers who can legally consent to or refuse treatment if there is no valid advance directive. AIM: This study aimed to investigate the knowledge, attitudes and practices of medical specialists most often involved in end-of-life care in relation to the law on withholding/withdrawing life-sustaining treatment from adults without decision-making capacity. DESIGN/PARTICIPANTS: A pre-piloted survey was posted to specialists in palliative, emergency, geriatric, renal and respiratory medicine; intensive care; and medical oncology in three Australian States. Surveys were analysed using SPSS 20 and SAS 9.3. RESULTS: The overall response rate was 32% (867/2702) - 52% from palliative care specialists. Palliative care specialists and geriatricians had significantly more positive attitudes towards the law (χ42(2) = 94.352; p < 0.001) and higher levels of knowledge about the withholding/withdrawing life-sustaining treatment law (χ7(2) = 30.033; p < 0.001) than did the other specialists, while still having critical gaps in their knowledge. CONCLUSION: A high level of knowledge of the law is essential to ensure that patients' wishes and decisions, expressed through Advance Care Planning, are respected to the maximum extent possible within the law, thereby according with the principles and philosophy of palliative care. It is also essential to protect health professionals from legal action resulting from unauthorised provision or cessation of treatment.
Asunto(s)
Planificación Anticipada de Atención/legislación & jurisprudencia , Conocimientos, Actitudes y Práctica en Salud , Cuidados para Prolongación de la Vida/legislación & jurisprudencia , Cuidados Paliativos/legislación & jurisprudencia , Cuidado Terminal/legislación & jurisprudencia , Privación de Tratamiento/legislación & jurisprudencia , Adulto , Anciano , Anciano de 80 o más Años , Actitud del Personal de Salud , Australia , Femenino , Humanos , Masculino , Persona de Mediana EdadRESUMEN
This study aims to determine the perspectives of older community members and service providers in relation to design and location of affordable rental housing in a coastal retirement area of NSW, Australia. This was achieved by holding focus groups and interviews with older community members (n = 21) and service providers (n = 43). All participants reported a shortage of affordable rental housing suitable for older people in the area. The preferred option was for cluster units, possibly with an on-site carer, located in or close to town. Participants agreed that if choice was limited to "one-bedroom with large living area" or "two-bedrooms with small living area," the majority of single older people would choose the former option, provided there was adequate storage. The importance of asking the "right" question was demonstrated by responses to options for one- or two-bedroom units. Further research is needed to identify what baby boomers think will meet their need for future affordable housing.