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Introduction: Multiple sclerosis significantly affects the quality of life of those suffering from this specific condition. Objective: To assess the quality of life of people with multiple sclerosis and analyse the correlation between the disease and its associated effects and different sociodemographic, clinical, and functional variables. Materials and Methods: An observational, cross-sectional, descriptive-correlational and quantitative study conducted using a non-probabilistic convenience sample composed of 70 patients suffering from multiple sclerosis registered with the Multiple Sclerosis Association of the Central Region of Portugal. The data collection protocol included sociodemographic and clinical questions, the Family Apgar Scale, and the Barthel Index. Descriptive and inferential statistics were used to process the data. Data collection took place between April and July 2021. Results: The majority of participants reported a moderate overall quality of life (M=51,78 ± 24,09). Higher scores were observed in the social relationships and environmental health domains, while lower scores were recorded for the physical domain. Better quality of life was found to be positively associated with being under 45 years old, having higher educational qualifications, living in functional families, and experiencing greater functional independence in activities of daily living. Discussion: The variables with the strongest association were those capable of influencing the physical and social domains. Those variables explained 59.00% and 53.00% of the variability. Conclusions: These results indicate that people with multiple sclerosis have a compromised quality of life, highlighting the need for new strategies focusing on early diagnosis and effective preventive interventions meant to improve quality of life across all its domains.

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This dataset provides longitudinal survey data from a European project, ySKILLS, which was focused on the role of digital skills in youths' development. It contains data from 10,821 participants from Grades 6-10 (in Wave 1) in Estonia, Finland, Germany, Italy, Poland, and Portugal. The data was collected between Spring 2021 and Spring 2023, the participants were recruited through schools, where the data collection also took place, except for online data collections due to restrictions caused by COVID-19. The dataset is novel in its multidimensional approach to the construct of digital literacy. It provides insight into the development of digital skills in youth and the role of digital skills and internet usage in youths' positive and negative online experiences and wellbeing. It also contains data that allows for the analysis of the role of digital skills in class networks. The data are beneficial for researchers interested in the examination of youths' online skills, internet usage, online experiences, and wellbeing from a longitudinal perspective.

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O presente relatório de estágio surge no âmbito do Mestrado em Enfermagem à Pessoa em Situação Crítica da Escola Superior de Saúde do Instituto Politécnico de Leiria, com vista à obtenção do grau de Mestre, sendo constituído por duas partes. Na primeira parte é realizada uma análise reflexiva das aprendizagens que ao longo dos Três Ensinos Clínicos, realizados no Serviço de Urgência e Unidade Cuidados Intensivos do Hospital Distrital de Santarém e Clínica de Hemodiálise DaVita ­ Óbidos, proporcionaram o desenvolvimento de competências pessoais e sociais, assim como das competências comuns e específicas do Enfermeiro Especialista em Enfermagem à Pessoa em Situação Crítica. A segunda parte deste relatório é composto por um estudo descritivo-correlacional cujo tema foi "Segurança do doente e eventos adversos associados à prática de enfermagem num serviço de urgência". Para principal objetivo foi definido caraterizar os eventos adversos associados às práticas de enfermagem, percecionados pelos enfermeiros, num serviço de urgência, tendo o mesmo sido realizado com 62 enfermeiros. Os principais resultados demonstraram: uma melhor adesão das práticas de enfermagem nas dimensões "Higienização das mãos" e "Cuidados com equipamentos de proteção individual" e pior adesão na "Prevenção de UP"; uma maior perceção de ocorrência ou risco na dimensão "Risco e ocorrência de IACS" e menor perceção na dimensão "Risco de agravamento/complicações do estado do paciente, por falhas na advocacia e delegação"; a existência de quatro dimensões com correlações com significado estatístico, com a idade, tempo de serviço profissional no SU e tempo de exercício profissional ("Falhas de comunicação associadas à administração de medicação", "Prevenção de quedas", Cuidados com equipamento de proteção individuais" e "Risco de agravamento/complicações do estado do paciente, por falhas na advocacia e delegação"); os principais eventos adversos percecionados pelos enfermeiros estão relacionados com as práticas preventivas de enfermagem e as principais medidas propostas para minimizar a ocorrência desses eventos estão relacionadas com o ambiente da prática de enfermagem.

This internship report is part of the Master's Degree in Critical Care Nursing of the School of Health of the Polytechnic Institute of Leiria, with a view to obtaining a Master's degree. The first part is a reflective analysis of the learning experiences that, throughout the three Clinical Training Sessions, carried out in the Emergency Service and Intensive Care Unit of the District Hospital of Santarém and in the Haemodialysis Clinic DaVita - Óbidos, provided the development of personal and social skills, as well as the common and specific skills of the Nurse Specialist in Critical Care Nursing. The second part of this report is composed of a descriptive-correlational study whose theme was "Patient safety and adverse events associated with nursing practice in an emergency service". The main objective was to characterise the adverse events associated with nursing practices, as perceived by nurses in an emergency service. The main results showed a better adherence to nursing practices in the dimensions "Hand hygiene" and "Care with personal protective equipment" and worse adherence in "PU prevention"; a higher perception of occurrence or risk in the dimension "Risk and occurrence of HAIs" and lower perception in the dimension "Risk of worsening/complications of the patient's condition, due to failures in advocacy and delegation"; The existence of four dimensions with statistically significant correlations with age, length of professional service in the ER and length of professional practice ("Communication failures associated with medication administration", "Falls prevention", Care with individual protective equipment" and "Risk of worsening/complications of the patient's condition due to failures in advocacy and delegation"); the main adverse events perceived by nurses are related to preventive nursing practices and the main measures proposed to minimize the occurrence of these events are related to the nursing practice environment.

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WHAT IS KNOWN AND OBJECTIVE: Carbaglu® or N-carbamylglutamate (NCG) is not recommended for administration in a vehicle other than water. We aim to report the use of breast milk (BM) as an alternative vehicle in a neonate rejecting NCG diluted in water. CASE SUMMARY: A neonate diagnosed with methylmalonic acidemia presented symptomatology of acidemia and hyperammonemia. After the patient refused oral NCG administration, a dissolution test was conducted in BM showing correct dissolution. The NCG-BM solution was tolerated and plasma ammonium concentrations remained within range in subsequent analytical controls. WHAT IS NEW AND CONCLUSION: BM as a vehicle for NCG is a safe and effective option for patients who refuse suspension in water and could lead to better treatment compliance in paediatric patients.

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Objetivo: Analizar los factores relacionados con el sufrimiento en pacientes crónicos dentro del contexto hospitalario. Método: Estudio cuantitativo de tipo descriptivo-correlacional y transversal. Realizado en un hospital en el centro de Portugal, entre enero y junio de 2013. Se seleccionó una muestra por conveniencia de 307 pacientes crónicos. Las variables recogidas mediante cuestionario fueron: edad, sexo, estado civil, situación laboral, ingreso mensual, percepción de funcionamiento familiar (Smilkinstein), patología clínica, espiritualidad (Pinto y Pais-Ribeiro) y grado de sufrimiento (McIntyre y Gameiro). El proyecto fue aprobado por el comité de ética del hospital. Los participantes firmaron un consentimiento informado. Resultados: El sufrimiento global de los pacientes crónicos estudiados a nivel hospitalario es moderado (M=3,01), en una escala de 1 a 5, siendo la dimensión psicológica la más afectada (M=3,18). Los pacientes ancianos sufren más físicamente y presentan más experiencias positivas. Las mujeres presentan mayor sufrimiento socio-relacional y psicológico. Por otra parte, las personas que viven solas, con un ingreso mensual inferior a 300 euros, con un nivel de escolaridad baja, con la percepción de perteneciente a una familia disfuncional y con patología de tipo neurológico, son las que más sufren. La regresión lineal múltiple demostró que la espiritualidad se correlaciona significativamente de manera inversa con el sufrimiento. Las creencias son responsables por el 6% de la varianza explicada del sufrimiento y la esperanza/optimismo de un 3,3%. Conclusiones: Las personas con enfermedades crónicas hospitalizadas experimentan un sufrimiento multidimensional, con intensidad variable y que se correlaciona con varios factores. Estas variables deben considerarse para una adecuada planificación de la atención sanitaria a esta población adaptada a sus necesidades específicas.(AU)

Objective: To analyse the factors related to suffering in chronic patients within the hospital context. Method: Descriptive-correlational and cross-sectional quantitative study. Conducted in a hospital in central Portugal, between January and June 2013. A convenience sample of 307 chronic patients was selected. The variables collected through the questionnaire were: age, sex, marital status, employment status, monthly income, perception of family functioning (Smilkinstein), clinical pathology, spirituality (Pinto and Pais-Ribeiro) and degree of suffering (McIntyre and Gameiro). The project was approved by the hospital's ethics committee. The participants signed an informed consent form. Results: The global suffering of chronic patients studied at the hospital level is moderate (M=3.01), on a scale of 1 to 5, with the psychological dimension being the most affected (M=3.18). Elderly patients suffer more physically and have more positive experiences. Women present greater socio-relational and psychological suffering. On the other hand, people who live alone, with a monthly income of less than 300 euros, with a low level of education, with the perception of belonging to a dysfunctional family and with neurological pathology, suffer the most. Multiple linear regression showed that spirituality is significantly inversely correlated with suffering. Beliefs are responsible for 6.0% of the explained variance of suffering and hope / optimism for 3.3%. Conclusions: People with chronic hospitalized diseases experience multidimensional suffering, with variable intensity and that is correlated with several factors. These variables must be considered for correct planning of health care for this population adapted to their specific needs.(AU)

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OBJECTIVE: To analyse the factors related to suffering in chronic patients within the hospital context. METHOD: Descriptive-correlational and cross-sectional quantitative study. Conducted in a hospital in central Portugal, between January and June 2013. A convenience sample of 307 chronic patients was selected. The variables collected through the questionnaire were: age, sex, marital status, employment status, monthly income, perception of family functioning (Smilkinstein), clinical pathology, spirituality (Pinto and Pais-Ribeiro) and degree of suffering (McIntyre and Gameiro). The project was approved by the hospital's ethics committee. The participants signed an informed consent form. RESULTS: The global suffering of chronic patients studied at the hospital level is moderate (M=3.01), on a scale of 1 to 5, with the psychological dimension being the most affected (M=3.18). Elderly patients suffer more physically and have more positive experiences. Women present greater socio-relational and psychological suffering. On the other hand, people who live alone, with a monthly income of less than 300 euros, with a low level of education, with the perception of belonging to a dysfunctional family and with neurological pathology, suffer the most. Multiple linear regression showed that spirituality is significantly inversely correlated with suffering. Beliefs are responsible for 6.0% of the explained variance of suffering and hope / optimism for 3.3%. CONCLUSIONS: People with chronic hospitalized diseases experience multidimensional suffering, with variable intensity and that is correlated with several factors. These variables must be considered for correct planning of health care for this population adapted to their specific needs.

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Resumo Objetivo Identificar a prevalência das perturbações músculo-esqueléticas em adolescentes e analisar a sua relação com variáveis sociodemográficas, antropométricas e contextuais. Métodos Conceptualizou-se um estudo observacional, transversal, descritivo/relacional de cariz quantitativo, que envolveu 632 adolescentes de seis agrupamentos de escolas das zonas centro e norte de Portugal, com média de idades de 13,36 anos. O protocolo de colheita de dados integrava questões de cariz sociodemográfico, antropométrico, contextual e ainda o "Questionário Nórdico Músculo-Esquelético" para avaliar as perturbações músculo-esqueléticas. Resultados Os dados mostraram que 47,4% dos adolescentes referem perturbação músculo-esqueléticas nos últimos 3 meses, localizando-se estas aos níveis dos ombros (27,8%), região dorsal (25,3%), coxa/anca (26,1%), pescoço (23,4%), zona lombar (22,8%) e joelhos (19,6%). Verificou-se ainda, que as perturbações músculo-esqueléticas são mais prevalentes nos adolescentes do género feminino, naqueles que gastam mais tempo por dia a ver televisão e ainda nos que se deslocam para a escola a pé ou de bicicleta. Conclusão A prevalência das perturbações músculo-esqueléticas nos adolescentes é elevada, tem origem multicausal, tornando-se imperativa a implementação de intervenções de prevenção e readaptação promotoras de um funcionamento músculo-esquelético otimizado.

Resumen Objetivos Identificar la prevalencia de trastornos musculoesqueléticos en adolescentes y analizar su relación con variables sociodemográficas, antropométricas y contextuales. Métodos Se conceptualizó un estudio observacional, transversal, descriptivo/relacional de aspecto cuantitativo, que incluyó 632 adolescentes de seis agrupamientos de escuelas de la zona centro y norte de Portugal, con promedio de edad de 13,36 años. El protocolo de recolección de datos incluyó cuestiones de aspecto sociodemográfico, antropométrico, contextual e, inclusive, el "Cuestionario Nórdico Musculoesquelético" para evaluar los trastornos musculoesqueléticos. Resultados Los datos mostraron que el 47,4% de los adolescentes señalan trastornos musculoesqueléticos en los últimos 3 meses, localizados en el nivel de los hombros (27,8%), región dorsal (25,3%), muslo/cadera (26,1%), cuello (23,4%), zona lumbar (22,8%) y rodillas (19,6%). Además, se verificó que los trastornos musculoesqueléticos tienen mayor prevalencia en adolescentes de género femenino, en los que pasan más tiempo por día viendo televisión y en los que van a la escuela caminando o en bicicleta. Conclusión La prevalencia de los trastornos musculoesqueléticos en adolescentes es elevada, tiene origen multicausal, por lo que se torna imperativa la implementación de intervenciones de prevención y readaptación que promuevan un funcionamiento musculoesquelético optimizado.

Abstract Objective To identify the prevalence of musculoskeletal disorders in adolescents, and to analyze this prevalence relationship with sociodemographic, anthropometric and contextual variables. Methods An observational, cross-sectional, descriptive/relational study with quantitative approach was conceptualized, involving 632 adolescents with mean age of 13.36 from six school groups from Central and North Portugal. Data collection protocol included questions of sociodemographic, anthropometric and contextual nature, and also the "Nordic Musculoskeletal Questionnaire" to assess musculoskeletal disorders. Results Data showed that 47.4% of adolescents mentioned musculoskeletal disorders within the last 3 months, located in the shoulders (27.8%), dorsal region (25.3%), thigh/hips (26.1%), neck (23.4%), lumbar region (22.8%), and knees (19.6%). We found that musculoskeletal disorders are more prevalent in female adolescents, and among those who spend longer time watching television per day, and also those who go to school by foot or bicycle. Conclusion The prevalence of musculoskeletal disorders in adolescents is high and has multicausal origin, turning imperative the implementation of preventive and readapted actions to promote a better musculoskeletal function.

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